Strategies for handling data around informed consent; the protection of identities; and the ethical handling of data with NVivo.

1. Meet NVivo:
Nvivo, Ethics and IRBs
www.queri.com
Kristi Jackson, MEd PhD
kjackson@queri.com
303-832-9502

2. Session 1
◦ NVivo and successfully defended dissertations
Session 2
◦ NVivo and the dissertation literature review
Session 3
◦ NVivo, ethics and IRBs
Session 4
◦ NVivo and your dissertation defense

3. Large group
Small group
One-on-one
Independent work
Stay a 4th day
at no extra cost
www.Queri.com

4. 1. History
2. The Belmont Report
3. Informed Consent
4. Data security and audit trails
5. Confidentiality as an event
6. Confidentiality as a process
7. Conclusion/recommendations

5. 1932-1972 Tuskegee Study
◦ United States Public Health Services
◦ Tuskegee as a partner (traditionally black college)
◦ Study of natural progression of untreated syphilis
◦ Rural, black men in Alabama
◦ Information withheld regarding their diagnosis
◦ Deceived into thinking they were receiving treatment
1960’s Milgram Study
◦ Willingness of participants to obey authority figure
Authority figure (instruct the subject to deliver shock)
Actor in adjacent room (pretend to receive the shock)
Subject (thinks he or she is delivering the shock)
◦ Repeated around the world
◦ Article 1963; Book 1974

6. National Commission for the Protection of
Human Subjects of Biomedical and Behavioral
Research
◦ Respect for Persons
Individual autonomy
Protection of individuals with reduced autonomy
◦ Beneficence
Maximize benefits
Minimize harm
◦ Justice
Equitable distribution of research costs and benefits

7. Consent form: An event
◦ Research purpose, duration, procedures
◦ Risks/benefits
◦ Confidentiality
◦ Right to refuse or withdraw
◦ Contact information
Informed consent: A process
◦ Full disclosure of the nature of the research and
participation is only a starting point
◦ Participants may have evolving ideas as they:
Comprehend the process over time
Voluntarily choose to participate at each step

8. Microsoft Word files
NVivo makes copies and
stores them internally

9. File Options

11. File Info Project Properties

12. File Info Open Project Event Log

13. File Info Project Properties Passwords

20. Text
Audio
Video
Photographs
Tweets
Prepare for this in your IRB submission
Check your IRB

21. Howe, K., Dougherty, K. (1993). Ethics, IRB's,
and the changing face of educational
research. Educational Researcher, 22(9), 16-
21.
Howe, K., Moses, M. (1999). Ethics in
educational research. In A. Iran-Nejad & P.
D. Pearson Eds., the Review of Research in
Education, vol. 24, pp. 21-60. Washington,
D.C.: American Educational Research
Association.

22. Event
A
Event
B
Event
C
Event
D
Event
F

23. So, it's definitely a major
dance. I mean, . . . in the
past, research has . . . been
somewhat hurtful to many
of these communities. I
don't know that I'm saying
this correctly, but it's an
EXTREMELY IMPORTANT
responsibility to be
transparent but also be
THOUGHTFUL about how
you're impacting
communities and entire
CULTURES of people when
reporting your view of what
you've learned
I’m thankful that I’m not
the only student who
noticed that the ethical
handling of data is a dance.
I’ve been so concerned with
the protection of the
individuals in this study, it
never occurred to me that
part of the principle of
beneficence might pertain
to groups or cultures that
have been misrepresented
or disenfranchised. I would
have completely missed
this in my own study.
memo/journal interview transcript

24. Session 1
◦ NVivo and successfully defended dissertations
Session 2
◦ NVivo and the dissertation literature review
Session 3
◦ NVivo, ethics and IRBs
Session 4
◦ NVivo and your dissertation defense

25. Large group
Small group
One-on-one
Independent work
Stay a 4th day
at no extra cost
www.Queri.com

26. Meet NVivo:
Nvivo, Ethics and IRBs
www.queri.com
Kristi Jackson, MEd PhD
kjackson@queri.com
303-832-9502