Workshop PPIE Steering commitee, 04.04.2019 LBG Open Innovation in Science Center

1. www.ois.lbg.ac.at
Levels of “participation“
Arnstein, ladder of participation, 1969
White et al., Stufenmodell der Partizipation, 2010
EMPOWERMENT
CONTROL
information
consultation
participation
collaboration
partnerships
decision-making
self-organisation

2. www.ois.lbg.ac.at
How to involve?
https://www.invo.org.uk/
National Institute of Health Research
PARTICIPATION
INVOLVEMENT
ENGAGEMENT
Citizens and patients take part in research studies.
e.g., being recruited in clinical trials, completing questionnaires,
participating in focus groups.
Information & knowledge about research
is provided & disseminated.
e.g., dissemination of research results to public (via media, social media),
raising awareness of research through media, science festivals/open day at
universities/research centres.
Citizens and patients are actively involved in research.
e.g., as grant holders or co-applicants, identifying research priorities, agenda setting,
members of a project advisory or steering group, co-developing of patient information
or materials, undertaking interviews with participants, carrying out research.

3. www.ois.lbg.ac.at
Involvement in the research process
Tell Us!
Crowdsourcing on Mental Health
& Accidential injuries
(OIS Center 2015, 2018)
Collaborative writing
Crowd research @MIT
(Vaish, 2017)
Dissemination
Research
agenda
Study
design
Data
collection
Data
analysis
Peer evaluation
designing & conducting
interviews with/by youth
(Powers & Tiffany, 2006)
Stallcatchers
gamified approach Alzheimer
(Wired, 2017, SciStarter 2019)
Advisory board
public & patient
representatives