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Moffitt Diversity




            ACCESS to Care:
Building a Culture of Diversity & Inclusion



             Cathy Grant, Director
            Friday, August 5, 2011
           Florida Diversity Council
Objective
• About Moffitt

• Health Disparities

• Cultural and Linguistic Competence

• Diversity & Inclusion at Moffitt
About Moffitt Cancer Center
• Single Mission – The Prevention and cure of cancer
• Celebrating 25th Anniversary
• Only NCI designate cancer center in FL
• Staff –4,287 Total Employees
• Moffitt is licensed for 206 beds
• From 2009 to 2010
   • Admissions grew from 7,742 to 8,616
   • Outpatient grew from 289,502 to 320,558
• As of October 2010, grant funding at Moffitt increased to
  $83.8 million
Cancer Programs
•   Blood & Marrow Transplantation
•   Don & Erika Wallace Comprehensive Breast Program
•   Cutaneous Oncology
•   Gastrointestinal Malignancies
•   Genitourinary Oncology
•   Gynecologic Oncology
•   Head & Neck Oncology
•   Internal and Hospital Medicine
•   Malignant Hematology
•   Neuro-Oncology
•   Psychosocial & Palliative Care
•   Radiation Oncology
•   Sarcoma
•   Senior Adult Oncology
•   Thoracic Oncology
Video: Justine’s Story
Demographics

                                 White                  Latino             Black   Asian   Multicultural
                             (Not Hispanic)

     United States                63.7%                 16.3%          12.6%       4.8%       2.9%


     Florida                      57.9%                 22.5%          16.0%       2.4%       2.5%


     Hillsborough                 53.7%                 24.9%          16.7%       3.4%       3.1%
     County




Source: US Census: http://quickfacts.census.gov/qfd/states/12/12057.html
Language
    24% speak a language other than English at home

              77% speak Spanish
              23% other language
              40% reported not speaking English “very well”




Source: U.S. Census Bureau, 2005-2009 American Community Survey
Health Disparities

Differences or gaps in care experienced by one population
   compared with another population which can result in less
   access to care, a poorer quality of care, and higher death
   rates from certain diseases.
Prostate Cancer
                                                               Age-Adjusted Death Rates per 100,000 Persons
                                                                   By Race & Hispanic Origin: U.S. (2005)
        A ge-A djusted D eath R ate per 100,000 Persons



                                                          60
                                                                                     53.3
                                                          55
                                                          50
                                                          45
                                                          40
                                                          35
                                                          30
                                                                 24.5
                                                          25               22.6
                                                                                                  17.6                     18.5
                                                          20
                                                          15                                                  10.4
                                                          10
                                                           5
                                                           0
                                                               All Races   White    African     American Asian/Pacific   Hispanic
                                                                                   American   Indian/Alaska Islander
                                                                                                  Native

Center for Disease Control and Prevention, Office of Minority Health and Health
Disparities. An Overview. http://www.pitt.edu/~super4/39011-
40001/39961.ppt#259,1,Office of Minority Health and Health Disparities (OMHD)
Breast Cancer
                        Age-Adjusted Death Rates per 100,000 Persons
                            by Race & Hispanic Origin: U.S. (2005)
              A g e -A d ju s te d D e a th R a te p e r 1 0 0 ,0 0 0 P e rs o n s

                                                                                     35                         32.8

                                                                                     30

                                                                                            24.1      23.4
                                                                                     25

                                                                                     20
                                                                                                                             15.2                     15.0
                                                                                     15                                                  12.2

                                                                                     10

                                                                                      5

                                                                                      0
                                                                                          All Races   White    African     American Asian/Pacific   Hispanic
                                                                                                              American   Indian/Alaska Islander
                                                                                                                             Native

Center for Disease Control and Prevention, Office of Minority Health and Health Disparities.
An Overview. http://www.pitt.edu/~super4/39011-40001/39961.ppt#259,1,Office of Minority
Health and Health Disparities (OMHD)
Colon, Rectum & Anus Cancer
              Age-Adjusted Death Rates per 100,000 Persons
                  by Race & Hispanic Origin: U.S. (2005)

                                                                                       24.8
              Age-Adjusted Death Rate per 100,000 Persons




                                                            25


                                                            20
                                                                   17.5      16.9

                                                            15
                                                                                                    12.0                        12.4
                                                                                                                  11.2

                                                            10


                                                            5


                                                            0
                                                                 All Races   White    African     American    Asian/Pacific   Hispanic
                                                                                     American   Indian/Alaska   Islander
                                                                                                    Native


Center for Disease Control and Prevention, Office of Minority Health and Health
Disparities. An Overview. http://www.pitt.edu/~super4/39011-
40001/39961.ppt#259,1,Office of Minority Health and Health Disparities (OMHD)
Trachea, Bronchus & Lung Cancer
              Age-Adjusted Death Rates per 100,000 Persons
                  by Race & Hispanic Origin: U.S. (2005)
                                                                                                                   58.4
                 A g e -A d ju s te d D e a th R a te p e r 1 0 0 ,0 0 0 P e rs o n s
                                                                                        60
                                                                                        55     52.6      53.1

                                                                                        50
                                                                                        45
                                                                                        40
                                                                                                                                34.1
                                                                                        35
                                                                                        30                                                  25.7
                                                                                        25                                                               22.4
                                                                                        20
                                                                                        15
                                                                                        10
                                                                                         5
                                                                                         0
                                                                                             All Races   White    African     American Asian/Pacific   Hispanic
                                                                                                                 American   Indian/Alaska Islander
                                                                                                                                Native
Center for Disease Control and Prevention, Office of Minority Health and Health
Disparities. An Overview. http://www.pitt.edu/~super4/39011-
40001/39961.ppt#259,1,Office of Minority Health and Health Disparities (OMHD)
Racial/Ethnic Disparities in
                     Health Care
Differential utilization based on race for within Medicare:

     Mammography (Gornick et al.)
     Amputations (Gornick et al.)
     Influenza vaccination (Gornick et al.)
     Lung Ca Surgery (Bach et al.)
     Renal Transplantation (Ayanian et al.)
     Cardiac catherization & angioplasty (Harris et al, Ayanian et al.)
     Coronary artery bypass graft (Peterson et al.)
     Treatment of chest pain (Johnson et al.)
     Referral to cardiology specialist care (Schulman et al.)
     Pain management (Todd et al.)
Potential Reasons for Disparities in Care
     Patient Level                                                       Health Care Organization /
     •    Patient preferences                                              Systems Level
     •    Treatment resistance /                                         • Lack of access to care
          compliance                                                     • Lack of interpretation and
     •    Health perceptions                                               translation services
     •    Care seeking behaviors and                                     • Time pressures on
          attitudes                                                        physicians and other
     •    Clinical appropriateness of                                      clinical staff
          care
                                                                         • Geographic availability of
                                                                           health care institutions
     Provider Level
     •    Bias                                                           • Changes in the financing
     •    Stereotyping                                                     and delivery of health care
     •    Clinical uncertainty                                             services
     •    Poorer quality of care
     •    Lack of patient-centered care
     •    Unconscious and automatic

Source: Unequal Treatment: Confronting Racial and Ethnic Disparities in Healthcare,
March 2002.
Minorities Less Involved in Their Health Care
      Decisions Than They Would Like to Be
Percent of adults involved in health care decision as much as they wanted



                  75%               78%
        80%                                           73%
                                                                        65%
                                                                                   56%


        40%




         0%
                 Total             White            African           Hispanic    Asian
                                                   American                      American


              Source: The Commonwealth Fund 2001 Health Care Quality Survey.
Hispanics and African Americans
More Likely to Feel Treated with Disrespect
   Percent of adults who felt they were treated with disrespect

 20%                                                        18%
                                          16%
                                                                         13%
        11%
 10%                     9%




  0%
        Total           White            African          Hispanic       Asian
                                        American                        American

       Source: The Commonwealth Fund 2001 Health Care Quality Survey.
Focus of Efforts
A.C.C.E.S.S. to Care
• Enhance Moffitt Cancer Center’s image among at-risk and
  underserved communities through delivery of culturally and
  linguistically competent care, prevention education and mutually
  beneficial partnerships;


Culture of Diversity & Inclusion
• Serve as a resource, as well as, identify opportunities to increase
  Moffitt’s preparedness when serving diverse communities.
A.C.C.E.S.S.
•   Awareness and Education
•   Community Outreach
•   Cultural and Linguistic Competence
•   Equity and Inclusion
•   Support Other initiatives (Technical Assistance)
•   Strong Partnerships
Definition of Culture
Integrated patterns of human behavior that include the
   language, thoughts, communications, actions, customs,
   beliefs, values, roles, relationships, and institutions of
   racial, ethnic, religious, or social groups
Cultural Competence
Cultural Competence is defined as “a set of behaviors, skills,
   attitudes, knowledge, practices, policies, and strategies that
   together enables the Moffitt workforce to work effectively
   in cross-cultural situations to improve:

   (1) Patient safety;
   (2) Patient satisfaction;
   (3) Access to and utilization of care; and
   (4) Quality of care
   (5) Workforce diversity; and
   (6) Participation in clinical trials and research
Why CLC?
• Beyond the “right thing to do”………..

• Changing demographics

• Health care services that are respectful of and responsive to
  the health beliefs, practices and cultural and linguistic needs
  of diverse patients can help bring about positive health
  outcomes.
•
• Growing evidence as an important strategy for reducing
  health disparities

• Legal and regulatory mandates
Improving Quality of Care
• Diverse and Limited English Proficiency (LEP) patients are
  less likely than others to receive the most effective,
  evidence-based treatments for certain conditions

• Diverse populations report more communication difficulties
  with their physicians, less involvement in clinical decisions,
  more difficulty understanding instructions on prescriptions,
  and instructions from physician’s staff
Improving Patient Safety
• Diverse and Limited English Proficiency (LEP) patients
  suffer more medical errors with greater clinical
  consequences

• Communication problems may lead to misdiagnosis,
  inappropriate treatment, and limit authentic informed
  consent
Improving Patient Satisfaction

Good patient/provider communication is linked to better
  patient satisfaction, adherence to treatment
  recommendations, and improved health outcomes
Reducing Liability

Communication issues are a key component of claims
  filed by patients whose culture, ethnicity, religion
  and/or English language ability differ from that of the
  healthcare provider
Five Essential Elements of a
     Culturally Competent System
•   Value Diversity

•   Have the capacity for cultural self-assessment

•   Be conscious of the dynamics inherent when cultures
    interact

•   Have institutionalized cultural knowledge

•   Have developed adaptations to diversity
                                                          27
Lost in Translation…
Linguistic Competence
Readily available and culturally appropriate
  communication and language services and supports,
  and vital documents and informing materials, for
  patients and family members through such means as
  bilingual/bicultural staff, and professional medical
  interpreters and translators
Impact of Language Barriers
•   When Lacking Language Assistance
    •   Less likely to have a Primary Care Physician (PCP)
    •   More likely to not go to follow up appointments
    •   More like to be in fair or poor health
    •   Medication instructions errors
    •   Less satisfied with the health care received

•   With available Language Assistance
    •   Successful patient-provider relationship
    •   Standard medical interview techniques – complete exchange of
        information
    •   Empathic connection
It’s the Law!
                     Title VI of the Civil Rights Act
                                  of 1964
       “No person in the United States shall, on ground of race, color, or
       national origin, be excluded from participation in, or be denied the
       benefits of, or be subjected to discrimination under any program or
                 activity receiving Federal financial assistance.”

•    Who is covered?
•    Extent of obligation: Four-factor analysis
•    State requirements


    www.os.dhhs.gov/ocr/civilrights/resources/specialtopics/lep/
Awareness and Education
Focused on each person’s role in reaching the center’s
  Diversity-related mission and goals

   •   Diversity Unplugged
   •   Employee Networks – GLAAM
   •   New Hire Orientation
   •   Diverse Voices – E-Newsletter
   •   National Minority Cancer Awareness Week
Community Outreach/Relations
Increase visibility and knowledge by providing information about the
   importance of cancer prevention, healthy lifestyles, and early
   detection of cancer to our most at-risk, under-served and under-
   insured communities.

    • Capacity – Building Programs
        • Lay Health Advisors
        • Cancer Education Toolkits

    • Health Education Workshops
        •   Culturally relevant; low literacy
        •   Prostate; Breast; Cervical; Colon; Healthy Lifestyles
        •   Haitian Initiative / Witness Project (Komen)
        •   EmpowerMENt Project
        •   Moffitt Healthy KIDZ
        •   ¡Salud!

    • Access to Mammography Screening
Community Outreach/Relations
                        (cont.)

• Annual Men’s Health Forum
  (English / Spanish)

• Community Benefit

• National Minority Cancer Awareness
  Week (NMCAW) - 3rd Week of April

• Micro Award for Cancer Community
  Health Initiatives (MACCHI)
Language Services
• Staff
   • Two Translators
   • Five Spanish Interpreters
   • One Spanish/American Sign Language interpreter


• Pacific Interpreters - 180 languages and dialects
• Video Remote Interpreting (VRI)
Other Inclusion Efforts
• Supplier Diversity

• Recruitment & Retention
     Diversity Scholarship
     School at Work
     Candidate pool
Ongoing Challenges
•   History
•   Resistance to change: internal and external
•   Competing priorities
•   Culture: internal and external
•   Trust
•   Resources / Money: Internal and external
THANK YOU!

  Dialogue
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Tampa Bay Diversity Council - Educational Portion 8.5.11 - Moffitt Cancer Center

  • 1. Moffitt Diversity ACCESS to Care: Building a Culture of Diversity & Inclusion Cathy Grant, Director Friday, August 5, 2011 Florida Diversity Council
  • 2. Objective • About Moffitt • Health Disparities • Cultural and Linguistic Competence • Diversity & Inclusion at Moffitt
  • 3. About Moffitt Cancer Center • Single Mission – The Prevention and cure of cancer • Celebrating 25th Anniversary • Only NCI designate cancer center in FL • Staff –4,287 Total Employees • Moffitt is licensed for 206 beds • From 2009 to 2010 • Admissions grew from 7,742 to 8,616 • Outpatient grew from 289,502 to 320,558 • As of October 2010, grant funding at Moffitt increased to $83.8 million
  • 4. Cancer Programs • Blood & Marrow Transplantation • Don & Erika Wallace Comprehensive Breast Program • Cutaneous Oncology • Gastrointestinal Malignancies • Genitourinary Oncology • Gynecologic Oncology • Head & Neck Oncology • Internal and Hospital Medicine • Malignant Hematology • Neuro-Oncology • Psychosocial & Palliative Care • Radiation Oncology • Sarcoma • Senior Adult Oncology • Thoracic Oncology
  • 6. Demographics White Latino Black Asian Multicultural (Not Hispanic) United States 63.7% 16.3% 12.6% 4.8% 2.9% Florida 57.9% 22.5% 16.0% 2.4% 2.5% Hillsborough 53.7% 24.9% 16.7% 3.4% 3.1% County Source: US Census: http://quickfacts.census.gov/qfd/states/12/12057.html
  • 7. Language 24% speak a language other than English at home 77% speak Spanish 23% other language 40% reported not speaking English “very well” Source: U.S. Census Bureau, 2005-2009 American Community Survey
  • 8. Health Disparities Differences or gaps in care experienced by one population compared with another population which can result in less access to care, a poorer quality of care, and higher death rates from certain diseases.
  • 9. Prostate Cancer Age-Adjusted Death Rates per 100,000 Persons By Race & Hispanic Origin: U.S. (2005) A ge-A djusted D eath R ate per 100,000 Persons 60 53.3 55 50 45 40 35 30 24.5 25 22.6 17.6 18.5 20 15 10.4 10 5 0 All Races White African American Asian/Pacific Hispanic American Indian/Alaska Islander Native Center for Disease Control and Prevention, Office of Minority Health and Health Disparities. An Overview. http://www.pitt.edu/~super4/39011- 40001/39961.ppt#259,1,Office of Minority Health and Health Disparities (OMHD)
  • 10. Breast Cancer Age-Adjusted Death Rates per 100,000 Persons by Race & Hispanic Origin: U.S. (2005) A g e -A d ju s te d D e a th R a te p e r 1 0 0 ,0 0 0 P e rs o n s 35 32.8 30 24.1 23.4 25 20 15.2 15.0 15 12.2 10 5 0 All Races White African American Asian/Pacific Hispanic American Indian/Alaska Islander Native Center for Disease Control and Prevention, Office of Minority Health and Health Disparities. An Overview. http://www.pitt.edu/~super4/39011-40001/39961.ppt#259,1,Office of Minority Health and Health Disparities (OMHD)
  • 11. Colon, Rectum & Anus Cancer Age-Adjusted Death Rates per 100,000 Persons by Race & Hispanic Origin: U.S. (2005) 24.8 Age-Adjusted Death Rate per 100,000 Persons 25 20 17.5 16.9 15 12.0 12.4 11.2 10 5 0 All Races White African American Asian/Pacific Hispanic American Indian/Alaska Islander Native Center for Disease Control and Prevention, Office of Minority Health and Health Disparities. An Overview. http://www.pitt.edu/~super4/39011- 40001/39961.ppt#259,1,Office of Minority Health and Health Disparities (OMHD)
  • 12. Trachea, Bronchus & Lung Cancer Age-Adjusted Death Rates per 100,000 Persons by Race & Hispanic Origin: U.S. (2005) 58.4 A g e -A d ju s te d D e a th R a te p e r 1 0 0 ,0 0 0 P e rs o n s 60 55 52.6 53.1 50 45 40 34.1 35 30 25.7 25 22.4 20 15 10 5 0 All Races White African American Asian/Pacific Hispanic American Indian/Alaska Islander Native Center for Disease Control and Prevention, Office of Minority Health and Health Disparities. An Overview. http://www.pitt.edu/~super4/39011- 40001/39961.ppt#259,1,Office of Minority Health and Health Disparities (OMHD)
  • 13. Racial/Ethnic Disparities in Health Care Differential utilization based on race for within Medicare: Mammography (Gornick et al.) Amputations (Gornick et al.) Influenza vaccination (Gornick et al.) Lung Ca Surgery (Bach et al.) Renal Transplantation (Ayanian et al.) Cardiac catherization & angioplasty (Harris et al, Ayanian et al.) Coronary artery bypass graft (Peterson et al.) Treatment of chest pain (Johnson et al.) Referral to cardiology specialist care (Schulman et al.) Pain management (Todd et al.)
  • 14. Potential Reasons for Disparities in Care Patient Level Health Care Organization / • Patient preferences Systems Level • Treatment resistance / • Lack of access to care compliance • Lack of interpretation and • Health perceptions translation services • Care seeking behaviors and • Time pressures on attitudes physicians and other • Clinical appropriateness of clinical staff care • Geographic availability of health care institutions Provider Level • Bias • Changes in the financing • Stereotyping and delivery of health care • Clinical uncertainty services • Poorer quality of care • Lack of patient-centered care • Unconscious and automatic Source: Unequal Treatment: Confronting Racial and Ethnic Disparities in Healthcare, March 2002.
  • 15. Minorities Less Involved in Their Health Care Decisions Than They Would Like to Be Percent of adults involved in health care decision as much as they wanted 75% 78% 80% 73% 65% 56% 40% 0% Total White African Hispanic Asian American American Source: The Commonwealth Fund 2001 Health Care Quality Survey.
  • 16. Hispanics and African Americans More Likely to Feel Treated with Disrespect Percent of adults who felt they were treated with disrespect 20% 18% 16% 13% 11% 10% 9% 0% Total White African Hispanic Asian American American Source: The Commonwealth Fund 2001 Health Care Quality Survey.
  • 17. Focus of Efforts A.C.C.E.S.S. to Care • Enhance Moffitt Cancer Center’s image among at-risk and underserved communities through delivery of culturally and linguistically competent care, prevention education and mutually beneficial partnerships; Culture of Diversity & Inclusion • Serve as a resource, as well as, identify opportunities to increase Moffitt’s preparedness when serving diverse communities.
  • 18. A.C.C.E.S.S. • Awareness and Education • Community Outreach • Cultural and Linguistic Competence • Equity and Inclusion • Support Other initiatives (Technical Assistance) • Strong Partnerships
  • 19.
  • 20. Definition of Culture Integrated patterns of human behavior that include the language, thoughts, communications, actions, customs, beliefs, values, roles, relationships, and institutions of racial, ethnic, religious, or social groups
  • 21. Cultural Competence Cultural Competence is defined as “a set of behaviors, skills, attitudes, knowledge, practices, policies, and strategies that together enables the Moffitt workforce to work effectively in cross-cultural situations to improve: (1) Patient safety; (2) Patient satisfaction; (3) Access to and utilization of care; and (4) Quality of care (5) Workforce diversity; and (6) Participation in clinical trials and research
  • 22. Why CLC? • Beyond the “right thing to do”……….. • Changing demographics • Health care services that are respectful of and responsive to the health beliefs, practices and cultural and linguistic needs of diverse patients can help bring about positive health outcomes. • • Growing evidence as an important strategy for reducing health disparities • Legal and regulatory mandates
  • 23. Improving Quality of Care • Diverse and Limited English Proficiency (LEP) patients are less likely than others to receive the most effective, evidence-based treatments for certain conditions • Diverse populations report more communication difficulties with their physicians, less involvement in clinical decisions, more difficulty understanding instructions on prescriptions, and instructions from physician’s staff
  • 24. Improving Patient Safety • Diverse and Limited English Proficiency (LEP) patients suffer more medical errors with greater clinical consequences • Communication problems may lead to misdiagnosis, inappropriate treatment, and limit authentic informed consent
  • 25. Improving Patient Satisfaction Good patient/provider communication is linked to better patient satisfaction, adherence to treatment recommendations, and improved health outcomes
  • 26. Reducing Liability Communication issues are a key component of claims filed by patients whose culture, ethnicity, religion and/or English language ability differ from that of the healthcare provider
  • 27. Five Essential Elements of a Culturally Competent System • Value Diversity • Have the capacity for cultural self-assessment • Be conscious of the dynamics inherent when cultures interact • Have institutionalized cultural knowledge • Have developed adaptations to diversity 27
  • 29. Linguistic Competence Readily available and culturally appropriate communication and language services and supports, and vital documents and informing materials, for patients and family members through such means as bilingual/bicultural staff, and professional medical interpreters and translators
  • 30. Impact of Language Barriers • When Lacking Language Assistance • Less likely to have a Primary Care Physician (PCP) • More likely to not go to follow up appointments • More like to be in fair or poor health • Medication instructions errors • Less satisfied with the health care received • With available Language Assistance • Successful patient-provider relationship • Standard medical interview techniques – complete exchange of information • Empathic connection
  • 31. It’s the Law! Title VI of the Civil Rights Act of 1964 “No person in the United States shall, on ground of race, color, or national origin, be excluded from participation in, or be denied the benefits of, or be subjected to discrimination under any program or activity receiving Federal financial assistance.” • Who is covered? • Extent of obligation: Four-factor analysis • State requirements www.os.dhhs.gov/ocr/civilrights/resources/specialtopics/lep/
  • 32. Awareness and Education Focused on each person’s role in reaching the center’s Diversity-related mission and goals • Diversity Unplugged • Employee Networks – GLAAM • New Hire Orientation • Diverse Voices – E-Newsletter • National Minority Cancer Awareness Week
  • 33. Community Outreach/Relations Increase visibility and knowledge by providing information about the importance of cancer prevention, healthy lifestyles, and early detection of cancer to our most at-risk, under-served and under- insured communities. • Capacity – Building Programs • Lay Health Advisors • Cancer Education Toolkits • Health Education Workshops • Culturally relevant; low literacy • Prostate; Breast; Cervical; Colon; Healthy Lifestyles • Haitian Initiative / Witness Project (Komen) • EmpowerMENt Project • Moffitt Healthy KIDZ • ¡Salud! • Access to Mammography Screening
  • 34. Community Outreach/Relations (cont.) • Annual Men’s Health Forum (English / Spanish) • Community Benefit • National Minority Cancer Awareness Week (NMCAW) - 3rd Week of April • Micro Award for Cancer Community Health Initiatives (MACCHI)
  • 35. Language Services • Staff • Two Translators • Five Spanish Interpreters • One Spanish/American Sign Language interpreter • Pacific Interpreters - 180 languages and dialects • Video Remote Interpreting (VRI)
  • 36. Other Inclusion Efforts • Supplier Diversity • Recruitment & Retention Diversity Scholarship School at Work Candidate pool
  • 37. Ongoing Challenges • History • Resistance to change: internal and external • Competing priorities • Culture: internal and external • Trust • Resources / Money: Internal and external
  • 38. THANK YOU! Dialogue Questions Comments