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21 St Clair Avenue East, Suite 403 Toronto, ON, M4T 1L8
T: 416-961-5552 • F: 416-961-5516 • E: opa@psych.on.ca • W: www.psych.on.ca
	
  
	
  
August	
  24th
,	
  2016	
  
	
  
Mr.	
  Paul	
  Dubé	
  
Ombudsman	
  
Office	
  of	
  the	
  Ombudsman	
  
Bell	
  Trinity	
  Square	
  
South	
  Tower,	
  10th	
  Floor	
  
483	
  Bay	
  Street	
  
Toronto,	
  Ontario	
  M5G	
  2C9	
  
	
  
Re:	
  Response	
  to	
  the	
  "Ombudsman	
  Report	
  on	
  Situations	
  of	
  Crisis	
  Involving	
  Adults	
  with	
  Developmental	
  
Disabilities”	
  
	
  
Dear	
  Mr.	
  Dubé,	
  
	
  
As	
  the	
  incoming	
  President	
  of	
  the	
  Ontario	
  Psychological	
  Association	
  (OPA),	
  I	
  would	
  like	
  to	
  thank	
  you	
  and	
  
your	
  team	
  for	
  all	
  the	
  work	
  you	
  have	
  done	
  to	
  date	
  and	
  will	
  continue	
  to	
  do	
  on	
  behalf	
  of	
  adults	
  with	
  
developmental	
  disabilities.	
  As	
  a	
  neuropsychologist	
  whose	
  practice	
  cares	
  directly	
  for	
  those	
  who	
  are	
  
homeless,	
  I	
  can	
  attest	
  to	
  the	
  impact	
  your	
  investigations	
  and	
  recommendations	
  have	
  had	
  on	
  the	
  most	
  
vulnerable	
  among	
  us.	
  	
  
	
  
As	
  you	
  indicated	
  in	
  your	
  report,	
  despite	
  the	
  progress	
  being	
  made	
  by	
  the	
  Ontario	
  government	
  since	
  your	
  
last	
  report	
  was	
  released,	
  a	
  number	
  of	
  challenges	
  persist.	
  Access	
  to	
  sufficient	
  publicly	
  funded	
  
psychological	
  diagnostic	
  services	
  in	
  the	
  province	
  required	
  by	
  Developmental	
  Services	
  Ontario	
  (DSO)	
  is	
  
still	
  lacking.	
  This	
  is	
  particularly	
  true	
  in	
  Family	
  Health	
  Teams	
  (FHTs)	
  and	
  Community	
  Health	
  Centers	
  
(CHCs).	
  These	
  models	
  of	
  primary	
  care	
  are	
  more	
  likely	
  to	
  serve	
  persons	
  with	
  intellectual	
  disabilities	
  since	
  
these	
  inter-­‐professional	
  team	
  models	
  are	
  more	
  likely	
  to	
  provide	
  both	
  the	
  health	
  care	
  and	
  social	
  services	
  
that	
  the	
  homeless,	
  including	
  those	
  with	
  Developmental	
  Disorders	
  require.	
  Including	
  psychologists	
  in	
  
Every	
  primary	
  care	
  team	
  in	
  the	
  province	
  would	
  help	
  reduce	
  wait	
  times	
  to	
  access	
  DSO	
  resources	
  and	
  
contribute	
  to	
  the	
  overall	
  wellness	
  of	
  persons	
  with	
  developmental	
  disabilities	
  and	
  other	
  vulnerable	
  
persons.	
  	
  
	
  
That	
  being	
  said,	
  innovative	
  practices	
  have	
  been	
  made	
  possible	
  as	
  a	
  result	
  of	
  recent	
  Ministry	
  of	
  
Community	
  and	
  Social	
  Services	
  (MCSS)	
  investments.	
  In	
  February	
  2014,	
  Minister	
  Helena	
  Jaczek	
  
established	
  “The	
  Developmental	
  Services	
  Housing	
  Task	
  Force”	
  to	
  search	
  for	
  innovative,	
  cost-­‐effective	
  
housing	
  solutions	
  for	
  adults	
  with	
  developmental	
  disabilities.	
  	
  
	
  
The	
  “Bridges	
  to	
  Housing	
  Project”,	
  a	
  partnership	
  between	
  The	
  City	
  of	
  Toronto,	
  Community	
  Living	
  
Toronto,	
  Streets	
  to	
  Homes,	
  and	
  Inner	
  City	
  Family	
  Health	
  Team	
  in	
  collaboration	
  with	
  Developmental	
  
Services	
  Ontario	
  (DSO),	
  arose	
  from	
  this	
  funding	
  opportunity.	
  This	
  demonstration	
  project	
  initially	
  set	
  out	
  
to	
  offer	
  clinical	
  and	
  case	
  management	
  supports	
  to	
  help	
  find	
  and	
  sustain	
  appropriate	
  housing	
  for	
  a	
  group	
  
of	
  25	
  chronically	
  homeless	
  persons	
  with	
  developmental	
  disabilities.	
  	
  
	
  
 	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  
	
  
	
   -­‐	
  2	
  -­‐	
  
As	
  the	
  project	
  progressed	
  towards	
  its	
  end	
  goals,	
  we	
  soon	
  discovered	
  that	
  a	
  sizeable	
  proportion	
  of	
  the	
  
homeless	
  had	
  developmental	
  disabilities.	
  Yet,	
  they	
  had	
  never	
  before	
  been	
  connected	
  to	
  DSO.	
  These	
  
homeless	
  individuals	
  presented	
  with	
  numerous	
  co-­‐occurring	
  mental	
  and	
  physical	
  health	
  challenges,	
  in	
  
addition	
  to	
  their	
  developmental	
  disorders.	
  While	
  their	
  complicated	
  mix	
  of	
  problems	
  requires	
  a	
  full	
  
complement	
  of	
  interdisciplinary	
  professionals	
  to	
  stabilize	
  them	
  and	
  maximize	
  their	
  cognitive-­‐functional	
  
potential,	
  resources	
  were	
  limited.	
  The	
  project	
  team	
  recognized	
  that	
  being	
  innovative	
  was	
  critical	
  to	
  
ensure	
  that	
  every	
  individual	
  with	
  developmental	
  disabilities	
  experiencing	
  homelessness	
  receive	
  the	
  care	
  
and	
  supports	
  needed	
  to	
  exit	
  homelessness.	
  A	
  significant	
  challenge	
  was	
  to	
  identify	
  those	
  with	
  
Developmental	
  Disorders	
  from	
  amongst	
  the	
  large	
  number	
  of	
  homeless	
  people	
  in	
  Toronto	
  GTA.	
  
	
  
As	
  a	
  result	
  of	
  the	
  funding	
  and	
  our	
  innovative	
  work	
  to	
  date,	
  the	
  project	
  team	
  is	
  now	
  in	
  a	
  position	
  to	
  
effectively	
  and	
  rapidly	
  triage	
  all	
  those	
  individuals	
  living	
  in	
  shelters.	
  Early	
  estimates	
  from	
  our	
  program	
  
evaluation	
  show	
  that	
  approximately	
  7-­‐10%	
  of	
  the	
  homeless	
  in	
  Toronto	
  have	
  a	
  Developmental	
  Disability	
  
that	
  was	
  previously	
  undetected.	
  	
  
	
  
Our	
  triage	
  process	
  includes	
  a	
  tool	
  developed	
  for	
  use	
  by	
  the	
  primary	
  care	
  frontline	
  provider.	
  The	
  “Rapid	
  
Assessment	
  of	
  Residential	
  Support	
  (RARS)”	
  is	
  flagging	
  approximately	
  25%	
  of	
  the	
  homeless	
  population	
  as	
  
potentially	
  having	
  a	
  Developmental	
  Disability.	
  By	
  ruling	
  out	
  75%	
  of	
  the	
  population,	
  the	
  resources	
  that	
  are	
  
needed	
  to	
  provide	
  comprehensive	
  assessments	
  for	
  those	
  individuals	
  most	
  likely	
  to	
  have	
  a	
  
Developmental	
  Disability	
  are	
  used	
  appropriately	
  and	
  are	
  not	
  wasted	
  on	
  needless	
  in-­‐depth	
  assessments	
  
for	
  the	
  majority	
  of	
  the	
  homeless	
  population.	
  	
  
	
  
Blitzing	
  exercises	
  at	
  the	
  various	
  shelters	
  in	
  the	
  Greater	
  Toronto	
  Area	
  (GTA)	
  are	
  then	
  conducted	
  following	
  
the	
  initial	
  RARS	
  triage.	
  Residents	
  with	
  suspected	
  Developmental	
  Disorders	
  are	
  invited	
  to	
  participate	
  in	
  a	
  
“Neuropsychology	
  Screening	
  Assessment”.	
  The	
  advantage	
  of	
  providing	
  a	
  bedside	
  service	
  to	
  the	
  
homeless	
  is	
  that	
  the	
  client’s	
  functional	
  impairments	
  are	
  not	
  a	
  prohibitive	
  factor	
  in	
  accessing	
  
psychological	
  care.	
  Traditional	
  care	
  requiring	
  patients	
  to	
  go	
  to	
  hospitals	
  or	
  facilities	
  often	
  result	
  in	
  no-­‐	
  
shows	
  due	
  to	
  client’s	
  cognitive	
  impairment	
  and	
  or	
  prohibitive	
  transportation	
  costs.	
  	
  	
  
	
  
The	
  Neuropsychological	
  Screening	
  Assessment	
  involves	
  a	
  30-­‐40-­‐minute	
  session	
  with	
  a	
  neuropsychologist	
  
that	
  includes	
  an	
  interview	
  and	
  testing	
  that	
  allows	
  us	
  to	
  reliably	
  predict	
  the	
  presence	
  of	
  an	
  intellectual	
  
disability.	
  Within	
  the	
  25%	
  who	
  are	
  flagged	
  as	
  possibly	
  having	
  a	
  developmental	
  disability,	
  about	
  50%	
  have	
  
their	
  diagnosis	
  of	
  a	
  Developmental	
  Disorder	
  confirmed	
  by	
  a	
  neuropsychologist.	
  The	
  other	
  50%	
  have	
  
conditions	
  that	
  resemble	
  the	
  impact	
  of	
  a	
  Developmental	
  Disorder	
  on	
  their	
  cognitive	
  and	
  functional	
  
abilities.	
  These	
  individuals	
  show	
  the	
  signs	
  and	
  symptoms	
  of	
  cognitive/learning	
  disorders,	
  severe	
  mental	
  
illness	
  (often	
  related	
  to	
  physical	
  and	
  psychological	
  trauma),	
  acquired	
  brain	
  injury,	
  and	
  dementia.	
  
	
  
Those	
  individuals	
  identified	
  as	
  highly	
  suspected	
  of	
  having	
  a	
  Developmental	
  Disability	
  then	
  receive	
  the	
  full	
  
assessment	
  required	
  for	
  DSO/ODSP	
  purposes.	
  Those	
  who	
  have	
  the	
  other	
  conditions	
  mentioned	
  
previously	
  receive	
  a	
  report	
  of	
  the	
  findings,	
  a	
  series	
  of	
  recommendations	
  and	
  referrals	
  to	
  
appropriate	
  programs	
  and	
  services.	
  	
  
	
  
As	
  it	
  currently	
  stands,	
  our	
  team	
  can	
  see	
  up	
  to	
  21	
  clients	
  per	
  day	
  per	
  visit	
  to	
  a	
  shelter	
  for	
  
neuropsychological	
  screening.	
  	
  With	
  an	
  estimated	
  1250	
  homeless	
  requiring	
  a	
  screening	
  assessment	
  and	
  
likely	
  around	
  500	
  clients	
  requiring	
  a	
  full	
  DSO/ODSP	
  workup,	
  progress	
  is	
  slow	
  and	
  could	
  benefit	
  from	
  a	
  
strategic	
  investment.	
  	
  
 	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  
	
  
	
   -­‐	
  3	
  -­‐	
  
	
  
Our	
  partnership	
  with	
  the	
  Ministry	
  of	
  Community	
  and	
  Social	
  Services’	
  Developmental	
  Services	
  Ontario	
  
Toronto	
  Region	
  (DSO-­‐TR)	
  program	
  and	
  Surrey	
  Place	
  has	
  allowed	
  the	
  project	
  team	
  to	
  admit	
  an	
  individual	
  
into	
  the	
  DSO	
  program	
  quickly.	
  	
  The	
  timeframe	
  for	
  homeless	
  clients	
  to	
  access	
  DSO	
  resources	
  has	
  been	
  
reduced	
  from	
  6	
  months	
  to	
  2	
  years	
  (depending	
  on	
  various	
  circumstances)	
  to	
  about	
  2-­‐3	
  weeks	
  and	
  
includes	
  the	
  psychological	
  diagnosis,	
  admission	
  to	
  DSO	
  and	
  the	
  completion	
  of	
  DSO’s	
  Support	
  Intensity	
  
Scale	
  (SIS)	
  assessment.	
  The	
  impact	
  on	
  clients	
  is	
  impressive	
  and,	
  with	
  the	
  added	
  rent	
  subsidy	
  by	
  the	
  City	
  
of	
  Toronto	
  (up	
  to	
  $400	
  per	
  client	
  on	
  top	
  of	
  the	
  ODSP),	
  more	
  people	
  are	
  able	
  to	
  afford	
  housing.	
  
	
  
To	
  further	
  improve	
  the	
  system	
  for	
  homeless	
  populations	
  with	
  developmental	
  disabilities,	
  the	
  following	
  
are	
  recommended:	
  
• Increase	
  passport	
  funding	
  access	
  to	
  the	
  homeless	
  and	
  make	
  it	
  more	
  flexible	
  and	
  purposeful	
  for	
  them.	
  
• Invest	
  in	
  supported	
  housing	
  specifically	
  for	
  those	
  with	
  Developmental	
  Disabilities	
  that	
  has	
  on-­‐site	
  24	
  
hour	
  supports	
  since	
  there	
  are	
  major	
  gaps	
  in	
  living	
  arrangements	
  for	
  this	
  population.	
  	
  
• Make	
  ODSP	
  an	
  automatic	
  approval	
  upon	
  receipt	
  of	
  DSO	
  application.	
  
• Increase	
  access	
  to	
  psychologists	
  in	
  Family	
  Health	
  Teams	
  and	
  Community	
  Health	
  Centres.	
  
• Support	
  a	
  research	
  study	
  to	
  test	
  the	
  use	
  of	
  the	
  RARS	
  and	
  the	
  Neuropsychological	
  Screening	
  
Assessment	
  tool	
  in	
  Family	
  Health	
  Teams	
  and	
  Community	
  Health	
  Centres	
  that	
  have	
  access	
  to	
  
psychologists.	
  	
  
	
  
	
  
Kind	
  regards,	
  
	
  
	
  
Dr.	
  Sylvain	
  Roy,	
  Ph.D.	
  C.Psych.	
  
President-­‐Elect,	
  Ontario	
  Psychological	
  Association	
  
Neuropsychologist	
  and	
  Lead	
  Clinician,	
  Bridges	
  to	
  Housing	
  Program	
  
Inner	
  City	
  Family	
  Health	
  Team	
  
	
  
	
  
Cc	
  	
   Dr.	
  Helena	
  Jaczek,	
  Minister,	
  Ministry	
  of	
  Community	
  and	
  Social	
  Services	
  
	
   Dr.	
  Eric	
  Hoskins,	
  Minister,	
  Ministry	
  of	
  Health	
  and	
  Long	
  Term	
  Care	
  

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Letter to-mr-paul-dube-ontario-ombudsman-v3

  • 1.   21 St Clair Avenue East, Suite 403 Toronto, ON, M4T 1L8 T: 416-961-5552 • F: 416-961-5516 • E: opa@psych.on.ca • W: www.psych.on.ca     August  24th ,  2016     Mr.  Paul  Dubé   Ombudsman   Office  of  the  Ombudsman   Bell  Trinity  Square   South  Tower,  10th  Floor   483  Bay  Street   Toronto,  Ontario  M5G  2C9     Re:  Response  to  the  "Ombudsman  Report  on  Situations  of  Crisis  Involving  Adults  with  Developmental   Disabilities”     Dear  Mr.  Dubé,     As  the  incoming  President  of  the  Ontario  Psychological  Association  (OPA),  I  would  like  to  thank  you  and   your  team  for  all  the  work  you  have  done  to  date  and  will  continue  to  do  on  behalf  of  adults  with   developmental  disabilities.  As  a  neuropsychologist  whose  practice  cares  directly  for  those  who  are   homeless,  I  can  attest  to  the  impact  your  investigations  and  recommendations  have  had  on  the  most   vulnerable  among  us.       As  you  indicated  in  your  report,  despite  the  progress  being  made  by  the  Ontario  government  since  your   last  report  was  released,  a  number  of  challenges  persist.  Access  to  sufficient  publicly  funded   psychological  diagnostic  services  in  the  province  required  by  Developmental  Services  Ontario  (DSO)  is   still  lacking.  This  is  particularly  true  in  Family  Health  Teams  (FHTs)  and  Community  Health  Centers   (CHCs).  These  models  of  primary  care  are  more  likely  to  serve  persons  with  intellectual  disabilities  since   these  inter-­‐professional  team  models  are  more  likely  to  provide  both  the  health  care  and  social  services   that  the  homeless,  including  those  with  Developmental  Disorders  require.  Including  psychologists  in   Every  primary  care  team  in  the  province  would  help  reduce  wait  times  to  access  DSO  resources  and   contribute  to  the  overall  wellness  of  persons  with  developmental  disabilities  and  other  vulnerable   persons.       That  being  said,  innovative  practices  have  been  made  possible  as  a  result  of  recent  Ministry  of   Community  and  Social  Services  (MCSS)  investments.  In  February  2014,  Minister  Helena  Jaczek   established  “The  Developmental  Services  Housing  Task  Force”  to  search  for  innovative,  cost-­‐effective   housing  solutions  for  adults  with  developmental  disabilities.       The  “Bridges  to  Housing  Project”,  a  partnership  between  The  City  of  Toronto,  Community  Living   Toronto,  Streets  to  Homes,  and  Inner  City  Family  Health  Team  in  collaboration  with  Developmental   Services  Ontario  (DSO),  arose  from  this  funding  opportunity.  This  demonstration  project  initially  set  out   to  offer  clinical  and  case  management  supports  to  help  find  and  sustain  appropriate  housing  for  a  group   of  25  chronically  homeless  persons  with  developmental  disabilities.      
  • 2.                                         -­‐  2  -­‐   As  the  project  progressed  towards  its  end  goals,  we  soon  discovered  that  a  sizeable  proportion  of  the   homeless  had  developmental  disabilities.  Yet,  they  had  never  before  been  connected  to  DSO.  These   homeless  individuals  presented  with  numerous  co-­‐occurring  mental  and  physical  health  challenges,  in   addition  to  their  developmental  disorders.  While  their  complicated  mix  of  problems  requires  a  full   complement  of  interdisciplinary  professionals  to  stabilize  them  and  maximize  their  cognitive-­‐functional   potential,  resources  were  limited.  The  project  team  recognized  that  being  innovative  was  critical  to   ensure  that  every  individual  with  developmental  disabilities  experiencing  homelessness  receive  the  care   and  supports  needed  to  exit  homelessness.  A  significant  challenge  was  to  identify  those  with   Developmental  Disorders  from  amongst  the  large  number  of  homeless  people  in  Toronto  GTA.     As  a  result  of  the  funding  and  our  innovative  work  to  date,  the  project  team  is  now  in  a  position  to   effectively  and  rapidly  triage  all  those  individuals  living  in  shelters.  Early  estimates  from  our  program   evaluation  show  that  approximately  7-­‐10%  of  the  homeless  in  Toronto  have  a  Developmental  Disability   that  was  previously  undetected.       Our  triage  process  includes  a  tool  developed  for  use  by  the  primary  care  frontline  provider.  The  “Rapid   Assessment  of  Residential  Support  (RARS)”  is  flagging  approximately  25%  of  the  homeless  population  as   potentially  having  a  Developmental  Disability.  By  ruling  out  75%  of  the  population,  the  resources  that  are   needed  to  provide  comprehensive  assessments  for  those  individuals  most  likely  to  have  a   Developmental  Disability  are  used  appropriately  and  are  not  wasted  on  needless  in-­‐depth  assessments   for  the  majority  of  the  homeless  population.       Blitzing  exercises  at  the  various  shelters  in  the  Greater  Toronto  Area  (GTA)  are  then  conducted  following   the  initial  RARS  triage.  Residents  with  suspected  Developmental  Disorders  are  invited  to  participate  in  a   “Neuropsychology  Screening  Assessment”.  The  advantage  of  providing  a  bedside  service  to  the   homeless  is  that  the  client’s  functional  impairments  are  not  a  prohibitive  factor  in  accessing   psychological  care.  Traditional  care  requiring  patients  to  go  to  hospitals  or  facilities  often  result  in  no-­‐   shows  due  to  client’s  cognitive  impairment  and  or  prohibitive  transportation  costs.         The  Neuropsychological  Screening  Assessment  involves  a  30-­‐40-­‐minute  session  with  a  neuropsychologist   that  includes  an  interview  and  testing  that  allows  us  to  reliably  predict  the  presence  of  an  intellectual   disability.  Within  the  25%  who  are  flagged  as  possibly  having  a  developmental  disability,  about  50%  have   their  diagnosis  of  a  Developmental  Disorder  confirmed  by  a  neuropsychologist.  The  other  50%  have   conditions  that  resemble  the  impact  of  a  Developmental  Disorder  on  their  cognitive  and  functional   abilities.  These  individuals  show  the  signs  and  symptoms  of  cognitive/learning  disorders,  severe  mental   illness  (often  related  to  physical  and  psychological  trauma),  acquired  brain  injury,  and  dementia.     Those  individuals  identified  as  highly  suspected  of  having  a  Developmental  Disability  then  receive  the  full   assessment  required  for  DSO/ODSP  purposes.  Those  who  have  the  other  conditions  mentioned   previously  receive  a  report  of  the  findings,  a  series  of  recommendations  and  referrals  to   appropriate  programs  and  services.       As  it  currently  stands,  our  team  can  see  up  to  21  clients  per  day  per  visit  to  a  shelter  for   neuropsychological  screening.    With  an  estimated  1250  homeless  requiring  a  screening  assessment  and   likely  around  500  clients  requiring  a  full  DSO/ODSP  workup,  progress  is  slow  and  could  benefit  from  a   strategic  investment.    
  • 3.                                         -­‐  3  -­‐     Our  partnership  with  the  Ministry  of  Community  and  Social  Services’  Developmental  Services  Ontario   Toronto  Region  (DSO-­‐TR)  program  and  Surrey  Place  has  allowed  the  project  team  to  admit  an  individual   into  the  DSO  program  quickly.    The  timeframe  for  homeless  clients  to  access  DSO  resources  has  been   reduced  from  6  months  to  2  years  (depending  on  various  circumstances)  to  about  2-­‐3  weeks  and   includes  the  psychological  diagnosis,  admission  to  DSO  and  the  completion  of  DSO’s  Support  Intensity   Scale  (SIS)  assessment.  The  impact  on  clients  is  impressive  and,  with  the  added  rent  subsidy  by  the  City   of  Toronto  (up  to  $400  per  client  on  top  of  the  ODSP),  more  people  are  able  to  afford  housing.     To  further  improve  the  system  for  homeless  populations  with  developmental  disabilities,  the  following   are  recommended:   • Increase  passport  funding  access  to  the  homeless  and  make  it  more  flexible  and  purposeful  for  them.   • Invest  in  supported  housing  specifically  for  those  with  Developmental  Disabilities  that  has  on-­‐site  24   hour  supports  since  there  are  major  gaps  in  living  arrangements  for  this  population.     • Make  ODSP  an  automatic  approval  upon  receipt  of  DSO  application.   • Increase  access  to  psychologists  in  Family  Health  Teams  and  Community  Health  Centres.   • Support  a  research  study  to  test  the  use  of  the  RARS  and  the  Neuropsychological  Screening   Assessment  tool  in  Family  Health  Teams  and  Community  Health  Centres  that  have  access  to   psychologists.         Kind  regards,       Dr.  Sylvain  Roy,  Ph.D.  C.Psych.   President-­‐Elect,  Ontario  Psychological  Association   Neuropsychologist  and  Lead  Clinician,  Bridges  to  Housing  Program   Inner  City  Family  Health  Team       Cc     Dr.  Helena  Jaczek,  Minister,  Ministry  of  Community  and  Social  Services     Dr.  Eric  Hoskins,  Minister,  Ministry  of  Health  and  Long  Term  Care