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HELPING SOMEONE LIVE WELL
WITH BIPOLAR DISORDER
Coping Tips For Caregivers
Hvovi Bhagwagar, Clinical Psychologist
World Bipolar Day, March 30th 2019
TOWARDS HOPE
Caregivers form the Social Support required for
people with BD
Social support refers to the individual’s
perception as being of value within the context
of the groups in which he or she participates.
CAREGIVERS CAN BE A PROTECTIVE
FACTOR IN BD
Assistance from family and friends
seems to have positive effects in
preventing a relapse, as well as on
better treatment adherence and
improved functionality of the
individual (Studart et al 2015)
Social support is positively associated
with individual well-being, particularly
if an intimate partner provides that
support. (Boyers and Rowe 2018)
However Social Support In BD Has A Bi-
directional Relationship
Lack of help is a
risk factor for
symptom
recurrence
Social Support
becomes
problematic due to
the dysfunctional
symptoms
Caregiver burden
in the families of
the patients
suffering from
bipolar affective
disorder,
Gania, Kaur,
Grover et al 2019
Bipolar disorder is associated with significant
caregiver burden-financially, in family life, as well as
physical and mental health
Thus, the emphasis in psychiatric rehabilitation
needs to shift from a patient-focused approach to a
combined patient and caregiver-focused approach.
For better outcomes of disease the primary
caregivers require more psycho-education and
counselling.
RECOGNISING
TREATMENT
OPTIONS
PHARMACOTHERAPY
• Primary treatment
• Mood Stabilisers and Anticonvulsants
typically given
• Combined with Anti Psychotics and Benzos
• Anti-depressants given with caution
• Blood tests to be done regularly
• Episodes of mania increases risk of non-
adherence.
• Psychotherapy is adjunct to
pharmacotherapy
8
PSYCHOTHERAPY:
Teaches the benefit of
adopting a rational stance
when faced with difficult
situations.
If you are upset by your
problems, you now have 2
problems:
1) The problem
2) Your upsetness.
9
RECOGNISING
RED FLAGS
Everyday emotions such as joy, sadness or
disappointment need to be distinguished from
bipolar moods:
Bipolar Moods:
Last longer and are harder to change
More intense and cause more disruption to the person’s daily
life.
Situational variables may not always be presentMisinterpreting mood fluctuations
and behavior that are common to
us all as being due to bipolar
disorder can be hurtful and
frustrating.
COMMON TRIGGERS INCLUDE:
• Stressful negative or positive life events
• Disruption to sleep patterns
• Disruption to routine.
• Too much stimulation from external
sources
• Too much stimulation from within the
person.
• Abusing alcohol or street drugs
• Conflict and stressful interactions with
people.
SUPPORT DURING EPISODES
Your support matters
WHAT I NEED DURING AN EPISODE OF
DEPRESSION
Don’t tell me to
‘snap out of it’
Encourage small
activity and small
goals
Try not to
take over
Encourage me
towards a
routine
Offer me
kindness even if
I cant
reciprocate
Acknowledge
the smallest
achievements
WHAT I NEED DURING
MANIC/HYPOMANIC EPISODE
Create a calm
environment.
Keep me safe.
Don’t participate
in my various
goals
Set limits, gently
but firmly
Don’t
AgitateMe.
Answer
questions
briefly, quietly
and honestly
Do not agree to
risky plans
Remind me of
the Two person
feedback rule
DEALING WITH
SPECIFIC
CAREGIVING
CHALLENGES
HOW TO HELP
DURING CRISIS.
Suicidal thoughts
Hospitalization
Risky Behaviour
HOSPITALIZATION
When Treatment and support does not
seem to help the person’s symptoms
Voluntary and involuntary
hospitalization
In hospital, assist with treatment, be
empathic to their vulnerability
Advance Directives
ADVANCE DIRECTIVES
These are written documents about
how a person wishes to be treated
for a mental illness in a situation
where they do not have capacity to
make decisions regarding the
same.
One can specify the treatment, care
and support that they want and
how they wish to be treated when
they have a mental illness and are
unable to care for themselves.
SUICIDE
People with BD are a high-risk population
Watch for signs
Ask Directly.
Take safety Measures
Don’t handle alone, get help from a professional
RISKY
BEHAVIOUR
Safeguards for aggressive outbursts
(furniture, safe room)
Limit access to funds.- extra cash, credit
cards, cheque books
Seek financial Advice
Recognise “signal events”/or
“prodromes”
Keep away alcohol.
Learn to Say No and set firm limits.
THE BURDENS OF
CARING
“I should cure the person’s
illness
“I should be able to fix
everything”
“I should never feel angry or
stressed”
“I should always be perfectly
supportive of the person.”
CAREGIVER
BURDEN IS A
PREDICTOR OF
Significant levels of depressive symptoms (Coyne et al.,
1987; Dyck et al., 1999; Struening et al., 1995).
Worry, tension, and grief (Chakrabarti and Gill, 2002; Fadden
et al., 1987, Reinares and Vieta, 2004).
Sleep problems (Perlick et al., 2007),
Use of tranquilizers and antidepressants (Dyck et al., 1999),
Increased risk of medical hospitalization (Gallagher and
Mechanic, 1996).
Between a rock and a hard place’: Family members’
experiences of supporting a relative with bipolar
disorder.
Barch et al 2018
1. ‘Not knowing: like being in a minefield’,
2. ‘It’s out of my control: sitting waiting for the next
thing to happen’,
3. ‘Treading on eggshells’,
4. ‘Picking up on signs’,
5. ‘Times of crisis:between a rock and a hard place’,
6. ‘I have to make my voice heard
YOUR WELL-BEING
• Delegate Tasks, be organized
• Practice Self care, take breaks
• Form a social group
• Go for outings guilt free
• Seek help from Government schemes
• Professional disappointments
• Maintain boundaries
• Acknowledge your natural reactions
• Support groups
MOBILE APPS
iMoodJournal T2 Mood Tracker eMoods Medisafe Pill
and Med
Reminder
HELPLINES
2. Phone Apps-
- Emotional Support Helpine Directory
nULTA: Monday to Friday, 10:30 AM to
5:30 PM
3. Peer Support Groups:
Bipolar India
1. HELPLINES
 Vandrevala Foundation: 1860-266-2345,
1800-233-3330
(24 hour)
 Samaritans +91 84229 84528 / +91 84229
84530
(3pm to 9pm)
TISS icall
• Telephone based counseling: 022-25521111 (Monday
to Saturday, 8 AM to 10 PM)
• Email based counselling: icall@tiss.edu
“It is not how much you do, but how
much love you put in the doing.”
— MOTHER TERESA
TAKE GOOD CARE!
HVOVI BHAGWAGAR
9821321132
www.manashni.com

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Coping Tips for Caregivers of persons living with Bipolar Disorder

  • 1. HELPING SOMEONE LIVE WELL WITH BIPOLAR DISORDER Coping Tips For Caregivers Hvovi Bhagwagar, Clinical Psychologist World Bipolar Day, March 30th 2019
  • 3. Caregivers form the Social Support required for people with BD Social support refers to the individual’s perception as being of value within the context of the groups in which he or she participates.
  • 4. CAREGIVERS CAN BE A PROTECTIVE FACTOR IN BD Assistance from family and friends seems to have positive effects in preventing a relapse, as well as on better treatment adherence and improved functionality of the individual (Studart et al 2015) Social support is positively associated with individual well-being, particularly if an intimate partner provides that support. (Boyers and Rowe 2018)
  • 5. However Social Support In BD Has A Bi- directional Relationship Lack of help is a risk factor for symptom recurrence Social Support becomes problematic due to the dysfunctional symptoms
  • 6. Caregiver burden in the families of the patients suffering from bipolar affective disorder, Gania, Kaur, Grover et al 2019 Bipolar disorder is associated with significant caregiver burden-financially, in family life, as well as physical and mental health Thus, the emphasis in psychiatric rehabilitation needs to shift from a patient-focused approach to a combined patient and caregiver-focused approach. For better outcomes of disease the primary caregivers require more psycho-education and counselling.
  • 8. PHARMACOTHERAPY • Primary treatment • Mood Stabilisers and Anticonvulsants typically given • Combined with Anti Psychotics and Benzos • Anti-depressants given with caution • Blood tests to be done regularly • Episodes of mania increases risk of non- adherence. • Psychotherapy is adjunct to pharmacotherapy 8
  • 9. PSYCHOTHERAPY: Teaches the benefit of adopting a rational stance when faced with difficult situations. If you are upset by your problems, you now have 2 problems: 1) The problem 2) Your upsetness. 9
  • 11.
  • 12. Everyday emotions such as joy, sadness or disappointment need to be distinguished from bipolar moods: Bipolar Moods: Last longer and are harder to change More intense and cause more disruption to the person’s daily life. Situational variables may not always be presentMisinterpreting mood fluctuations and behavior that are common to us all as being due to bipolar disorder can be hurtful and frustrating.
  • 13. COMMON TRIGGERS INCLUDE: • Stressful negative or positive life events • Disruption to sleep patterns • Disruption to routine. • Too much stimulation from external sources • Too much stimulation from within the person. • Abusing alcohol or street drugs • Conflict and stressful interactions with people.
  • 14.
  • 15. SUPPORT DURING EPISODES Your support matters
  • 16. WHAT I NEED DURING AN EPISODE OF DEPRESSION Don’t tell me to ‘snap out of it’ Encourage small activity and small goals Try not to take over Encourage me towards a routine Offer me kindness even if I cant reciprocate Acknowledge the smallest achievements
  • 17. WHAT I NEED DURING MANIC/HYPOMANIC EPISODE Create a calm environment. Keep me safe. Don’t participate in my various goals Set limits, gently but firmly Don’t AgitateMe. Answer questions briefly, quietly and honestly Do not agree to risky plans Remind me of the Two person feedback rule
  • 19. HOW TO HELP DURING CRISIS. Suicidal thoughts Hospitalization Risky Behaviour
  • 20. HOSPITALIZATION When Treatment and support does not seem to help the person’s symptoms Voluntary and involuntary hospitalization In hospital, assist with treatment, be empathic to their vulnerability Advance Directives
  • 21. ADVANCE DIRECTIVES These are written documents about how a person wishes to be treated for a mental illness in a situation where they do not have capacity to make decisions regarding the same. One can specify the treatment, care and support that they want and how they wish to be treated when they have a mental illness and are unable to care for themselves.
  • 22. SUICIDE People with BD are a high-risk population Watch for signs Ask Directly. Take safety Measures Don’t handle alone, get help from a professional
  • 23. RISKY BEHAVIOUR Safeguards for aggressive outbursts (furniture, safe room) Limit access to funds.- extra cash, credit cards, cheque books Seek financial Advice Recognise “signal events”/or “prodromes” Keep away alcohol. Learn to Say No and set firm limits.
  • 24. THE BURDENS OF CARING “I should cure the person’s illness “I should be able to fix everything” “I should never feel angry or stressed” “I should always be perfectly supportive of the person.”
  • 25. CAREGIVER BURDEN IS A PREDICTOR OF Significant levels of depressive symptoms (Coyne et al., 1987; Dyck et al., 1999; Struening et al., 1995). Worry, tension, and grief (Chakrabarti and Gill, 2002; Fadden et al., 1987, Reinares and Vieta, 2004). Sleep problems (Perlick et al., 2007), Use of tranquilizers and antidepressants (Dyck et al., 1999), Increased risk of medical hospitalization (Gallagher and Mechanic, 1996).
  • 26. Between a rock and a hard place’: Family members’ experiences of supporting a relative with bipolar disorder. Barch et al 2018 1. ‘Not knowing: like being in a minefield’, 2. ‘It’s out of my control: sitting waiting for the next thing to happen’, 3. ‘Treading on eggshells’, 4. ‘Picking up on signs’, 5. ‘Times of crisis:between a rock and a hard place’, 6. ‘I have to make my voice heard
  • 27. YOUR WELL-BEING • Delegate Tasks, be organized • Practice Self care, take breaks • Form a social group • Go for outings guilt free • Seek help from Government schemes • Professional disappointments • Maintain boundaries • Acknowledge your natural reactions • Support groups
  • 28. MOBILE APPS iMoodJournal T2 Mood Tracker eMoods Medisafe Pill and Med Reminder
  • 29. HELPLINES 2. Phone Apps- - Emotional Support Helpine Directory nULTA: Monday to Friday, 10:30 AM to 5:30 PM 3. Peer Support Groups: Bipolar India 1. HELPLINES  Vandrevala Foundation: 1860-266-2345, 1800-233-3330 (24 hour)  Samaritans +91 84229 84528 / +91 84229 84530 (3pm to 9pm) TISS icall • Telephone based counseling: 022-25521111 (Monday to Saturday, 8 AM to 10 PM) • Email based counselling: icall@tiss.edu
  • 30. “It is not how much you do, but how much love you put in the doing.” — MOTHER TERESA
  • 31. TAKE GOOD CARE! HVOVI BHAGWAGAR 9821321132 www.manashni.com

Notes de l'éditeur

  1. Compassion is the wish to see others free from suffering –Dalai Lama
  2. Rock Steady: Brilliant Advice from My Bipolar Life Kindle Edition by Ellen Forney  (Author, Artist)