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Advancing Health Equity: Building
on Community-Based Innovation
                  Bob Gardner
    Peel Cancer Screening Study: Knowledge
                Exchange Forum
               October 20, 2011
Key Messages
• health inequities are pervasive and damaging
• but these inequities can be addressed through
  comprehensive health equity strategy
• part of this is focusing policy, programs and resources on
  health disadvantaged populations by:
   • identifying priority populations and key systemic access barriers
   • planning the most effective mix of services and support to meet
     priority populations’ diverse needs
• peer health ambassadors is one promising direction that can
  address the specific needs and barriers faced by particular
  populations
• this kind of community-based innovation on the ground is a
  crucial part of advancing equity

                                                                         2
The Problem to Solve = Health
           Inequities in Ontario
•there is a clear gradient in health
in which people with lower
income, education or other
indicators of social inequality and
exclusion tend to have poorer
health
+ major differences between
women and men
•the gap between the health of
the best off and most
disadvantaged can be huge – and
damaging
+ inequitable access to health care
•impact and severity of these
inequities can be concentrated in
particular populations

                                       3
Foundations of Health Disparities Roots Lie in
        Social Determinants of Health

•clear research consensus that roots
of health disparities lie in broader
social and economic inequality and
exclusion

•impact of inadequate early
childhood development, poverty,
precarious employment, social
exclusion, inadequate housing and
decaying social safety nets on health
outcomes is well established here
and internationally

•we need comprehensive strategy to
drive policy action and social change
across these determinants


October 27, 2011 |
                                                   4
www.wellesleyinstitute.com
Three Cumulative and Inter-Connecting Levels
       in Which SDoH Shape Health Inequities
1.    because of inequitable access to      1.   gradient of health in which more
      wealth, income, education and              disadvantaged communities have
      other fundamental determinants             poorer overall health and are at
      of health →                                greater risk of many conditions

2.    also because of broader social and    2.   some communities and
      economic inequality and                    populations have fewer capacities,
      exclusion→                                 resources and resilience to cope
                                                 with the impact of poor health


3.    because of all this, disadvantaged    3.   these disadvantaged and
      and vulnerable populations have            vulnerable communities tend to
      more complex needs, but face               have inequitable access to services
      systemic barriers within the health        and support they need
      and other systems →

5
POWER Study
 Gender and Equity
  Health Indicator
    Framework

      Highlights
1. How better
   access/care within
   health system can
   make a difference to
   most vulnerable
2. Why we need to take
   SDoH into account in
   health service
   planning and delivery
3. How the structure,
   resources and
   resilience of
   communities mediate
   the impact of SDoH      6
Think Big, But Get Going
• challenge = health inequities can seem so overwhelming and their
  underlying social determinants so intractable → can be paralyzing
   → do need comprehensive social and economic strategy and action to
      address the foundations and impact of health inequities

• think big and think strategically, but get going
• need to start somewhere:
   • even though roots of health disparities lie in far wider social and
      economic inequality, the health system is still crucial to tackling health
      disparities
   • it’s in the health system that the most disadvantaged in SDoH terms
      end up sicker and needing care
   • in addition, there are systemic disparities in access and quality of
      healthcare that need to be addressed
• we want to ensure equitable access to high quality care
• focus today is on engaging with and providing key preventative services
  and support to meet needs of particular populations


                                                                               7
Specific Problem to Solve: Inequitable Access to
                 Preventive Health Services
100


                                                                                   88.4
                   83.6

 80       78.4



                                                                     65.7                 66.7


 60


                                                                            48.4
                                        44.7                                                     White
                                                                                                 South Asian
 40

                                                  29.2



 20




  0
       General Practitioner   Prostate-Specific Antigen Blood Test   Mammogram      Pap smear
High-Level: Health Equity Strategy Into Action

1.       building health equity into all health care planning and delivery
     •       doesn’t mean all programs are all about equity
     •       but all take equity into account in planning their services and outreach
2.       aligning equity with system drivers and priorities – such as
         chronic disease prevention and management, quality
3.       embedding equity in provider organizations’
         deliverables, incentives and performance management
4.       targeting some resources or programs specifically to addressing
         disadvantaged populations or key access barriers
     •       looking for investments and interventions that will have the highest
             impact on reducing health disparities or enhancing the opportunities for
             good health of the most vulnerable
     •       looking to improve the health of most disadvantaged, fastest
5.       while investing up-stream in health promotion and addressing
         the underlying determinants of health

October 27, 2011                                                                        9
Drilling Down: Solutions for Particular
                     Populations
•   taking social context and living conditions into account are part of good service
    delivery
      • health disadvantaged populations have more complex and greater needs for
        services and support → continuum of care especially important
      • also face greater barriers – e.g. availability/cost of
        transportation, childcare, language, discrimination → facilitated access is
        especially important
     • fewer resources to cope (from supportive social networks, to good food and
        being able to afford medication)
•   providers and programs need to know this to customize and adapt care to
    population needs and social contexts:
      • health promotion and care have to be delivered in languages and cultures of
        particular population/community
      • focus in ECFAA on patient-centred care:
      → means taking the full range of people’s specific needs into account
      → more intensive case management, referral planning and post-discharge follow-
        up in acute side + targeted efforts to reach populations facing access barriers


                                                                                     10
Part of the Solutions:
          Community-Driven Innovation
public health and many community providers have established
‘peer health ambassadors’ to provide system
navigation, outreach and health promotion services to particular
communities


Peer Health Ambassadors
• Members of the community, from the community
• Working with established healthcare providers to improve access and
  quality of care for targeted populations
• including improving access to preventative screening


                                                                        11
Wellesley Research Project
Purpose
• Survey the range and impact of Peer Health Ambassadors
• Assess their potential to meet needs of marginalized
  populations
• Identify key success conditions and enablers to realize this
  potential
Methods
• Review of literature
• Key informant interviews with 10 Toronto community
  organizations currently working with peer-based models


                                                                 12
Findings:
                       Great Potential
• Peer Health Ambassadors are a promising model for
  improving health equity through eliminating barriers to health
  care and improving engagement
   • considerable variation in role, level of expertise and “peerness”
   • three broad areas -- navigating the system, health promotion, and as
     integrated into comprehensive service provision
• Marginalized groups prefer healthcare providers who have
  personal experience with their problems, who understand
  their viewpoints, and who share key traits
  (race, gender, religion, sexuality, cancer, drug use, etc.)
• When community impact is reported, the results are generally
  very positive
                                                                            13
Findings:
  Facilitators to Effectiveness and Impact
• Financial compensation
• Initial and ongoing training/support/mentoring for peers
• Clear roles and division of labour + flexibility to accommodate
  dynamic needs of both peers and communities being served
• Participation of peers in program or service planning and
  development
• Rigorous quality assurance at every stage
• Program evaluation to improve practices




                                                                14
Findings: Barriers
• Peer life-stage, ability to adapt their own health and lifestyle to work
  environment
• Breach of peers’ personal boundaries by clients and co-workers, because
  of the highly personal nature of this work
• Organizational capacity to support peer needs, service demands and client
  expectations
• Client preferences for credentialed professionals or specific delivery
  settings
• Resistance from professionals or institutions to community-based delivery
• Unstable funding
• Challenges in scaling up



                                                                         15
Realizing the Potential of Peer Health
             Ambassador Initiatives
•   Enlist service users and community in planning and development
•   Provide ongoing training and support, driven by peer and community needs
•   Provide financial compensation, even during training
•   Allow for adaptability and flexibility of training and program to suit the needs of
    peer workers and clients
•   Monitor quality
•   Market the services using mediums that can reach the target population
•   Link into coordinated continuum of services and support to communities facing
    poorer access
•   Actively pursue alternative funding sources – beyond rigid project funding from
    government sources
•   Evaluate to understand what ‘works’ – for which particular populations, in what
    contexts – and build this learning into continuous improvement



                                                                                          16
Building on the Potential of Community-Based
             Innovation and Initiatives
• potential:
   • huge number of community and
     front-line initiatives already
     addressing equity across province
   • + equity focused planning through
     HEIA or other tools will yield useful
     information on existing system
     barriers and the needs of
     disadvantaged populations
   • and we’ll be seeing more and more
     population-specific program
     interventions
• but
   • these initiatives and interventions
     are not being rigorously assessed
   • experience and lessons learned are
     not being shared systematically
   • so potential of promising
     interventions is not being realized

                                              17
Key Messages
• Need comprehensive strategy to address health inequities
• Part of this is ensuring equitable access to high-quality care
  for all
• Part of this is always addressing specific problems facing
  specific populations – inequitable access to cancer screening
  for particular communities
• Peer ambassador type initiatives have shown great potential
  in being able to reach, support and involve marginalized
  populations




                                                                   18
Following Up
• these speaking notes and further resources on
  policy directions to enhance health equity, health
  reform and the social determinants of health are
  available on our site at
  http://wellesleyinstitute.com
• my email is bob@wellesleyinstitute.com
• I would be interested in any comments on the ideas
  in this presentation and any information or analysis
  on initiatives or experience that address health
  equity

                                                     19
Wellesley Roadmap for Action on the
    Social Determinants of Health
1. look widely for ideas and inspiration from jurisdictions with comprehensive
   health equity policies, and adapt flexibly to Canadian, provincial and local needs
   and opportunities;
2. address the fundamental social determinants of health inequality – macro policy
   is crucial, reducing overall social and economic inequality and enhancing social
   mobility are the pre-conditions for reducing health disparities over the long-
   term;
3. develop a coherent overall strategy, but split it into actionable and manageable
   components that can be moved on;
4. act across silos – inter-sectoral and cross-government collaboration and
   coordination are vital;
5. set and monitor targets and incentives – cascading through all levels of
   government and programme action;




                                                                 20
Wellesley Roadmap II
6  rigorously evaluate the outcomes and potential of programme initiatives and
   investments – to build on successes and scale up what is working;
7 act on equity within the health system:
   • making equity a core objective and driver of health system reform – every bit
       as important as quality and sustainability;
   • eliminating unfair and inefficient barriers to access to the care people need;
   • targeting interventions and enhanced services to the most health
       disadvantaged populations;
8 invest in those levers and spheres that have the most impact on health
  disparities such as:
   • enhanced primary care for the most under-served or disadvantaged
       populations;
   • integrated health, child development, language, settlement, employment, and
       other community-based social services;


                                                               21
Wellesley Roadmap III
9 act locally – through well-focussed regional, local or neighbourhood cross-
   sectoral collaborations and integrated initiatives;
10 invest up-stream through an equity lens – in health promotion, chronic care
   prevention and management, and tackling the roots of health disparities;
11 build on the enormous amount of local imagination and innovation going on
   among service providers and communities across the country;
12 pull all this innovation, experience and learning together into a continually
   evolving repertoire of effective programme and policy instruments, and into a
   coherent and coordinated overall strategy for health equity.




                                                               22

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Advancing Health Equity: Building on Community-Based Innovation

  • 1. Advancing Health Equity: Building on Community-Based Innovation Bob Gardner Peel Cancer Screening Study: Knowledge Exchange Forum October 20, 2011
  • 2. Key Messages • health inequities are pervasive and damaging • but these inequities can be addressed through comprehensive health equity strategy • part of this is focusing policy, programs and resources on health disadvantaged populations by: • identifying priority populations and key systemic access barriers • planning the most effective mix of services and support to meet priority populations’ diverse needs • peer health ambassadors is one promising direction that can address the specific needs and barriers faced by particular populations • this kind of community-based innovation on the ground is a crucial part of advancing equity 2
  • 3. The Problem to Solve = Health Inequities in Ontario •there is a clear gradient in health in which people with lower income, education or other indicators of social inequality and exclusion tend to have poorer health + major differences between women and men •the gap between the health of the best off and most disadvantaged can be huge – and damaging + inequitable access to health care •impact and severity of these inequities can be concentrated in particular populations 3
  • 4. Foundations of Health Disparities Roots Lie in Social Determinants of Health •clear research consensus that roots of health disparities lie in broader social and economic inequality and exclusion •impact of inadequate early childhood development, poverty, precarious employment, social exclusion, inadequate housing and decaying social safety nets on health outcomes is well established here and internationally •we need comprehensive strategy to drive policy action and social change across these determinants October 27, 2011 | 4 www.wellesleyinstitute.com
  • 5. Three Cumulative and Inter-Connecting Levels in Which SDoH Shape Health Inequities 1. because of inequitable access to 1. gradient of health in which more wealth, income, education and disadvantaged communities have other fundamental determinants poorer overall health and are at of health → greater risk of many conditions 2. also because of broader social and 2. some communities and economic inequality and populations have fewer capacities, exclusion→ resources and resilience to cope with the impact of poor health 3. because of all this, disadvantaged 3. these disadvantaged and and vulnerable populations have vulnerable communities tend to more complex needs, but face have inequitable access to services systemic barriers within the health and support they need and other systems → 5
  • 6. POWER Study Gender and Equity Health Indicator Framework Highlights 1. How better access/care within health system can make a difference to most vulnerable 2. Why we need to take SDoH into account in health service planning and delivery 3. How the structure, resources and resilience of communities mediate the impact of SDoH 6
  • 7. Think Big, But Get Going • challenge = health inequities can seem so overwhelming and their underlying social determinants so intractable → can be paralyzing → do need comprehensive social and economic strategy and action to address the foundations and impact of health inequities • think big and think strategically, but get going • need to start somewhere: • even though roots of health disparities lie in far wider social and economic inequality, the health system is still crucial to tackling health disparities • it’s in the health system that the most disadvantaged in SDoH terms end up sicker and needing care • in addition, there are systemic disparities in access and quality of healthcare that need to be addressed • we want to ensure equitable access to high quality care • focus today is on engaging with and providing key preventative services and support to meet needs of particular populations 7
  • 8. Specific Problem to Solve: Inequitable Access to Preventive Health Services 100 88.4 83.6 80 78.4 65.7 66.7 60 48.4 44.7 White South Asian 40 29.2 20 0 General Practitioner Prostate-Specific Antigen Blood Test Mammogram Pap smear
  • 9. High-Level: Health Equity Strategy Into Action 1. building health equity into all health care planning and delivery • doesn’t mean all programs are all about equity • but all take equity into account in planning their services and outreach 2. aligning equity with system drivers and priorities – such as chronic disease prevention and management, quality 3. embedding equity in provider organizations’ deliverables, incentives and performance management 4. targeting some resources or programs specifically to addressing disadvantaged populations or key access barriers • looking for investments and interventions that will have the highest impact on reducing health disparities or enhancing the opportunities for good health of the most vulnerable • looking to improve the health of most disadvantaged, fastest 5. while investing up-stream in health promotion and addressing the underlying determinants of health October 27, 2011 9
  • 10. Drilling Down: Solutions for Particular Populations • taking social context and living conditions into account are part of good service delivery • health disadvantaged populations have more complex and greater needs for services and support → continuum of care especially important • also face greater barriers – e.g. availability/cost of transportation, childcare, language, discrimination → facilitated access is especially important • fewer resources to cope (from supportive social networks, to good food and being able to afford medication) • providers and programs need to know this to customize and adapt care to population needs and social contexts: • health promotion and care have to be delivered in languages and cultures of particular population/community • focus in ECFAA on patient-centred care: → means taking the full range of people’s specific needs into account → more intensive case management, referral planning and post-discharge follow- up in acute side + targeted efforts to reach populations facing access barriers 10
  • 11. Part of the Solutions: Community-Driven Innovation public health and many community providers have established ‘peer health ambassadors’ to provide system navigation, outreach and health promotion services to particular communities Peer Health Ambassadors • Members of the community, from the community • Working with established healthcare providers to improve access and quality of care for targeted populations • including improving access to preventative screening 11
  • 12. Wellesley Research Project Purpose • Survey the range and impact of Peer Health Ambassadors • Assess their potential to meet needs of marginalized populations • Identify key success conditions and enablers to realize this potential Methods • Review of literature • Key informant interviews with 10 Toronto community organizations currently working with peer-based models 12
  • 13. Findings: Great Potential • Peer Health Ambassadors are a promising model for improving health equity through eliminating barriers to health care and improving engagement • considerable variation in role, level of expertise and “peerness” • three broad areas -- navigating the system, health promotion, and as integrated into comprehensive service provision • Marginalized groups prefer healthcare providers who have personal experience with their problems, who understand their viewpoints, and who share key traits (race, gender, religion, sexuality, cancer, drug use, etc.) • When community impact is reported, the results are generally very positive 13
  • 14. Findings: Facilitators to Effectiveness and Impact • Financial compensation • Initial and ongoing training/support/mentoring for peers • Clear roles and division of labour + flexibility to accommodate dynamic needs of both peers and communities being served • Participation of peers in program or service planning and development • Rigorous quality assurance at every stage • Program evaluation to improve practices 14
  • 15. Findings: Barriers • Peer life-stage, ability to adapt their own health and lifestyle to work environment • Breach of peers’ personal boundaries by clients and co-workers, because of the highly personal nature of this work • Organizational capacity to support peer needs, service demands and client expectations • Client preferences for credentialed professionals or specific delivery settings • Resistance from professionals or institutions to community-based delivery • Unstable funding • Challenges in scaling up 15
  • 16. Realizing the Potential of Peer Health Ambassador Initiatives • Enlist service users and community in planning and development • Provide ongoing training and support, driven by peer and community needs • Provide financial compensation, even during training • Allow for adaptability and flexibility of training and program to suit the needs of peer workers and clients • Monitor quality • Market the services using mediums that can reach the target population • Link into coordinated continuum of services and support to communities facing poorer access • Actively pursue alternative funding sources – beyond rigid project funding from government sources • Evaluate to understand what ‘works’ – for which particular populations, in what contexts – and build this learning into continuous improvement 16
  • 17. Building on the Potential of Community-Based Innovation and Initiatives • potential: • huge number of community and front-line initiatives already addressing equity across province • + equity focused planning through HEIA or other tools will yield useful information on existing system barriers and the needs of disadvantaged populations • and we’ll be seeing more and more population-specific program interventions • but • these initiatives and interventions are not being rigorously assessed • experience and lessons learned are not being shared systematically • so potential of promising interventions is not being realized 17
  • 18. Key Messages • Need comprehensive strategy to address health inequities • Part of this is ensuring equitable access to high-quality care for all • Part of this is always addressing specific problems facing specific populations – inequitable access to cancer screening for particular communities • Peer ambassador type initiatives have shown great potential in being able to reach, support and involve marginalized populations 18
  • 19. Following Up • these speaking notes and further resources on policy directions to enhance health equity, health reform and the social determinants of health are available on our site at http://wellesleyinstitute.com • my email is bob@wellesleyinstitute.com • I would be interested in any comments on the ideas in this presentation and any information or analysis on initiatives or experience that address health equity 19
  • 20. Wellesley Roadmap for Action on the Social Determinants of Health 1. look widely for ideas and inspiration from jurisdictions with comprehensive health equity policies, and adapt flexibly to Canadian, provincial and local needs and opportunities; 2. address the fundamental social determinants of health inequality – macro policy is crucial, reducing overall social and economic inequality and enhancing social mobility are the pre-conditions for reducing health disparities over the long- term; 3. develop a coherent overall strategy, but split it into actionable and manageable components that can be moved on; 4. act across silos – inter-sectoral and cross-government collaboration and coordination are vital; 5. set and monitor targets and incentives – cascading through all levels of government and programme action; 20
  • 21. Wellesley Roadmap II 6 rigorously evaluate the outcomes and potential of programme initiatives and investments – to build on successes and scale up what is working; 7 act on equity within the health system: • making equity a core objective and driver of health system reform – every bit as important as quality and sustainability; • eliminating unfair and inefficient barriers to access to the care people need; • targeting interventions and enhanced services to the most health disadvantaged populations; 8 invest in those levers and spheres that have the most impact on health disparities such as: • enhanced primary care for the most under-served or disadvantaged populations; • integrated health, child development, language, settlement, employment, and other community-based social services; 21
  • 22. Wellesley Roadmap III 9 act locally – through well-focussed regional, local or neighbourhood cross- sectoral collaborations and integrated initiatives; 10 invest up-stream through an equity lens – in health promotion, chronic care prevention and management, and tackling the roots of health disparities; 11 build on the enormous amount of local imagination and innovation going on among service providers and communities across the country; 12 pull all this innovation, experience and learning together into a continually evolving repertoire of effective programme and policy instruments, and into a coherent and coordinated overall strategy for health equity. 22

Notes de l'éditeur

  1. when we’re working with particular populations or neighbourhoods – need to think at all these levels and their inter-connectionfor today: particular populations are worse off in terms of SDOH – precarious workers, homeless – face worse healthdisadvantage can be concentrated in particular places -- poor or racialized neighbourhoods – and over the generations in particular groups – long-term poor
  2. form my colleague Dr Nasim Haque based upon CCHS data 2011 South Asian vs. WhitePOWER data on SDoH:61% of eligible women from poorest neighbourhoods (quintile) had a pap smear in last three years --- 75% in highest income53% from poorest had mammogram in last tow years – 67% in richest
  3. Principle applies throughout system – at provider and often at program level as well
  4. all of this equity planning loops back to quality
  5. Results such as:Able to get marginalized communities to engage in healthier behaviours such as cancer screening and breast feedingAble to reduce negative health consequences such as overdoses and assault (Vancouver Mobile Access Project for female sex workers). Peer workers reported that once the women realized the staff were their peers, they opened up more, they were more compassionate and even showed concern for the wellbeing of the peers.Services grow in popularity/demandcancer – also many nurse or professional navigators
  6. Financial CompensationThese services are targeting at-risk and vulnerable populations, therefore true peers may be facing difficult life circumstances, such as poverty.Compensation implies their work is considered valuable to the program and this can increase peer worker self-efficacyTraining/support/mentoringNot just so that they have the expertise needed to deliver quality services, but also so that the proper structures are in place to support peers. Peers can identify problems to a dedicated facilitator who works closely with and is trusted by the peersPeer work is often used as a stepping stone for career advancement, the high turnover rate should be accounted for so that peers are not overburdened and so that care is seamless to clients who may have developed personal and trusting relationships with peersClear roles/flexibilityClear role descriptions that allow for continuous growth and change given complex environmentsAccommodating needs of peers and communities – such as irregular hours, specific types of foodParticipation of peers in program/service planning/developmentThey can identify community’s needsThey can identify best practices for engaging clientsThey can inform staff about their own needs as peer workersRigorous quality assurance at every stageRegular evaluations/monitoring and amendmentsPro
  7. Peer life-stageSometimes peers haven’t been successful with implementing positive changes in their own health and lifestyles. They may experience difficulties leading their community by example, or their life circumstances may pose challenges to their ability to function in a working environmentBreach of personal boundariesIf peers are relating to clients through shared experience with drug use, for example, some interactions may be highly personal and it may be difficult to draw the line so that their personal boundaries aren’t breached. Support peer needs, service demands and client expectationsThis work is very dynamic and frequently changes, systems may not be put in place to meet needsClients may require more variety in services offered to meet their needsPeers may require different sets of materials based on their own health promotion stylesClient preferencesPeers are not always they answer, community may not trust them as expertsDelivering in the community not always best if community believes specific health services should be delivered in clinical settings
  8. key role for OPHA
  9. summary again