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Winfield C.Tuayon RN
Lecturer
TUSKEGEE STUDY
Syphilis is a chronic, contagious bacterial disease that
is most often sexually transmitted but is sometimes
congenital. Since about 1946, the disease has been
successfully treated with antibiotics. Prior to 1946,
individuals with the disease had an inevitable
progress through its sequelae, from the primary
lesion and chancre to rash, fever, and swollen lymph
nodes to the final stage of nervous system and
circulatory problems and finally death. The progress
of the disease is often thirty to forty years.
Around 1929 there were several countries in the South
with a high incidence of syphilis. The US Public
Health Service (USPHS) began a demonstration
project to treat those afflicted with the disease in
Macon Country, Alabama, home of the famous
Tuskegee Institute. With the great Depression,
funding for the project to treat the men became an
opportunity for a study in nature. A study in nature
means that that the researchers were not to treat the
patients but rather were to observe the natural
progression of the disease.
To conduct this study in nature, the USPHS selected
399 African American men who had never received
treatment. The research group was told essentially
that they had “bad blood”, and as they had been
selected for special free treatment. Except for an
African-American nurse, Eunice Rivers, there was
very little continuity with staffing of the experiment,
as the federal doctors would come every few years to
check the progress of the disease. To induce the
participants, they were promised free transportation,
free hot lunches, free medicines (for everything
except for syhilis), and free burials.
Although antibiotics were available in adequate supply by
1946, the study subjects were never treated. In fact, the
local draft board was provided their names so that they
could not enter the army, where they would have been
treated as a matter of course. The local members of the
Country Medical Society were also provided their names
and were asked not to provide them with antibiotics.
In July 1972, Peter Buxtun of the USPHS, who had been
criticizing the study since 1966, told the story to an
Associated Press reporter, and the research became
headline across the nation. In 1997, President Clinton
officially apologized to the remaining study participants
on behalf of the United States government.
Three Dominant Themes in
Bioethical Inquiry
The practice of doing acts of goodness,
kindness, and charity that directly benefit the
patient.
Patient’s Bill of Rights
8. Be informed of business relationship among the hospital ,
educational institution, health care providers that may
influece the patient’s treatment and care.
9. Consent or decline to participate in experimental research
affecting his care.
10. Reasonable continuity of care when appropriate and be
informed of other care options when hospital care is no longer
appropriate
11. Be informed of the hospital policies and practices that relate
to patient care.
“ Apply measures for the benefit of the
sick”
- Hippocratic Oath
“The nurse’s primary commitment is to the
health, welfare, and safety of the client”
-Pledge of the American Nurses Association
The Nightingale Pledge
I solemnly pledge before God
And in the presence of this assembly
To pass my life in purity
And to practice my profession faithfully.
I will abstain from whatever is deleterious
and mischievous,
And will not take nor administer
any harmful drug
I will do all in my power
To elevate the standards of my profession
And will hold in confidence
All personal matters committed to my keeping
And all family affairs coming to my knowledge
In the practice of my profession
With loyalty will I endeavor to aid
the health team in their work
And devote myself to the welfare of those
committed to my care
So help me God
Formulated in 1893 by a Committee headed by Mrs. Lystra E. Gretter RN
Is the restoration of life appears
to have no value to the
individual, beneficence?
Are the staggering fiscal and
emotional costs justifiable?
If a fetus is detected to be
deformed or defective
through a process, known
amniocentesis, would you be
doing it more good than harm
by aborting it?
This marks the significance of individual autonomy
which mandates a strong sense of personal
responsibility for one’s own life.
Responsibility
FREEDOM
Last arbiter
of moral
decision
⁺
A form of personal liberty , where the individual is
free to choose and implement her own decisions, free
from deceit, duress, constraint, or coercion.
Self
determination
Disclosure Ünderstanding
VoluntarinessCompetence
The information must be provided at a time when the patient is able to
sort options rationally and is in a position to grant or refuse consent.
Therapeutic privilege
incompetence waiver
Implied
consent
BENEVOLENT
DECEPTION
The practitioner is allowed to intentionally withhold
information based on his sound medical judgment that
to divulge the information might potentially harm a
depressed and unstable patient.
Autonomy Paternalism
PATERNALISM
Is the intentional limitationof the autonomy of one
person by another, in which the person who limits
autonomy appeals exclusivelyto grounds of benefit to the
other person.
FIDUCIARY RELATIONSHIP
The American Hospital Association’s
The Patient Care Partnership
:Understanding Expectations, Rights and
Responsibilities.
Discussing your treatment plan: When you
enter the hospital you sign a general consent
to treatment. In some cases , such as surgery
or experimental treatment, you may be asked
to confirm in writing that you understand what
is planned and agree to it. This process
protects your right to consent or to refuse a
treatment. Your doctor will explain the
medical consequences of refusing
recommended treatment. It also protects your
right to decide if you want to participate in a
research study.
The right to refuse medical treatment
and to die with dignity
The rendering of what is due or merited;
likewise, that which is due or merited.
This also refers to the right to demand to be
treated justly, fairly and equally.
Refers to a principle of equity which
prescribes fairness and impartiality
regarding equal access to health care and
the allocation of scarce medical resources.
Two Types of Justice
VS
Hospital has to put triage schemes to
determine who should be served first.
1. Assess the medical prognosis
or medical utility or who among the
patients is most likely to survive.
2.Social utility or social value or
worth, ability to pay, or first-
come-first-served basis.
Procedural justice or due process
Distributive Justice
Article XIII of the Philippine Constitution
The state shall adopt an integrated and comprehensive
approach to health development an shall endeavor to make
essential goods, health and social services available to
at affordable cost. There shall be priority for the
needs of the underprivileged, the sick, the elderly and
the disabled, the women and children. The state shall
endeavor to provide free medical care to paupers, establish and
maintain an effective food and drug regulatory system, and
undertake appropriate health manpower development and research
responsive to the country’s health needs and
problems. It shall be establish a special agency for disabled
persons for their rehabilitation.
“a state of complete physical, mental, and social
well being , and not merely the absence of
disease.”-WHO
National Heath Insurance Act of 1995
Republic Act 7875
Senior Citizens Act of the
Philippines & Expanded
Senior Citizens Act of 2003
Republic Act 7432 & Republic Act 9257
Health care provider Patient
FIDUCIARY RELATIONSHIP
The patient has the right to expect
a higher level of truthfulness from
us than other whom they deal.
Dealer of a used Car Healthcare practitioner
BENEVOLENT DECEPTION
The idea of not telling the truth to the patient.
The suggestion is that the individual is not
strong enough to tolerate the truth or more time
needed to prepare the patient for unpleasant
fact.
Slipper
y slope
BENEVOLENT DECEPTION
Several cases are therein cited:
1. A young married male who was diagnosed to
have AIDS requests the doctor not to tell
his diagnosis to his wife.
2. The children of an aged grandmother
suffering from metastatic cancer request
the doctor not to tell their mother her
diagnosis and instead to proceed with the
chemotherapy.
What tormented Ivan Ilyich most
was the deception, the lie, which
for some reason they all
accepted he was no dying but
simply ill … what tormented Ivan
Ilyich was that no one pitied him
as he wished to be pitied . At
certain moments after
prolonged suffering , he wished
most of all (although he was
ashamed to confess it) for
someone to pity him as a sick
child is pitied. He longed to be
petted and comforted.
The Justification of Paternalism
(by not telling the truth)
by Gert and Culver
The lie benefits the person lied to; the lie prevents more
evil than it causes for that particular person.
It must be possible to describe the greater good that
occurs.
The individual should want to be lied to. If the evil avoided by
the lie is greater than the evil caused by it, a person would be
irrational not to want to be lied to.
Assuming equal circumstances, we should always be willing to
allow the violation of veracity.
Beneficenc
e
Nonmaleficence
One ought to prevent evil or
harm
One ought to remove evil or
harm
One ought to do or promote
good
One ought not to inflict
evil or harm
STEROIDS
Cushing’s
Syndrome
ANTIBIOTICS
Analgesics
(Morphine)
Ototoxicity and
nephrotoxicity
Respiratory
suppression
The double effect
principle
The principle applies to a situation in
which a good effect and an evil
effect will result from good cause.
A woman who is three
months pregnant and is
found to have cancerous
uterus. To save the
woman’s life, her uterus
must be remove at the
earliest possible time; but
to do so, the life of the fetus
would be sacrificed.
Should a dying person in
pain be given a sedative,
when the health
practitioner knows it would
cause respiratory
depression or arrest?
The American Hospital Association’s
The Patient Care Partnership:
Understanding Expectations, Rights
and Responsibilities.
We respect the confidentiality of your relationship with your
doctor and other caregivers, and the sensitive information
about your health and health care that are part of that
relationship. State and Federal laws and hospital operating
policies protect the privacy of your medical information. You
will receive Notice of Privacy Practices that describes the ways
that we use, disclose, and safeguard patient information from
our records about your care.
Filipino Primary Principle of
Bioethics
Goodness
Beneficence
Family
is demonstrated through the practice
of justice, respect for autonomy,
compassion, veracity, fidelity, and
confidentiality
generosity and hospitality
Compatriots / Indebt ness or
gratitude – perpetuated
connotes blessings, acts of mercy,
kindness, charity, altruism, love, humanity
and kindness
is the solid bank one can rely on where
withdrawal of help and support is endless
and the recourse is never
In the Visayan dialect, the parents are
regarded as the source of everything,
hence the term “ ginikanan” meaning the
source
CONFIDENTIALITY
and the Management
of Health Care
Information
“What I may see or hear in the course of the
treatment or even outside of the treatment in
regard to life of men, which on no account one must
spread abroad, I will keep to myself, holding such
things shameful to be spoken about. “
-Hippocratic Oath
Pizza 2010
Operator: Thank You for calling City Pizza, May I have your…..
Customer: Hi, I’d like to order….
Operator: May I have your NIDN, first sir?
Customer: My National ID Number, yeah, hold on, eh, it’s 609 609 906 609
Operator: Thank you, Mr Jones. I see you live at 1742 Block lane, and your phone
number is 492-6332. Your office number is 492-5288, ext 091.
Which number are you calling from, sir?
Customer: Huh? I’m at home. Where d’ya get all this information?
Operator: We’re wire into the system, sir.
Customer(sighs): Oh well, I’d like to order a couple of your all-meat specials.
Operator: I don’t think that’s a good idea sir.
Customer: Whaddya mean?
Operator: Sir, your medical records indicate that you’ve got very high blood
pressure and extremely high cholesterol. Your national health care
provider won’t allow such unhealthy choice.
Customer: What do you recommend then?
Operator: You might try our new low-fat soybean yogurt pizza. I’m sure
you’ll like it.
Customer: What makes you think I’d like something like that?
Operator: Well, you checked out Gourmet Soybean Recipes from the
library last week, sir. That’s why I made the suggestion.
Customer: All right, all right. Give me two family sized ones.
Operator: Will there be anything sir?
Customer: No, nothing. Oh yeah, don’t forget the two free liters of Coke
your ad says I get with the pizzas.
Operator: I’m sorry. Sir, but our ad’s exclusionary clause prevents us from
offering free soda to diabetics….
Health Privacy Project of Georgetown
University
Although she had received a positive review and raise, Terrie Sergeant, a
North Carolina resident, was fired from her job after being diagnosed with a
genetic disorder that require expensive treatment.
An Atlanta truck driver lost his job in early 1998 after his employer learned
from his insurance company that he had sought treatment for a drinking
problem.
The thirteen-year-old daughter of a hospital employee took a list of patients’
name and phone numbers from the hospital while visiting her mother. As a
joke, she contacted the patients and told them they had been diagnosed with
HIV.
Health Privacy Project of Georgetown
University
A banker who served on his country’s health board cross-referenced
customer accounts with patient information and called due mortgages of
anyone with cancer.
A doctor’s laptop was stolen at a medical conference. The computer
contained the names and medical histories of his patients.
Documents referring to over 125 psychiatric patients of Rapid City Regional
Hospital were found in a convenience store trash can. A fourth year medical
student had taken the papers from the hospital and dumped them in the
trash.
Teleological Ethics Duty-Oriented Ethics
Chilling effect to the
truth telling
relationship.
Personal-privacy is a basic right
Lost confidence
Severely limited
quality of care
Autonomous right to
the control personal
information
Person’s right
Professional’s
duty
Is Confidentiality
absolute? Or
might be
overridden by
other
considerations?
A young man by the name of Prosenjit Poddar confided to his clinical psychologist that he
intended to kill a young woman he readily identified as Tatiana. The psychologist,
understanding that his patient presented a real danger to the young woman, decided that
Prosenjit should be committed for seventy-two hours to allow further evaluation, and he notified
security to assist in securing the patient’s confinement. The patient, however, convinced the
security officers that he was rational , and he was released following his promise to stay away
from the young woman. The health care providers rescinded to place Prosenjit in confinement
for evaluation, and no efforts were made to warn Tatiana or her family of potential danger.
Within the weeks of these events, Prosenjit murdered the young woman.
Tarasoff Case
Tarasoff CaseTarasoff Case
To whom do the
caregivers owe
their duty?
To their real
patient?
To the potential
victim?
Code of Medical Ethics:
Current Opinions of the American
Medical Association
The obligation to safeguard patient confidence is subject to
certain exceptions, which are ethically and legally justified
because of overriding social considerations. Where a patient
threatens to inflict bodily harm to another person or to
himself or herself and there is a reasonable probability that
the patient may carry out the threat, the physician should
take reasonable precautions for the protection of the
intended victim, including notification of law enforcement.
Harm Principle
This principle requires that health care providers refrain from acts
or omissions that would forseeably result in harm to others,
especially in cases in which the individuals are particularly
vulnerable to the risk.
Sissela Bok
Child abuse
Contagious diseases
Sexually Transmitted
Diseases
Wounds caused by guns or
knife
MODIFIABILITY OF HARM
PRINCIPLE
The practitioner's observance of
the principle of confidentiality must
always be balanced by the need to
protect other’s from foreseeable
harm, especially if the other
individual is particularly vulnerable
to that harm
MEDICAL RECORD
Medical records
Personal data of financial and social nature
Patient Attending physician Authorized
representative
Hospital staff members with
legitimate interest
•Health care
practitioners
•Professional education
•Administrative function
•Auditing functions
•Research
•Public health reporting
•Criminal law
requirements
GUIDELINES TO
PROTECT THE
SECURITY OF
MEDICAL RECORDS
Competent medical
records or risk
management personnel
Original Medical Records
No patient nor
representative
85% → Physician
80% → allied health and nursing professions
Insurance company – because they pay the bills
Public health agencies – monitoring and investigating
disease outbreak pattern
Employers – assess job-related injuries
Government – develop health care plan and allocate
resources
Attorneys and law enforcement agencies – evidence to
settle civil and criminal matters
Media – report hazarda nd report medical research
development
APPROPRIATE OR
INAPPROPRIATE
A Young woman who
states she has just been
raped comes into the
emergency room
requesting a pelvic
examination and a
morning –after pill but
insists that the staff not to
call the police. The staff
reports the incident.
A young father brings his
child into the emergency
room for treatment of an arm
injury. The family has
brought the child in several
times for similar injuries
with the same excuse that
she is somewhat clumsy and
is having difficulty learning
to ride her bike. The child
shows no fear of the parent
You are a nursing
student on the
pediatrics rotation
within the hospital ,
and you notice that
the neighbor of
your parents has
been admitted to
the surgery unit.
In the course of caring
for a patient, a school
bus driver, the
physician notes that
she is at risk for
having a heart attack
and recommends that
she cease driving, since
she may be placing the
children at risk. The
driver asks the
During the
course of a
patient
evaluation,
you find that
the family
Professional
Gate keeping as a
function of Role
Fidelity
Is there a Duty to Lie?
Barbara Gonzales is a special procedure nurse at a medium-sized
community hospital . She enjoys her position as it allows her to spend
additional time with the patients who have come in for cardiac stress
tests. In fact, she enjoys almost all aspects of her job with the
exception of dealing with Dr. Jones, who is invariably late for
procedure appointments. Barbara understands that physicians have
full schedules and often takes additional time with some patients,
which makes them late for all other appointments that day. However,
in this case, it is not a professional problem that is delaying the
physician but rather a personal one. It is widely known among the
hospital staff that he is having an affair with a nurse from the critical
care unit. Barbara does not care who Dr. Jones is having an affair
with and feels that it is not her business to judge. However, she
resents being brought into matter, as the doctor has directed her to
tell his waiting patients that he is being held up in an emergency.
Is nurse Gonzales making a big
deal over a small matter?
Does she have a duty to
protect her colleague?
How would you address this
issue?
Gatekeeping
One looks out for the interests of the profession or
of others in a similar practice, comes as a result of
our professional obligations and training, this leads
us to a strong sense of collegiality with others in our
practice.
We are not only responsible for our actions in regard
to the patient but we are also charged with the duty
to ensure that the rest of the health team is
practicing appropriate care.
Am I my brother’s
keeper?
Professional Code of Ethics
-Set a series of ethical rules for the members.
- it symbolizes that this group of professionals is
differentiating itself from the broader group of
occupations and technical careers.
-To affirm that the professional is an autonomous,
responsible decision maker, not someone who just follow
orders.
Professional Code of Ethics
Limiting competition
Restricting
advertisement
Issues that infarct
professional
Gatekeeping as a
function of
ROLE FIDELITY
Gaming the
System
Conflict of
Interest
The Hard-Working Therapist
Sheryl is a respiratory therapy
technician in a small town in Michigan.
The town has a small hospital and a
small durable medical supply company.
Sheryl is known locally as an
entrepreneur ball of fire and has manage
d to become both the head of the
hospital respiratory care department and
the owner of the small durable medical
supply company.
In the most of the
referrals from Sheryl’s
department for home
care equipment are to
Sheryl’s home care
business, does this
present a conflict of
interest?
What should Sheryl do?
Disparagement
of Professional
Colleagues
Impaired Colleagues
Absenteeism
HUMANELY
Ethical Decision Making in Nursing Administration
Mary C. Silva
Gather the facts.
Identify the dilemma concrete
terms.
Explore all the options and rules or
principles governing each option.
Make a decision, and be prepared
to reflect on the decision.
Who is the patient?
In a recent pediatric case presentation, a physician described a situation in
which a fourteen-year-old boy is brought to the clinic. The teenager is
described by the physician as having one of the most severe cases of
attention deficit disorder (ADD) that he had seen in practice. During the
session , the boy fidget, did not stop hand gestures, and did leg swinging
and tapping. According to the mother, the boy would not pay attention to
any adult attempting to engage him and was in jeopardy of flunking ninth
grade. The mother wants the physician to write a prescription for Ritalin.
Given the boy’s condition, the request seems reasonable although not
without some potential side effects, such as tics and sleep disturbances.
The boy however, does not want the medication, stating that when “ I take
that stuff, I zone out. I’m like a log. Ritalin ruins my life!” He describes
life without the medication as being in a room in which all the newest
videos are playing and try to watch them all. When he is not on
medication, he feels that he is more alive, that he can crack great jokes,
and fellow students like him. Given the adolescence is the time when we
want young people to find out who they are, is it right to medicate him
and not allow him to express what he sees as being his true self? It is
Should the physician write the
prescription?
EXPERT
Universal Good
NOT THE ONLY
ONE
Higher Personal
Value
A author who contracts a terminal disease.
His physician knows of a drug that, if taken, will
extend the author’s life by ten years. Following
the physician’s recommendation , the author
takes the medication and starts what he
anticipates will be his greatest work.
Unfortunately, the medication leaves his mind
clouded, and he losses his ability to write., He
faced with the problem of taking the medication
and extending his life to ten rather cloudy,
noncreative years or not taking the medication
and shortening his life by seven or eight years.
Without the drug however, during his remaining
two to three years he would be clear minded,
The Code of Ethics of the American Medical
Association (1848)
The obedience of a patient to the prescriptions of
the physician should be prompt and implicit. He
should never permit his own crude opinions.
The Patient’s Bill of Rights
The patient has the right to refuse treatment to
the extent permitted by law and to be informed
of the medical consequences of his action.
PATERNALISM
- It is consist of acting in a way that is
believed to protect and advance the interests
of another even though the actions may be
against the desires, or may in fact limit the
freedom of action, of the individual.
BENEFICENCE
VS
AUTONOMY
Basic Ethical Principles
Personal Liberty of self determination
Practitioner’s beneficence
VS
Catherina Cenzon-DeCarlo RN
ROBERT VEATCH
Series of
Hypothetical Model
Physician – patient
relationship
ENGINEERING
MODEL
Patient’s
Autonomy
PRIEST
MODEL
Learned physician's
opinion is more
valuable
COLLEGIAL
MODEL
Common goal
Ethnic, class
and value
differences
CONTRACTUAL
MODEL
This is a shared decision-making model
in which the patient is accorded the
right to make decisions and to have
control over his life whenever
significant decisions are to be made.
OBLIGATIONS and
EXPECTED
BENEFITS
INFORMED
CONSENT
INFORMED CONSENT
This is a moral and legal doctrine, a product of
the last half of the twentieth century as judges
have sought to protect the patient’s right to
greater freedom of choice.
This binds the physician to an adequate
disclosure and explanation of the treatment and
the various options and consequences.
The Elements of Informed Consent
Disclosure
Understanding
Voluntariness
Competence
Consent
Disclosure
The nature of the
condition
The various options
Potential risks
The professional’s
recommendations
Nature of consent as
an act of authorization
Understanding
Provision of information
at the level of that the
patient would understand
Voluntariness
No efforts towards
coercion
Manipulation
Constraint
Practice self
determination
Competence
Maturity
Responsibility
Independence
of judgment
Consent
An autonomous authorization of
the medical intervention
Locked-In Syndrome and Informed
Consent
Some patients following a massive
cerebrovascular accident (stroke)
survive the loss of function within
their brain stem and suffer a
condition known as locked-in
syndrome. Paralyzed from head to
toe, they are locked in their body
and unable to move , but their mind
remains intact. In this particular
case the only means the patient had
to communicate was by blinking the
left eye. Unable to effectively clear
secretions, these patients often are
subject to life threatening
Can this patient be
considered competent
to make the decision?
Can informed consent
be given with a blink
of an eye?
CONSENT
CONSENT
Oral
Implied
Written
General
Special
ORAL CONSENT
Is as binding as written consent
as there is no general legal rule
that consent must be provided
in written form.
Requires collaboration.
Difficult to prove.
IMPLIED CONSENT
Is often used in cases in
which immediate action is
required to save the
patient from death or
permanent impairment of
health.
WRITTEN CONSENT
Is preferred form of consent.
This provides legal, visible
proof of the patient’s
intentions in the matter.
The obligation of gaining the
consent should not be
delegated on others on the
health care team,
instead the PHYSICIAN.
GENERAL CONSENT
These general statements are
worded in such a way as to
permit the health care
providers to perform almost
any medical or surgical
procedure that is deemed
medically necessary in the
patient’s best interest.
Do not provide a unit with
carte blanche authority.
SPECIAL CONSENT
Use in specific high-risk
procedures or
treatments that expose
the patient to an
unusual risk.
Professional Community Standard
Reasonable Patient Standard
Professional Community Standard
The practitioner and
patient were bound in a
special fiduciary
relationship in which the
difference in levels of
information and patient
trust binds the professional
to act in the patient’s behalf
Based on
Physician’s
standard of
practice.
Reasonable Patient Standard
This standard is that
the type and amount of
information needed
must be at the patient’s
level if he is truly to be
autonomous as a
decision maker.
Patient-Centered Standard
This relies on the unique
nature and abilities of
the individual patient to
determine the amount of
disclosure needed to
satisfy the requirements
Is a legal exemption to the rule of informed consent
In which it allows the caregiver to proceed with care
without consent in cases of:
“E”
Incompetence
Depression
Instability
Refusal of Lifesaving Therapy
A thirty-five-year-old pregnant woman was
taken to the hospital following an accident in
the home. At the hospital , it was determine
that the near-term fetus was not getting
sufficient oxygenation. According to medical
opinion, both the mother and child needed a
blood transfusion. The woman, a member of the
Jehovah's Witness faith , refused the blood on
the basis of her religion.
It is clear that the woman had the right to
refuse the blood for herself, but the situation
is complicated by the fact that her choice
adversely affected the child, who was delivered
by cesarean section. After the birth, the
father refused a blood transfusion for the
What then, is the basis of the
medical judgment that
overcomes and limits patient
autonomy?
COMPETENCY
DETERMINATIONDoes the patient understand the nature
of the illness and the consequences of
the various options that maybe
chosen?
Is the decision based on the
rational reasoning?
Deciding on It !!
In January 1990, an eighty-five –year-old woman was taken from a nursing home to a
medical center for emergency care. Helga Wangele required emergency intubation and was place
in a ventilator. During weaning attempt, the patient suffered a cardiac arrest and had to be
resuscitated. Following the arrest and resuscitation event, the patient was in a persistent
vegetative state. The attending physicians concluded that nothing further could be done and that
the continuation of life support was futile in that no treatment could reverse the underlying
disease processes or restore the woman to a state of acceptable function. Although continued
treatment was continued futile, the patient was not brain dead.
The physician approached her husband in regard to removing the ventilator from his
wife. During the conversation , he informed them that although his wife had not given her
opinion regarding the matter, he wanted everything done and that the physician could not play
God. It was the husband’s opinion that his wife was not better off dead and that removing the
ventilator was just another sign of the decay within the culture.
It seemed to the health care staff that the request was entirely consistent with rational
health care and the need for cost containment. Although the costs for the continued care of Mrs.
Wangele were being borne by Medicare, the physician felt the=at the case had already consumed
a fair share of the resources that had been pooled for the benefit of the community.
Helga Wangele Story
Helga’s Story
On July 1, 1991, the court
agreed with the husband
and appointed him to
represent his wife’s
interests.
Three days later the
patient died of
Medical Futility
Refers to medical care
that prolongs suffering,
does not improve the
quality of life, or fails to
achieve good outcome
for the patient.
Hope that Medicine
can provide miracles
Quantitative Futility - based on
consideration of reported empirical data
(such as treatment has been found useless
in the last 100 cases), or similar personal
experience, or experiences shared with
colleagues.
Qualitative Futility – based on
the assessment that the
treatment will merely preserve
biological life such as
permanent unconsciousness or
a treatment that cannot end
dependence on intensive
medical care.
Thank YoÜ

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Nursing Ethics

  • 2.
  • 3. TUSKEGEE STUDY Syphilis is a chronic, contagious bacterial disease that is most often sexually transmitted but is sometimes congenital. Since about 1946, the disease has been successfully treated with antibiotics. Prior to 1946, individuals with the disease had an inevitable progress through its sequelae, from the primary lesion and chancre to rash, fever, and swollen lymph nodes to the final stage of nervous system and circulatory problems and finally death. The progress of the disease is often thirty to forty years.
  • 4. Around 1929 there were several countries in the South with a high incidence of syphilis. The US Public Health Service (USPHS) began a demonstration project to treat those afflicted with the disease in Macon Country, Alabama, home of the famous Tuskegee Institute. With the great Depression, funding for the project to treat the men became an opportunity for a study in nature. A study in nature means that that the researchers were not to treat the patients but rather were to observe the natural progression of the disease.
  • 5. To conduct this study in nature, the USPHS selected 399 African American men who had never received treatment. The research group was told essentially that they had “bad blood”, and as they had been selected for special free treatment. Except for an African-American nurse, Eunice Rivers, there was very little continuity with staffing of the experiment, as the federal doctors would come every few years to check the progress of the disease. To induce the participants, they were promised free transportation, free hot lunches, free medicines (for everything except for syhilis), and free burials.
  • 6. Although antibiotics were available in adequate supply by 1946, the study subjects were never treated. In fact, the local draft board was provided their names so that they could not enter the army, where they would have been treated as a matter of course. The local members of the Country Medical Society were also provided their names and were asked not to provide them with antibiotics. In July 1972, Peter Buxtun of the USPHS, who had been criticizing the study since 1966, told the story to an Associated Press reporter, and the research became headline across the nation. In 1997, President Clinton officially apologized to the remaining study participants on behalf of the United States government.
  • 7. Three Dominant Themes in Bioethical Inquiry
  • 8.
  • 9. The practice of doing acts of goodness, kindness, and charity that directly benefit the patient.
  • 10.
  • 11.
  • 12. Patient’s Bill of Rights 8. Be informed of business relationship among the hospital , educational institution, health care providers that may influece the patient’s treatment and care. 9. Consent or decline to participate in experimental research affecting his care. 10. Reasonable continuity of care when appropriate and be informed of other care options when hospital care is no longer appropriate 11. Be informed of the hospital policies and practices that relate to patient care.
  • 13. “ Apply measures for the benefit of the sick” - Hippocratic Oath “The nurse’s primary commitment is to the health, welfare, and safety of the client” -Pledge of the American Nurses Association
  • 14. The Nightingale Pledge I solemnly pledge before God And in the presence of this assembly To pass my life in purity And to practice my profession faithfully. I will abstain from whatever is deleterious and mischievous, And will not take nor administer any harmful drug I will do all in my power To elevate the standards of my profession And will hold in confidence All personal matters committed to my keeping And all family affairs coming to my knowledge In the practice of my profession With loyalty will I endeavor to aid the health team in their work And devote myself to the welfare of those committed to my care So help me God Formulated in 1893 by a Committee headed by Mrs. Lystra E. Gretter RN
  • 15. Is the restoration of life appears to have no value to the individual, beneficence? Are the staggering fiscal and emotional costs justifiable?
  • 16. If a fetus is detected to be deformed or defective through a process, known amniocentesis, would you be doing it more good than harm by aborting it?
  • 17. This marks the significance of individual autonomy which mandates a strong sense of personal responsibility for one’s own life. Responsibility FREEDOM Last arbiter of moral decision
  • 18. ⁺ A form of personal liberty , where the individual is free to choose and implement her own decisions, free from deceit, duress, constraint, or coercion. Self determination
  • 19. Disclosure Ünderstanding VoluntarinessCompetence The information must be provided at a time when the patient is able to sort options rationally and is in a position to grant or refuse consent.
  • 20. Therapeutic privilege incompetence waiver Implied consent BENEVOLENT DECEPTION The practitioner is allowed to intentionally withhold information based on his sound medical judgment that to divulge the information might potentially harm a depressed and unstable patient.
  • 22. PATERNALISM Is the intentional limitationof the autonomy of one person by another, in which the person who limits autonomy appeals exclusivelyto grounds of benefit to the other person. FIDUCIARY RELATIONSHIP
  • 23.
  • 24.
  • 25. The American Hospital Association’s The Patient Care Partnership :Understanding Expectations, Rights and Responsibilities. Discussing your treatment plan: When you enter the hospital you sign a general consent to treatment. In some cases , such as surgery or experimental treatment, you may be asked to confirm in writing that you understand what is planned and agree to it. This process protects your right to consent or to refuse a treatment. Your doctor will explain the medical consequences of refusing recommended treatment. It also protects your right to decide if you want to participate in a research study.
  • 26. The right to refuse medical treatment and to die with dignity
  • 27. The rendering of what is due or merited; likewise, that which is due or merited. This also refers to the right to demand to be treated justly, fairly and equally.
  • 28. Refers to a principle of equity which prescribes fairness and impartiality regarding equal access to health care and the allocation of scarce medical resources.
  • 29. Two Types of Justice
  • 30.
  • 31.
  • 32. VS Hospital has to put triage schemes to determine who should be served first. 1. Assess the medical prognosis or medical utility or who among the patients is most likely to survive. 2.Social utility or social value or worth, ability to pay, or first- come-first-served basis.
  • 33. Procedural justice or due process Distributive Justice
  • 34. Article XIII of the Philippine Constitution The state shall adopt an integrated and comprehensive approach to health development an shall endeavor to make essential goods, health and social services available to at affordable cost. There shall be priority for the needs of the underprivileged, the sick, the elderly and the disabled, the women and children. The state shall endeavor to provide free medical care to paupers, establish and maintain an effective food and drug regulatory system, and undertake appropriate health manpower development and research responsive to the country’s health needs and problems. It shall be establish a special agency for disabled persons for their rehabilitation.
  • 35. “a state of complete physical, mental, and social well being , and not merely the absence of disease.”-WHO
  • 36. National Heath Insurance Act of 1995 Republic Act 7875
  • 37. Senior Citizens Act of the Philippines & Expanded Senior Citizens Act of 2003 Republic Act 7432 & Republic Act 9257
  • 38.
  • 39.
  • 41. FIDUCIARY RELATIONSHIP The patient has the right to expect a higher level of truthfulness from us than other whom they deal. Dealer of a used Car Healthcare practitioner
  • 42. BENEVOLENT DECEPTION The idea of not telling the truth to the patient. The suggestion is that the individual is not strong enough to tolerate the truth or more time needed to prepare the patient for unpleasant fact. Slipper y slope
  • 43. BENEVOLENT DECEPTION Several cases are therein cited: 1. A young married male who was diagnosed to have AIDS requests the doctor not to tell his diagnosis to his wife. 2. The children of an aged grandmother suffering from metastatic cancer request the doctor not to tell their mother her diagnosis and instead to proceed with the chemotherapy.
  • 44. What tormented Ivan Ilyich most was the deception, the lie, which for some reason they all accepted he was no dying but simply ill … what tormented Ivan Ilyich was that no one pitied him as he wished to be pitied . At certain moments after prolonged suffering , he wished most of all (although he was ashamed to confess it) for someone to pity him as a sick child is pitied. He longed to be petted and comforted.
  • 45. The Justification of Paternalism (by not telling the truth) by Gert and Culver The lie benefits the person lied to; the lie prevents more evil than it causes for that particular person. It must be possible to describe the greater good that occurs. The individual should want to be lied to. If the evil avoided by the lie is greater than the evil caused by it, a person would be irrational not to want to be lied to. Assuming equal circumstances, we should always be willing to allow the violation of veracity.
  • 46.
  • 47.
  • 48. Beneficenc e Nonmaleficence One ought to prevent evil or harm One ought to remove evil or harm One ought to do or promote good One ought not to inflict evil or harm
  • 50. The double effect principle The principle applies to a situation in which a good effect and an evil effect will result from good cause.
  • 51. A woman who is three months pregnant and is found to have cancerous uterus. To save the woman’s life, her uterus must be remove at the earliest possible time; but to do so, the life of the fetus would be sacrificed.
  • 52. Should a dying person in pain be given a sedative, when the health practitioner knows it would cause respiratory depression or arrest?
  • 53.
  • 54.
  • 55. The American Hospital Association’s The Patient Care Partnership: Understanding Expectations, Rights and Responsibilities. We respect the confidentiality of your relationship with your doctor and other caregivers, and the sensitive information about your health and health care that are part of that relationship. State and Federal laws and hospital operating policies protect the privacy of your medical information. You will receive Notice of Privacy Practices that describes the ways that we use, disclose, and safeguard patient information from our records about your care.
  • 56.
  • 57.
  • 58.
  • 59.
  • 60.
  • 61.
  • 62.
  • 63. Filipino Primary Principle of Bioethics Goodness Beneficence Family
  • 64. is demonstrated through the practice of justice, respect for autonomy, compassion, veracity, fidelity, and confidentiality generosity and hospitality Compatriots / Indebt ness or gratitude – perpetuated
  • 65. connotes blessings, acts of mercy, kindness, charity, altruism, love, humanity and kindness
  • 66. is the solid bank one can rely on where withdrawal of help and support is endless and the recourse is never In the Visayan dialect, the parents are regarded as the source of everything, hence the term “ ginikanan” meaning the source
  • 67.
  • 68. CONFIDENTIALITY and the Management of Health Care Information
  • 69. “What I may see or hear in the course of the treatment or even outside of the treatment in regard to life of men, which on no account one must spread abroad, I will keep to myself, holding such things shameful to be spoken about. “ -Hippocratic Oath
  • 70. Pizza 2010 Operator: Thank You for calling City Pizza, May I have your….. Customer: Hi, I’d like to order…. Operator: May I have your NIDN, first sir? Customer: My National ID Number, yeah, hold on, eh, it’s 609 609 906 609 Operator: Thank you, Mr Jones. I see you live at 1742 Block lane, and your phone number is 492-6332. Your office number is 492-5288, ext 091. Which number are you calling from, sir? Customer: Huh? I’m at home. Where d’ya get all this information? Operator: We’re wire into the system, sir. Customer(sighs): Oh well, I’d like to order a couple of your all-meat specials. Operator: I don’t think that’s a good idea sir. Customer: Whaddya mean?
  • 71. Operator: Sir, your medical records indicate that you’ve got very high blood pressure and extremely high cholesterol. Your national health care provider won’t allow such unhealthy choice. Customer: What do you recommend then? Operator: You might try our new low-fat soybean yogurt pizza. I’m sure you’ll like it. Customer: What makes you think I’d like something like that? Operator: Well, you checked out Gourmet Soybean Recipes from the library last week, sir. That’s why I made the suggestion. Customer: All right, all right. Give me two family sized ones. Operator: Will there be anything sir? Customer: No, nothing. Oh yeah, don’t forget the two free liters of Coke your ad says I get with the pizzas. Operator: I’m sorry. Sir, but our ad’s exclusionary clause prevents us from offering free soda to diabetics….
  • 72. Health Privacy Project of Georgetown University Although she had received a positive review and raise, Terrie Sergeant, a North Carolina resident, was fired from her job after being diagnosed with a genetic disorder that require expensive treatment. An Atlanta truck driver lost his job in early 1998 after his employer learned from his insurance company that he had sought treatment for a drinking problem. The thirteen-year-old daughter of a hospital employee took a list of patients’ name and phone numbers from the hospital while visiting her mother. As a joke, she contacted the patients and told them they had been diagnosed with HIV.
  • 73. Health Privacy Project of Georgetown University A banker who served on his country’s health board cross-referenced customer accounts with patient information and called due mortgages of anyone with cancer. A doctor’s laptop was stolen at a medical conference. The computer contained the names and medical histories of his patients. Documents referring to over 125 psychiatric patients of Rapid City Regional Hospital were found in a convenience store trash can. A fourth year medical student had taken the papers from the hospital and dumped them in the trash.
  • 74. Teleological Ethics Duty-Oriented Ethics Chilling effect to the truth telling relationship. Personal-privacy is a basic right Lost confidence Severely limited quality of care Autonomous right to the control personal information Person’s right Professional’s duty
  • 75. Is Confidentiality absolute? Or might be overridden by other considerations?
  • 76. A young man by the name of Prosenjit Poddar confided to his clinical psychologist that he intended to kill a young woman he readily identified as Tatiana. The psychologist, understanding that his patient presented a real danger to the young woman, decided that Prosenjit should be committed for seventy-two hours to allow further evaluation, and he notified security to assist in securing the patient’s confinement. The patient, however, convinced the security officers that he was rational , and he was released following his promise to stay away from the young woman. The health care providers rescinded to place Prosenjit in confinement for evaluation, and no efforts were made to warn Tatiana or her family of potential danger. Within the weeks of these events, Prosenjit murdered the young woman. Tarasoff Case Tarasoff CaseTarasoff Case
  • 77. To whom do the caregivers owe their duty? To their real patient? To the potential victim?
  • 78.
  • 79. Code of Medical Ethics: Current Opinions of the American Medical Association The obligation to safeguard patient confidence is subject to certain exceptions, which are ethically and legally justified because of overriding social considerations. Where a patient threatens to inflict bodily harm to another person or to himself or herself and there is a reasonable probability that the patient may carry out the threat, the physician should take reasonable precautions for the protection of the intended victim, including notification of law enforcement.
  • 80. Harm Principle This principle requires that health care providers refrain from acts or omissions that would forseeably result in harm to others, especially in cases in which the individuals are particularly vulnerable to the risk. Sissela Bok Child abuse Contagious diseases Sexually Transmitted Diseases Wounds caused by guns or knife
  • 82. The practitioner's observance of the principle of confidentiality must always be balanced by the need to protect other’s from foreseeable harm, especially if the other individual is particularly vulnerable to that harm
  • 83. MEDICAL RECORD Medical records Personal data of financial and social nature Patient Attending physician Authorized representative Hospital staff members with legitimate interest •Health care practitioners •Professional education •Administrative function •Auditing functions •Research •Public health reporting •Criminal law requirements
  • 84. GUIDELINES TO PROTECT THE SECURITY OF MEDICAL RECORDS Competent medical records or risk management personnel Original Medical Records No patient nor representative
  • 85. 85% → Physician 80% → allied health and nursing professions Insurance company – because they pay the bills Public health agencies – monitoring and investigating disease outbreak pattern Employers – assess job-related injuries Government – develop health care plan and allocate resources Attorneys and law enforcement agencies – evidence to settle civil and criminal matters Media – report hazarda nd report medical research development
  • 87. A Young woman who states she has just been raped comes into the emergency room requesting a pelvic examination and a morning –after pill but insists that the staff not to call the police. The staff reports the incident.
  • 88. A young father brings his child into the emergency room for treatment of an arm injury. The family has brought the child in several times for similar injuries with the same excuse that she is somewhat clumsy and is having difficulty learning to ride her bike. The child shows no fear of the parent
  • 89. You are a nursing student on the pediatrics rotation within the hospital , and you notice that the neighbor of your parents has been admitted to the surgery unit.
  • 90. In the course of caring for a patient, a school bus driver, the physician notes that she is at risk for having a heart attack and recommends that she cease driving, since she may be placing the children at risk. The driver asks the
  • 91. During the course of a patient evaluation, you find that the family
  • 92. Professional Gate keeping as a function of Role Fidelity
  • 93. Is there a Duty to Lie? Barbara Gonzales is a special procedure nurse at a medium-sized community hospital . She enjoys her position as it allows her to spend additional time with the patients who have come in for cardiac stress tests. In fact, she enjoys almost all aspects of her job with the exception of dealing with Dr. Jones, who is invariably late for procedure appointments. Barbara understands that physicians have full schedules and often takes additional time with some patients, which makes them late for all other appointments that day. However, in this case, it is not a professional problem that is delaying the physician but rather a personal one. It is widely known among the hospital staff that he is having an affair with a nurse from the critical care unit. Barbara does not care who Dr. Jones is having an affair with and feels that it is not her business to judge. However, she resents being brought into matter, as the doctor has directed her to tell his waiting patients that he is being held up in an emergency.
  • 94. Is nurse Gonzales making a big deal over a small matter? Does she have a duty to protect her colleague? How would you address this issue?
  • 95. Gatekeeping One looks out for the interests of the profession or of others in a similar practice, comes as a result of our professional obligations and training, this leads us to a strong sense of collegiality with others in our practice. We are not only responsible for our actions in regard to the patient but we are also charged with the duty to ensure that the rest of the health team is practicing appropriate care.
  • 96. Am I my brother’s keeper?
  • 97. Professional Code of Ethics -Set a series of ethical rules for the members. - it symbolizes that this group of professionals is differentiating itself from the broader group of occupations and technical careers. -To affirm that the professional is an autonomous, responsible decision maker, not someone who just follow orders.
  • 98. Professional Code of Ethics Limiting competition Restricting advertisement
  • 99. Issues that infarct professional Gatekeeping as a function of ROLE FIDELITY
  • 102. The Hard-Working Therapist Sheryl is a respiratory therapy technician in a small town in Michigan. The town has a small hospital and a small durable medical supply company. Sheryl is known locally as an entrepreneur ball of fire and has manage d to become both the head of the hospital respiratory care department and the owner of the small durable medical supply company.
  • 103. In the most of the referrals from Sheryl’s department for home care equipment are to Sheryl’s home care business, does this present a conflict of interest? What should Sheryl do?
  • 106.
  • 108. Ethical Decision Making in Nursing Administration Mary C. Silva Gather the facts. Identify the dilemma concrete terms. Explore all the options and rules or principles governing each option. Make a decision, and be prepared to reflect on the decision.
  • 109.
  • 110. Who is the patient? In a recent pediatric case presentation, a physician described a situation in which a fourteen-year-old boy is brought to the clinic. The teenager is described by the physician as having one of the most severe cases of attention deficit disorder (ADD) that he had seen in practice. During the session , the boy fidget, did not stop hand gestures, and did leg swinging and tapping. According to the mother, the boy would not pay attention to any adult attempting to engage him and was in jeopardy of flunking ninth grade. The mother wants the physician to write a prescription for Ritalin. Given the boy’s condition, the request seems reasonable although not without some potential side effects, such as tics and sleep disturbances. The boy however, does not want the medication, stating that when “ I take that stuff, I zone out. I’m like a log. Ritalin ruins my life!” He describes life without the medication as being in a room in which all the newest videos are playing and try to watch them all. When he is not on medication, he feels that he is more alive, that he can crack great jokes, and fellow students like him. Given the adolescence is the time when we want young people to find out who they are, is it right to medicate him and not allow him to express what he sees as being his true self? It is
  • 111. Should the physician write the prescription?
  • 114. A author who contracts a terminal disease. His physician knows of a drug that, if taken, will extend the author’s life by ten years. Following the physician’s recommendation , the author takes the medication and starts what he anticipates will be his greatest work. Unfortunately, the medication leaves his mind clouded, and he losses his ability to write., He faced with the problem of taking the medication and extending his life to ten rather cloudy, noncreative years or not taking the medication and shortening his life by seven or eight years. Without the drug however, during his remaining two to three years he would be clear minded,
  • 115. The Code of Ethics of the American Medical Association (1848) The obedience of a patient to the prescriptions of the physician should be prompt and implicit. He should never permit his own crude opinions. The Patient’s Bill of Rights The patient has the right to refuse treatment to the extent permitted by law and to be informed of the medical consequences of his action.
  • 116. PATERNALISM - It is consist of acting in a way that is believed to protect and advance the interests of another even though the actions may be against the desires, or may in fact limit the freedom of action, of the individual. BENEFICENCE VS AUTONOMY
  • 117. Basic Ethical Principles Personal Liberty of self determination Practitioner’s beneficence VS
  • 119.
  • 120. ROBERT VEATCH Series of Hypothetical Model Physician – patient relationship
  • 124. CONTRACTUAL MODEL This is a shared decision-making model in which the patient is accorded the right to make decisions and to have control over his life whenever significant decisions are to be made. OBLIGATIONS and EXPECTED BENEFITS
  • 126. INFORMED CONSENT This is a moral and legal doctrine, a product of the last half of the twentieth century as judges have sought to protect the patient’s right to greater freedom of choice. This binds the physician to an adequate disclosure and explanation of the treatment and the various options and consequences.
  • 127. The Elements of Informed Consent Disclosure Understanding Voluntariness Competence Consent
  • 128. Disclosure The nature of the condition The various options Potential risks The professional’s recommendations Nature of consent as an act of authorization
  • 129. Understanding Provision of information at the level of that the patient would understand
  • 132. Consent An autonomous authorization of the medical intervention
  • 133. Locked-In Syndrome and Informed Consent Some patients following a massive cerebrovascular accident (stroke) survive the loss of function within their brain stem and suffer a condition known as locked-in syndrome. Paralyzed from head to toe, they are locked in their body and unable to move , but their mind remains intact. In this particular case the only means the patient had to communicate was by blinking the left eye. Unable to effectively clear secretions, these patients often are subject to life threatening
  • 134. Can this patient be considered competent to make the decision? Can informed consent be given with a blink of an eye?
  • 136. ORAL CONSENT Is as binding as written consent as there is no general legal rule that consent must be provided in written form. Requires collaboration. Difficult to prove.
  • 137. IMPLIED CONSENT Is often used in cases in which immediate action is required to save the patient from death or permanent impairment of health.
  • 138. WRITTEN CONSENT Is preferred form of consent. This provides legal, visible proof of the patient’s intentions in the matter. The obligation of gaining the consent should not be delegated on others on the health care team, instead the PHYSICIAN.
  • 139. GENERAL CONSENT These general statements are worded in such a way as to permit the health care providers to perform almost any medical or surgical procedure that is deemed medically necessary in the patient’s best interest. Do not provide a unit with carte blanche authority.
  • 140. SPECIAL CONSENT Use in specific high-risk procedures or treatments that expose the patient to an unusual risk.
  • 142. Professional Community Standard The practitioner and patient were bound in a special fiduciary relationship in which the difference in levels of information and patient trust binds the professional to act in the patient’s behalf Based on Physician’s standard of practice.
  • 143. Reasonable Patient Standard This standard is that the type and amount of information needed must be at the patient’s level if he is truly to be autonomous as a decision maker.
  • 144. Patient-Centered Standard This relies on the unique nature and abilities of the individual patient to determine the amount of disclosure needed to satisfy the requirements
  • 145. Is a legal exemption to the rule of informed consent In which it allows the caregiver to proceed with care without consent in cases of: “E” Incompetence Depression Instability
  • 146. Refusal of Lifesaving Therapy A thirty-five-year-old pregnant woman was taken to the hospital following an accident in the home. At the hospital , it was determine that the near-term fetus was not getting sufficient oxygenation. According to medical opinion, both the mother and child needed a blood transfusion. The woman, a member of the Jehovah's Witness faith , refused the blood on the basis of her religion. It is clear that the woman had the right to refuse the blood for herself, but the situation is complicated by the fact that her choice adversely affected the child, who was delivered by cesarean section. After the birth, the father refused a blood transfusion for the
  • 147.
  • 148. What then, is the basis of the medical judgment that overcomes and limits patient autonomy?
  • 149. COMPETENCY DETERMINATIONDoes the patient understand the nature of the illness and the consequences of the various options that maybe chosen? Is the decision based on the rational reasoning?
  • 151. In January 1990, an eighty-five –year-old woman was taken from a nursing home to a medical center for emergency care. Helga Wangele required emergency intubation and was place in a ventilator. During weaning attempt, the patient suffered a cardiac arrest and had to be resuscitated. Following the arrest and resuscitation event, the patient was in a persistent vegetative state. The attending physicians concluded that nothing further could be done and that the continuation of life support was futile in that no treatment could reverse the underlying disease processes or restore the woman to a state of acceptable function. Although continued treatment was continued futile, the patient was not brain dead. The physician approached her husband in regard to removing the ventilator from his wife. During the conversation , he informed them that although his wife had not given her opinion regarding the matter, he wanted everything done and that the physician could not play God. It was the husband’s opinion that his wife was not better off dead and that removing the ventilator was just another sign of the decay within the culture. It seemed to the health care staff that the request was entirely consistent with rational health care and the need for cost containment. Although the costs for the continued care of Mrs. Wangele were being borne by Medicare, the physician felt the=at the case had already consumed a fair share of the resources that had been pooled for the benefit of the community. Helga Wangele Story
  • 152. Helga’s Story On July 1, 1991, the court agreed with the husband and appointed him to represent his wife’s interests. Three days later the patient died of
  • 153. Medical Futility Refers to medical care that prolongs suffering, does not improve the quality of life, or fails to achieve good outcome for the patient.
  • 154. Hope that Medicine can provide miracles
  • 155. Quantitative Futility - based on consideration of reported empirical data (such as treatment has been found useless in the last 100 cases), or similar personal experience, or experiences shared with colleagues. Qualitative Futility – based on the assessment that the treatment will merely preserve biological life such as permanent unconsciousness or a treatment that cannot end dependence on intensive medical care.