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Disability Awareness 
Training
You will be able to answer these questions: 
Why make your museum, institution or site accessible to people 
with disabilities? 
Who are your users with disabilities? 
How is disability defined? 
What is accessibility? How to welcome different groups of patrons 
with disabilities? 
What is Universal Design?
WHY MAKE YOUR INSTITUTION ACCESSIBLE TO 
PEOPLE WITH DISABILITIES? 
Institutional Perspective 
Economic Perspective 
Legal Perspective
Institutional Perspective: Your Accessibility 
Market – Not Only Museum Visitors 
Accessibility is not just for your general public of 
museum visitors! Your museum should also be 
accessible for: 
…your employees 
…your board of directors 
…your funders 
…your artists, scientists, historians, performers 
…museum service providers and vendors 
…anyone who comes through the doors
Economic Perspective: Why Create 
Access to the Arts? 
Museums and other cultural institutions cannot afford to lose, or exclude 
by omission, this large a group from their audience, staffing or funding 
base. 
• Almost 1-in-6 Americans, or 56 million people, age 5 and over, experience a 
disability (2009), about 19%. 
• 56 million Americans with disabilities have an aggregate income of $1 trillion, 
with disposable income of $220 billion (larger than the highly sought-after teen 
market of $170 billion). Of them 73% are heads of households; 58% own their 
own homes; 48% are principal shoppers; 46% are married. 
• 20.3 million of America’s 69.6 million families have at least one member with 
a disability. 
• The disabilities of aging – mobility, vision, hearing and cognition – are 
categories that will grow as the baby boom generation ages. Half of the “Baby 
Boomers" over 65 have a disability. The Administration on Aging projects that 
by 2030 there will be more than 69 million people age 65 and older. It is the 
fastest growing segment of the population.
Legal Perspective: Why Create 
Access to the Arts? 
Creating access is a legal responsibility, mandated by federal 
statutes as well as state and local laws. If your state minimums are 
higher than federal, you must meet your state’s codes. 
Keep in mind that the law outlines only the minimum requirements.
Disability Legislation: Overview 
• Rehabilitation Act of 1973: Defines the rights of people with disabilities. 
Section 504 of this act forbids federally funded public and private 
organizations from excluding or denying individuals with disabilities an equal 
opportunity to receive benefits/services. 
• Americans with Disabilities Act (ADA) of 1990: Sets basic requirements 
for access to all to public spaces, including museums. Covers physical 
requirements for buildings/exhibits plus the need to provide equal 
experiences/learning opportunities for people with disabilities. 
• Telecommunications Act of 1996: Enables access for all Americans to the 
benefits of the information superhighway. 
• Individuals with Disabilities Education Act (IDEA) of 1994: Designed to 
protect the rights of students with disabilities by ensuring free appropriate 
public education to all, regardless of ability. Also provides federal financing 
to state/local educational agencies to guarantee special education for 
qualifying students. 
• State and Local Accessibility Laws provide minimums for public 
buildings, transportation, etc.
Spirit of the Law: 
Equal Opportunity to Participate 
The spirit of the law is that everyone must have an equal 
opportunity to participate in cultural life. In the best of all 
possible worlds, accessibility is transparent and integrated into 
the everyday functioning of the museum or institution. It should 
not be a “special” service. Participation for people with 
disabilities should be: 
•As independent and discreet as possible. Activities, 
exhibitions and services, as much as is practicable, should not 
be segregated from other visitor's experiences. 
•As complete as possible. The aim of accessibility 
accommodations is to provide comparable level of information 
and experience as is given to visitors without disabilities.
ADA Resources 
For more information contact your regional Disability and 
Business Technical Assistance Centers (DBTACs). They provide 
public awareness materials, technical assistance, training, and 
referrals on the ADA. For more information visit their website: 
http://www.adata.org/ 
To reach the Center in your region, call toll-free: V/TTY: 
1-800-949-4232 
Copies of ADA publications are available at no or reasonable 
cost.
HOWIS DISABILITY DEFINED? 
Paradigm Shift: From Medical Disability Model to Social 
Model 
New Definition of Disability and Its Impact of Defining 
Accessibility 
“Invisible” Disabilities
Changing View of Disability 
• Disability is a human reality that has been perceived differently by 
diverse cultures and historical periods. 
• For most of the 20th century, disability was defined according to a 
medical models. 
• Disability has traditionally been assumed to be a way to characterize 
a particular set of largely static, functional limitations. 
• This led to stereotyping and defining a person by condition or 
limitations.
Disability Redefined 
Disability is the 
world’s largest 
minority group and it 
is one that anyone 
can join at any time.
New World Health Organization (WHO) 
Definition of Disabilities 
In 2001, the WHO established a new definition of 
disability; it is based on human rights, or social models, 
and focuses on the interaction between a person with a 
disability and the environment. DISABILITY is an 
umbrella term, which includes several components: 
• impairments: a problem in body function or structure 
• activity limitations: a difficulty encountered by an 
individual in executing a task or action 
• participation restrictions: a problem experienced by 
an individual’s involvement in life situations
New View: Social or Human Rights Model 
• This places emphasis on contextual factors and the role played by 
societies and institutions (including cultural institutions) in defining, 
causing, or maintaining a disability, or disabling experiences. 
• This paradigm shift allows us to focus on strategies that minimize 
disabling experiences rather than “correct” or modify the individual 
with a disability.
Paradigm Shift: Definition of Disability 
OLD APPROACH 
• A diagnosis 
• An person is limited by the 
impairment or condition 
• A medical "problem" 
NEW PARADIGM 
• Individuals with temporary 
or permanent impairments 
require accommodations to 
carry out life activities 
• A socio-environmental issue 
involving accessibility, 
accommodations, and 
equity
Paradigm Shift: 
Strategies to Address Disability 
OLD APPROACH 
• Fix the individual 
• Correct the deficit 
• Provide medical, vocational, 
or psychological 
rehabilitation services 
• People with disabilities are 
objects of intervention, 
research subjects or 
patients 
NEW PARADIGM 
• Remove barriers 
• Access through 
accommodations and 
universal design 
• Opportunities and education 
for a range of abilities 
• Patrons with disabilities get 
involved as community 
members, advisors, decision 
makers
New Definition of Disability and Its Impact on 
Defining Accessibility 
Disability is a mainstream experience of being human, not 
something that resides in some individuals. All of us 
experience some change in ability, whether permanent or 
temporary. 
Disability as a contextual experience. Functional limitation 
is a fact. Disability is a phenomenon of the experience that 
occurs by the individual intersecting with the environment, 
including physical, information, communication, social, and 
policy environments. 
Valerie Fletcher, Institute for Human Centered Design
“Invisible” Disabilities 
Many people who benefit from or need accessible 
accommodations may not identify themselves as having a 
disability. WHY? 
• Changes may be temporary, such as the result of an accident 
or as a side effect of medication. 
• Changes are incremental and happen slowly, so the moment 
when we identify ourselves as having a disability never arrives. 
• Most people over 60 have or will have “acquired limitations.” 
As we age, we can’t walk as far, and our eyes, ears, and hands 
don’t work as well. 
• The need for accessibility – better lighting, larger print, 
magnified sound, accessible elevators and bathrooms, or more 
seating – will remain.
Accessibility 
Communication Strategies 
Accessible Design 
Accommodations and Enhancements: Mobility, 
Cognitive, and Sensory 
Accessible Web
Accessibility Skills: Communication Strategies 
People-first Language 
Communication Tips: Basics 
Welcoming People with Physical Disabilities 
Welcoming People who are Deaf or Hard of Hearing 
Welcoming People with Autism, Alzheimers and their Families 
Welcoming People who are Visually Impaired 
Sighted Guide Technique
People-first Language 
People-first language emphasizes the person, not the 
disability. Disability is not the primary, defining 
characteristic of an individual, but one of several aspects 
of the whole person. 
 Note re: Deaf Culture. Many people who are D/deaf 
communicate using American Sign Language and consider 
themselves to be members of a cultural and linguistic minority. 
Other individuals who are deaf or hard of hearing 
communicate through listening and spoken language. 
As always: If you don’t know, ask the person what is preferred.
People-first Language 
People-first Language 
 people with disabilities 
 he has an intellectual disability 
 my son has autism 
 she has Down syndrome 
 he has a learning disability 
 she has a physical disability 
 he’s of short stature or he’s short 
 she has an emotional disability 
 he uses a wheelchair 
 typical kids or kids without disabilities 
 she receives special education 
services/additional support services 
 accessible parking, bathrooms, etc. 
 she has a need for… 
Labels Not to Use 
• the handicapped or disabled 
• the mentally retarded 
• my son is autistic 
• she’s a Downs kid, a 
mongoloid 
• he’s learning disabled 
• she’s crippled 
• he’s a dwarf (or midget) 
• she’s emotionally disturbed 
• he’s wheelchair bound or 
confined to a wheelchair 
• normal and/or healthy kid 
• she’s in special ed 
• handicapped parking, 
bathrooms, etc. 
• she has a problem with… 
This material is reprinted with the permission of 
© 1999 The North Carolina Office on Disability and Health
Common Stereotypes to Avoid 
• Representing or treating a person with a disability 
as dependent or as an object of pity 
• Putting the person with a disability on a pedestal 
• Representing the person with a disability as having 
special gifts or abilities because of his or her 
disability
Communication Tips: Basics 
• Don’t be afraid to make a mistake. 
• Treat adults as adults. 
• Don’t make assumptions about what a person can or 
cannot do. 
• Ask before giving assistance. If you offer help and the 
person says “no,” don’t insist. If the answer is “yes,” ask 
how you can best help and follow directions. 
• If someone with a disability is accompanied by another 
individual, address the person with a disability directly. 
Don’t speak through the other person. 
• Expect diversity of preferences and opinions.
Welcoming 
People with Physical Disabilities 
• Personal space includes a person’s wheelchair, 
crutches, cane or other mobility aid. Never move them 
without permission. 
• Do not push a person’s wheelchair or grab the arm of 
someone walking with difficulty without first asking if you 
can help. 
• When speaking to a person using a wheelchair for more 
than a few minutes, try to find a seat for yourself so that 
the two of you are at eye level.
Welcoming 
People who Are D/deaf or Hard of Hearing 
• Ask the person how he or she prefers to communicate. 
• If you are speaking through an interpreter, remember that the 
interpreter may lag a few words behind. Pause occasionally. 
• Talk directly to the person who is D/deaf or hard of hearing, not to 
the interpreter. 
• Before you speak, make sure you have the person’s attention 
and that he/she is looking at you. A wave, a light touch on the 
shoulder are appropriate ways to get attention. If an individual 
uses listening and spoken language, saying the individual’s name 
is an appropriate way to get his or her attention. 
• Speak in a clear, expressive manner. Do not over enunciate or 
exaggerate words, or raise your voice. 
• The goal is communication; don’t pretend to understand if you did 
not. Ask the person to repeat it or write it down.
Speech- or Lip-reading: Things to Remember 
• It is important to note that not all D/deaf individuals can lip-read. 
• At best it is about a 50% guess, with the remainder 
understood through context. Sometimes words are 
missed and many words look the same on the lips, such 
as when forming words containing “f” and “v”, “s” and “z”, 
“sh” and “ch” and “b”, “m” and “p”. As a result, names of 
people, places, or things (words that cannot be “figured 
out”) should be spelled out. 
• Make sure there is lighting on your face, and keep your 
hands and other objects away from your mouth. 
• Face the person directly and maintain eye contact. Don’t 
turn your back or walk around while talking.
Welcoming 
People who Are D/deaf or Hard of Hearing (cont.) 
• If the person uses sign language, and you know any American Sign 
Language (ASL) or fingerspelling, try it. 
• If you offer museum programs in ASL, consider training an 
individual who is fluent in ASL to facilitate your program. 
• Have staff trained to take calls via relay from D/deaf callers. 
• If you can provide an Email address for reservations (as opposed 
to a phone number), this is much easier for many D/deaf to use. 
• People who are D/deaf or hard of hearing use assistive listening 
devices, hearing loops, captioned films, and captioned museum 
tours. 
• One option is CART (Communication Access Real-time Translation, 
also referred to as real-time captioning; can done via the 
Internet). Often, your visitor can voice for herself (expressive 
communication) and uses CART to understand what others are 
saying, especially in meetings, classrooms, or large events 
(receptive communication).
Welcoming People with Dementia 
and their Families 
When first meeting a visitor with dementia: 
• Be open hearted. People with dementia respond 
well to genuine hospitality. 
• Speak directly to the person. Assume that 
he/she is capable of responding. 
• Wait for a response. It takes people with 
dementia longer to process information, 
especially when they are in a new environment.
Welcoming People with Dementia 
and their Families (cont.) 
When greeting a visitor with dementia: 
• Make eye contact with the person. Get to eye level. 
Shake hands upon greeting. 
• Introduce yourself. Ask, “And you are?” 
• Give clear directions to waiting areas, coat room, 
restrooms (one at a time). 
• Use gesture to clarify directions.
Welcoming People with Dementia 
and their Families (cont.) 
When giving a group tour: 
• Provide a name tag in a large, bold font for each participant. 
• Introduce the group leader. 
• Use simple, bold signage to enhance orientation (example: 4th 
floor go right →). These signs may be generated specifically for 
the visit. 
• When moving through the museum, be clear about where you are 
going. For instance, say, “We are taking this elevator to 4.” 
• People with dementia do not want sympathy. Include them in 
conversation and activities. 
• Listen. People with dementia may have surprising and 
remarkable insights to share.
Welcoming People with Autism 
Basics 
• Autism is a broad spectrum disorder. Some people with 
autism are unable to verbalize. If a person does not 
respond to a verbal question, assume they understood 
you, but may not be able to speak. 
• If possible, offer another means of communication, such 
as pen/paper, or an iPad. 
• Many people with autism have auditory processing 
issues. Do not give multi-step commands or use run-on 
sentences. Straightforward, clear remarks are best. 
• Some people with autism are sensitive to touch, and 
some may react with intensity when touched. Museum 
staff and security should be aware of this.
Welcoming People with Autism (cont.) 
Stimming 
• Many people with autism appear disconnected, may not 
make eye contact, and may have stereotypy (“stims”) 
such as handclapping or rocking (and some have verbal 
stims). Do not assume that they are not taking everything 
in; they are. 
• People may stim for a variety of reasons, such as 
because they are in an unfamiliar place or are excited. 
Stimming may be how the person with autism regulates 
incoming sensory stimulation to avoid being 
overwhelmed by stimuli. Do not discourage them – 
unless, of course, it presents a danger.
Welcoming People with Autism (cont.) 
• People with autism may have visual processing 
difficulties. In particular, sudden and unexpected 
movement can be disturbing to them. Security staff 
should avoid rushing up to someone who, for instance, is 
stimming. 
• Crowds can be challenging for people with autism. 
Museum personnel should know where there is a quiet 
space to which they can direct families, if needed. 
• Loud noises can be disturbing and, conversely, low-level 
noises, such as buzzing from fluorescent lights (which 
also might flicker) can be bothersome. Be aware that 
something most people might not react to could be an 
issue for a person with autism whose sensory system is 
very sensitive.
Welcoming People with Autism (cont.) 
Social story 
• If providing programs for groups of children or 
adults with autism, develop a social story about a 
visit to the museum that can be made available to 
the group or families with members with autism prior 
to the visit. 
• Previewing an experience and having a sense of 
what to expect is important to people on the autism 
spectrum. See the example in the resource section.
Welcoming People with Autism (cont.) 
When giving a group tour: 
• At the beginning of a group visit, set clear 
parameters and explain how long you will be doing 
certain activities. 
• Reminders are important as well. For many people 
with autism, transitions can be difficult, so letting 
them know that a transition is coming up is 
important. 
• Alert people in advance if you are entering a space 
with films or videos that include bright lights, loud 
noises, abrupt actions.
Welcoming People with Autism (cont.) 
Preparing for eventuality 
• Have a system in place to assist a person with 
autism who is lost in the museum. This is 
particularly important for someone who is non-verbal 
or has limited verbal skills. 
• Consider providing special name tags or badges to 
families/groups that include a people with autism. 
This would help reunite someone who is lost with 
his/her group.
Welcoming People who Are Blind 
or Have Low Vision 
• Don’t assume that help is needed. Always ask 
before providing assistance. 
• Never push, pull or grab a blind person. This can 
be frightening and it’s often embarrassing. 
• Don’t shout. Most blind people have normal 
hearing. Speak clearly and strongly if you know that 
an older visually impaired person also has a hearing 
problem. 
• Introduce yourself. Not everyone recognizes 
voices or remembers them.
Welcoming People who Are Blind 
or Have Low Vision (cont.) 
• Identify yourself when entering a room and let 
the blind person know when you are leaving. 
Don’t leave a blind person talking to an empty 
room. 
• Don’t leave a blind person standing alone in an 
open space. 
• Don’t hesitate to use words like “see” and 
“look.” 
• Give explicit directions to a blind person, such as 
“on your left,” “to the right of your plate,” “three 
blocks north.” 
• Do not use hand signals.
Sighted Guide Technique 
Basic technique: 
The person who is blind 
or has low vision holds 
the guide’s arm lightly 
above the elbow and 
allows the guide to walk 
one-half step ahead. This 
allows him or her to feel 
and follow the guide’s 
direction.
Accommodations Used to Create 
Equal Access for All 
There are three basic types of accommodations or 
enhancements that make an environment more 
accessible for people with disabilities: 
• Mobility enhancements 
• Cognitive enhancements 
• Sensory enhancements. 
Some of them we have already mentioned.
Mobility: Not Just Wheelchairs 
Keep in mind: 
• Wheelchairs come in a variety of styles and sizes, with 
many types of attachments available. Only some are 
assisted by someone who pushes the chair. 
• Other assistive devices include Segways, service dogs, 
canes, walkers, and adaptive devices for gripping 
objects, writing or drawing, or for activities of daily 
living, such as drinking or eating.
Sensory Enhancements 
• For those who have difficulty accessing 
visual information, accommodations 
include large print and Braille, verbal and 
audio description, tactile and sound 
experiences, and magnifying devices and 
other assistive technologies. 
• For those who have difficulty accessing 
aural information or sounds, 
accommodations include: Sign language 
interpreters, assistive listening devices, 
text transcripts, captioning, and 
descriptive cues.
Cognitive or Learning Enhancements 
Information can be presented in a variety of ways. 
Examples of alternate representations of content 
Include: 
• Visual: Images or diagrams, maps, charts or 
graphs 
• Tactile: Tactile diagrams, maps and graphics, 
Braille, other tactile experiences 
• Auditory: Audio-guides, music, sound effects 
• Text: Large print, digital media, captioning
Cognitive or Learning Enhancements (cont.) 
During group tours or other structured programming, 
cognitive accommodations might include: 
• Adjustments in pace, content, and choice of language 
• Allowing extra time for transitions in activity or location 
• Keeping group size small 
• Modifying light and sound levels 
• Avoiding perceptual and sensory overloads
Creating an Accessible Environment 
Universal Design 
Universal Design for Learning 
Accessible Web
What is Universal Design? 
Universal Design is part of a spectrum of 
making places, things, programs, policies, and 
information usable by all people, to the greatest 
extent possible, without the need for adaptation 
or specialized design.
Principles of Universal Design* 
• Equitable Use: The design does not disadvantage or stigmatize any group of 
users. 
• Flexibility in Use: The design accommodates a wide range of individual 
preferences and abilities. 
• Simple, Intuitive Use: Use of the design is easy to understand, regardless of 
the user's experience, knowledge, language skills, or current concentration 
level. 
• Perceptible Information: The design communicates necessary information 
effectively to the user, regardless of ambient conditions or the user's sensory 
abilities. 
• Tolerance for Error: The design minimizes hazards and the adverse 
consequences of accidental or unintended actions. 
• Low Physical Effort: The design can be used efficiently and comfortably, and 
with a minimum of fatigue. 
• Size and Space for Approach and Use: Appropriate size and space is 
provided for approach, reach, manipulation, and use, regardless of the user's 
body size, posture, or mobility.
Accessible Exhibit Design Elements 
• Easy to understand regardless of user experience, 
knowledge, language skills, or concentration levels 
• Clear organization of important information 
• Redundant, multimodal presentations: Pictorial, 
verbal, tactile, audio 
• Inclusive, not segregated experiences 
• Provide choice in how to use and allow user to 
adapt pace 
• Minimize fatigue: physical and sensory 
• Allow size and space for approach and use: Line of 
sight and reach, whether seated or standing 
• Adequate space for assistive device or personal 
assistance
Universal Design for Learning Principles 
(CAST, www.cast.org) 
Components of a universally-designed learning 
environment: 
• Multiple means of representation 
– learners have a variety of ways to acquire 
information and knowledge 
• Multiple means of expression 
– learners have alternative means for demonstrating 
what they know 
• Multiple means of engagement 
– learners' interests are piqued; they are appropriately 
challenged and motivated to learn
Accessible Web 
• Web accessibility means that people with disabilities can 
perceive, understand, navigate, and interact with a 
website, and that they can contribute to the Web. 
• Remember that your whole site, and not only its 
accessibility section, needs to be legible and accessible. 
• Web accessibility benefits other users as well, including 
older people with changing abilities due to aging. Web 
accessibility encompasses all disabilities that affect 
access to the Web, including visual, auditory, physical, 
speech, cognitive, and neurological disabilities.
The following people/organizations contributed to this presentation: 
• Alexander Graham Bell Association for the Deaf and Hard of Hearing 
• David Barclay, LCSW-C, Ph.D., Gallaudet University 
• Peggy Becker, NY Metro Chapter of the National Autism Association 
• Valerie Fletcher, Institute for Human-Centered Design 
• Nancy Lee Hendley, Alzheimer’s Association, New York City Chapter 
• Lise Hamlin, Hearing Loss Association of America 
• Laurie Hanin, Ph.D., Center for Hearing and Communication 
• Kristen Johnson, Ph.D,, Ohio State University, 
• Sabeeha Rehman. NY Metro Chapter of the National Autism Assn. 
• Kim Mack Rosenberg, NY Metro Chapter of the National Autism Assn. 
• Robert I. Roth, University of Washington, Seattle 
• Lisa Rudley, NY Metro Chapter of the National Autism Assn. 
© 2011 Art Beyond Sight/Art Education for the Blind

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Training slideshow

  • 2. You will be able to answer these questions: Why make your museum, institution or site accessible to people with disabilities? Who are your users with disabilities? How is disability defined? What is accessibility? How to welcome different groups of patrons with disabilities? What is Universal Design?
  • 3. WHY MAKE YOUR INSTITUTION ACCESSIBLE TO PEOPLE WITH DISABILITIES? Institutional Perspective Economic Perspective Legal Perspective
  • 4. Institutional Perspective: Your Accessibility Market – Not Only Museum Visitors Accessibility is not just for your general public of museum visitors! Your museum should also be accessible for: …your employees …your board of directors …your funders …your artists, scientists, historians, performers …museum service providers and vendors …anyone who comes through the doors
  • 5. Economic Perspective: Why Create Access to the Arts? Museums and other cultural institutions cannot afford to lose, or exclude by omission, this large a group from their audience, staffing or funding base. • Almost 1-in-6 Americans, or 56 million people, age 5 and over, experience a disability (2009), about 19%. • 56 million Americans with disabilities have an aggregate income of $1 trillion, with disposable income of $220 billion (larger than the highly sought-after teen market of $170 billion). Of them 73% are heads of households; 58% own their own homes; 48% are principal shoppers; 46% are married. • 20.3 million of America’s 69.6 million families have at least one member with a disability. • The disabilities of aging – mobility, vision, hearing and cognition – are categories that will grow as the baby boom generation ages. Half of the “Baby Boomers" over 65 have a disability. The Administration on Aging projects that by 2030 there will be more than 69 million people age 65 and older. It is the fastest growing segment of the population.
  • 6. Legal Perspective: Why Create Access to the Arts? Creating access is a legal responsibility, mandated by federal statutes as well as state and local laws. If your state minimums are higher than federal, you must meet your state’s codes. Keep in mind that the law outlines only the minimum requirements.
  • 7. Disability Legislation: Overview • Rehabilitation Act of 1973: Defines the rights of people with disabilities. Section 504 of this act forbids federally funded public and private organizations from excluding or denying individuals with disabilities an equal opportunity to receive benefits/services. • Americans with Disabilities Act (ADA) of 1990: Sets basic requirements for access to all to public spaces, including museums. Covers physical requirements for buildings/exhibits plus the need to provide equal experiences/learning opportunities for people with disabilities. • Telecommunications Act of 1996: Enables access for all Americans to the benefits of the information superhighway. • Individuals with Disabilities Education Act (IDEA) of 1994: Designed to protect the rights of students with disabilities by ensuring free appropriate public education to all, regardless of ability. Also provides federal financing to state/local educational agencies to guarantee special education for qualifying students. • State and Local Accessibility Laws provide minimums for public buildings, transportation, etc.
  • 8. Spirit of the Law: Equal Opportunity to Participate The spirit of the law is that everyone must have an equal opportunity to participate in cultural life. In the best of all possible worlds, accessibility is transparent and integrated into the everyday functioning of the museum or institution. It should not be a “special” service. Participation for people with disabilities should be: •As independent and discreet as possible. Activities, exhibitions and services, as much as is practicable, should not be segregated from other visitor's experiences. •As complete as possible. The aim of accessibility accommodations is to provide comparable level of information and experience as is given to visitors without disabilities.
  • 9. ADA Resources For more information contact your regional Disability and Business Technical Assistance Centers (DBTACs). They provide public awareness materials, technical assistance, training, and referrals on the ADA. For more information visit their website: http://www.adata.org/ To reach the Center in your region, call toll-free: V/TTY: 1-800-949-4232 Copies of ADA publications are available at no or reasonable cost.
  • 10. HOWIS DISABILITY DEFINED? Paradigm Shift: From Medical Disability Model to Social Model New Definition of Disability and Its Impact of Defining Accessibility “Invisible” Disabilities
  • 11. Changing View of Disability • Disability is a human reality that has been perceived differently by diverse cultures and historical periods. • For most of the 20th century, disability was defined according to a medical models. • Disability has traditionally been assumed to be a way to characterize a particular set of largely static, functional limitations. • This led to stereotyping and defining a person by condition or limitations.
  • 12. Disability Redefined Disability is the world’s largest minority group and it is one that anyone can join at any time.
  • 13. New World Health Organization (WHO) Definition of Disabilities In 2001, the WHO established a new definition of disability; it is based on human rights, or social models, and focuses on the interaction between a person with a disability and the environment. DISABILITY is an umbrella term, which includes several components: • impairments: a problem in body function or structure • activity limitations: a difficulty encountered by an individual in executing a task or action • participation restrictions: a problem experienced by an individual’s involvement in life situations
  • 14. New View: Social or Human Rights Model • This places emphasis on contextual factors and the role played by societies and institutions (including cultural institutions) in defining, causing, or maintaining a disability, or disabling experiences. • This paradigm shift allows us to focus on strategies that minimize disabling experiences rather than “correct” or modify the individual with a disability.
  • 15. Paradigm Shift: Definition of Disability OLD APPROACH • A diagnosis • An person is limited by the impairment or condition • A medical "problem" NEW PARADIGM • Individuals with temporary or permanent impairments require accommodations to carry out life activities • A socio-environmental issue involving accessibility, accommodations, and equity
  • 16. Paradigm Shift: Strategies to Address Disability OLD APPROACH • Fix the individual • Correct the deficit • Provide medical, vocational, or psychological rehabilitation services • People with disabilities are objects of intervention, research subjects or patients NEW PARADIGM • Remove barriers • Access through accommodations and universal design • Opportunities and education for a range of abilities • Patrons with disabilities get involved as community members, advisors, decision makers
  • 17. New Definition of Disability and Its Impact on Defining Accessibility Disability is a mainstream experience of being human, not something that resides in some individuals. All of us experience some change in ability, whether permanent or temporary. Disability as a contextual experience. Functional limitation is a fact. Disability is a phenomenon of the experience that occurs by the individual intersecting with the environment, including physical, information, communication, social, and policy environments. Valerie Fletcher, Institute for Human Centered Design
  • 18. “Invisible” Disabilities Many people who benefit from or need accessible accommodations may not identify themselves as having a disability. WHY? • Changes may be temporary, such as the result of an accident or as a side effect of medication. • Changes are incremental and happen slowly, so the moment when we identify ourselves as having a disability never arrives. • Most people over 60 have or will have “acquired limitations.” As we age, we can’t walk as far, and our eyes, ears, and hands don’t work as well. • The need for accessibility – better lighting, larger print, magnified sound, accessible elevators and bathrooms, or more seating – will remain.
  • 19. Accessibility Communication Strategies Accessible Design Accommodations and Enhancements: Mobility, Cognitive, and Sensory Accessible Web
  • 20. Accessibility Skills: Communication Strategies People-first Language Communication Tips: Basics Welcoming People with Physical Disabilities Welcoming People who are Deaf or Hard of Hearing Welcoming People with Autism, Alzheimers and their Families Welcoming People who are Visually Impaired Sighted Guide Technique
  • 21. People-first Language People-first language emphasizes the person, not the disability. Disability is not the primary, defining characteristic of an individual, but one of several aspects of the whole person.  Note re: Deaf Culture. Many people who are D/deaf communicate using American Sign Language and consider themselves to be members of a cultural and linguistic minority. Other individuals who are deaf or hard of hearing communicate through listening and spoken language. As always: If you don’t know, ask the person what is preferred.
  • 22. People-first Language People-first Language  people with disabilities  he has an intellectual disability  my son has autism  she has Down syndrome  he has a learning disability  she has a physical disability  he’s of short stature or he’s short  she has an emotional disability  he uses a wheelchair  typical kids or kids without disabilities  she receives special education services/additional support services  accessible parking, bathrooms, etc.  she has a need for… Labels Not to Use • the handicapped or disabled • the mentally retarded • my son is autistic • she’s a Downs kid, a mongoloid • he’s learning disabled • she’s crippled • he’s a dwarf (or midget) • she’s emotionally disturbed • he’s wheelchair bound or confined to a wheelchair • normal and/or healthy kid • she’s in special ed • handicapped parking, bathrooms, etc. • she has a problem with… This material is reprinted with the permission of © 1999 The North Carolina Office on Disability and Health
  • 23. Common Stereotypes to Avoid • Representing or treating a person with a disability as dependent or as an object of pity • Putting the person with a disability on a pedestal • Representing the person with a disability as having special gifts or abilities because of his or her disability
  • 24. Communication Tips: Basics • Don’t be afraid to make a mistake. • Treat adults as adults. • Don’t make assumptions about what a person can or cannot do. • Ask before giving assistance. If you offer help and the person says “no,” don’t insist. If the answer is “yes,” ask how you can best help and follow directions. • If someone with a disability is accompanied by another individual, address the person with a disability directly. Don’t speak through the other person. • Expect diversity of preferences and opinions.
  • 25. Welcoming People with Physical Disabilities • Personal space includes a person’s wheelchair, crutches, cane or other mobility aid. Never move them without permission. • Do not push a person’s wheelchair or grab the arm of someone walking with difficulty without first asking if you can help. • When speaking to a person using a wheelchair for more than a few minutes, try to find a seat for yourself so that the two of you are at eye level.
  • 26. Welcoming People who Are D/deaf or Hard of Hearing • Ask the person how he or she prefers to communicate. • If you are speaking through an interpreter, remember that the interpreter may lag a few words behind. Pause occasionally. • Talk directly to the person who is D/deaf or hard of hearing, not to the interpreter. • Before you speak, make sure you have the person’s attention and that he/she is looking at you. A wave, a light touch on the shoulder are appropriate ways to get attention. If an individual uses listening and spoken language, saying the individual’s name is an appropriate way to get his or her attention. • Speak in a clear, expressive manner. Do not over enunciate or exaggerate words, or raise your voice. • The goal is communication; don’t pretend to understand if you did not. Ask the person to repeat it or write it down.
  • 27. Speech- or Lip-reading: Things to Remember • It is important to note that not all D/deaf individuals can lip-read. • At best it is about a 50% guess, with the remainder understood through context. Sometimes words are missed and many words look the same on the lips, such as when forming words containing “f” and “v”, “s” and “z”, “sh” and “ch” and “b”, “m” and “p”. As a result, names of people, places, or things (words that cannot be “figured out”) should be spelled out. • Make sure there is lighting on your face, and keep your hands and other objects away from your mouth. • Face the person directly and maintain eye contact. Don’t turn your back or walk around while talking.
  • 28. Welcoming People who Are D/deaf or Hard of Hearing (cont.) • If the person uses sign language, and you know any American Sign Language (ASL) or fingerspelling, try it. • If you offer museum programs in ASL, consider training an individual who is fluent in ASL to facilitate your program. • Have staff trained to take calls via relay from D/deaf callers. • If you can provide an Email address for reservations (as opposed to a phone number), this is much easier for many D/deaf to use. • People who are D/deaf or hard of hearing use assistive listening devices, hearing loops, captioned films, and captioned museum tours. • One option is CART (Communication Access Real-time Translation, also referred to as real-time captioning; can done via the Internet). Often, your visitor can voice for herself (expressive communication) and uses CART to understand what others are saying, especially in meetings, classrooms, or large events (receptive communication).
  • 29. Welcoming People with Dementia and their Families When first meeting a visitor with dementia: • Be open hearted. People with dementia respond well to genuine hospitality. • Speak directly to the person. Assume that he/she is capable of responding. • Wait for a response. It takes people with dementia longer to process information, especially when they are in a new environment.
  • 30. Welcoming People with Dementia and their Families (cont.) When greeting a visitor with dementia: • Make eye contact with the person. Get to eye level. Shake hands upon greeting. • Introduce yourself. Ask, “And you are?” • Give clear directions to waiting areas, coat room, restrooms (one at a time). • Use gesture to clarify directions.
  • 31. Welcoming People with Dementia and their Families (cont.) When giving a group tour: • Provide a name tag in a large, bold font for each participant. • Introduce the group leader. • Use simple, bold signage to enhance orientation (example: 4th floor go right →). These signs may be generated specifically for the visit. • When moving through the museum, be clear about where you are going. For instance, say, “We are taking this elevator to 4.” • People with dementia do not want sympathy. Include them in conversation and activities. • Listen. People with dementia may have surprising and remarkable insights to share.
  • 32. Welcoming People with Autism Basics • Autism is a broad spectrum disorder. Some people with autism are unable to verbalize. If a person does not respond to a verbal question, assume they understood you, but may not be able to speak. • If possible, offer another means of communication, such as pen/paper, or an iPad. • Many people with autism have auditory processing issues. Do not give multi-step commands or use run-on sentences. Straightforward, clear remarks are best. • Some people with autism are sensitive to touch, and some may react with intensity when touched. Museum staff and security should be aware of this.
  • 33. Welcoming People with Autism (cont.) Stimming • Many people with autism appear disconnected, may not make eye contact, and may have stereotypy (“stims”) such as handclapping or rocking (and some have verbal stims). Do not assume that they are not taking everything in; they are. • People may stim for a variety of reasons, such as because they are in an unfamiliar place or are excited. Stimming may be how the person with autism regulates incoming sensory stimulation to avoid being overwhelmed by stimuli. Do not discourage them – unless, of course, it presents a danger.
  • 34. Welcoming People with Autism (cont.) • People with autism may have visual processing difficulties. In particular, sudden and unexpected movement can be disturbing to them. Security staff should avoid rushing up to someone who, for instance, is stimming. • Crowds can be challenging for people with autism. Museum personnel should know where there is a quiet space to which they can direct families, if needed. • Loud noises can be disturbing and, conversely, low-level noises, such as buzzing from fluorescent lights (which also might flicker) can be bothersome. Be aware that something most people might not react to could be an issue for a person with autism whose sensory system is very sensitive.
  • 35. Welcoming People with Autism (cont.) Social story • If providing programs for groups of children or adults with autism, develop a social story about a visit to the museum that can be made available to the group or families with members with autism prior to the visit. • Previewing an experience and having a sense of what to expect is important to people on the autism spectrum. See the example in the resource section.
  • 36. Welcoming People with Autism (cont.) When giving a group tour: • At the beginning of a group visit, set clear parameters and explain how long you will be doing certain activities. • Reminders are important as well. For many people with autism, transitions can be difficult, so letting them know that a transition is coming up is important. • Alert people in advance if you are entering a space with films or videos that include bright lights, loud noises, abrupt actions.
  • 37. Welcoming People with Autism (cont.) Preparing for eventuality • Have a system in place to assist a person with autism who is lost in the museum. This is particularly important for someone who is non-verbal or has limited verbal skills. • Consider providing special name tags or badges to families/groups that include a people with autism. This would help reunite someone who is lost with his/her group.
  • 38. Welcoming People who Are Blind or Have Low Vision • Don’t assume that help is needed. Always ask before providing assistance. • Never push, pull or grab a blind person. This can be frightening and it’s often embarrassing. • Don’t shout. Most blind people have normal hearing. Speak clearly and strongly if you know that an older visually impaired person also has a hearing problem. • Introduce yourself. Not everyone recognizes voices or remembers them.
  • 39. Welcoming People who Are Blind or Have Low Vision (cont.) • Identify yourself when entering a room and let the blind person know when you are leaving. Don’t leave a blind person talking to an empty room. • Don’t leave a blind person standing alone in an open space. • Don’t hesitate to use words like “see” and “look.” • Give explicit directions to a blind person, such as “on your left,” “to the right of your plate,” “three blocks north.” • Do not use hand signals.
  • 40. Sighted Guide Technique Basic technique: The person who is blind or has low vision holds the guide’s arm lightly above the elbow and allows the guide to walk one-half step ahead. This allows him or her to feel and follow the guide’s direction.
  • 41. Accommodations Used to Create Equal Access for All There are three basic types of accommodations or enhancements that make an environment more accessible for people with disabilities: • Mobility enhancements • Cognitive enhancements • Sensory enhancements. Some of them we have already mentioned.
  • 42. Mobility: Not Just Wheelchairs Keep in mind: • Wheelchairs come in a variety of styles and sizes, with many types of attachments available. Only some are assisted by someone who pushes the chair. • Other assistive devices include Segways, service dogs, canes, walkers, and adaptive devices for gripping objects, writing or drawing, or for activities of daily living, such as drinking or eating.
  • 43. Sensory Enhancements • For those who have difficulty accessing visual information, accommodations include large print and Braille, verbal and audio description, tactile and sound experiences, and magnifying devices and other assistive technologies. • For those who have difficulty accessing aural information or sounds, accommodations include: Sign language interpreters, assistive listening devices, text transcripts, captioning, and descriptive cues.
  • 44. Cognitive or Learning Enhancements Information can be presented in a variety of ways. Examples of alternate representations of content Include: • Visual: Images or diagrams, maps, charts or graphs • Tactile: Tactile diagrams, maps and graphics, Braille, other tactile experiences • Auditory: Audio-guides, music, sound effects • Text: Large print, digital media, captioning
  • 45. Cognitive or Learning Enhancements (cont.) During group tours or other structured programming, cognitive accommodations might include: • Adjustments in pace, content, and choice of language • Allowing extra time for transitions in activity or location • Keeping group size small • Modifying light and sound levels • Avoiding perceptual and sensory overloads
  • 46. Creating an Accessible Environment Universal Design Universal Design for Learning Accessible Web
  • 47. What is Universal Design? Universal Design is part of a spectrum of making places, things, programs, policies, and information usable by all people, to the greatest extent possible, without the need for adaptation or specialized design.
  • 48. Principles of Universal Design* • Equitable Use: The design does not disadvantage or stigmatize any group of users. • Flexibility in Use: The design accommodates a wide range of individual preferences and abilities. • Simple, Intuitive Use: Use of the design is easy to understand, regardless of the user's experience, knowledge, language skills, or current concentration level. • Perceptible Information: The design communicates necessary information effectively to the user, regardless of ambient conditions or the user's sensory abilities. • Tolerance for Error: The design minimizes hazards and the adverse consequences of accidental or unintended actions. • Low Physical Effort: The design can be used efficiently and comfortably, and with a minimum of fatigue. • Size and Space for Approach and Use: Appropriate size and space is provided for approach, reach, manipulation, and use, regardless of the user's body size, posture, or mobility.
  • 49. Accessible Exhibit Design Elements • Easy to understand regardless of user experience, knowledge, language skills, or concentration levels • Clear organization of important information • Redundant, multimodal presentations: Pictorial, verbal, tactile, audio • Inclusive, not segregated experiences • Provide choice in how to use and allow user to adapt pace • Minimize fatigue: physical and sensory • Allow size and space for approach and use: Line of sight and reach, whether seated or standing • Adequate space for assistive device or personal assistance
  • 50. Universal Design for Learning Principles (CAST, www.cast.org) Components of a universally-designed learning environment: • Multiple means of representation – learners have a variety of ways to acquire information and knowledge • Multiple means of expression – learners have alternative means for demonstrating what they know • Multiple means of engagement – learners' interests are piqued; they are appropriately challenged and motivated to learn
  • 51. Accessible Web • Web accessibility means that people with disabilities can perceive, understand, navigate, and interact with a website, and that they can contribute to the Web. • Remember that your whole site, and not only its accessibility section, needs to be legible and accessible. • Web accessibility benefits other users as well, including older people with changing abilities due to aging. Web accessibility encompasses all disabilities that affect access to the Web, including visual, auditory, physical, speech, cognitive, and neurological disabilities.
  • 52. The following people/organizations contributed to this presentation: • Alexander Graham Bell Association for the Deaf and Hard of Hearing • David Barclay, LCSW-C, Ph.D., Gallaudet University • Peggy Becker, NY Metro Chapter of the National Autism Association • Valerie Fletcher, Institute for Human-Centered Design • Nancy Lee Hendley, Alzheimer’s Association, New York City Chapter • Lise Hamlin, Hearing Loss Association of America • Laurie Hanin, Ph.D., Center for Hearing and Communication • Kristen Johnson, Ph.D,, Ohio State University, • Sabeeha Rehman. NY Metro Chapter of the National Autism Assn. • Kim Mack Rosenberg, NY Metro Chapter of the National Autism Assn. • Robert I. Roth, University of Washington, Seattle • Lisa Rudley, NY Metro Chapter of the National Autism Assn. © 2011 Art Beyond Sight/Art Education for the Blind