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SA Health
The Minority Voice of HIV Positive
Women in Australia
SA Health
Pam Price
Project Coordinator
Katherine Leane
Peer Support Worker
HIV Women's project
Women’s Health State wide
community service of the
Children’s Youth and Women’s Health Service
Jude O’Day
Care and Support Coordinator
Tasmanian Council on AIDS Hepatitis & Related Diseases
Presented by
SA Health
Women & HIV Statistics
The global picture
 Half 30.8 million are women
 Primary cause mortality of women (15-44 in sub
Sahara Africa, Latin America, Caribbean, African -
American women )
In Australia
 10% of HIV population are women
 stable over 10 years
 increasing numbers from high prevalence country
or heterosexual contact with person from high
prevalence country
SA Health
An HIV positive woman in
Australia
 Age mean: 39
 Not specific geographic locations widely dispersed
throughout cities
 Is a parent or cares for another HIV person
 Two thirds women surveyed reported unwanted
disclosure in health setting
 poverty a daily issue with 90% had trouble with daily
cost of living
From HIV Futures 5 La Trobe University research
SA Health
Difficulties Accessing Services in
Tasmania
> Limited medical HIV Specialist and
dispensing outlets for medications
> 1 degree of separation in small state and
disclosure is a risk
> Little opportunity for peer support
SA Health
A Tasmanian positive woman
says…
“Getting to go to retreats keeps me sane’
“I don’t know how I would survive without the support of
positive networks”
“Life here is like a blocked in little world”
“Traveling to Victoria opens up a different world”
“ Even my family don’t know that I’m positive”
SA Health
3 approaches that have worked
in SA
> Enabling environment
> Arts in health
“I loved the power of the community focused project
and the consultation that occurred throughout. I felt
trust, acknowledged, having some power and
ownership. My words were respected and valued”.
“Songs in the Blood” Project participant
> Peer support model
“ What made such a difference to me was talking
to another woman who had had a similar
experience .. it was a defining experience. I
trusted her and was inspired by her”
SA Health
Personal Story/Journey
“Listen to our voices
Learn about our lives
Consider our ideas”
International community of positive women
> Diagnosis
> Treatment
> HIV today
SA Health
Why peer support works?
HIV does not discriminate people do
“No matter where an HIV positive woman lives
disclosure is still the biggest issue”
“ I have leant about strength, courage and
resilience from the diversity of HIV positive
women”
The key threads for a strong and empowering
women's community are peer support,
networking and support groups
SA Health
SA Health
SA Health
SA Health
Tasmanian Contact
Tasmanian Council on AIDS Hepatitis & Related
Diseases Inc (TasCAHRD)
Jude O’Day
Care and Support Coordinator
319 Liverpool St
Hobart 7000
Phone (03) 6234 1242
joday@tascahrd.org.au or hiv@tascahrd.org.au
SA Health
South Australian Contact
HIV Women’s Project
Pam Price
Project Coordinator
Katherine Leane
Peer Support Worker
Women’s Health Statewide
64 Pennington Terrace
North Adelaide
Phone (08) 82399600
pam.price@health.sa.gov.au
SA Health

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4.8.3 Pam Price1

  • 1. SA Health The Minority Voice of HIV Positive Women in Australia
  • 2. SA Health Pam Price Project Coordinator Katherine Leane Peer Support Worker HIV Women's project Women’s Health State wide community service of the Children’s Youth and Women’s Health Service Jude O’Day Care and Support Coordinator Tasmanian Council on AIDS Hepatitis & Related Diseases Presented by
  • 3. SA Health Women & HIV Statistics The global picture  Half 30.8 million are women  Primary cause mortality of women (15-44 in sub Sahara Africa, Latin America, Caribbean, African - American women ) In Australia  10% of HIV population are women  stable over 10 years  increasing numbers from high prevalence country or heterosexual contact with person from high prevalence country
  • 4. SA Health An HIV positive woman in Australia  Age mean: 39  Not specific geographic locations widely dispersed throughout cities  Is a parent or cares for another HIV person  Two thirds women surveyed reported unwanted disclosure in health setting  poverty a daily issue with 90% had trouble with daily cost of living From HIV Futures 5 La Trobe University research
  • 5. SA Health Difficulties Accessing Services in Tasmania > Limited medical HIV Specialist and dispensing outlets for medications > 1 degree of separation in small state and disclosure is a risk > Little opportunity for peer support
  • 6. SA Health A Tasmanian positive woman says… “Getting to go to retreats keeps me sane’ “I don’t know how I would survive without the support of positive networks” “Life here is like a blocked in little world” “Traveling to Victoria opens up a different world” “ Even my family don’t know that I’m positive”
  • 7. SA Health 3 approaches that have worked in SA > Enabling environment > Arts in health “I loved the power of the community focused project and the consultation that occurred throughout. I felt trust, acknowledged, having some power and ownership. My words were respected and valued”. “Songs in the Blood” Project participant > Peer support model “ What made such a difference to me was talking to another woman who had had a similar experience .. it was a defining experience. I trusted her and was inspired by her”
  • 8. SA Health Personal Story/Journey “Listen to our voices Learn about our lives Consider our ideas” International community of positive women > Diagnosis > Treatment > HIV today
  • 9. SA Health Why peer support works? HIV does not discriminate people do “No matter where an HIV positive woman lives disclosure is still the biggest issue” “ I have leant about strength, courage and resilience from the diversity of HIV positive women” The key threads for a strong and empowering women's community are peer support, networking and support groups
  • 13. SA Health Tasmanian Contact Tasmanian Council on AIDS Hepatitis & Related Diseases Inc (TasCAHRD) Jude O’Day Care and Support Coordinator 319 Liverpool St Hobart 7000 Phone (03) 6234 1242 joday@tascahrd.org.au or hiv@tascahrd.org.au
  • 14. SA Health South Australian Contact HIV Women’s Project Pam Price Project Coordinator Katherine Leane Peer Support Worker Women’s Health Statewide 64 Pennington Terrace North Adelaide Phone (08) 82399600 pam.price@health.sa.gov.au