This document outlines a study evaluating the socio-economic impacts of biobank networking projects. Preliminary results from interviews with members of six biobank networks show several effects, including networking and knowledge transfer. Key factors for generating effects include the size and maturity of biobanks and networks. The study aims to inform evaluation of BBMRI by distinguishing effects of biobanks versus networking and quantifying direct versus indirect impacts, though challenges remain around sampling, attribution and complexity.

1. BBMRI socio-economic impact study BETA report Laurent Bach – Mireille Matt Julien Pénin – Sandrine Wolff BETA – University of Strasbourg & CNRS [email_address]

2. outline Objectives and current status of the study Preliminary results First lessons for BBMRI evaluation

7. MAPPING OF EFFECTS ◊ Objectives/status ◊ Preliminary results ◊ First lessons for BBMRI Direct effects new buildings, equipments, IT system, software, staff… Economic impact of a BBN Impact of the use of the BBN Impact of the setting up of the BBN Indirect effects knowlegde, networks, methods… "transferred" to other activities Direct effects new knowledge, drugs, treatments, diagnosis + network and collaboration

8. DYNAMICS – PHASE 1 ◊ Objectives/status ◊ Preliminary results ◊ First lessons for BBMRI Economic impact of a BBN Indirect effects Impact of the setting up of the BBN Direct effects

9. DYNAMICS - PHASE 2 ◊ Objectives/status ◊ Preliminary results ◊ First lessons for BBMRI Economic impact of a BBN Indirect effects Impact of the setting up of the BBN Direct effects Impact of the use of the BBN Direct effects

11. DYNAMICS – PHASE 3 Economic impact of the enriched BBN Indirect effects of the enrichment + continuous indirect effects of the initial BBN Impact of the enriched BBN Impact of the use of the enriched BBN Direct effects Direct effects of the enrichment ◊ Objectives/status ◊ Preliminary results ◊ First lessons for BBMRI

13. ◊ Objectives/status ◊ Preliminary results ◊ First lessons for BBMRI RESULTS BY TYPE OF EFFECTS - 1 • Networking vs creating BBN • Upgrading BB • Transfers between partners, within partners, from partners to others • Standardization - homogeneization -> collection, storage, retrieval, transport + hard, soft, mgt, ethics

14. ◊ Objectives/status ◊ Preliminary results ◊ First lessons for BBMRI If frontiers between scientific domains move, more impact Mainly researchers covered BB too recent Crucial for all, but hard to disintangle New increase value of old Need sustainability RESULTS BY TYPE OF EFFECTS - 2 Some in new fields General level increase