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Paula Kim

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BBMRI Stakeholder's Forum
BBMRI Stakeholder's Forum
Santé & MédecineBusiness
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Paula Kim , TRAC- T ranslating R esearch A cross C ommunities BBMRI Stakeholder’s Forum Patient Working Group Meeting Paris, France • December 15, 2009 Biobanking and Patients : A USA Perspective
The Art of Translation… ,[object Object],[object Object]
Physical Behavioral Social Cultural Economic Political Spiritual Technological Across the Scientific and Geographic Spectrum
Who is in the Biospecimen Sandbox? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Research and Medical PKI © 2008 All Rights Reserved Personalized Medicine Biobank ,[object Object],[object Object],[object Object],[object Object],Advocacy ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],P&P Agencies and Industry
Understanding Choices In Order To Make Decisions: What Patients Want Source: TRAC Perspectives on Costs of Cancer Care Survey-2006 ,[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],Hide and Seek?
Ethical Consideration: Are we making the most of specimens donated by patients? ,[object Object],[object Object],[object Object],[object Object],[object Object]
ANNALS OF NEUROLOGY SEPTEMBER 2007 Which Way Is The Wind Blowing?
Legal and Regulatory Considerations: Incentives, reimbursement, custodianship, patient demands, market size, IP, technical obstacles, scientific serendipity… Which of these has the greatest influence on development and use of high impact biomarker assays in clinical settings ? Which is not fixable?
Not One Size FitsAll ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],National Cancer Institute Best Practices Source: National Cancer Institute OBBR
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],National Cancer Institute Best Practices Source: National Cancer Institute OBBR
Biospecimen Boogie No One Likes to Dance Alone & How Not To Step On Toes… ,[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],Why We Must Get This Right…
Patient & Advocate Perspectives Don’t Leave Home Without Them Info on Biospecimen Resources: www.tracnetwork.net

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Paula Kim

  • 1. Paula Kim , TRAC- T ranslating R esearch A cross C ommunities BBMRI Stakeholder’s Forum Patient Working Group Meeting Paris, France • December 15, 2009 Biobanking and Patients : A USA Perspective
  • 2.
  • 3. Physical Behavioral Social Cultural Economic Political Spiritual Technological Across the Scientific and Geographic Spectrum
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  • 8. ANNALS OF NEUROLOGY SEPTEMBER 2007 Which Way Is The Wind Blowing?
  • 9. Legal and Regulatory Considerations: Incentives, reimbursement, custodianship, patient demands, market size, IP, technical obstacles, scientific serendipity… Which of these has the greatest influence on development and use of high impact biomarker assays in clinical settings ? Which is not fixable?
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  • 15. Patient & Advocate Perspectives Don’t Leave Home Without Them Info on Biospecimen Resources: www.tracnetwork.net