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The leader in healthcare professional digital collaboration solutions
Patient Engagement Forum
Case Study: Engaging Patients to Gain Deeper
Insight
Summer 2014
For pharmaceutical companies, the need for insight from
an expanding set of stakeholders is a reality.
2
Patients
Physicians
Nurses
Payors
Care Givers
Regulatory Bodies
Case Study – Engaging Patients to gain Insight.
3
• Top 30 pharmaceutical
company with treatments in
the rare disease space
• Looking to engage directly
with patients managing a
chronic condition
• Had experienced sub-
optimal results in previous
patient insight programs
Review of available discussion venues
4
In Person Virtual
Communication
Same Time
Communication
Over Time
Webcast
Discussion Forum
Live Meeting
Where Within3 came in
5
8
10
15
0
2
4
6
8
10
12
14
16
# of Top 20 Pharmaceutical Clients
2011 2012 2013
About Us:
• High growth collaboration company
• Over 100 implementations worldwide
• Users in over 140 countries
• Utilized by 16 of the Top 20 pharmaceuticals
• Top medical associations, agencies, non-
profits, and mid-size life sciences
Setup – the patient discussion forum.
6
• 20 patients from across the US in 2
discussion groups
• Discussion sessions held over the course of
7 days
• Some overlap of questions between the 2
groups
• Patients received orientation on the
technology environment prior to
participating
• Compliance controls adopted from those
used in HCP online advisory boards
Discussion Forum
Patients discussed a variety of key questions.
7
• Are there any points where you feel you have
been diagnosed earlier if something had
been different?
• What advice would you give to someone
else to find the proper diagnosis?
• How should we communicate new therapy
information to the patient community?
• How can we help patients advocate for
themselves?
In total, 160 comments posted by both
patient groups, giving unique and deep
insight previously unavailable.
How did the alternative communication paradigm affect
patient participation?
Logistics and
Technology Capability
Scheduling and
Convenience
Full Participation
Managing Disparate
Backgrounds
Introverts vs.
Extroverts
Ability to refer to
materials
Same
Time
Over
Time
Future Plans
9
• Client is standardizing the use of patient forums
throughout multiple product areas
• Given high patient satisfaction with the program,
client believes they have also improved their
relationship with key advocates
• Client will alter many of their tactics in the
coming year to reflect the feedback of these
patients

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Engaging patients online to improve market insight - BDI 7/24 Patient Enagement: The Future of Healthcare Communications Summit & Roundtables

  • 1. The leader in healthcare professional digital collaboration solutions Patient Engagement Forum Case Study: Engaging Patients to Gain Deeper Insight Summer 2014
  • 2. For pharmaceutical companies, the need for insight from an expanding set of stakeholders is a reality. 2 Patients Physicians Nurses Payors Care Givers Regulatory Bodies
  • 3. Case Study – Engaging Patients to gain Insight. 3 • Top 30 pharmaceutical company with treatments in the rare disease space • Looking to engage directly with patients managing a chronic condition • Had experienced sub- optimal results in previous patient insight programs
  • 4. Review of available discussion venues 4 In Person Virtual Communication Same Time Communication Over Time Webcast Discussion Forum Live Meeting
  • 5. Where Within3 came in 5 8 10 15 0 2 4 6 8 10 12 14 16 # of Top 20 Pharmaceutical Clients 2011 2012 2013 About Us: • High growth collaboration company • Over 100 implementations worldwide • Users in over 140 countries • Utilized by 16 of the Top 20 pharmaceuticals • Top medical associations, agencies, non- profits, and mid-size life sciences
  • 6. Setup – the patient discussion forum. 6 • 20 patients from across the US in 2 discussion groups • Discussion sessions held over the course of 7 days • Some overlap of questions between the 2 groups • Patients received orientation on the technology environment prior to participating • Compliance controls adopted from those used in HCP online advisory boards Discussion Forum
  • 7. Patients discussed a variety of key questions. 7 • Are there any points where you feel you have been diagnosed earlier if something had been different? • What advice would you give to someone else to find the proper diagnosis? • How should we communicate new therapy information to the patient community? • How can we help patients advocate for themselves? In total, 160 comments posted by both patient groups, giving unique and deep insight previously unavailable.
  • 8. How did the alternative communication paradigm affect patient participation? Logistics and Technology Capability Scheduling and Convenience Full Participation Managing Disparate Backgrounds Introverts vs. Extroverts Ability to refer to materials Same Time Over Time
  • 9. Future Plans 9 • Client is standardizing the use of patient forums throughout multiple product areas • Given high patient satisfaction with the program, client believes they have also improved their relationship with key advocates • Client will alter many of their tactics in the coming year to reflect the feedback of these patients