Metaplastic Breast Cancer MBC database providing information on many women who have survived this cancer. If you are in the medical profession and would like the latest version of this in Excel. Please email benabroberts@gmail.com. The statistics are without names but all the participants are women.

1. Date of Diagnosis
(month/year)
Age at
Diagnosi
s
Tumor Size
(cm) Stage
Lymph Node
Status ___/___
Microanalysis of
Tumor
Was
there
metastas
is at time
of
diagnosi
s?
If yes, please
explain where
MBC had
metastasized
Did you
have
chemoth
erapy?
What type(s) of
chemotherapy did
you receive?
Please give
specific
information on
chemo given and
schedule
Was
chemotherapy
given before or
after surgery?
What type of
surgery did you
have to remove
the tumor?
Did you
receive
radiation
treatmen
t?
If yes, how many
radiation
treatments did you
receive?
What is your
follow up schedule
after finishing all
treatments?
Have you
had a
metastasis
or
recurrence
since
finishing or
during
treatment?
If yes, what was
the date of
metastasis or
recurrence?
Location of
metastasis or
recurrence
Please feel free to
add any other
details about your
metastasis/recurre
nce
What type of
chemo was given
for metastasis?
Did you receive
radiation for
metastasis?
Did you have
surgery for
metastasis?
Explain below.
Had you
had any
previous
cancers
before
being
diagnose
d with
MBC?
If yes, please
explain.
Are you taking any
natural/homeopath
ic
remedies/treatmen
ts? Explain.
Please explain any
lifestyle changes
(diet, exercise, etc)
since first
diagnosed
Please use this
space to add any
additional
comments that
you feel is
important for
others to know
about your MBC
experience. Grade
How long after
original MBC
diagnosis did
metastasis/recurre
nce occur?
12/2008 46 2.9 2a 0/6 Squamous Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every
week x 12
AC every 2 weeks,
received 3 of 4
treatments.
Taxol, weekly,
received 9 of 12
treatments.
Had to end chemo
early due to side
effects. After surgery
Bi-lateral
Mastectomy No
Oncologist every 4
months for first
year. Moved to
every 6 months.
No scheduled
scans, only if
needed. No Yes
3/2004, DCIS,
Stage 0,
Lumpectomy,
Radiation x 33 None Exercise. 3
november 2010 42 4.6 cm ? 0/30 Spindle Cell No Yes FEC
6 doses 100%fec at
3 weekly intervals After surgery Mastectomy Yes 15 every 3 months No Yes
cervical 1998 early
stages.
hysterectomy
throat cancer
stage not known
radiation 15 3
1/2011 46 .9 cm 1 0/3 Spindle Cell No No Mastectomy No
Oncologist visit
every 3 months.
CT scan every 6
months, PET scan
yearly. No Yes
11/06, IDC Stage 1,
Grade 3, triple
negative.
Lumpectomy, A/C
and Taxol,
Radiation x 34
11/07, thyroid
cancer.
Thyroidectomy,
radioactive iodine
treatment
11/10, colon
cancer. Subtotal
colectomy.
Since my MBC
diagnosis I have
changed my diet to
high fiber/low fat. I
am also trying to
exercise more. 3
12/24/2010 59 5.6 IIB all clear No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxotere, Xeloda
AC every two
weeks-4treatments;
Taxotere every
week- 33
treatments total After surgery Mastectomy Yes 33
Oncologist visit
every 3 months Yes No
02/2008 55 1.5 cm 1 0
Spindle Cell,
Carcinosarcoma No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 3 weeks x
4, Taxol every 3
weeks x 4
AC q 3 weeks
completed 3 out of
4
Taxol q 3 weeks
completed 4 out of
4 After surgery Lumpectomy Yes 33 treatments
oncologist every 6
months with labs
and CT scan No No No
Lower fat diet /
exercise more
regularly
Oncologists not
familiar with MBC 3
chad 47 2.5 3 1/16/2012
Chondroid,
Carcinosarcoma Yes left axillary area Yes
Taxotere, Cytoxan,
Epirubicin
Cytoxan,
Epirubicin,
Taxotere every 3
weeks, completed
6 treatments out of
6. I did not have a
port installed
because of my
prognosis being 6
months to live. My
veins began
sclerosing at the
3rd treatment and I
lost my immune
system completely
even though I was
having Neulasta
shots after each
treatment. Jan
2008 I had to also
have Neupogen
shots and almost
died twice that
month. I refused to
back off schedule
even with the many
side effects and the
setbacks and it
may have helped. After surgery Lumpectomy Yes 35 treatments.
1st 2 years Onc
every 3 months,
years 2-5 Onc
every 4 months.
The original
surgery began as a
lumpectomy but
became a partial
mastectomy and
was not
reconstructed as I
was not expected
to live. I also had
the whole axillary
area removed two
weeks after the first
surgery due to
mets and have
lymphedema in my
left side now. I
have complete
panel blood tests,
CA27.29 tumor
marker blood tests
and cbc blood
testseach onc visit,
have had extra
testing for D3
vitamin level, and
lipid panels each 6
months. I took
Tamoxifen for 2
years for any
opportunistic
cancers and then
am on
Aromasin(exemest
ane) for 3 years for
same reason. I was
%15 progesterone
positive which they
considered non-
hormone postive
but we wanted to
try everything. I will
have a Pet scan
next year and a CT
scan to compare to
an earlier one next
year. I was given a
choice on when to
have tests as
'knowing' is not
going to cure me
now. My Onc just
ordered a
colonoscopy which
revealed two pre-
cancerous polyps
which was another
thing he considers
important because
the breast and
bowel similarities in
cancer causes. No No
Chlorella,
Bluegreen algae,
astragalus,
turmeric,
Bcomplex, D3,
Cal/mag/zinc,
Omega 3's twice a
day, probiotic
complex, cranberry
extract, garlic.
I have eliminated
any alcohol, diet
sodas, white bread,
etc... I have just
begun to be able to
exercise as there
was so much Cipro
taken during chemo
that I have tendon
damage and
severe joint pain
from chemo still. I
do stair stepper
and a treadmill
daily at my home.
I have had a very
hard time from the
chemo. It was very
very hard on me
and I have not
recovered from the
chemo-fog due to
the chemo crossing
the brain/blood
barrier (as they
now admit it does).
I fatigue easily and
have a lot of pain in
my body. I have
peripheral
neuropathy and
lingering fingernail
issues. I
experience
'phantom' smells of
things which are
not there and
'phantom' crawly
feelings all which
are so realistic that
at this point I still
have to look and
make sure there is
nothing there. My
vision changed
from perfect to
needing glasses for
distance after
chemo and I have
'Ocular Migraines'
now about every 6
months or so. 3
8/10/2012 54 2 1 0/3
I don't know this
information No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4
AC every 2 weeks.
Completed 4 of 4.
Taxol every 2
weeks. Completed
4 of 4. After surgery Lumpectomy Yes
10 with a
mammosite device.
Oncologist every 3
months.
Mammograms
every 6 months. No Yes Just a skin cancer.
Exercising more,
drinking green tea,
attempting to
increase turmeric
use in cooking.
More olive oil, less
animal fat. Taking
melatonin, calcium,
Vitamin D3. Less
alcohol, red meat
and processed
foods. More
berries. 3
06/2010 34 1.5cm 1 0/2 Chondroid No Yes TAC
Taxol weekly x6,
Adriamycin every 2
weeks x3, Cytoxin
every 2 weeks x3,
then one more
dose of Adriamycin
and Cytoxin
together. Before surgery
Bi-lateral
Mastectomy No
Oncology every 6
months, no further
testing scheduled. No No 3
9/11/2012 52 6 2 1 Spindle Cell No Yes
Carboplatin,
Avastin, Abraxine
12weekly
treatments.
Carboplatin and
abraxine given
each week and
avastin gven every
other week for a
total of 5 doses Before surgery No
Will receive after
surgery
Not known at this
time No No No
Lifestyle has
slowed down
considerably due to
chemo side effects.
I was eating
healthy prior to
diagnosis and was
a faithful exerciser.
Can't wait to be
able to get back to
my routine. 3
6/11/2012 29 5 3 0 No Yes TAC
Tac every three
weeks for six
sessions. After surgery Mastectomy Yes
Monday to Friday
for four weeks. Unsure yet. No No No None
I feel that my
cancer occurred
due to pregnancy
and diet and
lifestyle change! I
started to feel
unwell at the end of
my pregnancy and
had breast pain 8
months after she
was born. This is
just my opinion
though no doctor
has linked it to this. 3
05/2011 64 1.8 I 0/16 Chondroid No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 3 weeks x
4
AC every 3 weeks
X 4 - Completed
Taxol every 3
weeks X 4 -
Completed one out
of 4. Severe side
effects so stopped. Before surgery Lumpectomy Yes 36
Still on treatment
so not sure. No No 3

2. 10/10/2012 45 2 Not given 1/32 Squamous Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4
AC x 4 every 2
weeks completed
all. paclitaxel x4
every 2 weeks
completed all. After surgery Wide Excision Yes 25
Annual
mammogram/ultras
ound.
Mammogram
inconclusive so
MRI scheduled No No
I'm taking vitamin
D3
I've lost 16lbs
following a low fat
diet
I'm not able to
exercise as much
as i used to due to
joint problems
exacerbated by
chemo but I walk at
least once if not
twice a day for 40
minutes
MBC does not
seem to be
recognised in the
UK as a rare
subgroup of breast
cancer. My
oncologist does not
subgroup below the
triple negative
pathology level as
he feels it is not
helpful and would
not change his
choice of
chemotherapy. I
wonder if this puts
us at a
disadvantage in
terms of future
surveillance and
treatment options. 3
Feb 2011 66 1 cm 1 0/4 No No Lumpectomy Yes 35
Oncologist every 6
mos., Surgeon at 6
months then 1
year, radiation
oncologist every 6
months. See
someone about
every 3 months No No
2/3/201
2
12/2004 53 2.5 unstaged non
Spindle Cell,
Carcinosarcoma Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 3 weeks x
4, Taxol every
week x 12
a/c every three
weeks for 4
months. Followed
by taxol After surgery
Lumpectomy, Wide
Excision No
oncologist visit
every three
months, then every
six months. Yes 12/2009 Lung, Same breast
external beam
radiation for
recurrence 35
sessions.
weekly for five
months taxol,
carboplatin for
recurrence.
For metastasis,
avastin/doxil/temsir
olimus every week,
forever. This is
part of a Phase
One study and has
thus far been
successful in
stopping the
cancer. Since
Avastin and doxil
were so hard to
take, I completed
12 months, then
withdrew from
study. I am now
taking m-Tor
inhibitor only. Yes
For recurrence,
same breast
excision of
interior/exterior
capsule, implant.
Ten months later
biopsy of
metastasis to lung. No 4 years - 5 years
7/2010 35 2.1 cm 2a Negative Squamous Cell No Yes Taxotere, TAC
Had six cycles of
TAC all given
together every 3
weeks. After surgery
Lumpectomy, But a
lot was taken,
decent size incision
and tissue removed
all the way to the
chest wall in that
area. Yes
37, 10 boosts to
scar line.
Oncologist every 3-
4 with blood work
and tumor markers,
yearly scans. Also
will scan if
symptomatic. No No
I was diagnosed 8
weeks after giving
birth to my third
child. Gestational
diabetes with this
pregnancy also. 3
18/2011 43 2 IIa 3/18/2012 Squamous Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4
Did Taxol first then
AC--finished all 8
Dec 29, 2011 was
last treatment After surgery
Bi-lateral
Mastectomy Yes
Starting in January
2012 will receive 30
not sure...think
every 4 month to
ONC No
was using HCG
drops for weight
loss when found
lump 3
January 2011 66 2 1 clear No Yes Abraxane
once a week for 3
weeks, off 1 week
repeated this 6
times for a total of
18 treatments After surgery Mastectomy No
check-ups with
oncologist every 3
months for
indefinite period of
time. No Yes
July 2010 -
diagonosed with
triple
negative...Had
mastectomy and
took Taxotere and
Cytoxin for 6
treatments.
No lymph node
involvement
Tumor size 1.5
State 1
Grade 3 None
5/16/2011 40 1.1 1 0/6 Chondroid No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every
week x 12 Completed all After surgery Lumpectomy Yes Will have 33.
Oncologist every 3
months. Not sure
of the rest. No No 3
10/2010 51 2.1 2A -0- Squamous Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4
AC every 2 weeks
for 4 treatments
and then Taxol
every 2 weeks for 4
treatments.
Completed all
treatments without
missing any weeks Before surgery Lumpectomy Yes 33
Oncologist vist
every 4 months.
No ct or PET scans
scheduled. My
oncologist isn't
doing tumor
markers anymore. No No no no change 3
12/10/2012 45 2.1 IIa 0/3 Chondroid No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4
AC every 2 weeks,
completed all four.
Taxol every 2
weeks, completed
all 4. After surgery Lumpectomy Yes 21 rounds
Oncologist visit
every 3 months, not
sure of tests as
follow up. ONly
mentioned
mammograms and
ultrasounds. No No
I just drink E3 Live
each day. 1
tablespoon with
water. It is an
immune booster
made of Algae.
Cut down on
alcohol, removed
"white" from diet,
except potatoes,
switched to free
range meats,
poultry, eggs. Buy
organic alot,eat
mostly green
vegetables and
read labels to avoid
preservatives and
chemicals. Take
Hot Yoga to relieve
stress, strengthen
my body and
remove toxins. 3
06/2008 31 4.9 3 0/6 No Yes Taxotere, FEC
FEC x4, then
Taxotere x4
three weeks in
between each
completed all 8
chemo After surgery
Lumpectomy, Wide
Excision Yes 21 treatments
Right now I have
one last 6 month
appointment with
my oncologist then
I go to yearly
appointments. I
have a yearly
mammogram and
just now moved to
yearly
appointments with
my surgeon. No No No
Exercise 3-5 times
a week now, eat
less red meat
(oncologist's
suggestion), lost a
little weight, trying
to lose more,
making more of an
effort to decrease
stress and anxiety
than before.
not
sure
Sept. 2010 64 2.1 cm IIA
negative/2
sentinels Spindle Cell No No
Bi-lateral
Mastectomy No Yes Aug. 2011 Same breast, Skin
33 radiation
treatments (5 were
incision boosts).
My recurrence was
local, a little knot at
the end of the
incision that I
initially thought was
scar tissue. none Yes
had implant
removed & radical
mastectomy. Yes
basal cell
carcinoma on
chest. Removed
years ago with no
trouble.
germanium twice a
day. none high 6 months - 1 year
04/2007 50 1.8 0/2 Spindle Cell No Yes Taxotere
every 3 weeks
completed 5
treatments out of 6 After surgery Lumpectomy Yes 33 every 6 months Yes 03/2009
Lung, Liver,
Outside of lung in
Chest
After complete
remission, I
returned home
12/09 and I
received Torisel
once a week for
one year. I am now
taking Afinitor
(everolimus) one
tablet daily. I have
been on Afinitor for
one year and so far
still Cancer free. I
go back to MD
Anderson every 6
months. My next
visit is in April
2012.
Phase 1 Clinical
Trial at MD
Anderson
Doxil,Avastin,
Torisel No
No, the mass was
located between
my heart and lung
and also on my
liver. No None 3 1 year - 18 months
09/2009 45 4 2a 0/15
Spindle Cell, Basal
Cell No Yes FEC
FEC every 3
weeks, completed
5 treatments out of
6 After surgery Lumpectomy Yes 30 No No
Curcuma tablets
daily, Mistletoe 2
times aa week,
Selenium 300,
excercise 2-3 times
a week (running,
weightlifting)Would
have loved a doctor
would have loved a
doc who was more
used to MBC.
Actually I was the
first MBC patient
for my gyn in 10
years. Felt that I
had been given a
standard treatment. 3
11/2007 47 2.1 2b 1/7/2012 Squamous Cell No Yes Taxotere
4 treatments EC
every 2 weeks,
Taxotere 4
treatments every 2
weeks. After surgery
Lumpectomy, Bi-
lateral Mastectomy Yes
25, after recurrence
10/2010
Still going for
metastasis. I
almost made it to
the sixth month
visits when my
recurrence began. Yes 11/2009 same side nodes
I have had
something ever
since the
recurrence in some
nodes. Hilar,
axillary (right side),
mediastanial,
supraclavical, and
in my neck on the
left side.
Xeloda 6 cycles.
This was a study
for a cream to
prevent hand/foot
syndrome. You
know my insurance
loved not paying for
the chemo. Yes
Axillary dissection
in July 2010. No
I actually get less
exercise now since
I drove a postal
route for a couple
of years before
having to quit. I
actually quit
delivering mail
because the
Xeloda made me
very dizzy trying to
case the mail. (
sorting it for
delivery)
My radiation
oncologist said that
I have basal cell
and that his sister-
in-law had the
same kind. It was
tricky and would
pop up outside the
treatment area,
which it did. 3 1 year - 18 months

3. 06/2011 37 3.3 2a 0/10 Squamous Cell No Yes Taxotere, FEC
FEC every 3 weeks
, 3 times
Taxotere every 3
weeks, 3 times.
Completed all
sessions After surgery Lumpectomy Yes
16 radiations
treaments
4 boosters
Still in treatment at
this time. No 3
Jan 2010 57 3.4 2 0/1 Spindle Cell No Yes EC
EC - (Epirubicin &
Cyclophosphamide
) every 3 weeks -
completed 6 of 6
treatments After surgery Mastectomy Yes 15 treatments
Alternating
between Oncologist
and Surgeon every
3-4 months No No No 3
September 2011 68 3.2cm 2 0/2
Squamous Cell,
Spindle Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4
AC every 2 weeks,
completed 3 of 4 -
discontinued due to
serious side-
effects. 4 Taxols
planned beginning
1/12/12. Every 2
weeks. After surgery Lumpectomy
Scheduled for 6
weeks - five times a
week. To begin in
April.
Do not have a
follow-up plan yet. No No
Trying to adhere to
the "whole foods,
cancer diet" - taking
into consideration
diabetes and
diverticulitis as
additional diet
challenges.
Plan to use
treadmill on a
regular basis when
I regain my energy.
Gave up tennis for
the time-being after
taking a hard shot
to the same breast
that had been
operated on.
ER and PR
negative, Her2
negative
Histolo
gic: 2 of
3
3/10/2012 54 3.6x2x2.9 0/3 Basal Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4
AC every 2 weeks
for 2 months
followed by Taxol
every 2 weeks for 2
months. Completed
8 treatments out of
8. Supported by 8
injections of
Neupogen for white
blood strength
during every 2
week time span.
after lump./before
mast
Lumpectomy,
Mastectomy No
I was given a
choice. Mast or
radiation. Chose
mastectomy.
Oncologist appt
every 4 mo.
CT/PET the first
year. Waiting to
hear at my next
appt if they feel this
is necessary to
continue given my
current good state
of health. No No
Initially I refused
treatment, had a
lumpectomy and
went for 80,000mg
Vit C and ozone IV
for 5 months. A
clinical study
strongly advised
chemo due to the
high rate of MBC
returns. I continued
with 80,000mg Vit
C IV 6x/month
(480,000mg/month)
while undergoing 4
months dense dose
chemo. Also took a
full supply of
vitamins,
Resveratrol. I now
only do Vit C IVs a
couple times a
month but still
ingest vitamins.
I have eliminated
dairy, gluten, and
sugar as much as
possible. Only eat
organic red meat or
not at all. Focus on
lamb, organic
chicken or fish.
Lots of beans,
greens, vegetables
and fruit. I power
walk over 1 hour to
2 hours/day, rain or
shine.
I was fortunate as I
had no really
negative
experiences or
illnesses during
treatment. I had
chemo, took my
anti-nausea pills
faithfully, my
vitamins and
walked miles and
miles. Other than
no hair I looked
fabulous and truly
felt amazing. Oh,
and my tastebuds
were poorly
affected so every
evening before
dinner I took a
glass of red wine
and my appetite
was remarkably
improved. I had a
little bit of
neuropathy but it
was quickly
alleviated with
walking. 3
05/2011 64 4.5cm 3A 4/18/2012 Squamous Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every
week x 12
DD Ac every 2
weeks for 4
treatments - all
completed; Taxol
every week for 12
weeks - all
completed. After surgery Mastectomy Yes
I am scheduled for
28 treatments
followed by 5
boosts. I have a
bolus every other
day and regular
treatment on
alternate days.
Have completed 10
treaatments.
Oncologist visit
every 6 weeks
currently. Not sure
how follow-up will
continue. Will have
2nd visit this week. No No No None
Only side effects
from chemo were
hair loss & slight
neuropathy starting
after the 10th
Taxol. I took
Claritin with the
chemo and
prevented all bone
pain that is
associated with the
Neulasta &
Neupogen.
Would like to be
able to update this
after completion of
the radiation and
see some sort of
way to do follow-up
in the coming
years. 3
January 2011 49 2.5 2A 0/2 Squamous Cell No Yes Cisplatin
Cisplatin &
fluorourocil every 4
weeks, completed
3 Txs out of 4.
4 weeks
radiotherapy
sandwiched
between 2nd and
3rd Tx
Paclataxol every
week, completed 9
out of 12 After surgery Lumpectomy Yes 20 No No Not really
My lifestyle was
already quite
healthy! Regular
exercise and
healthy diet. Have
reduced stress! 3
2/10/2012 45 2 2 0/1 Basal Cell No Yes FEC
FEC every 21 days.
6 treatments After surgery Lumpectomy Yes
was to be 25 days,
due to skin reaction
only completed 20
Oncologist visit
every 6 months.
Mamogram in a
year (i think) No No No Nil 2
11.2009 37 4cm 2b 2/25/2012 Can't differentiate No Yes Taxotere, FEC
Every 3 weeks
FEC-D (taxotere)
from a clinical trial
with different
gradients - Panther
Trial Germany and
Sweden. After surgery Lumpectomy Yes
7 weeks of
treatments daily. I
couldn't finish and
stopped after 32
days.
Oncologist every 3
months for 3 years.
Mammogram and
PET, CT, Bone first
year. Mammogram
and ultra-sount
second year (every
six months). Third
year oncologist
every 3 months and
then mammogram
and ultra-sound
every six months. No No
Schulssler Salz - 2,
11, 9
Vitamin D3,
Silenium
Had lymph
drainage for one
year during and
after chemo.
Vegan=Vegatarian
diet. Trying no
sugar (with
difficulty) running
and lots of sport
and pilates. Don't
eat any processed
food.
My cancer hurt and
it grew very very
quickly. Everyone
thought it was a
cyst but it wasn't. 3
11/27/2008 42 2 4 Squamous Cell Yes Liver Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every
week x 12
A/C every 2 weeks,
12 weekly Taxol
only finished 9 due
to nuerapathy After surgery
Bi-lateral
Mastectomy No
Pet Scan every 4
months for 2 years
now going to every
6 months. Yes 02 /12/2009 Liver No
Removed liver
tumor No no 3 0 - 6 months
11/2007 41 1.7 cm 1 0/3
Chondroid,
Carcinosarcoma No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 3 weeks x
4, Taxol every
week x 12
completed 4 doses
of a/c 3 wks apart
then 12 doses of
Taxol given once a
week After surgery Lumpectomy Yes 54
Oncologist followup
every 3 months
mammograms
every 6 months. No No none none
my paternal and
maternal
grandmothers had
breast cancer
Paternal GM dx in
her 60's, Maternal
GM dx in her 40's.
My BRAC 1 was
neg but my BRAC
2 had a variant of
unknown
significance
present. 3
9-2010 66 2/1/2002 2a 0/2 Carcinosarcoma No Yes Taxotere, cytoxan
Cytoxin and
taxotere every 3
weeks , completed
4 out 4 After surgery
Bi-lateral
Mastectomy No
Oncologist visit
every 3 months.
CT/PET only if
symptoms arise. No Yes
6/1999, IDC, Stage
2, Grade 2,
Lumpectomy,
Radiation + 33
Adriamyacin and
cytoxin, every three
weeks . 4 out of 4 none
11/2011 38 4 2? 0/1?
I don´t have a
pathology report No Yes
I´m having chemo
soon
I´m having 3 chemo
treatments, one
every other week.
That is for 6 weeks
total. After surgery Lumpectomy Yes
I´m having radiation
treatment after
chemo treatment.
once a year, in two
years. Then
mammography
every other year. No
Cancer CAN hurt!
You CAN move a
tumour! A tumour
CAN be found in a
cyst! Always
demand to remove
a cyst by surgery!
B?
3/9/2012 54 5 2 0/12 Squamous Cell No Yes Taxotere, cytoxin
Every 3 Weeks 4
treatments After surgery Lumpectomy Yes 30
Onc every 2
months for 1 year
then every 6
months Yes 12/11/2012 Bone, Lung
Just starting
cisplaton/epositide. Yes No No uk 2 years - 3 years
May 2009 33 2.5 2a 0/5 No Yes FEC
Fec every 3 weeks,
4 pre-surgery, 2
post-surgery Both Lumpectomy Yes
25 daily treatments,
of which the final 5
were boosters
Annual appt with
surgeon/consultant
with Mammo.
Access to my
oncologist if I need
them tnough No No
Currently taking
iron supplements,
vitamin D and
calcium, omega 3
oil tablets (for
treatment related
joint pain), monthly
aromatherapy
massages with
reiki.
Trying to eat
healthily - lots of
fruit and vegetables
and cutting down
the bad foods.
Started at gym
before my joint pain
started and am
keen to get back to
it as soon as I feel
able to. Walking
lots.
My oncologist
decided my
treatment for MBC
by other factors, ie
grade and stage, I
have not been able
to get much
information from
him about MBC. My
cancer was 4/8
Oestrogen
receptive which I
find unusual as it
seems others that
I've come across
have all been triple
negative - I'm
currently on
tamoxifen (2 yrs out
of 5 through) and
was on Zoladex for
14 months but
came off it as it
didn't agree with
me physically or
emotionally. 3

4. 6/14/2010 56
2.5 cm
under arm
& 1.5 in
breast 2A 0/all remaining
Squamous Cell,
Chondroid, matrix
producing No Yes
Taxotere, &
cytoxan
every 3 weeks for 5
treatments, was
supposed to have 6
but last one was
canceled, Dr said I
had been beat up
enough. After surgery
Mastectomy, under
arm tumor removed No
every 2 months
then every 3 12/8/2011 Bone, Lung
Dr. thinks this
recurrence in not
metaplastic but a
recurrence of the
original triple
negative invasive
ductal carcinoma
from 2007. There
was not enough
tissue taken at
biopsy to be sure.
taxol and
carboplatin Yes no Yes
In Jan. 2007 I was
diagnosed with
invasive ductal
carcinoma,stage 1,
intermediate grade,
histologic score of
7, high grade, triple
negative. I had
lumpectomy, 6
rounds of chemo
with cytoxan and
epirubicin, and 28
radiation
treatments. no none
I could not have
radiation treatment
for the MBC as I
had already had it
to the same area in
2007. They will
only treat any area
with radiation
once. 3
18 months - 2
years
Sept 2011 32 1.5 1 0/3 Carcinosarcoma No Yes FEC
FEC every 3 weeks
for 3 treatments.
Taxol weekly for 9
treatments After surgery
Bi-lateral
Mastectomy No
Surgeon every 6
months for check
up.
Not sure about onc
yet. No No 3
July / 2010 34 2.9 cm 2B
1/11 + 0/3
(sentinal axillary
LN) Squamous Cell Yes Lymph Node Yes Taxotere, FEC
3 Fec every 3
weeks, sometimes
delayed due to
infections
3 Taxotere every 3
weeks, sometimes
delayed due to
infections After surgery Mastectomy Yes 16
Seeing Radiation
Onc and Chemo
Onc once per year.
A yearly
Mammogram on
the existing breast.
No scans or blood
work
If anything alarming
to see family doctor No
Multi vitamin daily
2000 units of
Vitamin D
Eating more Vegi,
No beef or pork
Trying to exercise
more, not really
sucessful as of yet
Trying not to stress
Every country
treats MBC
differently, in the
means of
monitoring and
treating. With the
unknown of this
cancer there should
be more monitoring
of us and standard
care for us. 3 of 3
02/2011 52 1.7cm 1 0/8 Spindle Cell No Yes TAC
TAC every 3 weeks
x 6 rounds all
completed, with
Neulasta 2nd day
after in each round After surgery Lumpectomy Yes
35 5 of which were
"boost"s
one month post
blood work (not for
markers) and chest
CT with full body
bone scan - all
clear to date (end
Dec 2011).
I requested
oophorectomy/salpi
ngotomy (ovaries
and tubes) to be
excised (I have
been menopausal x
3 years and wanted
the "silent killers "
OUT!) This was
done 10 /11. No No No No
Yes - multiple types
of supplements,
including higher
dose Vit D3 and B-
12/complex as well
as Metformin
500mg daily, Evista
for bones.
Diet - will go on
Hcg diet today (as
a matter of fact) -
lost 65 pounds the
year before finding
the lump(probably
woundnt have
without the weigfht
lost), now need to
get rid of an extra
10 and then 25
more ...so far
research shows no
negative (but rather
positive) effects
with the hcg (ours
is not hormonally
tied...
This is on the rise -
have in 6 mos
found out about 3
other TN
metaplastic women
in our area - any
ideas regards
geographic
incidence studies? 3
11/2011 34 6cm III
Chondroid,
epithelial No Yes
Taxol every week x
12, only got to
week 7 when
chondroid part
seemed larger,
hence surgery
Goal: taxol weekly
x 12 weeks, then
AC every 2 weeks
for 8 weeks.
Completed 7 of 12
taxol before having
mastectomy.
Tumor decreased
by 40% volume
initially, then
started to grow.
Having mastectomy
in about 36 hours!
(hooray!)
Plan is to return to
chemo about 3-4
weeks post
mastectomy.
Depending on path,
will see what
chemo I will return
to. (ie may not
complete taxol
cycle. Will def do
AC. May do other
agents.)
Looking so forward
to being in
remission.
Before surgery Mastectomy Yes
I will have radiation.
I believe 7 weeks-
q day. unknown No
No. Considering
having vaccine.
No real recs given
my team. I have
increased exercise.
working on
increasing fruits
and veggies,
decreasing red
meat. Limiting
alcohol- used to
have 2 glasses of
wine a night 5-6
nights a week.
Now closer to 3-4
nights a week.
Was vitamin D
deficient. Now
supplementing.
01/2011 58 up to 6 cm IIB 0/15 Carcinosarcoma No No Mastectomy Yes 30
Oncologist visit
every 3 months No
High
histolog
ical
grade
1/13/2011 39 3.5 2a 0/4 Carcinosarcoma No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4
AC every 2 weeks
for 4 treatments
followed by Taxol
every 2 weeks for 4
treatments After surgery Mastectomy No
Oncologist every 4
months.
Mammogram every
year w/ followup
with breast surgeon
every year. No No 3
3/9/2012 54 5 2 0/12 Squamous Cell No Yes Taxotere, cytoxan
taxotere/cytoxan
every 3 weeks for 4
treatments After surgery Wide Excision Yes 30
onc visit every 2
months for first
year, than every 6
months Yes 12/11/2012 Bone, Lung
had 10 high dose
rads over
Christmas, still well
tanned in the area.
Having cat/ct scan
on 4/16/12 to see if
treatments have
done any good at
stopping/slowing
the mets.
have had 4 cycles
of cisplatin/gemsar.
Each 3 week cycle
consisted on 2
sessions on day 1
and day 8, thana
week off. Can't say
if I'm finished with
chemo yet. Yes no No b 2 years - 3 years
9/11/2012 50 4cm 3 0/1
Basal Cell,
Chondroid,
Carcinosarcoma No Yes
Taxotere,
Carboplatin,
Avastin
Every Monday
tax/carbo... every
other Monday
avastin added for 3
months
...completed all 12 Before surgery Mastectomy Yes
Still in txtment...18
done 33 to
complete..rads to
chest wall. Fom
both sides with
proton beam in
middle of chest
each txtment
Ono q 3
months..mammogr
am q6months
rotating. U/S
qmonths No
Juice. With macro
/micro greens...all
food organic..
No plastic....
Your not
alone...research.
research. Research
...2nd opinions.. 3
09/2011 51 3 2 0/3 Spindle Cell No Yes
adriamycin/cytoxan
/taxoter every 3 x 6
tac every 3 weeks,
completed 6
treatments out of 6.
taxoter,
andriamycin and
cytoxan. After surgery
Lumpectomy, Bi-
lateral Mastectomy No
ct scan 2 months
after last chemo.
next ct scan as
needed. oncologist
visit every 6
months. No No
not yet, starting to
diet and
exercise....one
more surgery first.
hospitalized 2 times
due to chemo and
critically low blood
counts. was
admitted for 4 days
each time and
given antibiotics
thru port. a
02/2012 47 2.3 2a 0/8
Squamous Cell,
Spindle Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4
A/C x4 and taxol x4
completed all. After surgery
Lumpectomy, Wide
Excision Yes 30 scheduled.
BS every six
months, Onc three
months for first
then every six
months No No
My MBC doesn't
include any breast
cancer component.
Just Spindle Cell
Carcinoma and In
Situ Squamous Cell
Carcinoma. No IDC
or ILC.
February/2012 49 1.6 1 0/1 Squamous Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4 After surgery Lumpectomy Yes 30
Onc every 3
months, blood
testing every 3
months No 3
August 2012 63 9 1/12/2012 Yes
Before surgery AC
every 3 weeks x 2
after surgery
starting on 23
November 2012
Taxotere every 3
weeks x 4 Before surgery node excision
Radiation will be
after Taxotere -
probably end of
February 2013 TBA No
April 2011 49 4.1 cm 2
Zero positive
out of four
taken. Chondroid No Yes
Adriamycin/Cytotax
in/Taxotere every 3
weeks x2
The tumor nearly
doubled in size
within the first two
rounds of
chemotherapy so
they went forward
with surgery before
the third round and
didn't give me
chemotherapy
following
mastectomy. Before surgery Mastectomy Yes 32
Oncologist visit
every 3 months,
mammogram every
6 months. I have
also had full body
since finishing
treatment. Also,
nodules have been
found on my thyroid
although the biopsy
was negative. No No No.
11/16/2013 55 2.8 3
3neg nodes out
og 3 taken Spindle Cell No Yes
Cytoxin & taxol
every wks complete
2 cycles radiation
after for 6 wks. After surgery
Lumpectomy, Wide
Excision No
Onc visit evey3
month mamogram
every 6mo No No
Haven't change
anything yet
Its new to me righht
now still in learning
phases 3
12/2012 36 1.4 1 0/2 Pseudosarcomatic No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 3 weeks x
4 After surgery Lumpectomy Yes 35
6 months onc visit,
6 months
ultrasound, 12
monts
mammogram No
Potassium
ascorbate
No sugar, no
glutine, no dairy
products, added
some more fish and
organic chicken
since being
vegeterian fo 12
years
For a decade
before my diagnose
I was exposed to
very high levels of
stress and involved
in an extremely
comPlicated
relationship, which
led to depression
and poor self
esteem. In my
opinion, that might
have led me Into
illness 3

5. 2/15/2012 37 10cm
not sure, 3
or 4...am.
spots
showing on
hip on PET
scan but
MD not
sure if
cancer
PET showed
several nodes
active but SN
biopsy done
after chemo
showed 0 of 3
nodes taken to
be positive Carcinosarcoma Yes Bone Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4
Dose dense AC, 4
doses- 1 every 2
weeks
Dose dense Taxol
4 doses- 1 every 2
weeks
Finished All Before surgery
Lumpectomy, Bi-
lateral Mastectomy Yes
28 targeted at
chest and sternal
lesion
Still monitoring
sternum, MRI 1
month post
radiation showed
possible lesion still
present. Won't
know if active til
PET in march when
tissue will yield
more accurate
results post
radiation. Then
plan is PET scan
every 3 months. Yes Oct/2012 Bone None Yes
Bone biopsy x 2,
then radiation No Turmeric daily
Diet, trying to cut
back sugar
Increase greens,
cruciferous, juicing
I was pregnant
when I found lump
in Feb. 2011, was
dismissed til
August chemo
demanded biopsy,
surgeon told me it
was a
fibroadenoma to go
ahead and
breastfeed after
baby was born.
After baby was 5
months, lump was
HUGE and I asked
to have it removed.
The rest is
explained above... 3 0 - 6 months
Nov/ 2010 42 40.6 ? 0/30 Spindle Cell No Yes FEC
FEC given every 3
weeks, completed
6 treatments out of
6 After surgery Mastectomy Yes 3 weeks / 15 days
either oncologist or
surgeon every 3
months, ct and
bone scan 6
monthly for first
year. 2nd year
oncologist or
surgeon 6 monthly
- no more scans No Yes
1997 - cervical
cancer,
hysterctomy
1998 - throat
cancer, Radiation x
15 3
28/06/2012 46 2.7 2A 0/17 Spindle Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 3 weeks x
4, Taxol every
week x 12
AC 4 out of 4,
Taxol 12 out of 12. After surgery Mastectomy No
Mammogram 12
months form
diagnosis. No No
I am taking
Tamoxifen for 5
years as my tumour
was 30% ER+ and
5 % PR+ 3 6 months - 1 year
april 2012 46 3.5 cm 2a 0/3 Spindle Cell No Yes
FEC for 3 cycles
every 3 weeks
followed by
docetaxel for 3
cycles every 3
weeks. completed
treatment. After surgery Mastectomy Yes 15 x 2.67 ug
onc/surgeon every
3 months rotating
between them for
next two years. But
also having follow
up preventative
surgery on account
of being BRCA1.
Will have bilateral
salpingo
oopherectomy and
mastectomy of
remaining breast. No No
multivitamins,
omega 3, l-
glutamine,
acidophilus and vit
D
Have switched to
totally organic food
and drinks. Cut
back on red meat
and meat generally.
And cut back on
alcohol. Upped my
fish, veg and fruit
intake. Juice
regularly. I haven't
changed exercise
so much on
account of having
very young children
but will exercise
more as they get
older.
That it did not show
up on my yearly
mammogram. I
think it would be
helpful to add a
question about
BRCA status and
triple neg status on
this survey. Will
message you. 3
6/2012 61 3/4 3 x 3 x 3.5 T2 0/1 (sent. only) Spindle Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every
week x 12
A/C ever 2 weeks,
completed 4 out of
4.
Taxon every week,
11 out of 12
completed -
skipped the 9th or
10th scheduled due
to nerve pain. After surgery Lumpectomy Yes
28 treatments - no
booster due to wide
margins
Oncologist/surgeon
/radiologist - told to
see one of them
every 3 months.
They're a team and
are in touch with
each other.
Mammogram every
6 months. For
instance, I finished
radiology - 3 weeks
later saw the
oncologist for a 3
month followup.
Will see radiologist
for a 2 month
followup and then
either oncologist or
surgeon 3 months
after that. No No no n/a 3
26/09/2012 39 4.1cm 3 O put of 6 No Yes FEC 6x FEC After surgery Lumpectomy Yes 20
Unsure at the
minute No
Food - being more
healthy
Juicing
I will complete
more when I have
it. 3
7/12/2013 44 5.6 II B 0/7
Spindle Cell,
Carcinosarcoma No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4
AC every 2 weeks
followed by 4
weeks of Taxol.
Completely finished
all treatments. After surgery
Bi-lateral
Mastectomy Yes 28
Blood test and
oncologist visit
every 3 months.
No plans for scans.
I was told to pay
attention to my
body and if I have a
problem that
persists longer than
2 weeks to contact
her. No No
I am paying close
attention to my
sugar intake and
have cut down on it
drastically. 3
September, 2010 66 2 1/2 cn 2A
02/2012 49 1.6 1 0/1 Squamous Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4 After surgery Lumpectomy Yes 30
Onc visit every 3
moths, 2 normal
mammas, now
once a year. No No
taking turmeric
pills daily
trying to eat better,
limit alcohol and
exercise regularly 3
October 2011 28 4 cm 3 21/28 Squamous Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4,
Herceptin
AC every 2 weeks,
completed 4 out of
4 treatments. Taxol
was started 2
weeks after last
dose of AC, every 2
weeks, completed
4 out of 4
treatments.
Herceptin was
given with Taxol.
After Taxol was
complete,
Herceptin was
given every 3
weeks for 1 year. After surgery
Bi-lateral
Mastectomy Yes 33
Oncologist every 6
weeks. PET scan
every 6 months
which was changed
to every 3 months
following a
suspicious scan. No No
April 2012 53 7.5 II B
0 positive nodes
out of 4 taken Squamous Cell No Yes
Taxotere, Cytoxan,
Neosar
TC every 3 weeks
completed 6
treatment out of 6.
Plus Trastuzumab
every 3 weeks for 1
year.(A
Randomized Phase
III Trial Of Adjuvant
Therapy
Comparing
Chemotherapy
Alone to
Chemotheropy Plus
Trastuzumab in
women with Node
Positive or High
Risk Node-
Negative HER2-
Low Invasive
Breast Cancer.) After surgery Mastectomy Yes 33 N/A No no II
Jan. 2013 41 1.3 1 0/6 Spindle Cell No Yes Taxotere 4 every 3 weeks After surgery Lumpectomy Yes 2
12/2010 45 2.1 2 0/3 Chondroid No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4
AC every 2 weeks,
completed all.
Taxol every 2
weeks, completed
all. After surgery Lumpectomy Yes 21
Oncologist every 3
months for 2 years.
mammogram every
year. No 3
july 2012 39 5 3 10/14/2013 matrix producing No Yes Taxotere, FEC
fec every 3 weeks
for 3 rounds then
docetaxal every 3
weeks for 3 rounds Before surgery
Lumpectomy, Bi-
lateral Mastectomy Yes 25
tba as I am still in
radiotherapy. has
been discussion of
continued chemo
(low dose ) orally
for a year after I
finish primary
treatment. Not
sure how regular
checks will be. I
will be doing scans
(CT) for chest
abdomen and brain
at end of
radiotherapy at my
oncs
recommendation.
Also I will be doing
a CTC count blood
test at my own
expense to Yes oct 2012 Same breast
fec d
No
I had a local
recurence after
mastectomy ( at the
scar site and skin
involvement) before
I started chemo as
it was delayed due
to pneumonia and
pleurisy contracted
just after
mastectomy
surgery. Had to
have another
surgery in oct 2012
to remove local
recurence and
affected lymph
nodes.
mastectomy was in
aug 2012. originally
had lumpectomy in
july 2012 but no
clear mains. No
After local
recurence I cut out
all meat and dairy.
After chemo
finished I began
daily excercise
mostly bike riding
about 40 mins a
day as I put on a
few kgs during
chemo (die to
steroid shots) 3 0 - 6 months
March 2011 66 1cm 1 o/6 matrix producing No No
Lumpectomy,
central nipple
excision Yes 33
check up every 4
months
mammogram once
a year No No
exercise 40 min. 4
times per week
low fat low sugar
diet
organic when
feasible
would like to know
others with matrix
producing MBC 3
June 2011 44 No Yes
Adriamycin evey 2
weeks and then it
was suppose to be
taxol 4 every 3
weeks i had a
reaction to taxol so
i had 7 AC total After surgery
Bi-lateral
Mastectomy

6. April. 2012 71 1.9 cm 1 0/1 Spindle Cell No Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 3 weeks x
4, Taxotere
4 treatment every
three weeks After surgery Lumpectomy Yes 33
Oncologist every 6
months.
.
Surgeon every 6
no.
Mammogram every
6 months. No Yes
Sarcoma...also
spindle cells..in
fatty tissue of
abdomen....surgery
CT scan every six
months for four
years. Now every
year
Occurred 2009
October,2012 58 3.2 pT2 none
Squamous Cell,
Spindle Cell No No Lumpectomy Yes sixteen treatments
oncoligist vist three
months after
finishing radiation.
Ct scan six months
after surgery No No
I lost my son in July
then was dianosed
with MBC in
October 2012. I
have this to be a
scary journey
because there is no
specific treatment
for metaplastic and
not enough
research on it. 3
03/2009 45 4 2a 0/15
Squamous Cell,
Spindle Cell No Yes FEC
5 x FEC every 3
weeks After surgery Lumpectomy Yes 30
Gynecologist every
3 months,
mammogram every
6 months No No
I was injecting
mistletoe for rhe
first 3 years after
dx, now daily
Turmeric, Selen
200 mg, Vitamin D
decreased meat, I
lost 5 kg's, I am
excersing 2-3 times
per week 3
1 Sept 2012 39 5 3 10/14/2013 matrix producing No Yes Taxotere, FEC
given 3 fec every
three weeks
followed by 3
docetaxal every
three weeks. Did
cold cap. Before surgery
Bi-lateral
Mastectomy Yes 25
every three months
to see the onc and
radiation specialist.
May also do low
dose chemo oral
form for 12 months
(MTX) -to be
advised once I
finish radiotherapy.
Will also do ct scan
chest abdo and
brain after rads
finish as well as a
ctc count test. Yes oct 2012 Same breast, Skin
as above was due
to delay in chemo
starting. Also due
to not clear mains
at time of
mastectomy.
not applicable as
chemo was same
as originally
scheduled and
advised in previous
answer. Yes
yes. . removed the
recurrence
(multiple small
lumps at the
mastectomy scar
site (skin
involvement) in oct
2012. This
recurrence occured
just before I began
chemo (due to
delaying chemo to
overcome
pneumonia and
pleurisy post initial
mastectomy
surgery ). Also did
a round of IVF pre
chemo. No
excercising about
20 mins a day now.
Also h have
completely
eliminated meat
and dairy since oct
2012.
was diagnosed
whilst
breastfeeding. lump
initially showed up
as mastitis. after 4
months would not
go away I had
ultrasound and was
told it was just fluid
filed cyst. 3 months
later it had doubled
in size and
hardened. so I had
it removed via
lumpectomy and
then it was tested.
came back benign
originally, then
after a second lab
tested it it came
back as mbc. so
opted for bilateral
mx at that point add
my had bc and also
I got rested and am
brca1 positive. 3 0 - 6 months
9/11/2013 52 5 2 1/6/2013
Spindle Cell,
Chondroid No Yes
Carboplatin,
Avastin, Abraxine
12 dense dose
weekly treatments.
Avastin given every
other week Before surgery
Bi-lateral
Mastectomy Yes 30
Medical oncologist
and radiation
oncologist and
surgeon visit every
3 months. Now
every 6 months and
will move to once a
year. No scans
unless symptoms. No Yes
Basal cell skin
cancer No
None as I was
eating well and
exercising regularly
before. 3
12/2013 55 3.5 II 0/2 Chondroid Yes Yes
Adriamycin/Cytoxa
n
(Cyclophosphamid
e) every 2 weeks x
4, Taxol every 2
weeks x 4
Completed the
above without
interuption; ac 1st After surgery Partial Mastectomy Yes 33
Ct scan and follow
up with oncologist
in Sept 2013
Full mammogram
and follow up with
surgeon Dec 2013
Jan 2014 follow up
with oncologist. No No No
Taking vitamin d,
fish oil and multiple
vitamins.
8 hours rest each
night, 40 minute
fast walk everyday,
drink lots of water,
eating lots of
vegetables,
especially green
veggies, low fat
dairy, whole grains
and protein.
Avoiding beef,
processed and
canned foods.
Eating mainly
organic Fruits and
veggies. Have cut
way back on sugar
except struggling
with chocolate.
Quit smoking April
2013!
Planning for a full
life! High
12/1/2009 42 3.1x2.5 IIb 1/14/2014
Squamous Cell,
Infiltrating ductal
carcinoma No Yes
FEC,
5FU/Adriamycin/cyt
oxan 3 weeks on, 1
off x 6 cycles
F/A/C weekly for 3
weeks, then 1 week
off for 6 cycles After surgery Mastectomy No
No radiation the 1st
time, Did have 35x
rads the 2nd
occurrence.
This was my 1st
occurrence. My
local oncologist
said see you in 6
months.
After 2nd
occurrence, MD
Anderson was 6
weeks, then every
3 months, then
every 6 months
with PET scans. Yes
Palpitated August
2010, Diagnosed
with PET October
28, 2010
left chest wall
between 2nd and
3rd ribs, adjacent to
left side of sternum
After receiving
radiation from my
home town
oncologist, CT
showed that the
main chest wall
tumor shrunk to 2.5
cm, and they
suggested pretty
much permanent
chemotherapy.
Also, they said that
they would not
check my progress
or do any type of
scans for 6 months.
The local surgeoun
also said that there
was nothing that
could be done for
me surgically. I
didn't like this. We
reported to MD
Anderson in
January 2011.
They initiated
abraxane & set up
the surgery that
was successful.
NED for 15 months
on estrogen
ablation because at
this time my cancer
was mildly ER+.
November, 2012:
PET scan showed
a small tumor in my
right lung middle
lobe. Pathology
came back as
"Poorly
differentiated
carcinoma,
sqamous cell,
metaplastic,
probably metastis
of breast primary".
"Tumor cells are
weakly positive for
cytokeratin 7,
negative for TTF-1,
Napsis A, GCDFP-
15, estrogen
receptor,
progesterone
receptor and HER-
2."
So this occurrence
my pathology has
changed to triple
negative,
metaplastic.
for the second
occurrence,after
radiation, I received
abraxane 3 weeks
on, 1 week off x 5
cycles. Good
response. NED, Yes
Yes. After radiation
and chemotherapy.
August 1, 2011.
removed exposed
tissue that
previously was
tumor, Resected
left side of sternum
bone, 7.0 x 6.0 x
2.0 cm, with
attached portion of
2nd & 3rd rib, 1.2 x
0.7 x 0.5 cm each
and attached soft
tissue. Left upper
lobe wedge
resection, 4.5 x 3.5
x 1.2, of a
suspicious area in
my l lung they had
been watching.
Pathology
confirmed no
disease. Resected
mammary chain as
well since these
nodes had been
positive for disease
before treatment,
too.
Next surgeon
covered this gaping
hole with mesh for
protection as well
as tram flap
reconstruction from
my abdomen. 18
hour surgery. Yes
1. December 2009,
IDCw/sqamous
cell, stage IIb/grade
3, ER+. Left
modified radical
mastectomy,
Chemotherapy
(F/A/C) x 6 four
week cycles. Taxol
daily x 3 months
(d/c'd due to not
working).
2. Palpitated
August 2010, PET
confirmed October
28, 2010. Left chest
wall tumor, can't
find measurements
but do remember it
was referred to as
tennis ball size.
adjacent mammary
nodes also positive
for disease. Poorly
diff. carcinoma.
Radiation x 35
weeks, followed by
abraxane 3 weeks
on, 1 week off x 5
rounds, followed by
sternum resection
& tram flap surgery
on 8/1/2011.
Followed with
estrogen ablation
for next 15 months
and was NED until
November, 2012.
Then along came
Metaplastic and
triple negative
status.
I increased eating
raw fruits and
vegetables,
especially
cruciferous
vegetables such as
broccoli, Kale,
cauliflower,
cabbage. Some
times I juice them.
Even though I have
been with cancer
on and off for 5
years-ish, I am new
to MBC. I'm
wondering how
many are like me
and did not start off
as metaplastic, but
changed like my
cancer did. My Dr.
at MD A tried
Carbo/gemcitabine,
then eribulin, then
navelbine, then in
August 2013, I
started a trial of
avastin,temsirolimu
s, & doxil. I had
several months of
good response with
minimal side
effects, and a few
weeks ago there
was disease
progression, so I'm
off of it. Looking for
the next trial
because I'm not
going any where!
Feel free to ask me
about anything I
wasn't clear on.
Glad to share. 3 6 months - 1 year
04/14 43
6.5 before
chemo 3.4
after 3 0/5 Squamous Cell No Yes Taxotere, FEC
4 x FEC every 3
weeks
2 x taxotere every 3
weeks (was due to
have 4 but tumour
stopped responding
and started to grow
so chemo stopped
so I could have
surgery). Before surgery Mastectomy Yes 25
Surgeon
appointment in 6
months No No
Tumour responded
really well to FEC
chemo shrinking
from 6.5 cm to
under 2 cm in 4
doses. Once I
started taxotere the
tumour grew to 3.5
cm in 5 weeks.
Not
sure