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Meeting the needs of children and families
1. By: Mary Grace Abuan
ECEP233-064
Lisa McCaie
Tuesday April 2, 2013
2. A child who is diagnosed with epilepsy
Her mom is pregnant
After Zenna’s mom was told that her
daughter has epilepsy, she cried,and her
doctor told her to take bed rest due to her
pregnancy and is at risk of giving birth to her
unborn child prematurely.
3. MOM:
Resources to help Zenna’s mom about
epilepsy and what she can do to help her
child.
Support from people around her (extended
families)
Zenna:
Attention for her needs
Not to feel unwanted or left out by people
around her
A close watch on her or alertness just in case
of a seizure(s) were to occur.
4. Epilepsy has been around from as far as 2000
BC
It has been called as a sacred disease because
of the belief that people who are suffering
from epilepsy are being “seized” by gods
People from back in the ancient times thought
it could be treated with diets and medications
or drugs.
It also has been mention in the holy bible
According to the ancient Ayurvedic medical
system of India, they describe Epilepsy as
physical disorder.
5. According to this website,
http://www.epilepsy.com/what-is-
epilepsy Epilepsy is, a
neurological condition, which
affects the nervous system.
Epilepsy is also known as a
seizure disorder. It is usually
diagnosed after a person has had
at least two seizures that were
not caused by some known
medical condition like alcohol
withdrawal, extremely low blood
sugar, heart problems or some
other medical condition.
6. Anxiety,
Weakness
Staring
Purposeless or Repetitive Movements
Loss of Consciousness
Contraction, or Jerking, of Body Muscles
* Depending on the type of seizure a
child, person have experience the symptoms
may vary.
8. There are three types of Epilepsy:
1. Idiopathic Epilepsy: There isn’t really a cause
compare to the other types. But it may have
something to do in the cellular level. This type runs
in family, in other words it has relation into
genetics. However this seizure can be outgrown.
2. Symptomatic epilepsy: between 25-45% of epilepsy
are most likely symptomatic. Unlike Idiopathic,
symptomatic is cause by structural abnormalities,
damage in the brain and underlying diseases such as
stroke or injury/trauma.
3. Cryptogenic epilepsy: The cause of cryptogenic is
hidden. It is not obvious to see. Thought of the
cause is brain lesion.
9. According to the About Kids Health website there are
about 10 types of seizures.
1. Absence Seizures: They may be unresponsive for a
short amount of and it can occur many time
throughout the day. There is typical or atypical. In
the typical absence seizures the child her eyes will
roll up. She/he will not response when someone is
talking to her or him. The seizure last about 10
seconds. In Atypical absence seizure it is harder to
tell, the child may just stare for a long time. It last
about 5-10 seconds. The child mostly likely to
become confused after a seizure has occurred.
10. 2. Tonic, Clonic, and Tonic-Clonic Seizures: This type of
seizure is recognized dating back in 700 BC in the
Egyptian hieroglyphic. Tonic seizure is when the
muscles starts to stiffen and become thickened or
shortened. Clonic seizures the muscle starts to twitch
or starts to have spasm. It move involuntarily. Tonic-
clonic seizures is a mixture of the tonic and clonic
which are involuntarily muscle movement and the
stiffening and contracting of muscles.
3. Myoclonic Seizures: It is a quick, short, shock-like
contraction in his/her muscle. It often occur within the
first year.
4. Atonic Seizures: This type of seizure occur in all ages
but more often in children. this type of seizure is when
the muscle loses its stability. the child may become
wobbly and weak therefore making the child fall on
the floor.
11. 5. Simple partial: According to the About Kids Health
website, depending on which are in the brain is
affected, Simple partial seizure are in many;
motor seizures- change in muscle activity (such as
jerking or twitching)
sensory seizures, involving a change in sensation
(such as tingling, numbness, or prickling in a body
part, or seeing or hearing things that are not there)
autonomic seizures, involving a change in the
autonomic functions of the body (the child may
blush, sweat, or feel nausea or a “rising” sensation in
her stomach)
psychic seizures, involving a change in
thinking, feeling or experience (such as déjà vu)
12. 6. Complex Partial Seizures: Complex partial
seizures affects a part of the brain then starts to
start affect the other parts. Depending on what
part of the brain is affected, the symptoms may
vary. But complex partial seizures the child is will
seem like he or she is aware of his or her
surrounding but may not actually know what is
happening.
7. Status Epilepticus: Status epilepticus is when a
seizure occurs for a long period of time or one
seizure after the other leaving no time for one to
recover from the previous seizure. In the course
of time, this type of seizure can cause brain
damage. It can also affect the organ functions
and unfortunately death.
13. 8. Neonatal Seizures: This type of seizure is a
seizure that occurs in babies about 28 days old or
less. Babies who have this type of seizure may not
exactly have Epilepsy when they grown however
they have a greater chance of developing
epilepsy.
9. Provoked Seizures: This type of seizure may
likely be experience because of a head injury,
infections, high fever, lost of oxygen in the brain.
It most likely will not happen again.
10. Febrile Seizures: Common in child of age range
from 3 month to 5 years of age. Just like provoke
seizures, this type of seizure occurs when a child
has a high fever. It then disappear by itself.
14. EEG TEST
When diagnosing a seizure or
Epilepsy, because seizure are
less like to occur when doctor
are present, the information
given to the doctor must be
accurate in order to define
they type of Epilepsy and or
seizure so that appropriate
medication and treatment can CT scan
be given to child or person.
The doctor may ask for any
medical history of the child, or
person, then he will have to
some blood tests, EEG tests,
and brain imaging tests such as
CT and MRI scans. This may be
repeated for better diagnosis.
15. Who to go to?
•When someone has an
episode, they should go to the
family doctor for testing. A
series of different testing will
be taken to see if there are
any abnormalities in the brain
and then the doctor may refer
the family to a specialist for
example a neurologist. A
neurologist specializes in
disorder of the brain, in which
epilepsy is included.
16. There are many ways of treatment
for Epilepsy, one is by medication.
In most cases, this would be the
first choice for most people but if
the medication or drug isn’t as
effective for the patient then the
doctor will provide more
medication for the child or whom
ever has. Medication usually help
the patient. However, if medication
helping the child or patient then
they may need to do other
treatment such as, surgery or
ketogenic diet or bagus nerve
stimulation. Discuss with the child,
the doctor to help decide which
treatment would be best.
17. Finding out that your child is diagnosed with
epilepsy can devastating, many will feel sad,
angry, worry and leaving you with questions
as to why? why my child? what did I do
wrong? Should I tell my child, is she/he old
enough to know?
When disclosing to a child, the information
you wish to share will depend on the age of
your child, is she/he old enough to
understand, and personality.
18. In daycare setting, a child with epilepsy will
need to be watch very carefully because he or
she might have an episode or series of episode
while they are in the daycare.
Having the child with epilepsy climb or to go on
the slide may not be a good idea because they
may have a seizure while climbing and therefore
will fall.
Some parents may worry about their child being
in danger. For example playing with other
children, catching ball, but a child shouldn’t not
forbidden to play and be active just because
they have epilepsy but they will need very good
supervision, alertness.
19. A child with epilepsy may have difficulty in school setting she or
he may have learning disabilities because of seizures that she had
or it could be an affect of his or her medication.
They may have difficulty in academic performance like math or
reading. He or she may have language delay. He or she may not
progress as fast as other children.
20. Play
I would use the simplifying strategy from the ConnectABILITY-
Adaptive Play Materials Workshop. It would help the child so that he
or she may not be overwhelmed with the materials that is being use
for example using 4 piece puzzle rather than 9 pieces. And when the
child is progressed on that level then I could try a higher level
21. Reading
Strategy I could use is labeling. I would label
object around the classroom and say them
out loud. I could also invite other children to
join and say it. It would help if I its done
repeatedly.
22. Learning new skills
Strategy I would use is
prompting and fading. It
would allow the child to
slowly learn a new skill.
it will also allow me to
learn about where the
child level is at.
23. Day to Day activities
A strategy I could do for the child with epilepsy in my classroom
is asking parents and communicating with parents what works and
what doesn’t work when they are at home. Because parents are
the ones who know their child really well, their capabilities,
strength , weakness. I could tell them strategies I use in the
classroom and try it in their homes
24. Routines
providing extra time, accommodation to
activities that is developmentally
appropriate base on the ages and stages,
follow through. Creating buddy system,
encourage other children to include one
another
25. Here are some resources or agencies where
families can go to:
Epilepsy Canada
Epilepsy Toronto
Sick Kids Epilepsy Classroom
26. They are a non profit 2255B Queen St E, Suite 336 Tel:
organization. They help people 1-877-734-0873
who are affected by epilepsy to Toronto, ON, M4E 1G3 Fax: 905-
mission is to embellish the 513-9461
quality of by Charity Registration Number :
promoting, supporting 13117 6042 RR0001
research, raising awareness to email: epilepsy@epilepsy.ca
help better understand and
accept epilepsy.
They depend on the help of the
people and corporate support to
continue research and education
programs.
http://www.epilepsy.ca/en-CA/Home.html
27. They are a non-profit agency. They help those
people who are living with epilepsy through
support programs and services. They are free of
charge. They also do events giving people
information about epilepsy.
They provide services such as counselling,
employment support, advocacy and education to
help people with epilepsy live well.
28. They help adults, and children. they have individual and
couple/family counselling. they have a number of support
group.
The following are some of the support groups;
Parents of Young Adults and Teens Support Group:
Generally held the last Wednesday of every month.
7:00 to 9:00 p.m.
Epilepsy Toronto - 468 Queen St. East (just west of Sumach St.), Suite 210.
Support Group for Parents with Epilepsy:
Once a month on Thursday evenings.
7:00- 8:30 p.m.
Epilepsy Toronto - 468 Queen St. East (just west of Sumach St.), Suite 210
Epilepsy Surgery Support Network:
468 Queen St. East
Suite 210
Toronto
29. Epilepsy Toronto
468 Queen St. East
Suite 210
Toronto, ON
M5A 1T7
Phone: (416) 964-9095
Fax: (416) 964-2492
E-mail: infoepilepsytoronto.org
Website: www.epilepsytoronto.org
http://www.epilepsytoronto.org/index.php
30. Sick Kids Epilepsy Classroom
helps with the learning, nee of
children with severe or
difficult epilepsy. This means
that a child who suffers seizure
often even with medication.
There are 23 section
classroom. They work with the
555 University Avenue TDSB for programming.
Toronto, Ontario Referral form must be filled
Canada out by parent, teacher,
M5G 1X8 caregiver or expert(doctor) for
the child to be enrolled. The
child must be from grade 1-8
http://www.sickkids.ca/ProgramsandServices/Ep
ilepsy-Classroom/Classroom-details/index.html
31. "Epilepsy." Sickkids - hospital. N.p., n.d. Web. 25 Mar. 2013.
<http://www.sickkids.ca/HealthInFocus/Epilepsy/index.htm
l>
"Home - Epilepsy Canada." Home - Epilepsy Canada. N.p.,
n.d. Web. 25 Mar. 2013. <http://www.epilepsy.ca/en-
CA/Home.html>.
"All About Epilepsy & Seizures | epilepsy.com." Epilepsy and
seizure information for patients and health professionals |
epilepsy.com. N.p., n.d. Web. 26 Mar. 2013.
http://www.epilepsy.com/epilepsy/main_epilepsy
Category. "Symptoms of Epilepsy - What are Symptoms of
Epilepsy." Epilepsy - Seizures - What Is Epilepsy - Seizure
Disorders. N.p., n.d. Web. 26 Mar. 2013.
http://epilepsy.about.com/od/symptomsandcauses/a/symp
toms.htm
"Epilepsy Toronto | Epilepsy Ontario."Epilepsy
Ontario | Serving Ontario Since 1956. N.p., n.d.
Web. 26 Mar. 2013.
http://epilepsyontario.org/epilepsy-toronto/
32. "Seizures in Children: Diagnosis, Causes, Signs,
Treatments." WebMD - Better information. Better
health.. N.p., n.d. Web. 29 Mar. 2013.
http://www.webmd.com/epilepsy/guide/epilepsy-in-
children
McAllister, Mark. "EPILEPSY TORONTO » Home
Page." EPILEPSY TORONTO » Home Page. N.p., n.d. Web.
29 Mar. 2013. <http://www.epilepsytoronto.org/index.php
Appleton, Richard, and Anthony G. Marson. Epilepsy.
3rd ed. Oxford: Oxford University Press, 2008. Print.
Bjorklund, Ruth. Epilepsy. New York: Marshall
Cavendish Benchmark, 2007. Print.
Class note, connectABILITY-prompting and fading
Class note, connectABILITY– adaptive play materials
Workshop
Class Notes, Adaptive Learning Environments.