Lightning talk at the 2012 Indivo X User's Conference: using Indivo to back Livestrong's cancer management apps can give patients true control over their health data. By Joris van Dam, Novartis Institutes for BioMedical Research

1. Empowering patients
to manage their own health data
Joris van Dam
Novartis Institutes for BioMedical Research
1

2. Imagine a world...
• Where I can access all information about my personal health, no
matter who happens to have measured it – whether it comes from
my family doctor, the clinician, the lab, ...
• Where I can share that information over and over and over again,
with my family doctor, my clinician, the lab technician, my nurse –
so I can spare myself the wait for untimely faxes to come through,
the effort of providing the same information over and over and over
again, the discomfort of having to run painful tests multiple times.
• Where I can actually use that information to track my own
progression, to manage my own health.
• Where I can add to that information with my personal
experiences, how I feel – so that next time the doctor asks me how
I have been, I can actually give a pretty accurate answer.
...where I am in full control of my personal Health Data
2 | LIVESTRONG – SMART – DFCI – NIBR pilot |Indivo X Annual Users’ Conference | June 2012 | Business Use Only

3. But that is not the world we live in today:
3 | LIVESTRONG – SMART – DFCI – NIBR pilot |Indivo X Annual Users’ Conference | June 2012 | Business Use Only

4. Such world also holds tremendous promise for
facilitating research and advancing science
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4 | LIVESTRONG – SMART – DFCI – NIBR pilot |Indivo X Annual Users’ Conference | June 2012 | Business Use Only

5. The LIVESTRONG – SMART – DFCI – NIBR pilot
Doing well by doing good.
5 | LIVESTRONG – SMART – DFCI – NIBR pilot |Indivo X Annual Users’ Conference | June 2012 | Business Use Only