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OBJECTIVES
• Gain an understanding of what Circles of
Support are, and the impact they have on
people with disabilities
• Learn about how Northampton community
members can collaborate to provide inclusive
settings
• Create action items that can begin to build
conversation and transformation in the
Northampton community
My Circle of
Support
EXERCISE
Imagine your Circle
disappearing.
How do you think it
might impact you?
EXERCISE
Circle of
Support
Me
1
4
3
2
1. Circle of intimacy
2. Circle of friendship
3. Circle of participation
4. Circle of exchange See next page for descriptions of each area
trainer
counselor
Dr
BFF
spouse
Friend
coworker
Friend
Friend
Friend
Friend
coworker
coworker
coworker
neighbor
Study group
Workout
buddies
Book club
cousins
Aunt &
Uncle
sisters
Teammates
cousins
Faith community
Circle of
Support
Me
1
4
3
2
1. Circle of intimacy
2. Circle of friendship
3. Circle of participation
4. Circle of exchange See next page for descriptions of each area
Teachers
Parents
siblings
Staff
Social
Worker
Case
Manager
You and I People with Disabilities
Earliest Circles: created by our caregivers;
playdates, lessons, parties
Earliest Decisionmakers: establish themselves
within their Circles as leaders or followers
Middle School: independent thinking manifests,
in the context of huge social demands and
expectations of belonging and conforming to
the group. Social anxieties, pressures and
other challenges become complex. Anyone
who is different is not celebrated; they are
isolated. Circles begin to grow for some, shrink
for others.
Adulthood: maturity (through age) brings
appreciation for differences or the holding on of
pre-conceived notions. We have our own
children, and begin to think about how we will
model those beliefs we hope our children will
embrace. We have established our own Circles
that represent who we choose to spend our
lives with.
People without disabilities
Earliest Circles: created by our caregivers; playdates,
lessons, parties
Earliest Decisionmakers: establish themselves within
their Circles as leaders or followers. Children with
disabilities and their peers are just beginning to see
differences, but they don’t assign stigmas or reduced
value.
Middle School: independent thinking manifests, in the
context of huge social demands and expectations of
belonging and conforming to the group. Social
anxieties, pressures and other challenges become
complex. Anyone who is different is not celebrated; they
are isolated. Circles begin to grow for some, shrink for
others.
Adulthood: people with disabilities have grown in
isolation, are lonely, dependent on caregivers who are
paid to be in their lives. Family members become
decision makers, shifting those relationships. They may
be known in their communities, but they are not
included.
People with disabilities
“I don’t want to bother
people”
“I’m embarassed to ask for
help”
“I should be able to do this
alone”
“What will they think of me?”
“If I ask them to help, they
might not want to”
The internal struggles for families:
Addressing the barriers to building
Circles of Support
“We want to help, but don’t
know how”
“We might sound politically
incorrect”
“We can’t afford to take this
on”
“We don’t have the skills or
knowledge”
“I don’t know who to ask”
The external struggles for
communities:
What are the things in common to people (internal) and the community (external)?
“They’re so sweet, but they
don’t have anything of value
to contribute. They just
need care.”
“They must have family and
friends who love them.”
”Systems are doing a good
job of taking care of their
needs and quality of life.”
Societal presumptions:
“ THIS IS
GOING
TO TAKE
SOME
WORK
From
“Support” to
“Relationship”
• Something is wrong that needs to be fixed
• Only professionals can help; we should not “interfere”
• They need to be taken care of at all times
• We should feel good about ourselves when we “help” them
• Professionals are the ones who should explain who the
person is
How do we learn
about a person?
What do we ask?
When we first meet someone new:
The first things we may see or hear:
• The disability and/or the diagnosis
• Description of their anticipated behaviors
• Their limitations – what they can’t do
• No introduction at all as they stand there
• There is mutual benefit in building friendships
• Authentic affection and love are not the same
as caregiving
• Building understanding of anyone as an
individual takes time
• Ignoring labels allows us to see traits as gifts
A STORY ABOUT DIANE
A STORY ABOUT DIANE
What happened first:
Diane had a person-centered
plan with her caregivers, and
the team decided that she
needed to build an
intentional circle to improve
her quality of life and reduce
isolation.
What happened next:
School administrators called
together a group of her peers,
who placed themselves into
her shoes and became aware
of her isolation. They
brainstormed ways to provide
support for her to participate
in their lives.
And then…
Diane became an included
part of her high school
after her peers and
teachers realized Diane’s
gifts, learning how she can
contribute her gifts, and
found solutions to barriers
Diane faced.
The Camp Story
What happened first:
A counselor trained in
Circles of Support
framed a conversation
about Norman that was
positive and age-
appropriate.
What happened next:
The campers brainstormed
lots of ways they could do
things together with
Norman. They came up with
ways to help plan his day
and support his needs.
And then…
Norman’s circle grew
authentically over time, as
his peers spent more time
getting to know him in their
own environment and on
their own terms.
What were the elements of success for Norman’s peers? What are
the benefits to the community?
The Camp Story
What happened first:
Andy’s support staff
stepped back & allowed
the natural relationships
to develop in the music
store he frequented.
What happened next:
The store manager got to
know Andy & realized
his skills in organizing
as well as his passion
for music. He gave Andy
a part-time job.
And then…
Andy began hosting
Trivia Night events at
the music store for the
community.
What were the elements of success for Andy? What are the benefits
to the community?
• Problem-solving approaches don’t solve problems until a shift
in thinking occurs among the stakeholders.
• Beginning a conversation with “Identifying and defining
problems” sets up a negative context and carries that context
throughout the conversation. It builds a set of expectations
that there needs to be someone at fault; delving into the past
and finding that someone becomes the focus of the
conversation, creates division, and builds barriers to creative
thinking.
• What brings a fresh future into being is citizens who
are willing to self organize. An alternative future
needs the investment of citizens…who are willing to
pay the economic and social price that creating
something really new requires. *
• It begins with NOW...but let’s take it slow...
Taking
Stock
EXERCISE
BREAK
LET’S CREATE
POSSIBILITY
TAKING
ACTION
What can I do right now,
in my own space?
•In the next 4 days
•In the next 4 weeks
•Who will be my accountability
partner?
TAKING
ACTION
THANKYOU
It is up to every one of us to steward
the humanity of those who are
considered less. Failure to do so is a
failure of humanity in general.
Circles of Support are a natural
element of our existence. Without
them, we cannot survive; as a race, as
a community, or as individuals.
Hold the space for the voices left
unheard.
www.personcenteredplanning.com
Cheryl Ryan Chan
* excerpts from the book
Community: The Structure of Belonging, by Peter Block
Berrett-Koehler, 2008
Slide designs & images by www.slidescarnival.com
(Palamon and Miranda themes)

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Circles of Support workshop presented in Northampton, MA, April 2018

  • 1.
  • 2. OBJECTIVES • Gain an understanding of what Circles of Support are, and the impact they have on people with disabilities • Learn about how Northampton community members can collaborate to provide inclusive settings • Create action items that can begin to build conversation and transformation in the Northampton community
  • 4. Imagine your Circle disappearing. How do you think it might impact you? EXERCISE
  • 5. Circle of Support Me 1 4 3 2 1. Circle of intimacy 2. Circle of friendship 3. Circle of participation 4. Circle of exchange See next page for descriptions of each area trainer counselor Dr BFF spouse Friend coworker Friend Friend Friend Friend coworker coworker coworker neighbor Study group Workout buddies Book club cousins Aunt & Uncle sisters Teammates cousins Faith community Circle of Support Me 1 4 3 2 1. Circle of intimacy 2. Circle of friendship 3. Circle of participation 4. Circle of exchange See next page for descriptions of each area Teachers Parents siblings Staff Social Worker Case Manager You and I People with Disabilities
  • 6. Earliest Circles: created by our caregivers; playdates, lessons, parties Earliest Decisionmakers: establish themselves within their Circles as leaders or followers Middle School: independent thinking manifests, in the context of huge social demands and expectations of belonging and conforming to the group. Social anxieties, pressures and other challenges become complex. Anyone who is different is not celebrated; they are isolated. Circles begin to grow for some, shrink for others. Adulthood: maturity (through age) brings appreciation for differences or the holding on of pre-conceived notions. We have our own children, and begin to think about how we will model those beliefs we hope our children will embrace. We have established our own Circles that represent who we choose to spend our lives with. People without disabilities
  • 7. Earliest Circles: created by our caregivers; playdates, lessons, parties Earliest Decisionmakers: establish themselves within their Circles as leaders or followers. Children with disabilities and their peers are just beginning to see differences, but they don’t assign stigmas or reduced value. Middle School: independent thinking manifests, in the context of huge social demands and expectations of belonging and conforming to the group. Social anxieties, pressures and other challenges become complex. Anyone who is different is not celebrated; they are isolated. Circles begin to grow for some, shrink for others. Adulthood: people with disabilities have grown in isolation, are lonely, dependent on caregivers who are paid to be in their lives. Family members become decision makers, shifting those relationships. They may be known in their communities, but they are not included. People with disabilities
  • 8. “I don’t want to bother people” “I’m embarassed to ask for help” “I should be able to do this alone” “What will they think of me?” “If I ask them to help, they might not want to” The internal struggles for families: Addressing the barriers to building Circles of Support “We want to help, but don’t know how” “We might sound politically incorrect” “We can’t afford to take this on” “We don’t have the skills or knowledge” “I don’t know who to ask” The external struggles for communities: What are the things in common to people (internal) and the community (external)? “They’re so sweet, but they don’t have anything of value to contribute. They just need care.” “They must have family and friends who love them.” ”Systems are doing a good job of taking care of their needs and quality of life.” Societal presumptions:
  • 9. “ THIS IS GOING TO TAKE SOME WORK
  • 10.
  • 12. • Something is wrong that needs to be fixed • Only professionals can help; we should not “interfere” • They need to be taken care of at all times • We should feel good about ourselves when we “help” them • Professionals are the ones who should explain who the person is
  • 13. How do we learn about a person? What do we ask? When we first meet someone new:
  • 14. The first things we may see or hear: • The disability and/or the diagnosis • Description of their anticipated behaviors • Their limitations – what they can’t do • No introduction at all as they stand there
  • 15. • There is mutual benefit in building friendships • Authentic affection and love are not the same as caregiving • Building understanding of anyone as an individual takes time • Ignoring labels allows us to see traits as gifts
  • 16. A STORY ABOUT DIANE
  • 17. A STORY ABOUT DIANE What happened first: Diane had a person-centered plan with her caregivers, and the team decided that she needed to build an intentional circle to improve her quality of life and reduce isolation. What happened next: School administrators called together a group of her peers, who placed themselves into her shoes and became aware of her isolation. They brainstormed ways to provide support for her to participate in their lives. And then… Diane became an included part of her high school after her peers and teachers realized Diane’s gifts, learning how she can contribute her gifts, and found solutions to barriers Diane faced.
  • 19. What happened first: A counselor trained in Circles of Support framed a conversation about Norman that was positive and age- appropriate. What happened next: The campers brainstormed lots of ways they could do things together with Norman. They came up with ways to help plan his day and support his needs. And then… Norman’s circle grew authentically over time, as his peers spent more time getting to know him in their own environment and on their own terms. What were the elements of success for Norman’s peers? What are the benefits to the community? The Camp Story
  • 20.
  • 21. What happened first: Andy’s support staff stepped back & allowed the natural relationships to develop in the music store he frequented. What happened next: The store manager got to know Andy & realized his skills in organizing as well as his passion for music. He gave Andy a part-time job. And then… Andy began hosting Trivia Night events at the music store for the community. What were the elements of success for Andy? What are the benefits to the community?
  • 22.
  • 23. • Problem-solving approaches don’t solve problems until a shift in thinking occurs among the stakeholders. • Beginning a conversation with “Identifying and defining problems” sets up a negative context and carries that context throughout the conversation. It builds a set of expectations that there needs to be someone at fault; delving into the past and finding that someone becomes the focus of the conversation, creates division, and builds barriers to creative thinking.
  • 24. • What brings a fresh future into being is citizens who are willing to self organize. An alternative future needs the investment of citizens…who are willing to pay the economic and social price that creating something really new requires. * • It begins with NOW...but let’s take it slow...
  • 26. BREAK
  • 29. What can I do right now, in my own space? •In the next 4 days •In the next 4 weeks •Who will be my accountability partner? TAKING ACTION
  • 30. THANKYOU It is up to every one of us to steward the humanity of those who are considered less. Failure to do so is a failure of humanity in general. Circles of Support are a natural element of our existence. Without them, we cannot survive; as a race, as a community, or as individuals. Hold the space for the voices left unheard. www.personcenteredplanning.com Cheryl Ryan Chan
  • 31. * excerpts from the book Community: The Structure of Belonging, by Peter Block Berrett-Koehler, 2008 Slide designs & images by www.slidescarnival.com (Palamon and Miranda themes)

Notes de l'éditeur

  1. Peter Block on YouTube, on Building community
  2. Inclusion.com page 12
  3. Inclusion.com page 12
  4. Peter Block on Shifting the narrative
  5. Peter block on Building community on youtube