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Talking Taboos:
GPs and self-harm amongst young people
November 2012




    This work has been conducted in accordance with ISO 20252, the international standard for market and social research   1
Introduction

The statistics around young people who self-harm are truly shocking. That so many of
the next generation feel compelled to hurt themselves in some way, yet it is spoken of
so infrequently highlights just how taboo this issue has become.
As part of the Cello Group, mruk and RS Consulting joined the Talking Taboos initiative
to help Young Minds, the leading youth mental health charity, by conducting ground-
breaking research into self-harm. Our focus was on the GP community, often at the
front-line of helping these vulnerable young people.
Through this research we interviewed 200 GPs online, representative by UK nation,
length of time in practice and gender.
We hope this research stimulates debate across the public and voluntary sectors and
enables Young Minds to drive change that will help those who need it most.



                                                                                          2
About young people and self-harm

          One in twelve children and young people are said to self-harm1 and over the last
    THE   ten years inpatient admissions for young people who self-harm have increased by
  STATS   68%. In the last year alone these hospital admissions for under 25s increased by
          10%. And, among females under 25, there has been a 77% increase in the last ten
          years.


          The true figure of how many children and young people are self-harming is likely to
   THE    be far higher. Mental health problems don’t just affect particular groups; they span
CAUSES    all races, cultures and classes, and self-harm is no exception. However, there are
          groups at particular risk including lesbian and gay, transgender and bisexual young
          people, looked-after children, and young people in the criminal justice system.
          The reasons vary greatly, and are specific to the individual, but a young person may
          self-harm to help them cope with negative feelings, to feel more in control or to
          punish themselves. It can be a way of relieving overwhelming feelings that build up
          inside, when they feel isolated, angry, guilty or desperate.

          1 Mental Health Foundation (2006). Truth hurts: report of the National Inquiry into self-harm among young people. London: Mental Health Foundation

                                                                                                                                                               3
Defining self-harm



                  Self-harm:
                definitions and
                 perceptions
GPs spontaneously associate self-harm with a range of factors from
the psychological to the social, and from everyday to exceptional
circumstances
                    What do you associate with self-harm among young people?

                     “Low self-esteem, depression, history of                “Attention-seeking, poor communication with adults.
                        physical/sexual abuse, learning                     Difficulty expressing oneself, impulsive behaviour, pent-
                        disability, personality disorders.”                 up aggression, frustration, immaturity, female, passive-
                                                                               aggressive type, secretive, solitary, manipulative”

   “Self-punishment, disturbed youth, feeling
  helpless as a health professional in trying to
                                                                                               “Wanting to relieve tension, wanting to
 address it. Recurrent accident and emergency
                                                                                                have control, intention not as suicidal
   admission. Negative feelings towards self-
                                                                                               intent, cutting arms, pulling hair, eating
             harmers by colleagues.”
                                                                                                               disorders.”



     “Depression, schizophrenia,                                                                               “Poverty, poor social
        personality disorder,                                                                                support – abandoned by
   dysfunctional family, domestic /                                                                                 parents”
           sexual abuse’.”
                                      “Depression, despair, unemployment, under-achievement, stress,
                                      relationship difficulties, problems with sexuality, gender identity,
                                              bullying, parental problems, teenage pregnancy.


                                                                Base: 201                                                                   5
When prompted with a list of behaviours, nearly all GPs consider
cutting oneself and burning oneself to be symptoms of self-harm.
However they also identified a wide range of other behaviours as
falling under this category.

                     Cutting oneself                                     98%
                    Burning oneself                                     95%
                         Overdosing                                 90%
                     Hitting oneself                               88%
        Swallowing harmful objects                                86%
         Scratching / picking at skin                             84%
Hitting objects (e.g.punching a wall)                       74%
                         Pulling hair                       73%
                         Drug abuse                       68%
                    Eating disorders                      66%
                      Alcohol abuse                   63%
             Risky sexual behaviour                 55%
  Staying in an abusive relationship          50%

                                        Base: 201
                                                                               6
The definition we used in this research excluded certain types of
behaviour, such as eating disorders, and most GPs agreed that our
definition was quite similar to their own


            The definition of self-harm we’ll use for this survey is ‘the deliberate,
    self-inflicted destruction of body tissue through actions such as cutting, poisoning,
      burning, stabbing, but not through body piercing, tattoos or eating disorders’.




                               Similarity to GPs’ own definitions

                Very similar       Quite similar          Quite different   Very different


                 36%                                             57%                         8%




                                              Base: 201

                                                                                                  7
Self-harm is perceived as rare but a major cause for concern. In these
respects, it is positioned close to eating disorders and mental health
conditions, also reflecting GP associations with self-harm.
                      100%
                          Attempted Eating           Mental      Drug
                      90%   suicide disorder   Self- health      use          Having risky /
                                               harm condition                 unprotected sex
                      80%
                                                                                                     Binge
                                                                          Bullying                   drinking
                      70%
                                                                                     Smoking
   Level of concern




                      60%
                                         Member of
                                          a gang
                      50%
                                                                                                     Accessed sexually
                      40%                                                                             explicit material
                                                                                                           online
                      30%

                      20%

                      10%

                       0%
                             0%     5%         10%      15%         20%          25%           30%         35%            40%

                                                                Prevalence
                                                                                                                                8
Although seen as relatively rare, GPs believe the number of young
people who self-harm has increased over the last 10 years. They
now see on average 8-9 young people who self-harm a year

              Average number of young people                         Change in number of young patients
  8.49        GPs have seen in the last year
                                                                       self-harming over last ten years
              who self-harm

                                                                     Increased           Stayed the same        Decreased
              Average number of young people
 21.49        GPs have seen in last three years
              who self-harm
                                                                                      47%
              Average number of young people                                                        53%
              GPs have seen in the last year
  7.71        who they suspect self-harm but
              could not or did not confirm

         “Perhaps it is more that young people are feeling able to come forward due to
           increased awareness, and also the doctor is more aware of its existence.”

          “I think there are ever increasing pressures on young people, both from peers and society as a whole, and
              self-harm is used as a coping mechanism, where more beneficial forms of support have decreased’.”

                                                         Base: 201                                                          9
Self-harm is overwhelmingly considered to be a coping mechanism
for young people. However, two-thirds of GPs also see it as a way of
manipulating others.
                                        Proportion of GPs agreeing that …

Self-harm is a way of coping with difficult feelings/ situations                                                91%
                       Self-harm is a form of self-punishment                                             75%
          They are struggling with the process of growing up                                            72%
                    Self-harm is a way of manipulating others                                       67%
          Young people who self-harm are attention seeking                                        61%
                                     Self–harm is an addiction                               56%
                     They are likely to try and commit suicide                              53%
     Something really bad must have happened to cause this                             48%
                               Self-harm is encouraged online                         44%
                               Self-harm is copycat behaviour                   39%
                   They must have a mental health condition               32%
                                      Self-harm is fashionable            34%
    Self-harm is just a phase some young people go through                32%
 Young people who self-harm can easily stop if they want to         19%
               Self-harm does not have lasting consequences        16%
                                                                          Base: 201
                                                                                                                      10
Defining self-harm



                Helping young
                 people who
                  self-harm


                                11
On average, a quarter of those who self-harm are referred to GPs
from A&E and a further quarter present directly to their GP.
Concerned relatives and friends also play a significant role.

                        Referral source of young patients who self-harm

   Been referred from A&E following an admission or
                                                                              26%
               presentation at hospital


                Presented their self-harming directly                         26%



      Been brought by a concerned parent / relation                 19%


   Presented for another medical issue & you noticed
                                                                  18%
      signs of self-harm and raised it with patient

    Been brought by a concerned friend (other young
                                                             8%
                        person)


                                       Other referral   3%

                                                                  Base: 197
                                                                                    12
85% of GPs, however, have not had any specific training on dealing
with self-harm. Of those who had received some kind of training, It
was typically in the early hospital-based days of their career
                                         % of GPs having received
                                          training on self-harm


               “A workshop during my                    Training                    “Online modules,
                SHO psychiatry job.”                                                  e-learning.”
                                                        No training

 “During my psychiatric rotation had                                  “GP Registrar training, mental
 to deal with such cases, got formal                                   health course. Both essential
    teaching as well at the time.”                                          and very helpful.”



          “I am the mental health lead                                   “A&E
           and went to a conference.”                                 Induction.”




           GPs mentioned a variety of training experiences, but many were one-offs.
                Several had simply happened to have specialised in this field.
                                                                                                       13
Unsurprisingly, all GPs identify challenges in helping young people
who self-harm. Short consultation times, communication difficulties
and a lack of referral options are the main issues

                                                          Major challenge     Slight challenge     Not a challenge

                  Consultation time not long enough                     67%                             28%         4%


                              They don’t want to talk             50%                            44%                6%


                           Nowhere to refer them to              43%                         45%                12%


                   No suitable tools to assess patient     24%                    52%                        24%


                              No guidelines available      20%                   57%                          23%

 I don’t know what language to use to talk about self-
                                                         11%            48%                            41%
 harm in a way which is relevant to the young person

                             I don’t understand them     11%           41%                         48%

                                                                                 Base: 197


                                                                                                                         14
GPs believe most young people want to talk about self-harm,
but don’t know who to talk to. For their part, GPs are worried about
saying the wrong thing or opening a can of worms
                                       Proportion of GPs agreeing that …

      Schools, the NHS and families need to talk about self-harm so that
       young people feel able to talk to the appropriate people about it
                                                                                                         84%

              Young people don't know who to turn to about self-harm                                    82%

                             Young people want to talk about self-harm                                  80%

             I am frustrated by young people who repeatedly self-harm                             53%

                          Exploring self-harm is opening a can of worms                      45%

      Self-harm is getting worse because young people feel stigmatised                      43%
      I'd like to feel able to talk to a young person about self-harm but I
                                 don't know how to
                                                                                          38%
          I don't know enough about self-harm to talk to a young person
                                         about it
                                                                                      33%

          I'm worried about saying the wrong thing and making it worse              27%
        Self-harm is diminishing because people are able to talk about it
                            more openly these days
                                                                                23%

                  Self-harm would increase if it was talked about openly      16%
                                                                                            Base: 201          15
This fear of saying the wrong thing reflects itself in the fact that
compared to many other issues affecting young people, GPs are less
comfortable talking about self-harm
                                 Proportion of GPs comfortable discussing …

                                   Smoking                                   96%                  “Lack of training,
                                                                                                    information,
                             Binge drinking                                  95%                    experience.”

                   Mental health condition                                   93%
                                                                                       “It can mean lots of things
                                   Bullying                              91%            and there’s a difficulty in
                                                                                           stating whether it is
                                  Drug use                               90%                acceptable or not.”

            Having risky / unprotected sex                              89%
                                                                                         “Often there is an
                            Eating disorder                            86%         expectation that I personally
                                                                                      have a straightforward
                                 Self-harm                             85%           solution. There are always
                                                                                     complex underlying issues
                 Having attempted suicide                                             and within a 10 minute
                                                                       83%
                                                                                    consultation it is difficult to
                                                                                     even begin to unravel the
 Accessing sexually explicit material online                     57%                         problems.”
                         Member of a gang                       53%
                                                    Base: 201
                                                                                                                       16
Discomfort in discussing self-harm is greater if the young person
does not raise the issue and it is incumbent upon the GP to do so in
response to others concerns raised
 Proportion of GPs agreeing that they would be comfortable talking about self-harm if …

                                                                                    “The young
                                                                                    person is not
  They came to you to talk about self-                                          choosing to come and
                                                               86%
       harm and what it meant                                                    may not be ready to
                                                                                   talk about it.”


                                                                       “It may be unrelated to the
 They told you they were self-harming                          84%    current issue. It may be a past
                                                                          event. It may open an
                                                                            emotional bottle.”

 Their friend/ family member told you
                                                         74%
     that they were self-harming
                                                                     “Raising the issue when
                                                                      they have come about
                                                                      something else is hard
 You noticed the physical signs of self-                             as it seems an invasion
   harm but they did not initiate the                    74%                of privacy.”
             conversation

                                             Base: 201
                                                                                                        17
The communication challenge is compounded by GPs lacking
appropriate specialist tools assess this group. During consultations,
GPs are most likely to use PHQ-9 or the baseline suicide risk
assessment

                               Use of screening tools and guidelines
                                     Always          Sometimes            Never

                                                                                        The PHQ-9 is a nine item scale
                     PHQ-9            38%                         51%             11%       from the Patient Health
                                                                                          Questionnaire to diagnose
                                                                                         depression and the baseline
                                                                                        screen attempts to determine
       Baseline suicide risk                                                                     risk of suicide.
                                 26%                33%                 41%
       assessment screen                                                                   Neither of these tools are
                                                                                            specifically designed for
                                                                                             dealing with self-harm
           NICE guidelines     13%            42%                       45%                 patients but reflect the
                                                                                           concern of GPs for young
                                                                                        people in this situation and an
Integrated care pathway for                                                              attempt to detect underlying
                                                                                              mental health issues.
 self-harm decision-making 5%        21%                          74%
           chart

                                                      Base: 197                                                           18
Referral to CAMHS is the most widely available option to GPs,
followed by referral to a counselling service

                                  Proportion of GPs with access to …

        Referral to Child and Adolescent Mental Health
                                                                                                        95%
                        Services (CAMHS)
              Referral to Adult Mental Health Services                                        67%

                           Referral to Crisis Care Team                                       67%

            Referral to an external counselling service                                 58%

 Referral to a counselling service within my GP surgery                    41%

                                       Referral to A&E                     42%

                                        Private referral             24%
                                                                                             Any
                                                                                         counselling
  Referral to other GP within surgery with expertise on                                 service = 72%
                                                                7%
                     this kind of issue
                                                 Other     1%

                                                                            Base: 201
                                                                                                              19
Although GPs are most likely to refer young people who self-harm
to CAMHS, only two-thirds find it useful. Counselling services are
generally perceived to be more useful.
                                         Most of the time            Sometimes           Never                             % Useful

   Referral to Child and Adolescent
                                                   41%                        58%               1%                                        63%
   Mental Health Services (CAMHS)
    Referral to a counselling service
                                               33%                       60%                  7%                                                73%
         within my GP surgery
 Referral to an external counselling
                                              29%                       65%                   6%                                            66%
               service
    Referral to Adult Mental Health
                                              31%                         68%                   2%                                            68%
                Services

        Referral to Crisis Care Team     16%                        80%                       5%                                              69%

 Referral to other GP within surgery
                                             22%                      73%                     6%                                        59%
 with expertise on this kind of issue

                     Referral to A&E    13%                      75%                       12%                                     51%


                     Private referral   7%                    76%                         17%                                                         83%


                                        Base: CAMHS 186; GP counselling 80; external counselling     Base: CAMHS 184; GP counselling 75; external counselling
                                        115; AMHS 132; CCT 134; Other GP 13; A&E 84; Private 46      109; AMHS 130; CCT 127; Other GP 12; A&E 74; Private 38
                                                                                                                                                                20
These concerns and challenges are reflected in GP views on what
would help them better support young people who self-harm.

                        How do you think self-harm in young people could be
                         more effectively identified and supported by GPs?

              “Routine questioning opportunistically.                              “By identifying depression and exploring
                    Effective onward referral.”                                   this routinely in patients with low mood .”


                                                                                              “Posters in surgeries, better
                                                                                             access to counselling services.”
    “Listen, develop a rapport, trust,
        confidence, partnership.”
                                                                                                   “More training and publicity.”

   “Develop a rapport with one
   GP and see the GP regularly.                                                                  “Closer liaison between
   Have a care plan. If they are                                                              schools/youth centres and GP
   worsening, they should have                                                                 surgeries. Make it easier for
   easy access to see their usual                                                             young children to contact the
             doctor.”                    “GPs who are passionate about this kind of             GP surgery e.g. via email.”
                                         thing need to have time (TIME) allocated so
                                         that they can offer drop-in sessions that are
                                           flexible and allow youngsters to react to
                                           spur-of-the-moment feelings/decisions.”

                                                                                                                                    21
Better knowledge about voluntary organisations able to help,
improved access to talking therapies and online CPD modules are
top of GP wish lists to help them support young people
                                          % agreeing it would be helpful …

Knowing which voluntary organisations/ charities young people
                                                                                                     79%
             who self-harm can be referred to

                              Better access to talking therapies                                  77%

   Online Continuing Professional Development (CPD) modules                                      74%

Knowing which voluntary organisations/ charities deal with self-
                                                                                               70%
    harm and provide online information about the issue

                                    Patient information leaflets                           65%

                                  Improved guidelines available                          60%

                                     In-person training courses               47%

                                             None of the above     1%

                                                          Other    1%

                                                                             Base: 201
                                                                                                           22
Implications of the research
● GP training on self-harm is essential, both at early-career stage and in the
  form of the online CPD training. Appropriate communication styles should
  be an integral part of this.
● Talking therapies are seen as the most useful form of referral and need to
  be made more widely available. IAPTS is an important foundation for this.
● GPs would welcome access to further sources of information and support
    Charities who deal with self-harm should be promoted among GPs, explaining what
     they can and can’t do, and signposting how to contact them
    More posters and patient information leaflets to make young people aware, in a
     non-confrontational way, of what help is available
● Where possible, follow-up appointments should be with the same person
  and alternative forms of communication and engagement, in line with the
  lifestyles of young people should be considered.
● Integrated care pathway for self-harm decision-making chart and other
  tailored assessment tools would help GPs better support young people.
                                                                                       23
For more information on our work in the 3rd sector click here

Report authors:
Victoria Boelman – Associate Director                                info@mruk.co.uk
Amie Luther – Senior Research Executive                              www.mruk.co.uk
Louise Amantani – Research Executive                                 0845 130 4576




                                                                                          24

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Talking Taboos: GPs and self-harm amongst young people

  • 1. Talking Taboos: GPs and self-harm amongst young people November 2012 This work has been conducted in accordance with ISO 20252, the international standard for market and social research 1
  • 2. Introduction The statistics around young people who self-harm are truly shocking. That so many of the next generation feel compelled to hurt themselves in some way, yet it is spoken of so infrequently highlights just how taboo this issue has become. As part of the Cello Group, mruk and RS Consulting joined the Talking Taboos initiative to help Young Minds, the leading youth mental health charity, by conducting ground- breaking research into self-harm. Our focus was on the GP community, often at the front-line of helping these vulnerable young people. Through this research we interviewed 200 GPs online, representative by UK nation, length of time in practice and gender. We hope this research stimulates debate across the public and voluntary sectors and enables Young Minds to drive change that will help those who need it most. 2
  • 3. About young people and self-harm One in twelve children and young people are said to self-harm1 and over the last THE ten years inpatient admissions for young people who self-harm have increased by STATS 68%. In the last year alone these hospital admissions for under 25s increased by 10%. And, among females under 25, there has been a 77% increase in the last ten years. The true figure of how many children and young people are self-harming is likely to THE be far higher. Mental health problems don’t just affect particular groups; they span CAUSES all races, cultures and classes, and self-harm is no exception. However, there are groups at particular risk including lesbian and gay, transgender and bisexual young people, looked-after children, and young people in the criminal justice system. The reasons vary greatly, and are specific to the individual, but a young person may self-harm to help them cope with negative feelings, to feel more in control or to punish themselves. It can be a way of relieving overwhelming feelings that build up inside, when they feel isolated, angry, guilty or desperate. 1 Mental Health Foundation (2006). Truth hurts: report of the National Inquiry into self-harm among young people. London: Mental Health Foundation 3
  • 4. Defining self-harm Self-harm: definitions and perceptions
  • 5. GPs spontaneously associate self-harm with a range of factors from the psychological to the social, and from everyday to exceptional circumstances What do you associate with self-harm among young people? “Low self-esteem, depression, history of “Attention-seeking, poor communication with adults. physical/sexual abuse, learning Difficulty expressing oneself, impulsive behaviour, pent- disability, personality disorders.” up aggression, frustration, immaturity, female, passive- aggressive type, secretive, solitary, manipulative” “Self-punishment, disturbed youth, feeling helpless as a health professional in trying to “Wanting to relieve tension, wanting to address it. Recurrent accident and emergency have control, intention not as suicidal admission. Negative feelings towards self- intent, cutting arms, pulling hair, eating harmers by colleagues.” disorders.” “Depression, schizophrenia, “Poverty, poor social personality disorder, support – abandoned by dysfunctional family, domestic / parents” sexual abuse’.” “Depression, despair, unemployment, under-achievement, stress, relationship difficulties, problems with sexuality, gender identity, bullying, parental problems, teenage pregnancy. Base: 201 5
  • 6. When prompted with a list of behaviours, nearly all GPs consider cutting oneself and burning oneself to be symptoms of self-harm. However they also identified a wide range of other behaviours as falling under this category. Cutting oneself 98% Burning oneself 95% Overdosing 90% Hitting oneself 88% Swallowing harmful objects 86% Scratching / picking at skin 84% Hitting objects (e.g.punching a wall) 74% Pulling hair 73% Drug abuse 68% Eating disorders 66% Alcohol abuse 63% Risky sexual behaviour 55% Staying in an abusive relationship 50% Base: 201 6
  • 7. The definition we used in this research excluded certain types of behaviour, such as eating disorders, and most GPs agreed that our definition was quite similar to their own The definition of self-harm we’ll use for this survey is ‘the deliberate, self-inflicted destruction of body tissue through actions such as cutting, poisoning, burning, stabbing, but not through body piercing, tattoos or eating disorders’. Similarity to GPs’ own definitions Very similar Quite similar Quite different Very different 36% 57% 8% Base: 201 7
  • 8. Self-harm is perceived as rare but a major cause for concern. In these respects, it is positioned close to eating disorders and mental health conditions, also reflecting GP associations with self-harm. 100% Attempted Eating Mental Drug 90% suicide disorder Self- health use Having risky / harm condition unprotected sex 80% Binge Bullying drinking 70% Smoking Level of concern 60% Member of a gang 50% Accessed sexually 40% explicit material online 30% 20% 10% 0% 0% 5% 10% 15% 20% 25% 30% 35% 40% Prevalence 8
  • 9. Although seen as relatively rare, GPs believe the number of young people who self-harm has increased over the last 10 years. They now see on average 8-9 young people who self-harm a year Average number of young people Change in number of young patients 8.49 GPs have seen in the last year self-harming over last ten years who self-harm Increased Stayed the same Decreased Average number of young people 21.49 GPs have seen in last three years who self-harm 47% Average number of young people 53% GPs have seen in the last year 7.71 who they suspect self-harm but could not or did not confirm “Perhaps it is more that young people are feeling able to come forward due to increased awareness, and also the doctor is more aware of its existence.” “I think there are ever increasing pressures on young people, both from peers and society as a whole, and self-harm is used as a coping mechanism, where more beneficial forms of support have decreased’.” Base: 201 9
  • 10. Self-harm is overwhelmingly considered to be a coping mechanism for young people. However, two-thirds of GPs also see it as a way of manipulating others. Proportion of GPs agreeing that … Self-harm is a way of coping with difficult feelings/ situations 91% Self-harm is a form of self-punishment 75% They are struggling with the process of growing up 72% Self-harm is a way of manipulating others 67% Young people who self-harm are attention seeking 61% Self–harm is an addiction 56% They are likely to try and commit suicide 53% Something really bad must have happened to cause this 48% Self-harm is encouraged online 44% Self-harm is copycat behaviour 39% They must have a mental health condition 32% Self-harm is fashionable 34% Self-harm is just a phase some young people go through 32% Young people who self-harm can easily stop if they want to 19% Self-harm does not have lasting consequences 16% Base: 201 10
  • 11. Defining self-harm Helping young people who self-harm 11
  • 12. On average, a quarter of those who self-harm are referred to GPs from A&E and a further quarter present directly to their GP. Concerned relatives and friends also play a significant role. Referral source of young patients who self-harm Been referred from A&E following an admission or 26% presentation at hospital Presented their self-harming directly 26% Been brought by a concerned parent / relation 19% Presented for another medical issue & you noticed 18% signs of self-harm and raised it with patient Been brought by a concerned friend (other young 8% person) Other referral 3% Base: 197 12
  • 13. 85% of GPs, however, have not had any specific training on dealing with self-harm. Of those who had received some kind of training, It was typically in the early hospital-based days of their career % of GPs having received training on self-harm “A workshop during my Training “Online modules, SHO psychiatry job.” e-learning.” No training “During my psychiatric rotation had “GP Registrar training, mental to deal with such cases, got formal health course. Both essential teaching as well at the time.” and very helpful.” “I am the mental health lead “A&E and went to a conference.” Induction.” GPs mentioned a variety of training experiences, but many were one-offs. Several had simply happened to have specialised in this field. 13
  • 14. Unsurprisingly, all GPs identify challenges in helping young people who self-harm. Short consultation times, communication difficulties and a lack of referral options are the main issues Major challenge Slight challenge Not a challenge Consultation time not long enough 67% 28% 4% They don’t want to talk 50% 44% 6% Nowhere to refer them to 43% 45% 12% No suitable tools to assess patient 24% 52% 24% No guidelines available 20% 57% 23% I don’t know what language to use to talk about self- 11% 48% 41% harm in a way which is relevant to the young person I don’t understand them 11% 41% 48% Base: 197 14
  • 15. GPs believe most young people want to talk about self-harm, but don’t know who to talk to. For their part, GPs are worried about saying the wrong thing or opening a can of worms Proportion of GPs agreeing that … Schools, the NHS and families need to talk about self-harm so that young people feel able to talk to the appropriate people about it 84% Young people don't know who to turn to about self-harm 82% Young people want to talk about self-harm 80% I am frustrated by young people who repeatedly self-harm 53% Exploring self-harm is opening a can of worms 45% Self-harm is getting worse because young people feel stigmatised 43% I'd like to feel able to talk to a young person about self-harm but I don't know how to 38% I don't know enough about self-harm to talk to a young person about it 33% I'm worried about saying the wrong thing and making it worse 27% Self-harm is diminishing because people are able to talk about it more openly these days 23% Self-harm would increase if it was talked about openly 16% Base: 201 15
  • 16. This fear of saying the wrong thing reflects itself in the fact that compared to many other issues affecting young people, GPs are less comfortable talking about self-harm Proportion of GPs comfortable discussing … Smoking 96% “Lack of training, information, Binge drinking 95% experience.” Mental health condition 93% “It can mean lots of things Bullying 91% and there’s a difficulty in stating whether it is Drug use 90% acceptable or not.” Having risky / unprotected sex 89% “Often there is an Eating disorder 86% expectation that I personally have a straightforward Self-harm 85% solution. There are always complex underlying issues Having attempted suicide and within a 10 minute 83% consultation it is difficult to even begin to unravel the Accessing sexually explicit material online 57% problems.” Member of a gang 53% Base: 201 16
  • 17. Discomfort in discussing self-harm is greater if the young person does not raise the issue and it is incumbent upon the GP to do so in response to others concerns raised Proportion of GPs agreeing that they would be comfortable talking about self-harm if … “The young person is not They came to you to talk about self- choosing to come and 86% harm and what it meant may not be ready to talk about it.” “It may be unrelated to the They told you they were self-harming 84% current issue. It may be a past event. It may open an emotional bottle.” Their friend/ family member told you 74% that they were self-harming “Raising the issue when they have come about something else is hard You noticed the physical signs of self- as it seems an invasion harm but they did not initiate the 74% of privacy.” conversation Base: 201 17
  • 18. The communication challenge is compounded by GPs lacking appropriate specialist tools assess this group. During consultations, GPs are most likely to use PHQ-9 or the baseline suicide risk assessment Use of screening tools and guidelines Always Sometimes Never The PHQ-9 is a nine item scale PHQ-9 38% 51% 11% from the Patient Health Questionnaire to diagnose depression and the baseline screen attempts to determine Baseline suicide risk risk of suicide. 26% 33% 41% assessment screen Neither of these tools are specifically designed for dealing with self-harm NICE guidelines 13% 42% 45% patients but reflect the concern of GPs for young people in this situation and an Integrated care pathway for attempt to detect underlying mental health issues. self-harm decision-making 5% 21% 74% chart Base: 197 18
  • 19. Referral to CAMHS is the most widely available option to GPs, followed by referral to a counselling service Proportion of GPs with access to … Referral to Child and Adolescent Mental Health 95% Services (CAMHS) Referral to Adult Mental Health Services 67% Referral to Crisis Care Team 67% Referral to an external counselling service 58% Referral to a counselling service within my GP surgery 41% Referral to A&E 42% Private referral 24% Any counselling Referral to other GP within surgery with expertise on service = 72% 7% this kind of issue Other 1% Base: 201 19
  • 20. Although GPs are most likely to refer young people who self-harm to CAMHS, only two-thirds find it useful. Counselling services are generally perceived to be more useful. Most of the time Sometimes Never % Useful Referral to Child and Adolescent 41% 58% 1% 63% Mental Health Services (CAMHS) Referral to a counselling service 33% 60% 7% 73% within my GP surgery Referral to an external counselling 29% 65% 6% 66% service Referral to Adult Mental Health 31% 68% 2% 68% Services Referral to Crisis Care Team 16% 80% 5% 69% Referral to other GP within surgery 22% 73% 6% 59% with expertise on this kind of issue Referral to A&E 13% 75% 12% 51% Private referral 7% 76% 17% 83% Base: CAMHS 186; GP counselling 80; external counselling Base: CAMHS 184; GP counselling 75; external counselling 115; AMHS 132; CCT 134; Other GP 13; A&E 84; Private 46 109; AMHS 130; CCT 127; Other GP 12; A&E 74; Private 38 20
  • 21. These concerns and challenges are reflected in GP views on what would help them better support young people who self-harm. How do you think self-harm in young people could be more effectively identified and supported by GPs? “Routine questioning opportunistically. “By identifying depression and exploring Effective onward referral.” this routinely in patients with low mood .” “Posters in surgeries, better access to counselling services.” “Listen, develop a rapport, trust, confidence, partnership.” “More training and publicity.” “Develop a rapport with one GP and see the GP regularly. “Closer liaison between Have a care plan. If they are schools/youth centres and GP worsening, they should have surgeries. Make it easier for easy access to see their usual young children to contact the doctor.” “GPs who are passionate about this kind of GP surgery e.g. via email.” thing need to have time (TIME) allocated so that they can offer drop-in sessions that are flexible and allow youngsters to react to spur-of-the-moment feelings/decisions.” 21
  • 22. Better knowledge about voluntary organisations able to help, improved access to talking therapies and online CPD modules are top of GP wish lists to help them support young people % agreeing it would be helpful … Knowing which voluntary organisations/ charities young people 79% who self-harm can be referred to Better access to talking therapies 77% Online Continuing Professional Development (CPD) modules 74% Knowing which voluntary organisations/ charities deal with self- 70% harm and provide online information about the issue Patient information leaflets 65% Improved guidelines available 60% In-person training courses 47% None of the above 1% Other 1% Base: 201 22
  • 23. Implications of the research ● GP training on self-harm is essential, both at early-career stage and in the form of the online CPD training. Appropriate communication styles should be an integral part of this. ● Talking therapies are seen as the most useful form of referral and need to be made more widely available. IAPTS is an important foundation for this. ● GPs would welcome access to further sources of information and support  Charities who deal with self-harm should be promoted among GPs, explaining what they can and can’t do, and signposting how to contact them  More posters and patient information leaflets to make young people aware, in a non-confrontational way, of what help is available ● Where possible, follow-up appointments should be with the same person and alternative forms of communication and engagement, in line with the lifestyles of young people should be considered. ● Integrated care pathway for self-harm decision-making chart and other tailored assessment tools would help GPs better support young people. 23
  • 24. For more information on our work in the 3rd sector click here Report authors: Victoria Boelman – Associate Director info@mruk.co.uk Amie Luther – Senior Research Executive www.mruk.co.uk Louise Amantani – Research Executive 0845 130 4576 24