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Creating Powerful Alliances for
      Reducing Disparities in
Cardiovascular Outcomes in Harlem
           Mrs. Patricia R. Butts
         Abyssinian Baptist Church

         Elizabeth Cohn, RN, DNSc
             Columbia University
Make a Call-Don’t Miss a Beat
• This work is funded under a grant by the NYS Office
  of Women’s Health Region II
• Department of Health and Human Services, Office of
  Women’s Health.
Project Aims
• To develop a set of culturally tailored strategies to
  educate women and their families about the signs
  and symptoms of heart attacks.
• To raise awareness of medical providers to the
  alternative presentations of heart attacks in
  women.
• To use social marketing for widespread
  dissemination of these health messages.
• To demonstrate the power of a partnership
  between faith-based organizations, Schools of
  Nursing and DHHS.
Four Factor Intervention
• Individual: Trained church women in low-tech, high-touch
  methods. Pocketbook training.

• Medical Providers: Huddles; next generation of provides.

• Faith-Based/Congregants: Sermons based on CVD
  information. Original Gospel music and short plays.

• Social Marketing: Times Square Jumbotron, Amsterdam
  news. Jingles.
Review of the morning
What do you think is the number one cause of
 death in women in the United States?

A.   Breast Cancer
B.   Heart Disease
C.   Accidents
D.   Lung Cancer
Disparities in CVD
• African American women are 40% more likely to
  have three or more risk factors1 and are significantly
  more likely to die from heart disease2 when
  compared to their white counterparts.
• Although at increased risk, 60% of African American
  women lack awareness of the signs and symptoms
  and the need for a definitive action plan2.
• Early recognition and treatment saves lives and
  improves outcomes. But this depends on
  identification of the signs and symptoms both by
  the individual and hospital providers.
1.   Giardina, et al. (2011). Journal of Women's Health. 20(6): 893-900
2.   Canto, et al. (2012). JAMA. Feb 22;307(8):813-22.
The Facts
 A woman suffers a heart attack every minute

   Even though awareness has increased over the years, women
    still don’t see personal risk for themselves

 Women tend to dismiss symptoms leading to poorer
  outcomes and increased deaths

   Only about half of women would call 911 if they thought they
    were having a heart attack

     Sources: American Heart Association 2008, Sheng et al. 2001
     American Heart Association Statistical Update: Heart Disease and Stroke, 2009.Lloyd-Jones D et al. 2009.
Edna’s Story
What signs and symptoms
 can you identify in this
          story?
Chest Pain
   Described as “discomfort, ache, pressure,
   tightness, or fullness”


   Can last for several minutes or go away
   and come back


   This is the “hallmark” sign for heart
   attacks in men, but one study found that
   only 30% of women experienced chest pain
   or discomfort prior to their heart attack
Upper Body Pain
     Common sites for pain
         •Chest
         •Upper back, between the
         shoulders
         •Left arm
         •Shoulder
         •Neck jaw
         •Upper stomach

     Often vague or generalized to a
     region, if you can point to the pain
     with one finger, it is less likely that it is
     a heart attack
Shortness of Breath
        Difficulty breathing, you may be
         panting or find yourself trying to
         take deep breaths

        Occurs with normal daily activities

        Can occur with or without chest
         pain

        This was reported by half of
         women experiencing a heart
         attack
Dizziness
    Feeling lightheaded or
     like you may pass out

    Usually sudden in onset

    Can be accompanied with
     severe weakness
Cold Sweats
     You may suddenly
      break out into a sweat
      with cold, clammy skin

     Can be confused with
      “hot flashes” of
      menopause
Nausea
    May or may not be
     associated with vomiting

    May or may not be
     associated with
     abdominal pain

    Often described as
     “feeling sick to the
     stomach”

    Can be mistaken for “a
     stomach flu”
Fatigue
   Tiredness that is long-lasting
    or recurrent

   Unusual, unexplained,
   extreme, and sudden in onset

   May also feel very weak

   More than half of women
    experienced marked fatigue
    prior to the onset of their
    heart attack
What to do…call 911!
If you experience even one of these
 symptoms that is unusual for you, don’t wait.
 Call 911!
911 Usage
 For themselves, 53% of women said that they would
  call 911 if experiencing the symptoms of a heart
  attack

 Only 46% of women would do something other than
  call 911 – such as take an aspirin, call the doctor or
  try to drive themselves

 About 80% said they would call 911 if someone else
  were having a heart attack

   Source: Circ Cardiovasc Qual Outcomes Mosca et al. 2010.
Results
• We wanted to change those statistics

• Both community members and medical personnel
  who attended the workshops had significantly
  improved knowledge (p=<0.05) and likelihood of
  having an action plan and (p=<0.05).

• An estimated 10 million women and their families
  were exposed to the information as measured by
  Plowshare, an independent social marketing agency.
Does increased knowledge
translate into increased action?
– Measuring the number and types of calls to 911.
– Tracking outcomes in women who have presented
  to Emergency Departments with the signs and
  symptoms of heart attacks.
– Exploring ways of reducing risk factors and
  preventing heart attacks through greater
  collaboration of our faith-based organizations and
  school of nursing.
Collaborative work
        We have benefited greatly from
  our collaborative work and invite you to join
   us in improving health across the nation.

                 Thank you.



ec2341@columbia.edu
Let’s DANCE!
Results
Community             Professional

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Cohn & Butts - Building Alliances to Improve Heart Health in Harlem

  • 1. Creating Powerful Alliances for Reducing Disparities in Cardiovascular Outcomes in Harlem Mrs. Patricia R. Butts Abyssinian Baptist Church Elizabeth Cohn, RN, DNSc Columbia University
  • 2. Make a Call-Don’t Miss a Beat • This work is funded under a grant by the NYS Office of Women’s Health Region II • Department of Health and Human Services, Office of Women’s Health.
  • 3. Project Aims • To develop a set of culturally tailored strategies to educate women and their families about the signs and symptoms of heart attacks. • To raise awareness of medical providers to the alternative presentations of heart attacks in women. • To use social marketing for widespread dissemination of these health messages. • To demonstrate the power of a partnership between faith-based organizations, Schools of Nursing and DHHS.
  • 4. Four Factor Intervention • Individual: Trained church women in low-tech, high-touch methods. Pocketbook training. • Medical Providers: Huddles; next generation of provides. • Faith-Based/Congregants: Sermons based on CVD information. Original Gospel music and short plays. • Social Marketing: Times Square Jumbotron, Amsterdam news. Jingles.
  • 5. Review of the morning What do you think is the number one cause of death in women in the United States? A. Breast Cancer B. Heart Disease C. Accidents D. Lung Cancer
  • 6. Disparities in CVD • African American women are 40% more likely to have three or more risk factors1 and are significantly more likely to die from heart disease2 when compared to their white counterparts. • Although at increased risk, 60% of African American women lack awareness of the signs and symptoms and the need for a definitive action plan2. • Early recognition and treatment saves lives and improves outcomes. But this depends on identification of the signs and symptoms both by the individual and hospital providers. 1. Giardina, et al. (2011). Journal of Women's Health. 20(6): 893-900 2. Canto, et al. (2012). JAMA. Feb 22;307(8):813-22.
  • 7. The Facts  A woman suffers a heart attack every minute  Even though awareness has increased over the years, women still don’t see personal risk for themselves  Women tend to dismiss symptoms leading to poorer outcomes and increased deaths  Only about half of women would call 911 if they thought they were having a heart attack Sources: American Heart Association 2008, Sheng et al. 2001 American Heart Association Statistical Update: Heart Disease and Stroke, 2009.Lloyd-Jones D et al. 2009.
  • 8. Edna’s Story What signs and symptoms can you identify in this story?
  • 9. Chest Pain Described as “discomfort, ache, pressure, tightness, or fullness” Can last for several minutes or go away and come back This is the “hallmark” sign for heart attacks in men, but one study found that only 30% of women experienced chest pain or discomfort prior to their heart attack
  • 10. Upper Body Pain Common sites for pain •Chest •Upper back, between the shoulders •Left arm •Shoulder •Neck jaw •Upper stomach Often vague or generalized to a region, if you can point to the pain with one finger, it is less likely that it is a heart attack
  • 11. Shortness of Breath  Difficulty breathing, you may be panting or find yourself trying to take deep breaths  Occurs with normal daily activities  Can occur with or without chest pain  This was reported by half of women experiencing a heart attack
  • 12. Dizziness  Feeling lightheaded or like you may pass out  Usually sudden in onset  Can be accompanied with severe weakness
  • 13. Cold Sweats  You may suddenly break out into a sweat with cold, clammy skin  Can be confused with “hot flashes” of menopause
  • 14. Nausea  May or may not be associated with vomiting  May or may not be associated with abdominal pain  Often described as “feeling sick to the stomach”  Can be mistaken for “a stomach flu”
  • 15. Fatigue  Tiredness that is long-lasting or recurrent  Unusual, unexplained, extreme, and sudden in onset  May also feel very weak  More than half of women experienced marked fatigue prior to the onset of their heart attack
  • 16. What to do…call 911! If you experience even one of these symptoms that is unusual for you, don’t wait. Call 911!
  • 17. 911 Usage  For themselves, 53% of women said that they would call 911 if experiencing the symptoms of a heart attack  Only 46% of women would do something other than call 911 – such as take an aspirin, call the doctor or try to drive themselves  About 80% said they would call 911 if someone else were having a heart attack Source: Circ Cardiovasc Qual Outcomes Mosca et al. 2010.
  • 18. Results • We wanted to change those statistics • Both community members and medical personnel who attended the workshops had significantly improved knowledge (p=<0.05) and likelihood of having an action plan and (p=<0.05). • An estimated 10 million women and their families were exposed to the information as measured by Plowshare, an independent social marketing agency.
  • 19. Does increased knowledge translate into increased action? – Measuring the number and types of calls to 911. – Tracking outcomes in women who have presented to Emergency Departments with the signs and symptoms of heart attacks. – Exploring ways of reducing risk factors and preventing heart attacks through greater collaboration of our faith-based organizations and school of nursing.
  • 20. Collaborative work We have benefited greatly from our collaborative work and invite you to join us in improving health across the nation. Thank you. ec2341@columbia.edu
  • 22. Results Community Professional

Notes de l'éditeur

  1. Cohn: By a show of hands what do you think is the #1 cause of death in women?
  2. These data suggest that the women who are at most risk for heart disease and its potential outcomes are actually least aware of the threat.
  3. Cohn: In the time it has taken for me to read this slide a woman has died of heart attack
  4. `
  5. I really want stress that only 30% of women experienced chest pain
  6. Newkirk
  7. Newkirk
  8. Newkirk
  9. Newkirk
  10. Newkirk
  11. A very common symptom in women is extreme fatigue. This is tiredness that is so severe that upon waking you feel like you need to go immediately back to sleep.
  12. You can see how it may be easy to dismiss these atypical symptoms but if you have just one that feels unusual don’t make excuses, call 911.
  13. Cohn: