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The child with Special Health
care Needs
Dr.Soma Sekhara Reddy.k
Emergency medicine
Who…
• Increased risk for chronic
Physical
Developmental
Behavioral and
Emotional conditions
• Require extra care in health and related
services beyond that required in general.
Why… special..
COZ OF DIFFENRENT IN -
• Development
• Vital signs
• Weight
• Cant use standard reference charts
• Reduced compensatory mechanisms
• Allergies
• Medications
Ex amples…………………………
• Chromosomal disorders
- Down syn.
- Turners syn.
- Noonans syn.
- Fragile x syn.
- Trisomy 18 syn.
- cri – du - chat syn.
In fact all disorders…
• Disorders with facial defects
• Disorders with limb defects
• Inherited metabolic disorders
• Connective tissue disorders
• Vascular disorders – hamartoses
• Toxins – Fetal hydantoin syndrome
• Trauma - TBI , CP
Our job..
• Recognition
• Consideration
• Anticipation
• Initiation
• Stabilisation
• Disposition
One special case in detail – cerebral palsy
• Collection of non progressive disorders of
movement and posture originating from injury
sustained by the developing brain within the
first 3 to 5 years of life
• Many causes and in 25% no cause.
• Many types with wide spectrum of disease
Complications
1. Seizures :
• 2/3 rds of CP
• Manage ABC
• Initiate RX – BDZ
* Special considerations
- Ample history important
- Drug interactions – multiple drugs
- Early expert involvement
- Avoid dextrose in refractory seizures on
ketogenic diet
2. Respiratory complications:
• Common – restrictive lung disease, pneumonia
congestion , recurrent aspiration
• Coz of:
Oral motor dysfunction
GER
Neuromuscular compromise
Scoliosis
* Low respiratory reserve volume
• Early initiation of Rx,Ix and low threshold for
admission
3. GI complications:
• Dehydration – poor intake , increased losses
• Infections
• Constipation and overflow diarrhea
*Retarded growth with marginal reserves
*Feeding tube complications
• Early fluid replacement
• Avoid multiple enemas , mineral oils
• Early gastro consultation
4.Musculoskeletol complications:
• Secondary to disuse and nutritionally induced
osteopenia
• Frequent falls
• Keep low threshold for #s in trivial injuries
especially in non verbal , irritable and retarded
child
• Check for cutaneous complications coz of
orthopaedic braces
• Early pain Mx, splinting ,expert consultation.
So as in other disorders too..
• Meningo myelocele
• Neural tube defects
• TBI and spinal cord injury
• Autism
• Mental retardation
• Downs babies
TECHNO KIDS
• Technology dependent children:
Needs extra support / medical devices to
compensate lost vital functions of the body along
with the nursing care
1.Ventilation
2.Tracheostomy
3.Feeding tube and gastrostomy tubes
4.CSF shunts
5.Urinary shunts and tubes
Give a plan..
EMERGENCY CARE PLAN and GO-BAG
• Written document/plan contains
- Child’s disease , condition and status
- Special equipments and needs
- Medications
- Information about parents , caretakers,
primary physicians etc..
• Access to all care givers and with patient
Autonomic dysreflexia
• Serious ,life threatening condition
• Associated with cord injuries proximal to mid
thoracic levels
• Hyperactivity of Sympathetic and
Parasympathetic systems
• Initiated by stimuli below the level of the lesion
like bladder over distension , fecal impaction,
fractures..
C/F:
• Sweating, flushing, piloerection, pounding head
ache
• Hypertension, bradycardia
Rx:
• Treat the primary cause
• Relieve the pain
• Treat as hypertensive emergency if not
responding
Take home
• Recognise the child with special health care needs
• Anticipate life threatening issues
• Early intervention
• Keep low threshold for investigations and admission
• Always take expert advise for this special children
• Check the tubes and positions and associated
complications and other supportive equipment
• Fully involve family and caregivers and take
complete information about medications ,
allergies and equipment sizes and their
conditions
• Double check dosages and weight of child
• Always examine p/o , p/r and p/v
Please mind
• This special debilitated child might be precious
child…
THANK YOU

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Caring for Children with Special Health Needs

  • 1. The child with Special Health care Needs Dr.Soma Sekhara Reddy.k Emergency medicine
  • 2. Who… • Increased risk for chronic Physical Developmental Behavioral and Emotional conditions • Require extra care in health and related services beyond that required in general.
  • 3. Why… special.. COZ OF DIFFENRENT IN - • Development • Vital signs • Weight • Cant use standard reference charts • Reduced compensatory mechanisms • Allergies • Medications
  • 4. Ex amples………………………… • Chromosomal disorders - Down syn. - Turners syn. - Noonans syn. - Fragile x syn. - Trisomy 18 syn. - cri – du - chat syn.
  • 5. In fact all disorders… • Disorders with facial defects • Disorders with limb defects • Inherited metabolic disorders • Connective tissue disorders • Vascular disorders – hamartoses • Toxins – Fetal hydantoin syndrome • Trauma - TBI , CP
  • 6. Our job.. • Recognition • Consideration • Anticipation • Initiation • Stabilisation • Disposition
  • 7. One special case in detail – cerebral palsy • Collection of non progressive disorders of movement and posture originating from injury sustained by the developing brain within the first 3 to 5 years of life • Many causes and in 25% no cause. • Many types with wide spectrum of disease
  • 8. Complications 1. Seizures : • 2/3 rds of CP • Manage ABC • Initiate RX – BDZ * Special considerations - Ample history important - Drug interactions – multiple drugs - Early expert involvement - Avoid dextrose in refractory seizures on ketogenic diet
  • 9. 2. Respiratory complications: • Common – restrictive lung disease, pneumonia congestion , recurrent aspiration • Coz of: Oral motor dysfunction GER Neuromuscular compromise Scoliosis * Low respiratory reserve volume • Early initiation of Rx,Ix and low threshold for admission
  • 10. 3. GI complications: • Dehydration – poor intake , increased losses • Infections • Constipation and overflow diarrhea *Retarded growth with marginal reserves *Feeding tube complications • Early fluid replacement • Avoid multiple enemas , mineral oils • Early gastro consultation
  • 11. 4.Musculoskeletol complications: • Secondary to disuse and nutritionally induced osteopenia • Frequent falls • Keep low threshold for #s in trivial injuries especially in non verbal , irritable and retarded child • Check for cutaneous complications coz of orthopaedic braces • Early pain Mx, splinting ,expert consultation.
  • 12. So as in other disorders too.. • Meningo myelocele • Neural tube defects • TBI and spinal cord injury • Autism • Mental retardation • Downs babies
  • 13. TECHNO KIDS • Technology dependent children: Needs extra support / medical devices to compensate lost vital functions of the body along with the nursing care 1.Ventilation 2.Tracheostomy 3.Feeding tube and gastrostomy tubes 4.CSF shunts 5.Urinary shunts and tubes
  • 14. Give a plan.. EMERGENCY CARE PLAN and GO-BAG • Written document/plan contains - Child’s disease , condition and status - Special equipments and needs - Medications - Information about parents , caretakers, primary physicians etc.. • Access to all care givers and with patient
  • 15. Autonomic dysreflexia • Serious ,life threatening condition • Associated with cord injuries proximal to mid thoracic levels • Hyperactivity of Sympathetic and Parasympathetic systems • Initiated by stimuli below the level of the lesion like bladder over distension , fecal impaction, fractures..
  • 16. C/F: • Sweating, flushing, piloerection, pounding head ache • Hypertension, bradycardia Rx: • Treat the primary cause • Relieve the pain • Treat as hypertensive emergency if not responding
  • 17. Take home • Recognise the child with special health care needs • Anticipate life threatening issues • Early intervention • Keep low threshold for investigations and admission • Always take expert advise for this special children
  • 18. • Check the tubes and positions and associated complications and other supportive equipment • Fully involve family and caregivers and take complete information about medications , allergies and equipment sizes and their conditions • Double check dosages and weight of child • Always examine p/o , p/r and p/v
  • 19. Please mind • This special debilitated child might be precious child…