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“e-Patient Dave” deBronkart
Twitter: @ePatientDave
facebook.com/ePatientDave
LinkedIn.com/in/ePatientDave
dave@epatientdav...
TEDx Maastricht, 2011
This is the year
of patients
rising.
Patient
is not
a third person
word
Lesson 1, fromTEDx Maastricht, 2011
You can tell a lot
about a futurist
by how their
predictions pan out
Lesson 2, from 40 years in business:
1969!
Equipped
Engaged
Empowered
Enabled
e-Patients are
What do we mean by
Empowered?
Empowerment
“Increasing the capacity !
of individuals or groups"
to make choices [about what they want]"
and to transform ...
People perform better
when they’re
informed better.
Lesson 3, obvious in every industry but healthcare
It’s perverse
to keep people
in the dark
and call them ignorant
Corollary:
Median Survival:
24 weeks
How has that one panned out?
How can it be
that the most useful
and relevant and
up-to-the-minute information
can exist outside of
traditional channels?
How has this one turned out?
Closed system Open network
Transformation of Knowledge Access
How a kidney cancer wife
found the info she needed
•  No insurance;
no treatment.Then:
•  Three bad hospitals;
no help.The...
Regina Holliday’s
Medical Mural Advocacy Project
The Walking Gallery
ReginaHolliday.blogspot.com
You know
it’s a revolution
when the artists
and musicians
show up
Lesson 4 (a culture lesson)
Dr. EricTopol
How’s that one turned out?
bit.ly/topolthedata
“Gimme My DaM Data”
bit.ly/gimmedataDeloitte guys get on board
“Data Liberación!”
Todd Park
Innovator
Entrepreneur
HHS Chief Technical Officer
US Chief Technical Officer
Federal governm...
When assets digitize,
things change fast.
Lesson 5 (a shocker, in any pre-digital industry)
Why not “Google Earth for my body”?
Case Study:
Hugo Campos wants his ICD data
Patient Experience
AliveCor: iPhone EKG
12/3/12:
“FDA clears iPhone heart
monitor, doctors can pre-order”
Feb 2014: OTC
Hugo Campos
@hugooc
HugoOC@gmail.com
My first year with
the AliveCor
February 8, 2013
We perform better
when we’re
informed better.
#WeAreNotWaiting
#NightScout
#DIYPS
(“Do-it-yourself Pancreas System”
Who gets to say
what’s in the
patient’s best
interest?
Patient-Clinician Partnerships
Engaged, empowered patients—
A learning health care system is
anchored on patient needs and...
“How can patients participate if they don’t
have the information?” – Dr.Danny Sands
How’s this one workin’ out?
WONDERFULLY, thank you.
It’s great
to be alive.
Withings
Withings Wi-Fi scale
Fitness wristband & heart band
YMCA Diabetes Prevention Class
(food training & physical acti...
TEDx Maastricht, 2011
Permettez-
moi de vous
présenter…
les Mini-Me’s.
Half of everyone who’s
ever been 65 is alive today
Population today: ~7.0 billion
End of World War II: ~2.3 billion
MayThe Fourth
Let My Data Go
We perform better
when we’re
informed better.
We are
(you are)
the most
under-used
resource in
healthcare.
Let Patients Help.
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
What e-Patients Want and Why They Need To Be Empowered
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What e-Patients Want and Why They Need To Be Empowered

Presentation to the HealthKick 2015 conference in Toronto, May 2015. Includes important definition of empowerment from the World Bank - highly applicable to how and why patients become empowered when they gain access to more information.

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What e-Patients Want and Why They Need To Be Empowered

  1. 1. “e-Patient Dave” deBronkart Twitter: @ePatientDave facebook.com/ePatientDave LinkedIn.com/in/ePatientDave dave@epatientdave.com What e-Patients Want and WhyThey Need to Be Empowered
  2. 2. TEDx Maastricht, 2011
  3. 3. This is the year of patients rising.
  4. 4. Patient is not a third person word Lesson 1, fromTEDx Maastricht, 2011
  5. 5. You can tell a lot about a futurist by how their predictions pan out Lesson 2, from 40 years in business:
  6. 6. 1969!
  7. 7. Equipped Engaged Empowered Enabled e-Patients are
  8. 8. What do we mean by Empowered?
  9. 9. Empowerment “Increasing the capacity ! of individuals or groups" to make choices [about what they want]" and to transform those choices ! into desired actions & outcomes”! World Bank, 2002!
  10. 10. People perform better when they’re informed better. Lesson 3, obvious in every industry but healthcare
  11. 11. It’s perverse to keep people in the dark and call them ignorant Corollary:
  12. 12. Median Survival: 24 weeks
  13. 13. How has that one panned out?
  14. 14. How can it be that the most useful and relevant and up-to-the-minute information can exist outside of traditional channels?
  15. 15. How has this one turned out?
  16. 16. Closed system Open network Transformation of Knowledge Access
  17. 17. How a kidney cancer wife found the info she needed •  No insurance; no treatment.Then: •  Three bad hospitals; no help.Then: •  A friend said “I know a guy... on Twitter”
  18. 18. Regina Holliday’s Medical Mural Advocacy Project The Walking Gallery ReginaHolliday.blogspot.com
  19. 19. You know it’s a revolution when the artists and musicians show up Lesson 4 (a culture lesson)
  20. 20. Dr. EricTopol How’s that one turned out?
  21. 21. bit.ly/topolthedata
  22. 22. “Gimme My DaM Data” bit.ly/gimmedataDeloitte guys get on board
  23. 23. “Data Liberación!” Todd Park Innovator Entrepreneur HHS Chief Technical Officer US Chief Technical Officer Federal government gets on board
  24. 24. When assets digitize, things change fast. Lesson 5 (a shocker, in any pre-digital industry)
  25. 25. Why not “Google Earth for my body”?
  26. 26. Case Study: Hugo Campos wants his ICD data
  27. 27. Patient Experience
  28. 28. AliveCor: iPhone EKG 12/3/12: “FDA clears iPhone heart monitor, doctors can pre-order” Feb 2014: OTC
  29. 29. Hugo Campos @hugooc HugoOC@gmail.com My first year with the AliveCor February 8, 2013
  30. 30. We perform better when we’re informed better.
  31. 31. #WeAreNotWaiting #NightScout
  32. 32. #DIYPS (“Do-it-yourself Pancreas System”
  33. 33. Who gets to say what’s in the patient’s best interest?
  34. 34. Patient-Clinician Partnerships Engaged, empowered patients— A learning health care system is anchored on patient needs and perspectives and promotes the inclusion of patients, families, and other caregivers as vital members of the continuously learning care team.
  35. 35. “How can patients participate if they don’t have the information?” – Dr.Danny Sands
  36. 36. How’s this one workin’ out?
  37. 37. WONDERFULLY, thank you.
  38. 38. It’s great to be alive.
  39. 39. Withings Withings Wi-Fi scale Fitness wristband & heart band YMCA Diabetes Prevention Class (food training & physical activity) MyFitnessPal diet tracking app Strong spousal support My doctors can’t see this in their computers!
  40. 40. TEDx Maastricht, 2011
  41. 41. Permettez- moi de vous présenter… les Mini-Me’s.
  42. 42. Half of everyone who’s ever been 65 is alive today Population today: ~7.0 billion End of World War II: ~2.3 billion
  43. 43. MayThe Fourth
  44. 44. Let My Data Go
  45. 45. We perform better when we’re informed better.
  46. 46. We are
  47. 47. (you are)
  48. 48. the most under-used resource in healthcare.
  49. 49. Let Patients Help.

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