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Advocacy, communication and social
mobilization (ACSM) for TB control
‫الس‬ ‫لمكافحة‬ ‫االجتماعية‬ ‫والتعبئة‬ ‫والتواصل‬ ‫الدعوة‬‫ل‬
Dr. Essam Elmoghazy
Chairman of Cairo Association against Smoking , TB and
Lung diseases- Egypt (CASTLE)
Chairman of the Green Light Committee _ EMR
What is ACSM?
Advocacy
• Advocacy seeks to ensure that governments remain
strongly committed to implementing TB control policies.
• Advocacy often focuses on influencing policy-makers,
funders and international decision-making bodies
through a variety of channels e.g. conferences and
symposia, celebrity spokespeople, meetings between
various levels of government and civil society
organizations, news coverage, official memoranda of
understanding (MOUs), partnership meetings.
What is ACSM?
Advocacy
• The different types of advocacy:
 Policy advocacy informs senior politicians and
administrators how an issue will affect the country, and
outlines actions to take to improve laws and policies.
 Programme advocacy targets opinion leaders at the
community level on the need for local action.
 Media advocacy validates the relevance of a subject,
puts issues on the public agenda, and encourages the
media to cover TB-related topics regularly and in a
responsible manner so as to raise awareness of possible
solutions and problems
Examples of advocacy activities
• The celebration of the World TB Days
• Choosing of celebrities as ambassadors of
health in the field of combating TB.
• Newsletters
• Press interaction and interviews with editors
of Egyptian newspapers.
Meeting with the chiefs of
Egyptian TV local channels
Press interaction and interviews with
editors of Egyptian newspapers
Newsletter
Celebrities
Hazem Imam takes part in Anti-TB campaign
with the youths in Fayoum
Celebrities
Celebrities
Celebrities
Actress Laila Elwi was selected as an
Ambassador of Health in the field of combating
TB.
Celebrating the World TB Day
Celebrating the World TB Day
Celebrating the World TB Day
Celebrating the World TB Day
Celebrating the World TB Day
Participation in events
Children Cinema Festival
Participation in events
In the Book fair
What is ACSM?
Communication
• Behaviour-change communication aims to change knowledge,
attitudes and practices among various groups of people. It
frequently informs the public of the services that exist for
diagnosis and treatment and relays a series of messages about
the disease – such as “seek treatment if you have a cough for
more than two weeks”, “TB hurts your lungs” or “TB is curable”.
• Effective behaviour-change communication and messages need
to convey more than just the medical facts as, on their own,
these facts do not necessarily motivate people to a visit a TB
clinic or complete their treatment. The messages should explore
the reasons why people do or do not take action on the
information they receive, then focus on changing the actual
behaviour by addressing the causes identified – social norms or
personal attitudes for example.
What is ACSM?
Communication
• Behaviour-change communication creates an environment
through which affected communities can discuss, debate,
organize and communicate their own perspectives on TB. It aims
to change behaviour – such as persuading people with symptoms
to seek treatment – and to foster social change, supporting
processes in the community or elsewhere to spark debate that
may shift social mores and/or eliminate barriers to new
behaviour
Examples of communication activities
• Development of health education materials e.g.
psters , brochures , radio and video drama and songs
• Conducting health education sessions in different
gatherings e.g. youth clubs , TB patients at chest
diseases hospitals, workers at factories, school and
university students, prisoners, refugees, inhabitants
of poor districts, and many other categories of the
society all over the governorates of Egypt.
Posters
Posters
Posters
Posters
training to a working team at African Refugees'
Program
Health education sessions in women clubs
Health education sessions in the slums
24/3/08Dr Eman Kamal29
Health education sessions with refugees
In the prisons
In the mosques
In the churches
In chest hospitals
TV Drama
What is ACSM?
Social mobilization
• Social mobilization brings together community members to
strengthen community participation for sustainability and self
reliance.
• Social mobilization generates dialogue among a range of players that
includes decision-makers, the media, NGOs, the private sector,
professional associations, TB-patient networks and religious groups.
• Empowering TB patients and the affected community helps to
achieve timely diagnosis and treatment completion, especially among
families of TB patients.
• The Patients’ Charter for TB Care outlines the rights and
responsibilities of people with TB and makes the relationship
between patients and health-care providers a mutually beneficial
one.
What is ACSM?
Social mobilization
• Strengthening TB programmes in a sustainable way requires
involvement at many levels – individual, community, policy and
legislative. A single effort has less impact than collective effort.
Mobilizing resources, building partnerships, networking and
community participation are all key strategies for social
mobilization. Specific activities include group and community
meetings, partnership sessions, school activities, traditional
media, music, song and dance, road shows, community drama,
soap operas, puppet show, karaoke songs and contests. Other
activities unique to a particular country or region may provide
even better opportunities to engage and motivate individuals.
Important
Although distinct from one another,
advocacy, communication and social
mobilization (ACSM) are most effective
when used together. ACSM activities
should therefore be developed in parallel
and not separately.
Why is ACSM essential to the Stop TB strategy?
• The Stop TB global strategy has six major goals:
1) Pursue high-quality expansion and enhancement of
DOTS.
2) Address the co-occurrence of TB and HIV and MDR-
TB.
3) Contribute to strengthening of health systems.
4) Engage all caregivers.
5) Empower people with TB and their communities.
6) Enable and promote research.
• ACSM activities can be used to achieve all six goals.
Why is ACSM essential to the Stop TB strategy?
• Incorporating ACSM activities as an integral part of
reaching objectives set by national TB programmes
(NTPs) is an effective approach to TB control. Over
the years, ACSM has been used successfully to
address four key challenges:
 improving case detection and treatment adherence;
 combating stigma and discrimination;
 empowering people affected by TB;
 mobilizing political commitment and resources for
TB.
Examples of social mobilization activities
NTP strongly believes in the important role of the civil society
organizations and Non-Governmental Organizations (NGO's) in
view of their human and material capabilities.
NTP has signed Protocols of cooperation with a number of civil
society organizations in Egypt so that they can actively take part
in the activities listed in the plan of the Program. e.g.
• Anti-TB Association (All its branches in governorates)
• Women's Health promotion Association(all its branches in
govern.)
• Red Crescent Organization
• CARITAS Institution ( Alexandria and Menia)
How to identify TB control challenges that can be addressed
through ACSM
• TB control presents many challenges, such as:
 delayed detection and treatment;
 lack of access to TB treatment;
 difficulty in completing treatment;
 lack of knowledge and information about TB that can lead to
stigma, discrimination and delayed diagnosis and/or treatment;
 stigma and discrimination that can prevent people from seeking
care and diagnosis;
 misunderstandings and myths surrounding TB, including the
belief that it is “untreatable”;
 weak political support for TB programmes;
 insufficient funding for TB programmes.
How to identify TB control challenges that can be addressed
through ACSM
• ACSM strategies can contribute to addressing many of them
successfully.
• Inadequate funding and lack of political will has slowed both the
development of appropriate TB control policies and their
successful implementation at the central, district and local levels.
• Experience suggests that TB control services are negatively
affected if there is no strong commitment from particular sectors
of society, such as decision-makers, influential political and
community leaders.
• Public stigma is often the reason people with TB do not seek
diagnosis or care. Improved public education and awareness
about what causes TB, how it is transmitted and whether it can
be cured can help to mitigate the stigma, not only among health-
care workers but also among the general public.
Developing ACSM materials
1. Understanding the cycle of developing materials: draft–pre-test–
revise
• Developing initial drafts of materials and pre-testing them
ensures that the messages are effective.
• Knowing this will save time and money as it will ensure that
ineffective products are not mass produced and distributed.
• Pre-testing helps NTP programmes to ensure that people
understand the messages in the materials.
• Communities or individuals affected by TB should be brought
into the process even earlier to help create the materials. Staff
and partners with technical expertise should also be consulted to
ensure that all scientific and technical information is correct.
• Once results from pre-testing have been compiled and analysed,
materials can be revised to reflect the feedback received.
Developing ACSM materials
2. Identifying materials needed for different activities
• Several different types of materials can be developed to support
ACSM activities.
• Selecting channels that will be effective in reaching intended
populations is important. Leaflets placed in clinic waiting rooms,
for example, will not encourage more people to go to clinics to
get diagnosed and treated for TB.
• Place materials for intended populations in locations where the
target audience normally goes, such as markets, bus stations,
train stations, taxi and truck parks, schools, places of worship,
workplaces, union halls, community buildings where meetings
are held, and in front of the homes of village elders or other
places where people gather informally.
Developing ACSM materials
3. Selecting appropriate materials
• Development and production of materials can be time consuming
and costly. Before taking this step, determine whether new materials
are necessary.
• Communication materials such as booklets, leaflets, posters and
videotapes may already exist.
• Check for existing materials through the ministry of health, NGOs and
trusted Internet web sites. If you find any, decide whether they are
useful as they are or whether they need to be modified.
• In reviewing existing materials, ask the following questions:
 Are the messages accurate, current, complete, and relevant?
 Are the format, style and cultural considerations appropriate for the
targeted audience? If not, could they be modified easily?
 Will the materials meet the communication objectives?
Developing ACSM materials
3. Selecting appropriate materials
• In deciding whether to use existing materials, ask the original
producers several questions.
 Are the materials available?
 Can the NTP have permission to use the materials? Modify them?
 Would reprinting be easy?
 Are they affordable?
 How have they been used?
 How have they been received?
 Is there any information about their effectiveness?
Developing ACSM materials
4. Hiring experts to develop materials
• If the NTP decides to develop new materials, it might be necessary to
work with health communication or design experts – either within
the NTP or on a contract basis.
• It might seem easy to design and create effective, eye-catching
materials that deliver the intended message(s), but this is not always
so. Materials might be technically correct but, if the intended group
does not notice or relate to them, they will be ineffective.
• When working with an advertising agency or other external
consultant, consider the experience and previous products of the
professionals who will staff the effort.
• Consultants should understand the objectives and concerns of NTP as
well as all that has been learnt about the intended population,
particularly sensitive issues, as well as key content points and other
aspects that should be conveyed in the messages and materials.
Developing ACSM materials
4. Hiring experts to develop materials
• Other issues to consider are the type of pre-testing and approval
that will be required, when the pre-testing will occur, how long
pre-testing will take, how many rounds of revisions will be made,
and whether the creative consultants observe the pre-testing.
• If they listen to the reactions and concerns of the target
population it will help them develop messages and materials that
use appropriate language and ideas.
• Even if outside organizations are not used, the internal team
(ideally led by a communication expert) will need to consider all
the issues involved in pre-testing materials.
Developing ACSM materials
5. Pre-testing materials
• Pre-testing materials helps to ensure that the intended messages
are understood. Although colleagues can add useful input, testing
the materials with intended group members will give a sense of
their reactions. People who do the pre-testing may be internal or
external researchers, communication experts or members of the
creative team that has been hired to develop the materials.
• Pre-testing is not necessarily expensive. There are low-budget
methods and money-saving strategies to review materials among
intended groups, such as:
• Conduct focus groups in DOTS clinics with health staff and people
living with TB.
• Work with partner organizations to recruit participants and
conduct tests e.g. NGOs
Developing ACSM materials
5. Pre-testing materials
• Lower-cost options for pretesting
Conduct focus groups in DOTS clinics with health staff and people
living with TB.
Share materials with TB “clubs” or other TB groups.
Have communities or those affected by TB design, develop and test
materials and messages (for the general community).
• Other ways to reduce pretest costs
Work with partner organizations to recruit participants and conduct
tests (e.g., a place of worship, a clinic, patient educators’ clients).
THANK YOU

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ACSM

  • 1. Advocacy, communication and social mobilization (ACSM) for TB control ‫الس‬ ‫لمكافحة‬ ‫االجتماعية‬ ‫والتعبئة‬ ‫والتواصل‬ ‫الدعوة‬‫ل‬ Dr. Essam Elmoghazy Chairman of Cairo Association against Smoking , TB and Lung diseases- Egypt (CASTLE) Chairman of the Green Light Committee _ EMR
  • 2. What is ACSM? Advocacy • Advocacy seeks to ensure that governments remain strongly committed to implementing TB control policies. • Advocacy often focuses on influencing policy-makers, funders and international decision-making bodies through a variety of channels e.g. conferences and symposia, celebrity spokespeople, meetings between various levels of government and civil society organizations, news coverage, official memoranda of understanding (MOUs), partnership meetings.
  • 3. What is ACSM? Advocacy • The different types of advocacy:  Policy advocacy informs senior politicians and administrators how an issue will affect the country, and outlines actions to take to improve laws and policies.  Programme advocacy targets opinion leaders at the community level on the need for local action.  Media advocacy validates the relevance of a subject, puts issues on the public agenda, and encourages the media to cover TB-related topics regularly and in a responsible manner so as to raise awareness of possible solutions and problems
  • 4. Examples of advocacy activities • The celebration of the World TB Days • Choosing of celebrities as ambassadors of health in the field of combating TB. • Newsletters • Press interaction and interviews with editors of Egyptian newspapers.
  • 5. Meeting with the chiefs of Egyptian TV local channels
  • 6. Press interaction and interviews with editors of Egyptian newspapers
  • 8. Celebrities Hazem Imam takes part in Anti-TB campaign with the youths in Fayoum
  • 11. Celebrities Actress Laila Elwi was selected as an Ambassador of Health in the field of combating TB.
  • 18. Participation in events In the Book fair
  • 19. What is ACSM? Communication • Behaviour-change communication aims to change knowledge, attitudes and practices among various groups of people. It frequently informs the public of the services that exist for diagnosis and treatment and relays a series of messages about the disease – such as “seek treatment if you have a cough for more than two weeks”, “TB hurts your lungs” or “TB is curable”. • Effective behaviour-change communication and messages need to convey more than just the medical facts as, on their own, these facts do not necessarily motivate people to a visit a TB clinic or complete their treatment. The messages should explore the reasons why people do or do not take action on the information they receive, then focus on changing the actual behaviour by addressing the causes identified – social norms or personal attitudes for example.
  • 20. What is ACSM? Communication • Behaviour-change communication creates an environment through which affected communities can discuss, debate, organize and communicate their own perspectives on TB. It aims to change behaviour – such as persuading people with symptoms to seek treatment – and to foster social change, supporting processes in the community or elsewhere to spark debate that may shift social mores and/or eliminate barriers to new behaviour
  • 21. Examples of communication activities • Development of health education materials e.g. psters , brochures , radio and video drama and songs • Conducting health education sessions in different gatherings e.g. youth clubs , TB patients at chest diseases hospitals, workers at factories, school and university students, prisoners, refugees, inhabitants of poor districts, and many other categories of the society all over the governorates of Egypt.
  • 26. training to a working team at African Refugees' Program
  • 27. Health education sessions in women clubs
  • 29. 24/3/08Dr Eman Kamal29 Health education sessions with refugees
  • 35. What is ACSM? Social mobilization • Social mobilization brings together community members to strengthen community participation for sustainability and self reliance. • Social mobilization generates dialogue among a range of players that includes decision-makers, the media, NGOs, the private sector, professional associations, TB-patient networks and religious groups. • Empowering TB patients and the affected community helps to achieve timely diagnosis and treatment completion, especially among families of TB patients. • The Patients’ Charter for TB Care outlines the rights and responsibilities of people with TB and makes the relationship between patients and health-care providers a mutually beneficial one.
  • 36. What is ACSM? Social mobilization • Strengthening TB programmes in a sustainable way requires involvement at many levels – individual, community, policy and legislative. A single effort has less impact than collective effort. Mobilizing resources, building partnerships, networking and community participation are all key strategies for social mobilization. Specific activities include group and community meetings, partnership sessions, school activities, traditional media, music, song and dance, road shows, community drama, soap operas, puppet show, karaoke songs and contests. Other activities unique to a particular country or region may provide even better opportunities to engage and motivate individuals.
  • 37. Important Although distinct from one another, advocacy, communication and social mobilization (ACSM) are most effective when used together. ACSM activities should therefore be developed in parallel and not separately.
  • 38. Why is ACSM essential to the Stop TB strategy? • The Stop TB global strategy has six major goals: 1) Pursue high-quality expansion and enhancement of DOTS. 2) Address the co-occurrence of TB and HIV and MDR- TB. 3) Contribute to strengthening of health systems. 4) Engage all caregivers. 5) Empower people with TB and their communities. 6) Enable and promote research. • ACSM activities can be used to achieve all six goals.
  • 39. Why is ACSM essential to the Stop TB strategy? • Incorporating ACSM activities as an integral part of reaching objectives set by national TB programmes (NTPs) is an effective approach to TB control. Over the years, ACSM has been used successfully to address four key challenges:  improving case detection and treatment adherence;  combating stigma and discrimination;  empowering people affected by TB;  mobilizing political commitment and resources for TB.
  • 40. Examples of social mobilization activities NTP strongly believes in the important role of the civil society organizations and Non-Governmental Organizations (NGO's) in view of their human and material capabilities. NTP has signed Protocols of cooperation with a number of civil society organizations in Egypt so that they can actively take part in the activities listed in the plan of the Program. e.g. • Anti-TB Association (All its branches in governorates) • Women's Health promotion Association(all its branches in govern.) • Red Crescent Organization • CARITAS Institution ( Alexandria and Menia)
  • 41.
  • 42.
  • 43.
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  • 45. How to identify TB control challenges that can be addressed through ACSM • TB control presents many challenges, such as:  delayed detection and treatment;  lack of access to TB treatment;  difficulty in completing treatment;  lack of knowledge and information about TB that can lead to stigma, discrimination and delayed diagnosis and/or treatment;  stigma and discrimination that can prevent people from seeking care and diagnosis;  misunderstandings and myths surrounding TB, including the belief that it is “untreatable”;  weak political support for TB programmes;  insufficient funding for TB programmes.
  • 46. How to identify TB control challenges that can be addressed through ACSM • ACSM strategies can contribute to addressing many of them successfully. • Inadequate funding and lack of political will has slowed both the development of appropriate TB control policies and their successful implementation at the central, district and local levels. • Experience suggests that TB control services are negatively affected if there is no strong commitment from particular sectors of society, such as decision-makers, influential political and community leaders. • Public stigma is often the reason people with TB do not seek diagnosis or care. Improved public education and awareness about what causes TB, how it is transmitted and whether it can be cured can help to mitigate the stigma, not only among health- care workers but also among the general public.
  • 47. Developing ACSM materials 1. Understanding the cycle of developing materials: draft–pre-test– revise • Developing initial drafts of materials and pre-testing them ensures that the messages are effective. • Knowing this will save time and money as it will ensure that ineffective products are not mass produced and distributed. • Pre-testing helps NTP programmes to ensure that people understand the messages in the materials. • Communities or individuals affected by TB should be brought into the process even earlier to help create the materials. Staff and partners with technical expertise should also be consulted to ensure that all scientific and technical information is correct. • Once results from pre-testing have been compiled and analysed, materials can be revised to reflect the feedback received.
  • 48. Developing ACSM materials 2. Identifying materials needed for different activities • Several different types of materials can be developed to support ACSM activities. • Selecting channels that will be effective in reaching intended populations is important. Leaflets placed in clinic waiting rooms, for example, will not encourage more people to go to clinics to get diagnosed and treated for TB. • Place materials for intended populations in locations where the target audience normally goes, such as markets, bus stations, train stations, taxi and truck parks, schools, places of worship, workplaces, union halls, community buildings where meetings are held, and in front of the homes of village elders or other places where people gather informally.
  • 49. Developing ACSM materials 3. Selecting appropriate materials • Development and production of materials can be time consuming and costly. Before taking this step, determine whether new materials are necessary. • Communication materials such as booklets, leaflets, posters and videotapes may already exist. • Check for existing materials through the ministry of health, NGOs and trusted Internet web sites. If you find any, decide whether they are useful as they are or whether they need to be modified. • In reviewing existing materials, ask the following questions:  Are the messages accurate, current, complete, and relevant?  Are the format, style and cultural considerations appropriate for the targeted audience? If not, could they be modified easily?  Will the materials meet the communication objectives?
  • 50. Developing ACSM materials 3. Selecting appropriate materials • In deciding whether to use existing materials, ask the original producers several questions.  Are the materials available?  Can the NTP have permission to use the materials? Modify them?  Would reprinting be easy?  Are they affordable?  How have they been used?  How have they been received?  Is there any information about their effectiveness?
  • 51. Developing ACSM materials 4. Hiring experts to develop materials • If the NTP decides to develop new materials, it might be necessary to work with health communication or design experts – either within the NTP or on a contract basis. • It might seem easy to design and create effective, eye-catching materials that deliver the intended message(s), but this is not always so. Materials might be technically correct but, if the intended group does not notice or relate to them, they will be ineffective. • When working with an advertising agency or other external consultant, consider the experience and previous products of the professionals who will staff the effort. • Consultants should understand the objectives and concerns of NTP as well as all that has been learnt about the intended population, particularly sensitive issues, as well as key content points and other aspects that should be conveyed in the messages and materials.
  • 52. Developing ACSM materials 4. Hiring experts to develop materials • Other issues to consider are the type of pre-testing and approval that will be required, when the pre-testing will occur, how long pre-testing will take, how many rounds of revisions will be made, and whether the creative consultants observe the pre-testing. • If they listen to the reactions and concerns of the target population it will help them develop messages and materials that use appropriate language and ideas. • Even if outside organizations are not used, the internal team (ideally led by a communication expert) will need to consider all the issues involved in pre-testing materials.
  • 53. Developing ACSM materials 5. Pre-testing materials • Pre-testing materials helps to ensure that the intended messages are understood. Although colleagues can add useful input, testing the materials with intended group members will give a sense of their reactions. People who do the pre-testing may be internal or external researchers, communication experts or members of the creative team that has been hired to develop the materials. • Pre-testing is not necessarily expensive. There are low-budget methods and money-saving strategies to review materials among intended groups, such as: • Conduct focus groups in DOTS clinics with health staff and people living with TB. • Work with partner organizations to recruit participants and conduct tests e.g. NGOs
  • 54. Developing ACSM materials 5. Pre-testing materials • Lower-cost options for pretesting Conduct focus groups in DOTS clinics with health staff and people living with TB. Share materials with TB “clubs” or other TB groups. Have communities or those affected by TB design, develop and test materials and messages (for the general community). • Other ways to reduce pretest costs Work with partner organizations to recruit participants and conduct tests (e.g., a place of worship, a clinic, patient educators’ clients).