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Special issue: featuring our annual report
Mark Your Calendar

JAN.

13
3
FEB.

MAR.

4

CPR class for parents and
teens age 14 and older
6 p.m. to 10 p.m.
Children’s Hospital’s Koppel Plaza Building
(Meschendorf Conference Room)
Class costs $25.

Call 865-541-8262 to register. Learn CPR so
you can respond to emergencies in your home.

National Pancake Day
7 a.m. to 10 p.m.
All IHOP restaurants
Get a free short stack of pancakes; then donate
to Children’s Miracle Network Hospitals.
Visit www.ihoppancakeday.com for more
information. All funds raised locally go
directly to Children’s Hospital to help
purchase medical equipment.

2

It’s About Children, Issue 4 • 2013
Spotlight
4
JAN.

25
15
FEB.

Through

DEC.

21

Alexander Toth
is full of energy
and happiness–no
more so than when
he’s racing for glory
during one of his
weekly visits to
the hospital.

Safe Sitter class for teens
age 14 and older
9 a.m. to 3 p.m.
Children’s Hospital’s Koppel Plaza Building
(Meschendorf Conference Room)
Class costs $25.

Call 865-541-8262 to register. Learn correct
babysitting techniques, emergency responses
and how to use babysitting as a business.

Charlie Brown merchandise
Kohl’s department stores
Books, plush toys, a backpack and note
cards are $5 each.

Visit www.kohls.com for more information.
All net profits from local stores will help
fund our helmet safety program.

FEB.

Young man,
start your
scooter

MEDIC blood drive

7 a.m. to 4 p.m.
Children’s Hospital’s Koppel Plaza Building
(Meschendorf Conference Room)
It is free.

Call 865-541-8165 for more information. One
donation can help up to three people. Donors
must be at least 17 years old, weigh more than
110 pounds and have an ID.
Donate at www.etch.com/ItsAboutChildren

9
24

Real heroes
Children’s Hospital would not be
the extraordinary place it is without
our heroes. And their super powers
are even more exceptional than those
found in comic books. Learn more
in our annual report.

Supporting health
care in schools

We are funding 10 additional school
nurses in 13 Title I Knox County
elementary schools for the next
three years.

Connect with us:
www.etch.com/ItsAboutChildren

It’s About Children is a publication
of the Marketing Department at
East Tennessee Children’s Hospital.
Editor: Paul Parson
Designer: Deborah Hosterman
Cover photo by Michael Dayah
3
Young man,
start your
scooter
Story by E. Anderson
Photos by Michael Dayah
continued on page 6

4

It’s About Children, Issue 4 • 2013
Donate at www.etch.com/ItsAboutChildren

5
continued from page 4

 	
It’s Wednesday morning in the East Tennessee Children’s
Hospital Hematology/Oncology Clinic. The clinic is designed
with a circular floor plan—perfect for little Alexander Toth’s
favorite activity. As he flies around the nurses’ station on his
scooter, anticipating his dad Dustin hiding around the corner,
the 2-year-old is only a blur of blond curls and high-pitched
laughter.
	
But just a year ago, Alexander could do little more than
rest those curls on his dad’s shoulder, moaning and wincing
in pain, while unknowingly fighting a life-threatening disease.
Today, thanks to Children’s Hospital, Alexander is full of energy
and happiness—no more so than when he’s racing for glory
in the weekly Hem/Onc 500.

WARNING SIGNS
	
Alexander’s health problems began innocently enough,
with a skin rash and flakes on his scalp. Doctors told the Toths
it was cradle cap, a common ailment for infants. Then, in
August 2012, he developed a rash on his abdomen and a high
fever. Chronic ear infections also led doctors to put tubes in his
ears—but the problems persisted.
	
“There were all of these constant little things that would
send us in a bunch of different directions and to different
specialists. We didn’t realize then that it was one thing that
was causing all the problems,” Dustin said.
	
Dustin and his wife, Hollie, who work staggered schedules
so one of them can stay at home with Alexander and his
older siblings, Samantha and Xavier, knew that something
was seriously wrong with their son.
	
“I would spend my week with him on my shoulder,
with him just twirling his curls and crying. We called him The
Grumbler, because he was just so unhappy and would grumble
all the time,” Dustin said.

6

A ROAD MAP
FOR TREATMENT
	
For months, the Toths treated Alexander’s various
symptoms. But when the toddler’s belly became swollen
because of an enlarged liver, they rushed Alexander to the
Children’s Hospital Emergency Department, where, after
testing, he was diagnosed with Langerhans cell histiocytosis
(LCH). The disease is caused when the body has too many
Langerhans cells—a type of white blood cell that helps the
body fight infection. These cells can build up and cause
tumors or damage organs. Susan Spiller, M.D., a pediatric
oncologist at Children’s Hospital, said symptoms can vary from
mild to life-threatening, like Alexander’s.
	
“These cells just start to grow uncontrollably and create a
lot of different issues,” she said. “In Alexander’s case, there is
multi-organ involvement. It infiltrates everything. In a case like
his, we suggested intense treatment, which gave him a better
than 50 percent chance of getting it under control.”
	
For Alexander’s mom, getting a diagnosis meant the first
step to getting her little boy healthy.
	
“It was a relief to finally get an answer,” Hollie said. “It
felt good to know that it was all tied together, and we could
start treatment.”

It’s About Children, Issue 4 • 2013
The Toths credit Children’s Hospital with calming any
anxiety they felt about Alexander’s diagnosis.
	
“When we were in the Emergency Department, we had
six different specialists come in and talk to us and connect
notes,” Dustin said. “We were fearful for a minute, but they
had a road map laid in front of us for him, which helped ease
our minds.”
	
For more than a year, the Toths traveled from their home
in Mohawk, Tenn., more than an hour to Knoxville where
Alexander underwent chemotherapy at Children’s Hospital.
	
“I have been so impressed with Children’s Hospital,” Dustin
said. “We’re very active and hands-on. I don’t want him to go
through something I can’t be a part of, and they allow us to be
that way,” he said. “You know they are doing everything they
can every day to get the best results for the kids. The awesome
team is part of the reason we were able to stay so positive.”
	

DETERMINED TO WIN
	
Alexander has had an amazing response to the
chemotherapy, Dr. Spiller said.
	
“It was a gradual uphill and gradual downhill for them,
but to see him laughing and giggling today, it’s hard to
remember how sick he was when he first came in,” she said.
continued on page 8

Donate at www.etch.com/ItsAboutChildren

7
continued from page 7

	
Hollie said Wednesdays, Alexander’s clinic day, are his
favorite. The Toths bring Alexander’s trusty red Radio Flyer
scooter to his appointments.
	
“At first, the scooter was just Alexander’s way of
keeping up with his brother and sister. Everything hit him at a
prime development stage, so he lost some of his functioning.
He used the scooter as his aid to get around. But now he rides
circles around the house,” Dustin said. “And we have the best
time at the hospital. He rides around and around. He’s finally
enjoying life.”
	
Dustin is grateful for the improvement in his son and hopes
that the obstacles he’s had to face will help him in the future.
	
“You always hope for the best for all your children, but
Alexander’s had to live through so much—and he’s taken it all
in stride. I just pray that the resilience he was born with and
forced to use will carry him for the rest of his life.”

just the facts:
Langerhans cell histiocytosis
	
	
	
	
	
	
	
8

Has no known cause.
Occurs when the body accumulates too many 		
Langerhans cells, a type of white blood cell that
is supposed to help the body fight infection. The 	
cells can build up in certain parts of the body,
causing tumors or damaging organs.
May only affect one area of the body, such

	
	
	
	
	
	
	

as the skin or the bone, or it may affect
multiple systems.
Is treated with cortisone shots, surgery or
chemotherapy for the most extreme cases.
Believed to occur in one out of every 200,000 		
children, though is often under-diagnosed when 	
symptoms are mild.
It’s About Children, Issue 4 • 2013
Donate at www.etch.com/ItsAboutChildren

9
Hero is a word that can be applied to people
who do extraordinary things in sometimes
extraordinary circumstances. Oftentimes, heroes
are people who exhibit inspiring works of bravery
when the situation calls for it.
	
Walking through our hospital, I see heroes
every day. Heroic children who are battling illnesses
and injuries. Heroic doctors, nurses and staff
members who do everything they can to ensure
these children go on to lead healthy, productive
lives. We are proud of our hospital and our more
than 1,900 employees who make a lifesaving
impact every day.
	 As donors, you are heroes—champions—
for all of our patients at East Tennessee

Children’s Hospital. You enabled us to have an
incredible year, managing 148,140 patient visits
in the hospital.
	
You’ve helped us become the largest pediatric
clinical care provider in East Tennessee and
allowed us to care for our most vulnerable
patients—nearly 800 premature and critically ill
newborn babies.
	
We are excited to share with you our
accomplishments—and our heroes—in this
year’s annual report. And we’re even more excited
about looking forward to the future. With your
help, we will continue to make a difference and
allow our little heroes to grow up and become
heroes to their own children.

Keith Goodwin
President and CEO

10

It’s About Children, Issue 4 • 2013
continued on page 12

Donate at www.etch.com/ItsAboutChildren

11
More than

30
pediatric

specialties

only
Comprehensive

Regional Pediatric
Center in East
Tennessee
continued from page 11

	
They come in all shapes, sizes and ages. Some
of them wear lab coats. Others wear surgical gowns
and masks. There are even a few, as in the case of
some of our volunteers, who don fairy wings when
the occasion calls for it.
	
Our heroes make a difference every day. And
their super powers are even more exceptional than
those found in comic books. Nurses who ease nerves
while checking vitals. Doctors who create treatment
plans to give our young patients the best chance at
healthy futures. Child life specialists who hold a
shaky hand and turn fear into fun. Anesthesiologists
who take away the pain. Volunteers who soothe a
crying baby to sleep with a lullaby. Athletes and
special visitors who raise spirits just by saying hello.
	
Children’s Hospital would not be the
extraordinary place it is without our heroes,
including our donors. Your support helps fund a

12

significant portion of the lifesaving equipment and
innovative treatment we use for our patients.
The daily care we provide with help from our
donors makes a significant impact to the children
of our community.
	
This can easily be seen in our busy Emergency
Department, where last year we had 71,764 patient
visits. Because we care for more children needing
emergency care than anyone else in East Tennessee,
our doctors and nurses are equipped to treat
everything from minor injuries to major medical
concerns. We understand we are caring for patients
who need a special kind of treatment—not only to
make them well, but also to make them feel
comfortable and safe.
	
Our heroes are also busy offering pediatric
specialty care like the team from our Cleft and
Craniofacial Clinic, which was officially approved

It’s About Children, Issue 4 • 2013
More than

400
doctors

152
beds

as a Cleft Palate Team by the American Cleft
Palate-Craniofacial Association and Cleft Palate
Foundation in January. Or, our Cystic Fibrosis Care
Center, which is accredited by the Cystic Fibrosis
Foundation.
	
In addition to the care we provide every day, we
strive to be pioneers. We are at the forefront of care
in treating neonatal abstinence syndrome (NAS), a
condition that stems from the country’s prescription
drug epidemic. Tennessee ranks among the top states
in prescription drug abuse, and Children’s Hospital
developed the treatment protocol for NAS after
seeing its impact.
	
Our heroic efforts also extend beyond the
hospital. We sponsor the Knoxville Area Coalition
on Childhood Obesity, which works to decrease the
number of overweight and obese children in East
Tennessee. We also run Project ADAM Tennessee,
a program that works with school systems to prevent
sudden cardiac deaths.
	
But of course, the most important heroes of
Children’s Hospital are the bravest of them all. The
ones who wear pink pajamas featuring their favorite
Disney princesses. The ones who dream of being
professional baseball players or teachers. The ones
in your family, your school and your community.
	
There’s your little neighbor, who’s been
fighting for her life since the day she was born—
battling a rare cancer that requires intense chemotherapy treatments. Your 15-year-old son, whose life
is often put on hold for treatment and hospitalization
for his cystic fibrosis. Your 8-year-old nephew, who
is finally feeling well enough to go back to soccer
practice after undergoing ear tube surgery.
	
These everyday heroes are the ones we most
celebrate. And they’re the reason we are committed
to making Children’s Hospital the best place for
pediatric care in East Tennessee.

Donate at www.etch.com/ItsAboutChildren

13
148,140
patient visits

148,015 in FY12; 149,295 in FY11

72,575
patients

71,914 in FY12; 71,478 in FY11

261,558

physician practice visits
257,514 in FY12; 261,342 in FY11

71,764

Emergency Department visits
66,068 in FY12; 66,628 in FY11

10,918
surgeries

10,844 in FY12; 10,952 in FY11

313

babies treated for drug dependency
168 in FY12; 82 in FY11

14

330
transports
864,762
website visits
We are a trusted source of
pediatric health care information
for East Tennessee families.

It’s About Children, Issue 4 • 2013
Donate at www.etch.com/ItsAboutChildren

15
FY13 6091
FY12 5941
FY11 5976

Hospital Admissions
FY13 6091 Visits
Outpatient
FY12 5941
FY13 142,049
FY11 5976
FY12 142,074
FY11 143,318

Hospital admissions
Outpatient Visits
NICU Patient
FY13 142,049Visits
FY13 790
FY12 142,074
FY12 646
FY11 143,318
FY11 600

ital Admissions
6091
5941
5976

al Admissions
091
atient Visits
941
142,049
976
142,074
143,318

FY11
FY13 FY12 5,976
6,091 5,941

atient Visits
e Health Visits
59
16
21,810
15
17,584
00

NICU Patient Visits
PICU Patient Visits
FY13 790
FY13 559
FY12 646
FY12 615
FY11 600
FY11 600

Outpatient visits

FY13
790

FY12
646

FY11
600

Pediatric Intensive Care Unit (PICU)
patient visits

PICU Patient Visits
Home Health Visits
FY13 559
FY13 21,810
FY12 615
FY12 17,584
FY11 600
FY11 16,120

tient Visits
Patient
42,049 Visits
790
42,074
646
43,318
600

Patient Visits
Patient Visits
90
559
46
615
00
600

Neonatal Intensive Care Unit (NICU)
patient visits

FY11
FY12
FY13
170,757
168,355 168,517

Home Health Visits
FY13 21,810
FY12 17,584
FY11 16,120
Hours for Evaluation
FY13 15,266
FY12 14,441
FY11 15,858

Hours for Evaluation
FY13 15,266
FY12 14,441

FY13
559

FY12
615

FY11
600

It’s About Children, Issue 4 • 2013
Outpatient activity
21,810
20,444

10,453
9,290
6,836
4,673

3,901

2,913 2,336

Home Health
Gastroenterology
Endocrinology
Pulmonology
Physiatry
Cardiology
Hematology/oncology
Diabetes
Urology

Donate at www.etch.com/ItsAboutChildren

1,235

570 379 348

348

259 132

91

Nephrology
Cystic fibrosis
Psychology
Infectious disease
Rheumatology
Weight management
Dermatology
Gynecology

17
12

7

therapy dogs

18

iPads

Visits from these
furry friends help
ease anxiety and
promote shorter
recovery times for
our patients.

Used daily to help
educate children
about their care and provide
them with much-needed
distractions during
uncomfortable
medical procedures.

24,980

9,925

Our child life
specialists help
educate patients about
their illnesses and
treatments.

Because our
patients range from infants
to 21-year-olds, child
life specialists must be
prepared with a variety of
activities to support
them during stressful
experiences and
painful procedures.

patient interactions

distractions

It’s About Children, Issue 4 • 2013
52,784
volunteer hours

This represents a $1,339,657.92
cost-savings. It is equivalent to
providing more than 6,300
chest X-rays.

12,573

Spanish translation requests
This is a 27.27 percent increase since FY11.

We are the only hospital in Knoxville
with interpreters on staff.

Donate at www.etch.com/ItsAboutChildren

19
58

medical fellows,
residents and students

1,798

nursing students

302

students in other
health care positions,
such as respiratory
therapists, emergency
technicians and surgical
technicians

We provide pediatric clinical training to more than 70 hospitals, universities and institutions.

6,750

hospital rounds
For the safety of our patients and staff,
we employ full-time security officers 24 hours
a day, seven days a week.

20

It’s About Children, Issue 4 • 2013
5,698,12007

$

in donations

Visit www.etch.com/donors to see a list of
our donors who contributed $100 or more
in FY13, listed by giving levels.

Donate at www.etch.com/ItsAboutChildren

21
518,55413/day
$
189,272,25800/year

1,900

$

employees

the cost to operate Children’s Hospital

3%
Other

35%

FY13

Commercial

Payer mix

62%

Medicaid/TennCare

416

$

Gross revenue
Deductions from revenue
Expenses
Net gain
Debt

234

$

160

$

30

$

41.5

$

(millions)

22

It’s About Children, Issue 4 • 2013
Patient
population
609

1,212

Virginia

Kentucky

144,680
Tennessee

1,639 Other states

East Tennessee counties
	Anderson	

7,330
12,386

	Blount	
	 Campbell 	
	 Claiborne 	
	Cocke	
	Grainger	
	Hamblen	
	Jefferson	

3,928
2,042
2,038
2,051
3,310
4,698

69,932

	Knox	
	Loudon	
	Monroe	
	Morgan	
	Roane	

4,708
3,137
1,922
3,390

	Scott	 2,186
	Sevier	
11,574
	Union	
2,694

Donate at www.etch.com/ItsAboutChildren

23
News

Supporting health
care in schools
 	
Children’s Hospital is funding 10 additional school nurses in 13
Title I Knox County elementary schools for the next three years.
	
“This very generous gift to the students of Knox County will have a
major impact on student health, facilitate family engagement and improve
health education, resulting in an improvement in classroom performance
and school attendance,” said Dr. Jim McIntyre, Superintendent of
Knox County Schools.
	
“The health and wellness of children are our top priorities,” said
Keith Goodwin, President and CEO of Children’s Hospital. “We’re happy
to help fund these positions because we believe the school nurse plays a
pivotal role in the health and well-being of students. Children’s Hospital
conducted a community health assessment to identify gaps in services
to children of this community, and we recognize that when children are
healthy, they’re better prepared to learn, happier and able to be more
actively engaged in school.”

24

The new school nurses are
in the following schools:
• Beaumont
• Belle Morris
• East Knox
• Green Magnet
• Inskip
• Lonsdale
• Maynard
• Mooreland Heights
• Norwood
• Pond Gap
• South Knox
• Spring Hill
• West View

It’s About Children, Issue 4 • 2013
Invest in a healthy
future for children
If you are age 70 and a half or older, you can make charitable gifts to
East Tennessee Children’s Hospital using funds from your individual
retirement accounts (IRAs) without undesirable tax effects.
• You can make a tax-free transfer up to $100,000 from an
IRA to Children’s Hospital until Dec. 31, 2013.
• These transfers would fulfill some or all of your required minimum
distribution without increasing taxable income.

Call our Development Department at 865-541-8441 for assistance.
Donate at www.etch.com/ItsAboutChildren

25
Your Dollars at Work

The colorful world of charity

	
For the second time this year, Children’s Hospital benefited
from a little colorful mayhem. A portion of the proceeds from
the August Color Me Rad 5K—more than $16,000—was donated
to the hospital. The money will be used to help provide critical
health care services to our pediatric patients.
	 “We knew Children’s Hospital was a great hospital from the
beginning. But after several visits there, we saw f irsthand how
truly amazing they are and what incredible love and support they
give to the patients and their families,” said Kristine Peterson,
Race Director.
	 The August 5K had more than 5,500 participants who ran the
3.1-mile course while being bombarded with color. The color is
FDA-approved colored cornstarch, and almost 5,000 pounds of it
were used for the race. The event was inspired by the Holi Festival
in India.
	 “We want this event to be memorable, fun and messy,” said
race organizer Scott Crandall. “This is the most fun you can have
while running.”

26

It’s About Children, Issue 4 • 2013
In memory of Claire

	
Curing Kids Cancer learned about Children’s
Hospital through Peggy Gillen, Program and Events
Director for the nonprofit charity. Gillen’s niece, Claire
Hayes, was a patient at Children’s Hospital, where she
battled both Ewing’s sarcoma, which is a rare bone
cancer, and acute myeloid leukemia.
	
The teenager passed away this past April. In her
memory, Curing Kids Cancer recently donated $25,000
to support our Hematology/Oncology Clinic. The
money was raised through the AT&T Curing Kids
Cancer Golf Classic in Georgia.
	
Curing Kids Cancer was founded by Grainne
and Clay Owen after losing their 9-year-old son to
leukemia in 2003. Since its founding in 2005, the
Atlanta-based charity has raised more than $2 million
for pediatric cancer research.

Charles Hayes, Claire’s father, hugs Alissa Kennedy,
one of the nurses who treated his daughter.

Donate at www.etch.com/ItsAboutChildren

27
Your Dollars at Work

Friends making a difference

	
Great friends. You know, the people you can count on
when you really need them, the people who are there day
after day, year after year supporting you in all kinds of ways.
Where would you be without them?
	
Children’s Hospital has great friends, too. The generosity
of our donors this past year enabled the hospital to raise
$5.7 million, to purchase $2.5 million in new equipment
and to fund $1 million for our upcoming expansion project.
	
In 2012, as a way of expressing our gratitude to our great
friends, a tradition of an annual donor appreciation dinner
and the giving of the Goodfriend Family Award was started.
	
The Goodfriend Family Award was established to
honor an individual, family, foundation or business whose
support has been both exceptionally generous and sustained
throughout the years. The first recipient of the award, and for
whom the award is named, was the Robert M. Goodfriend
family.
	
This year, in honor of their dedication to Children’s
Hospital, the Goodfriend Family Award was given to the

Regal Entertainment Group and Will Rogers Institute.
Accepting the award on the firm’s behalf was Ted Cooper,
Chairman of Will Rogers Institute and Senior Vice President
of Film for Regal Entertainment Group.
	
Since 1994, Regal Entertainment Group and Will Rogers
Institute have supported Children’s Hospital through event
sponsorships, funding of hospital equipment and in-kind
gifts. Regal also provided funding for the renovation of our
lobby and surgery waiting room as well as updates to the
surgery area.
	
“Children’s Hospital is grateful for all Regal
Entertainment Group and Will Rogers Institute have done
not only for this hospital, but for the children of East
Tennessee,” said Carlton Long, Vice President for
Development and Community Services. “Their support, as
well as the generosity of all our donors, has helped Children’s
Hospital offer not only exceptional, comprehensive, familycentered care but also a comforting and healing environment
as well.”

Keith Goodwin, President and CEO of Children’s Hospital; Ted Cooper, Chairman of Will Rogers Institute and
Senior Vice President of Film for Regal Entertainment Group; and Robert (Bob) M. Goodfriend

28

It’s About Children, Issue 4 • 2013
Every coin matters

	
Jack Ryan, Merle FM afternoon host, recently
undertook a unique fundraising event to benefit
Children’s Hospital. One of our avid supporters,
Ryan gives Children’s Hospital credit for saving his
daughter’s life.
	
“When someone saves your child’s life, you can’t
help but want to repay them for it, however you can.
In my line of work, I am able to use the power of radio
to talk about the wonders of Children’s Hospital to a
large audience and encourage my listeners to give to the
hospital, to volunteer or to become involved however
they are able,” said Ryan. “Our entire family believes
in the miracles that are happening every day at
Children’s Hospital. We know from experience that
the entire staff is fully dedicated to healing children

from their aches, pains and sickness.”
	
For two weeks, Merle the Squirrel and the Merle
Monster Truck visited various Food City, Applebee’s and
Clayton Homes locations as well as the Anderson County Fair to collect 1 million coins for Children’s Hospital.
To encourage people to give, Ryan gave anyone donating
$10 or more in coins a ticket to the Ashton Shepherd
concert in July.
	
Through Ryan’s efforts, $5,666.06 was raised for
our Radiology Department.
	
“Ryan’s event is a great example of how even
the loose change in our purses and pockets can help
children,” said Carlton Long, Vice President for
Development and Community Services at Children’s
Hospital.

Jack Ryan, Merle FM afternoon host
Donate at www.etch.com/ItsAboutChildren

29
30

It’s About Children, Issue 4 • 2013
Thank you to all of the
sponsors and volunteers
who made this year’s
Fantasy of Trees possible.
Major sponsors

Donate at www.etch.com/ItsAboutChildren

31
NON-PROFIT
ORGANIZATION
U.S. POSTAGE

PAID

PERMIT 433
KNOXVILLE, TN

2018 Clinch Ave. • P.O. Box 15010
Knoxville, Tennessee 37901-5010
RETURN SERVICE REQUESTED

Nothing puts a smile on aNothing puts a smile on a child’s face quicker than getting a gift— child’s face quicker than getting a gift
We always try to stay current with friends of the hospital.
If for any reason you should receive a duplicate issue or
need to update your address, please notify the hospital at
865-541-8723 or LAMadigan@etch.com.

Nothing puts a smile on a child’s face quicker than getting a gift...
	 ...especially when that child is spending the
holidays in the hospital.
	 It’s not always possible to visit a sick child in
the hospital. We are happy to help you let a special
patient and concerned parents know you are thinking
of them. Call us at 865-541-8103, and we will help
you pick out the perfect gift.
	 Phone orders are accepted from 9 a.m. to
5 p.m. Monday to Friday and will be delivered to
the patient the same day. There is no charge
for delivery. We accept Visa and MasterCard.

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It's About Children - Winter 2013 Issue by East Tennessee Children's Hospital

  • 1. Special issue: featuring our annual report
  • 2. Mark Your Calendar JAN. 13 3 FEB. MAR. 4 CPR class for parents and teens age 14 and older 6 p.m. to 10 p.m. Children’s Hospital’s Koppel Plaza Building (Meschendorf Conference Room) Class costs $25. Call 865-541-8262 to register. Learn CPR so you can respond to emergencies in your home. National Pancake Day 7 a.m. to 10 p.m. All IHOP restaurants Get a free short stack of pancakes; then donate to Children’s Miracle Network Hospitals. Visit www.ihoppancakeday.com for more information. All funds raised locally go directly to Children’s Hospital to help purchase medical equipment. 2 It’s About Children, Issue 4 • 2013
  • 3. Spotlight 4 JAN. 25 15 FEB. Through DEC. 21 Alexander Toth is full of energy and happiness–no more so than when he’s racing for glory during one of his weekly visits to the hospital. Safe Sitter class for teens age 14 and older 9 a.m. to 3 p.m. Children’s Hospital’s Koppel Plaza Building (Meschendorf Conference Room) Class costs $25. Call 865-541-8262 to register. Learn correct babysitting techniques, emergency responses and how to use babysitting as a business. Charlie Brown merchandise Kohl’s department stores Books, plush toys, a backpack and note cards are $5 each. Visit www.kohls.com for more information. All net profits from local stores will help fund our helmet safety program. FEB. Young man, start your scooter MEDIC blood drive 7 a.m. to 4 p.m. Children’s Hospital’s Koppel Plaza Building (Meschendorf Conference Room) It is free. Call 865-541-8165 for more information. One donation can help up to three people. Donors must be at least 17 years old, weigh more than 110 pounds and have an ID. Donate at www.etch.com/ItsAboutChildren 9 24 Real heroes Children’s Hospital would not be the extraordinary place it is without our heroes. And their super powers are even more exceptional than those found in comic books. Learn more in our annual report. Supporting health care in schools We are funding 10 additional school nurses in 13 Title I Knox County elementary schools for the next three years. Connect with us: www.etch.com/ItsAboutChildren It’s About Children is a publication of the Marketing Department at East Tennessee Children’s Hospital. Editor: Paul Parson Designer: Deborah Hosterman Cover photo by Michael Dayah 3
  • 4. Young man, start your scooter Story by E. Anderson Photos by Michael Dayah continued on page 6 4 It’s About Children, Issue 4 • 2013
  • 6. continued from page 4   It’s Wednesday morning in the East Tennessee Children’s Hospital Hematology/Oncology Clinic. The clinic is designed with a circular floor plan—perfect for little Alexander Toth’s favorite activity. As he flies around the nurses’ station on his scooter, anticipating his dad Dustin hiding around the corner, the 2-year-old is only a blur of blond curls and high-pitched laughter. But just a year ago, Alexander could do little more than rest those curls on his dad’s shoulder, moaning and wincing in pain, while unknowingly fighting a life-threatening disease. Today, thanks to Children’s Hospital, Alexander is full of energy and happiness—no more so than when he’s racing for glory in the weekly Hem/Onc 500. WARNING SIGNS Alexander’s health problems began innocently enough, with a skin rash and flakes on his scalp. Doctors told the Toths it was cradle cap, a common ailment for infants. Then, in August 2012, he developed a rash on his abdomen and a high fever. Chronic ear infections also led doctors to put tubes in his ears—but the problems persisted. “There were all of these constant little things that would send us in a bunch of different directions and to different specialists. We didn’t realize then that it was one thing that was causing all the problems,” Dustin said. Dustin and his wife, Hollie, who work staggered schedules so one of them can stay at home with Alexander and his older siblings, Samantha and Xavier, knew that something was seriously wrong with their son. “I would spend my week with him on my shoulder, with him just twirling his curls and crying. We called him The Grumbler, because he was just so unhappy and would grumble all the time,” Dustin said. 6 A ROAD MAP FOR TREATMENT For months, the Toths treated Alexander’s various symptoms. But when the toddler’s belly became swollen because of an enlarged liver, they rushed Alexander to the Children’s Hospital Emergency Department, where, after testing, he was diagnosed with Langerhans cell histiocytosis (LCH). The disease is caused when the body has too many Langerhans cells—a type of white blood cell that helps the body fight infection. These cells can build up and cause tumors or damage organs. Susan Spiller, M.D., a pediatric oncologist at Children’s Hospital, said symptoms can vary from mild to life-threatening, like Alexander’s. “These cells just start to grow uncontrollably and create a lot of different issues,” she said. “In Alexander’s case, there is multi-organ involvement. It infiltrates everything. In a case like his, we suggested intense treatment, which gave him a better than 50 percent chance of getting it under control.” For Alexander’s mom, getting a diagnosis meant the first step to getting her little boy healthy. “It was a relief to finally get an answer,” Hollie said. “It felt good to know that it was all tied together, and we could start treatment.” It’s About Children, Issue 4 • 2013
  • 7. The Toths credit Children’s Hospital with calming any anxiety they felt about Alexander’s diagnosis. “When we were in the Emergency Department, we had six different specialists come in and talk to us and connect notes,” Dustin said. “We were fearful for a minute, but they had a road map laid in front of us for him, which helped ease our minds.” For more than a year, the Toths traveled from their home in Mohawk, Tenn., more than an hour to Knoxville where Alexander underwent chemotherapy at Children’s Hospital. “I have been so impressed with Children’s Hospital,” Dustin said. “We’re very active and hands-on. I don’t want him to go through something I can’t be a part of, and they allow us to be that way,” he said. “You know they are doing everything they can every day to get the best results for the kids. The awesome team is part of the reason we were able to stay so positive.” DETERMINED TO WIN Alexander has had an amazing response to the chemotherapy, Dr. Spiller said. “It was a gradual uphill and gradual downhill for them, but to see him laughing and giggling today, it’s hard to remember how sick he was when he first came in,” she said. continued on page 8 Donate at www.etch.com/ItsAboutChildren 7
  • 8. continued from page 7 Hollie said Wednesdays, Alexander’s clinic day, are his favorite. The Toths bring Alexander’s trusty red Radio Flyer scooter to his appointments. “At first, the scooter was just Alexander’s way of keeping up with his brother and sister. Everything hit him at a prime development stage, so he lost some of his functioning. He used the scooter as his aid to get around. But now he rides circles around the house,” Dustin said. “And we have the best time at the hospital. He rides around and around. He’s finally enjoying life.” Dustin is grateful for the improvement in his son and hopes that the obstacles he’s had to face will help him in the future. “You always hope for the best for all your children, but Alexander’s had to live through so much—and he’s taken it all in stride. I just pray that the resilience he was born with and forced to use will carry him for the rest of his life.” just the facts: Langerhans cell histiocytosis 8 Has no known cause. Occurs when the body accumulates too many Langerhans cells, a type of white blood cell that is supposed to help the body fight infection. The cells can build up in certain parts of the body, causing tumors or damaging organs. May only affect one area of the body, such as the skin or the bone, or it may affect multiple systems. Is treated with cortisone shots, surgery or chemotherapy for the most extreme cases. Believed to occur in one out of every 200,000 children, though is often under-diagnosed when symptoms are mild. It’s About Children, Issue 4 • 2013
  • 10. Hero is a word that can be applied to people who do extraordinary things in sometimes extraordinary circumstances. Oftentimes, heroes are people who exhibit inspiring works of bravery when the situation calls for it. Walking through our hospital, I see heroes every day. Heroic children who are battling illnesses and injuries. Heroic doctors, nurses and staff members who do everything they can to ensure these children go on to lead healthy, productive lives. We are proud of our hospital and our more than 1,900 employees who make a lifesaving impact every day. As donors, you are heroes—champions— for all of our patients at East Tennessee Children’s Hospital. You enabled us to have an incredible year, managing 148,140 patient visits in the hospital. You’ve helped us become the largest pediatric clinical care provider in East Tennessee and allowed us to care for our most vulnerable patients—nearly 800 premature and critically ill newborn babies. We are excited to share with you our accomplishments—and our heroes—in this year’s annual report. And we’re even more excited about looking forward to the future. With your help, we will continue to make a difference and allow our little heroes to grow up and become heroes to their own children. Keith Goodwin President and CEO 10 It’s About Children, Issue 4 • 2013
  • 11. continued on page 12 Donate at www.etch.com/ItsAboutChildren 11
  • 12. More than 30 pediatric specialties only Comprehensive Regional Pediatric Center in East Tennessee continued from page 11 They come in all shapes, sizes and ages. Some of them wear lab coats. Others wear surgical gowns and masks. There are even a few, as in the case of some of our volunteers, who don fairy wings when the occasion calls for it. Our heroes make a difference every day. And their super powers are even more exceptional than those found in comic books. Nurses who ease nerves while checking vitals. Doctors who create treatment plans to give our young patients the best chance at healthy futures. Child life specialists who hold a shaky hand and turn fear into fun. Anesthesiologists who take away the pain. Volunteers who soothe a crying baby to sleep with a lullaby. Athletes and special visitors who raise spirits just by saying hello. Children’s Hospital would not be the extraordinary place it is without our heroes, including our donors. Your support helps fund a 12 significant portion of the lifesaving equipment and innovative treatment we use for our patients. The daily care we provide with help from our donors makes a significant impact to the children of our community. This can easily be seen in our busy Emergency Department, where last year we had 71,764 patient visits. Because we care for more children needing emergency care than anyone else in East Tennessee, our doctors and nurses are equipped to treat everything from minor injuries to major medical concerns. We understand we are caring for patients who need a special kind of treatment—not only to make them well, but also to make them feel comfortable and safe. Our heroes are also busy offering pediatric specialty care like the team from our Cleft and Craniofacial Clinic, which was officially approved It’s About Children, Issue 4 • 2013
  • 13. More than 400 doctors 152 beds as a Cleft Palate Team by the American Cleft Palate-Craniofacial Association and Cleft Palate Foundation in January. Or, our Cystic Fibrosis Care Center, which is accredited by the Cystic Fibrosis Foundation. In addition to the care we provide every day, we strive to be pioneers. We are at the forefront of care in treating neonatal abstinence syndrome (NAS), a condition that stems from the country’s prescription drug epidemic. Tennessee ranks among the top states in prescription drug abuse, and Children’s Hospital developed the treatment protocol for NAS after seeing its impact. Our heroic efforts also extend beyond the hospital. We sponsor the Knoxville Area Coalition on Childhood Obesity, which works to decrease the number of overweight and obese children in East Tennessee. We also run Project ADAM Tennessee, a program that works with school systems to prevent sudden cardiac deaths. But of course, the most important heroes of Children’s Hospital are the bravest of them all. The ones who wear pink pajamas featuring their favorite Disney princesses. The ones who dream of being professional baseball players or teachers. The ones in your family, your school and your community. There’s your little neighbor, who’s been fighting for her life since the day she was born— battling a rare cancer that requires intense chemotherapy treatments. Your 15-year-old son, whose life is often put on hold for treatment and hospitalization for his cystic fibrosis. Your 8-year-old nephew, who is finally feeling well enough to go back to soccer practice after undergoing ear tube surgery. These everyday heroes are the ones we most celebrate. And they’re the reason we are committed to making Children’s Hospital the best place for pediatric care in East Tennessee. Donate at www.etch.com/ItsAboutChildren 13
  • 14. 148,140 patient visits 148,015 in FY12; 149,295 in FY11 72,575 patients 71,914 in FY12; 71,478 in FY11 261,558 physician practice visits 257,514 in FY12; 261,342 in FY11 71,764 Emergency Department visits 66,068 in FY12; 66,628 in FY11 10,918 surgeries 10,844 in FY12; 10,952 in FY11 313 babies treated for drug dependency 168 in FY12; 82 in FY11 14 330 transports 864,762 website visits We are a trusted source of pediatric health care information for East Tennessee families. It’s About Children, Issue 4 • 2013
  • 16. FY13 6091 FY12 5941 FY11 5976 Hospital Admissions FY13 6091 Visits Outpatient FY12 5941 FY13 142,049 FY11 5976 FY12 142,074 FY11 143,318 Hospital admissions Outpatient Visits NICU Patient FY13 142,049Visits FY13 790 FY12 142,074 FY12 646 FY11 143,318 FY11 600 ital Admissions 6091 5941 5976 al Admissions 091 atient Visits 941 142,049 976 142,074 143,318 FY11 FY13 FY12 5,976 6,091 5,941 atient Visits e Health Visits 59 16 21,810 15 17,584 00 NICU Patient Visits PICU Patient Visits FY13 790 FY13 559 FY12 646 FY12 615 FY11 600 FY11 600 Outpatient visits FY13 790 FY12 646 FY11 600 Pediatric Intensive Care Unit (PICU) patient visits PICU Patient Visits Home Health Visits FY13 559 FY13 21,810 FY12 615 FY12 17,584 FY11 600 FY11 16,120 tient Visits Patient 42,049 Visits 790 42,074 646 43,318 600 Patient Visits Patient Visits 90 559 46 615 00 600 Neonatal Intensive Care Unit (NICU) patient visits FY11 FY12 FY13 170,757 168,355 168,517 Home Health Visits FY13 21,810 FY12 17,584 FY11 16,120 Hours for Evaluation FY13 15,266 FY12 14,441 FY11 15,858 Hours for Evaluation FY13 15,266 FY12 14,441 FY13 559 FY12 615 FY11 600 It’s About Children, Issue 4 • 2013
  • 17. Outpatient activity 21,810 20,444 10,453 9,290 6,836 4,673 3,901 2,913 2,336 Home Health Gastroenterology Endocrinology Pulmonology Physiatry Cardiology Hematology/oncology Diabetes Urology Donate at www.etch.com/ItsAboutChildren 1,235 570 379 348 348 259 132 91 Nephrology Cystic fibrosis Psychology Infectious disease Rheumatology Weight management Dermatology Gynecology 17
  • 18. 12 7 therapy dogs 18 iPads Visits from these furry friends help ease anxiety and promote shorter recovery times for our patients. Used daily to help educate children about their care and provide them with much-needed distractions during uncomfortable medical procedures. 24,980 9,925 Our child life specialists help educate patients about their illnesses and treatments. Because our patients range from infants to 21-year-olds, child life specialists must be prepared with a variety of activities to support them during stressful experiences and painful procedures. patient interactions distractions It’s About Children, Issue 4 • 2013
  • 19. 52,784 volunteer hours This represents a $1,339,657.92 cost-savings. It is equivalent to providing more than 6,300 chest X-rays. 12,573 Spanish translation requests This is a 27.27 percent increase since FY11. We are the only hospital in Knoxville with interpreters on staff. Donate at www.etch.com/ItsAboutChildren 19
  • 20. 58 medical fellows, residents and students 1,798 nursing students 302 students in other health care positions, such as respiratory therapists, emergency technicians and surgical technicians We provide pediatric clinical training to more than 70 hospitals, universities and institutions. 6,750 hospital rounds For the safety of our patients and staff, we employ full-time security officers 24 hours a day, seven days a week. 20 It’s About Children, Issue 4 • 2013
  • 21. 5,698,12007 $ in donations Visit www.etch.com/donors to see a list of our donors who contributed $100 or more in FY13, listed by giving levels. Donate at www.etch.com/ItsAboutChildren 21
  • 22. 518,55413/day $ 189,272,25800/year 1,900 $ employees the cost to operate Children’s Hospital 3% Other 35% FY13 Commercial Payer mix 62% Medicaid/TennCare 416 $ Gross revenue Deductions from revenue Expenses Net gain Debt 234 $ 160 $ 30 $ 41.5 $ (millions) 22 It’s About Children, Issue 4 • 2013
  • 23. Patient population 609 1,212 Virginia Kentucky 144,680 Tennessee 1,639 Other states East Tennessee counties Anderson 7,330 12,386 Blount Campbell Claiborne Cocke Grainger Hamblen Jefferson 3,928 2,042 2,038 2,051 3,310 4,698 69,932 Knox Loudon Monroe Morgan Roane 4,708 3,137 1,922 3,390 Scott 2,186 Sevier 11,574 Union 2,694 Donate at www.etch.com/ItsAboutChildren 23
  • 24. News Supporting health care in schools   Children’s Hospital is funding 10 additional school nurses in 13 Title I Knox County elementary schools for the next three years. “This very generous gift to the students of Knox County will have a major impact on student health, facilitate family engagement and improve health education, resulting in an improvement in classroom performance and school attendance,” said Dr. Jim McIntyre, Superintendent of Knox County Schools. “The health and wellness of children are our top priorities,” said Keith Goodwin, President and CEO of Children’s Hospital. “We’re happy to help fund these positions because we believe the school nurse plays a pivotal role in the health and well-being of students. Children’s Hospital conducted a community health assessment to identify gaps in services to children of this community, and we recognize that when children are healthy, they’re better prepared to learn, happier and able to be more actively engaged in school.” 24 The new school nurses are in the following schools: • Beaumont • Belle Morris • East Knox • Green Magnet • Inskip • Lonsdale • Maynard • Mooreland Heights • Norwood • Pond Gap • South Knox • Spring Hill • West View It’s About Children, Issue 4 • 2013
  • 25. Invest in a healthy future for children If you are age 70 and a half or older, you can make charitable gifts to East Tennessee Children’s Hospital using funds from your individual retirement accounts (IRAs) without undesirable tax effects. • You can make a tax-free transfer up to $100,000 from an IRA to Children’s Hospital until Dec. 31, 2013. • These transfers would fulfill some or all of your required minimum distribution without increasing taxable income. Call our Development Department at 865-541-8441 for assistance. Donate at www.etch.com/ItsAboutChildren 25
  • 26. Your Dollars at Work The colorful world of charity For the second time this year, Children’s Hospital benefited from a little colorful mayhem. A portion of the proceeds from the August Color Me Rad 5K—more than $16,000—was donated to the hospital. The money will be used to help provide critical health care services to our pediatric patients. “We knew Children’s Hospital was a great hospital from the beginning. But after several visits there, we saw f irsthand how truly amazing they are and what incredible love and support they give to the patients and their families,” said Kristine Peterson, Race Director. The August 5K had more than 5,500 participants who ran the 3.1-mile course while being bombarded with color. The color is FDA-approved colored cornstarch, and almost 5,000 pounds of it were used for the race. The event was inspired by the Holi Festival in India. “We want this event to be memorable, fun and messy,” said race organizer Scott Crandall. “This is the most fun you can have while running.” 26 It’s About Children, Issue 4 • 2013
  • 27. In memory of Claire Curing Kids Cancer learned about Children’s Hospital through Peggy Gillen, Program and Events Director for the nonprofit charity. Gillen’s niece, Claire Hayes, was a patient at Children’s Hospital, where she battled both Ewing’s sarcoma, which is a rare bone cancer, and acute myeloid leukemia. The teenager passed away this past April. In her memory, Curing Kids Cancer recently donated $25,000 to support our Hematology/Oncology Clinic. The money was raised through the AT&T Curing Kids Cancer Golf Classic in Georgia. Curing Kids Cancer was founded by Grainne and Clay Owen after losing their 9-year-old son to leukemia in 2003. Since its founding in 2005, the Atlanta-based charity has raised more than $2 million for pediatric cancer research. Charles Hayes, Claire’s father, hugs Alissa Kennedy, one of the nurses who treated his daughter. Donate at www.etch.com/ItsAboutChildren 27
  • 28. Your Dollars at Work Friends making a difference Great friends. You know, the people you can count on when you really need them, the people who are there day after day, year after year supporting you in all kinds of ways. Where would you be without them? Children’s Hospital has great friends, too. The generosity of our donors this past year enabled the hospital to raise $5.7 million, to purchase $2.5 million in new equipment and to fund $1 million for our upcoming expansion project. In 2012, as a way of expressing our gratitude to our great friends, a tradition of an annual donor appreciation dinner and the giving of the Goodfriend Family Award was started. The Goodfriend Family Award was established to honor an individual, family, foundation or business whose support has been both exceptionally generous and sustained throughout the years. The first recipient of the award, and for whom the award is named, was the Robert M. Goodfriend family. This year, in honor of their dedication to Children’s Hospital, the Goodfriend Family Award was given to the Regal Entertainment Group and Will Rogers Institute. Accepting the award on the firm’s behalf was Ted Cooper, Chairman of Will Rogers Institute and Senior Vice President of Film for Regal Entertainment Group. Since 1994, Regal Entertainment Group and Will Rogers Institute have supported Children’s Hospital through event sponsorships, funding of hospital equipment and in-kind gifts. Regal also provided funding for the renovation of our lobby and surgery waiting room as well as updates to the surgery area. “Children’s Hospital is grateful for all Regal Entertainment Group and Will Rogers Institute have done not only for this hospital, but for the children of East Tennessee,” said Carlton Long, Vice President for Development and Community Services. “Their support, as well as the generosity of all our donors, has helped Children’s Hospital offer not only exceptional, comprehensive, familycentered care but also a comforting and healing environment as well.” Keith Goodwin, President and CEO of Children’s Hospital; Ted Cooper, Chairman of Will Rogers Institute and Senior Vice President of Film for Regal Entertainment Group; and Robert (Bob) M. Goodfriend 28 It’s About Children, Issue 4 • 2013
  • 29. Every coin matters Jack Ryan, Merle FM afternoon host, recently undertook a unique fundraising event to benefit Children’s Hospital. One of our avid supporters, Ryan gives Children’s Hospital credit for saving his daughter’s life. “When someone saves your child’s life, you can’t help but want to repay them for it, however you can. In my line of work, I am able to use the power of radio to talk about the wonders of Children’s Hospital to a large audience and encourage my listeners to give to the hospital, to volunteer or to become involved however they are able,” said Ryan. “Our entire family believes in the miracles that are happening every day at Children’s Hospital. We know from experience that the entire staff is fully dedicated to healing children from their aches, pains and sickness.” For two weeks, Merle the Squirrel and the Merle Monster Truck visited various Food City, Applebee’s and Clayton Homes locations as well as the Anderson County Fair to collect 1 million coins for Children’s Hospital. To encourage people to give, Ryan gave anyone donating $10 or more in coins a ticket to the Ashton Shepherd concert in July. Through Ryan’s efforts, $5,666.06 was raised for our Radiology Department. “Ryan’s event is a great example of how even the loose change in our purses and pockets can help children,” said Carlton Long, Vice President for Development and Community Services at Children’s Hospital. Jack Ryan, Merle FM afternoon host Donate at www.etch.com/ItsAboutChildren 29
  • 30. 30 It’s About Children, Issue 4 • 2013
  • 31. Thank you to all of the sponsors and volunteers who made this year’s Fantasy of Trees possible. Major sponsors Donate at www.etch.com/ItsAboutChildren 31
  • 32. NON-PROFIT ORGANIZATION U.S. POSTAGE PAID PERMIT 433 KNOXVILLE, TN 2018 Clinch Ave. • P.O. Box 15010 Knoxville, Tennessee 37901-5010 RETURN SERVICE REQUESTED Nothing puts a smile on aNothing puts a smile on a child’s face quicker than getting a gift— child’s face quicker than getting a gift We always try to stay current with friends of the hospital. If for any reason you should receive a duplicate issue or need to update your address, please notify the hospital at 865-541-8723 or LAMadigan@etch.com. Nothing puts a smile on a child’s face quicker than getting a gift... ...especially when that child is spending the holidays in the hospital. It’s not always possible to visit a sick child in the hospital. We are happy to help you let a special patient and concerned parents know you are thinking of them. Call us at 865-541-8103, and we will help you pick out the perfect gift. Phone orders are accepted from 9 a.m. to 5 p.m. Monday to Friday and will be delivered to the patient the same day. There is no charge for delivery. We accept Visa and MasterCard.