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Disability, Emerging Tech
& Inclusive Design
at the Crossroads
Seminar for Dyson School of Design Engineering
Imperial College London
7 June 2022
Gerard Goggin
Wee Kim Wee School of Information & Communication
Nanyang Technological University, Singapore
argument
• In this talk, I draw on work-in-progress to suggest that
we are at a crossroads in inclusive design, disability &
emerging technology
• there has been significant progress across various
fronts – partly due to technology (& social)
development & innovation, but also due to greater
understanding of requirements of people with
disabilities
• There has also been notable advances in seeing
disability as a plus – generative area – for design &
technology generally
• However, there remains a long way to go
Context for talk
• Talk draws on current book project with Kuansong Victor Zhuang
studying disability across emerging technologies internationally –
with case studies such as digital inclusion & smart cities, mobile,
Internet & social media, connected cars & mobilities, AI
• I am a non-disabled researcher, working in humanities & social
sciences – background of advocacy & policy work & collaborations
on disability & technology from early 1990s onwards
• my research is located at intersection of communication studies &
disability studies
• Two broad strands of work
• Mobile technology - e.g. books on Apps (2021), Location Technologies in
International Context (2020, Global Mobile Media (2011), Cell Phone
Culture (2006)
• Disability & technology – e.g Routledge Companion to Disability & Media
(2020), Digital Disability (2003)
• various other projects on disability – automated decision making;
disability & contemporary digital inclusion; disability & AI bias
Contemporary disability & society
• social transformations associated with disability
• acknowledgement of disability as part of diversity
and inclusion agenda
• rise of disability rights (2006 UN Convention on the
Rights of Persons with Disabilities - CRPD) +
disability justice + democracy
• globally there remains stark inequality &
discrimination & violation of rights of disabled
people
• & many contradictions in inclusion &
representation of disabled people – as case of sport
reveals
Contemporary disability & society
- tech
• expansion & sophistication of work on disability,
technology & design
• In principle consensus that people with disabilities will
participate in equal basis in digital society -- & a shared
sense that this will be transformative (cf. human rights
to technology in 2006 CRPD)
• BUT lack of detailed or widely understood sense what
this will involve
• Despite potential benefits people with disabilities
experience significant digital inequality & lack of digital
inclusion – as experiences of COVID-19 pandemic
underscore
disability & COVID-19 pandemic
• Many disabled people noted that participating in work &
education via digital technologies (e.g. Zoom) became
acceptable – whereas previously they had struggled for this to
be a norm – gains pioneered by disabled people benefitting
also?
• Greater awareness of importance of accessible & inclusive
information, communication & technology
• In other ways barriers to inclusive communication &
participation increased – loss of full range of communication
(especially in person-to-person), spatial confinement, use of
COVID apps to regulate/constrain mobilities
• Increase in/worsening psycho-social impairments (including
mental health concerns)
• Impairment from COVID, including long COVID
G. Goggin & K. Ellis, “Disability, communication and and life itself in the COVID-19 pandemic.” Health
Sociology Review 2020
& “Disability and COVID-19 Communication.” In Communicating COVID-19: Interdisciplinary perspectives
(2021)
disability & design
• Rise of disability as significant & generative area of
technology & design
• For instance, in engineering there is notable work
explicitly related to disabled persons
• Prosthetic hands
• Speech & communication disabilities
• Enhancing hearing
• Assistive technology
• Improving accessibility
• also working implicitly concerning disabled people
• Digital health & wellbeing
• Systems for social & welfare services & support
Work of Graeme Pullin
UCL Global
Disability
Innovation
Hub
Work of
Sara
Hendren
Disability & ability are also
produced by ‘relative flexibility
or rigidity of the built world’ (&
digital world);
disability results when ‘shape
of the world … operates
rigidly’– versus adaptation
‘aggregative fallacy’ – problem
of ‘normal’
Jutta Treviranus’s 3 dimensions of inclusive design
1. Recognize, respect, and design for human
uniqueness and variability.
2. Use inclusive, open & transparent processes, and
co-design with people who have a diversity of
perspectives, including people that can’t use or have
difficulty using the current designs.
3. Realize that you are designing in a complex
adaptive system
Crip Technoscience Manifesto (2019)
Aimi Hamraie & Kelly Fritsch
‘Disabled people are experts and designers of
everyday life … Accessible futures require our
interdependence.
We center technoscientific activism and critical
design practices rooted in disability justice,
collective access, and collective transformation
toward more socially just disability relations.
We call for activists, scholars, and makers to
expand possible futures for disabled people.’
Disability & tech at crossroads:
fascinating case of Singapore
• In past 2 years, Kuansong Victor Zhuang & I have been
studying Singapore
• headline ‘smart nation’ policy & well known internationally
for many initiatives on technology
• Singapore puts inclusion & advancement for its citizens at
the heart of its policy & plans – as it seeks to keep itself at
the foreground of developing the phase of digital economy
• Singapore also very interesting because disability is not
principally approached via ‘rights’ lens
• nor in Singapore is there an equivalent of general disability
rights, justice, or equal legislation such as UK Equality Act or
US Americans with Disability Act or Australian Disability
Discrimination Act – each with specific technology
provisions
See: Goggin & Zhuang. “Disability as Smart Equality: Inclusive Technology in a
Digitally Advanced Nation.” In Vulnerable People and Digital Inclusion (20220
Case study 1: mobiles
• Mobile phones, especially smartphones, have
emerged as a highly important technology for
disabled people – often hailed as a ‘gamechanger’
• Apps have expanded the range of accessible and
inclusion options but also can be associated with
new barriers – as COVID-19 pandemic revealed
Gov
tech –
digital
design
SingPass – accessibility efforts
‘SingPass Mobile
SingPass Mobile is a mobile app that is designed to make transacting with
government and businesses faster and easier for all SingPass users.
• What has the team done to make the app inclusive?
• Using QR Login, users can scan a QR code and verify their identity with
biometrics or a 6-digit pin code. This helps users with dexterity issues
transact with ease and reduces the need to remember long passwords.
• Shortcuts to commonly used services within the app ensures no
mistyping of URLs when visiting different government digital services
• The team also enabled high contrast for improved legibility and
readability when using the app
• SafeEntry(www.safeentry.gov.sg) features in the app was developed
with accessibility in mind, and tested extensively with VoiceOver and
Voice Control for the visually and physically handicapped respectively’
GovTech, ‘We Build for Everyone’
‘… so-called
TraceTogether tokens
are an alternative to the
government's contact
tracing smartphone app.
They are aimed at
people who do not own
or prefer not to use a
mobile phone.
The first batch of the
devices are being
distributed to
vulnerable elderly
people who have little
or no family support or
have mobility problems.’
BBC News, June 2020
Case study 2: driverless cars – where
do they fit into disability mobilities?
Green Man +
‘Green Man+ allocates a longer green man time for the elderly and Persons with
Disabilities (PWD). Elderly pedestrians and PWD can expect up to 13 seconds more
green man time when they make use of signalised pedestrian crossings fitted with
Green Man+.
They simply need to tap their CEPAS-compliant senior citizen concession card or PWD
concession card on the reader mounted above the standard push-button on the traffic
light pole to extend green man time by between 3 and 13 seconds, depending on the
width of the crossings.’
Singapore Land Transport Authority, ‘Green Man +’
G. Goggin, & K. V. Zhuang, ‘Disability
and Micromobilities in an Asian
Communicative City’ (2022)
How do actors
designing urban
mobilities engage with
and account for
disabled peoples’
contemporary
mobilities – and how
their everyday
practices fit into
plans/evolving
systems for cars,
public transport &
micro-mobilities?
challenges
• persistence of overarching, disabling ways that disability is
approached;
• slow progress in taking up approaches such as co- and
participatory design
• sub-optimal policy frameworks and innovation eco-systems
• puzzle of how to understand and better connect technology
and inclusive design efforts with disability across a range of
other groups
• Opportunity/need to experiment with education in design,
communication, technology – how can we teach
contemporary disability & inclusive/responsible design? &
help embed into key sites in the wider tech/social
ecosystem?

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Disability, Emerging Tech & Inclusive Design at the Crossroads

  • 1. Disability, Emerging Tech & Inclusive Design at the Crossroads Seminar for Dyson School of Design Engineering Imperial College London 7 June 2022 Gerard Goggin Wee Kim Wee School of Information & Communication Nanyang Technological University, Singapore
  • 2. argument • In this talk, I draw on work-in-progress to suggest that we are at a crossroads in inclusive design, disability & emerging technology • there has been significant progress across various fronts – partly due to technology (& social) development & innovation, but also due to greater understanding of requirements of people with disabilities • There has also been notable advances in seeing disability as a plus – generative area – for design & technology generally • However, there remains a long way to go
  • 3. Context for talk • Talk draws on current book project with Kuansong Victor Zhuang studying disability across emerging technologies internationally – with case studies such as digital inclusion & smart cities, mobile, Internet & social media, connected cars & mobilities, AI • I am a non-disabled researcher, working in humanities & social sciences – background of advocacy & policy work & collaborations on disability & technology from early 1990s onwards • my research is located at intersection of communication studies & disability studies • Two broad strands of work • Mobile technology - e.g. books on Apps (2021), Location Technologies in International Context (2020, Global Mobile Media (2011), Cell Phone Culture (2006) • Disability & technology – e.g Routledge Companion to Disability & Media (2020), Digital Disability (2003) • various other projects on disability – automated decision making; disability & contemporary digital inclusion; disability & AI bias
  • 4. Contemporary disability & society • social transformations associated with disability • acknowledgement of disability as part of diversity and inclusion agenda • rise of disability rights (2006 UN Convention on the Rights of Persons with Disabilities - CRPD) + disability justice + democracy • globally there remains stark inequality & discrimination & violation of rights of disabled people • & many contradictions in inclusion & representation of disabled people – as case of sport reveals
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  • 7. Contemporary disability & society - tech • expansion & sophistication of work on disability, technology & design • In principle consensus that people with disabilities will participate in equal basis in digital society -- & a shared sense that this will be transformative (cf. human rights to technology in 2006 CRPD) • BUT lack of detailed or widely understood sense what this will involve • Despite potential benefits people with disabilities experience significant digital inequality & lack of digital inclusion – as experiences of COVID-19 pandemic underscore
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  • 10. disability & COVID-19 pandemic • Many disabled people noted that participating in work & education via digital technologies (e.g. Zoom) became acceptable – whereas previously they had struggled for this to be a norm – gains pioneered by disabled people benefitting also? • Greater awareness of importance of accessible & inclusive information, communication & technology • In other ways barriers to inclusive communication & participation increased – loss of full range of communication (especially in person-to-person), spatial confinement, use of COVID apps to regulate/constrain mobilities • Increase in/worsening psycho-social impairments (including mental health concerns) • Impairment from COVID, including long COVID G. Goggin & K. Ellis, “Disability, communication and and life itself in the COVID-19 pandemic.” Health Sociology Review 2020 & “Disability and COVID-19 Communication.” In Communicating COVID-19: Interdisciplinary perspectives (2021)
  • 11. disability & design • Rise of disability as significant & generative area of technology & design • For instance, in engineering there is notable work explicitly related to disabled persons • Prosthetic hands • Speech & communication disabilities • Enhancing hearing • Assistive technology • Improving accessibility • also working implicitly concerning disabled people • Digital health & wellbeing • Systems for social & welfare services & support
  • 12. Work of Graeme Pullin
  • 14. Work of Sara Hendren Disability & ability are also produced by ‘relative flexibility or rigidity of the built world’ (& digital world); disability results when ‘shape of the world … operates rigidly’– versus adaptation ‘aggregative fallacy’ – problem of ‘normal’
  • 15. Jutta Treviranus’s 3 dimensions of inclusive design 1. Recognize, respect, and design for human uniqueness and variability. 2. Use inclusive, open & transparent processes, and co-design with people who have a diversity of perspectives, including people that can’t use or have difficulty using the current designs. 3. Realize that you are designing in a complex adaptive system
  • 16. Crip Technoscience Manifesto (2019) Aimi Hamraie & Kelly Fritsch ‘Disabled people are experts and designers of everyday life … Accessible futures require our interdependence. We center technoscientific activism and critical design practices rooted in disability justice, collective access, and collective transformation toward more socially just disability relations. We call for activists, scholars, and makers to expand possible futures for disabled people.’
  • 17. Disability & tech at crossroads: fascinating case of Singapore • In past 2 years, Kuansong Victor Zhuang & I have been studying Singapore • headline ‘smart nation’ policy & well known internationally for many initiatives on technology • Singapore puts inclusion & advancement for its citizens at the heart of its policy & plans – as it seeks to keep itself at the foreground of developing the phase of digital economy • Singapore also very interesting because disability is not principally approached via ‘rights’ lens • nor in Singapore is there an equivalent of general disability rights, justice, or equal legislation such as UK Equality Act or US Americans with Disability Act or Australian Disability Discrimination Act – each with specific technology provisions See: Goggin & Zhuang. “Disability as Smart Equality: Inclusive Technology in a Digitally Advanced Nation.” In Vulnerable People and Digital Inclusion (20220
  • 18. Case study 1: mobiles • Mobile phones, especially smartphones, have emerged as a highly important technology for disabled people – often hailed as a ‘gamechanger’ • Apps have expanded the range of accessible and inclusion options but also can be associated with new barriers – as COVID-19 pandemic revealed
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  • 21. SingPass – accessibility efforts ‘SingPass Mobile SingPass Mobile is a mobile app that is designed to make transacting with government and businesses faster and easier for all SingPass users. • What has the team done to make the app inclusive? • Using QR Login, users can scan a QR code and verify their identity with biometrics or a 6-digit pin code. This helps users with dexterity issues transact with ease and reduces the need to remember long passwords. • Shortcuts to commonly used services within the app ensures no mistyping of URLs when visiting different government digital services • The team also enabled high contrast for improved legibility and readability when using the app • SafeEntry(www.safeentry.gov.sg) features in the app was developed with accessibility in mind, and tested extensively with VoiceOver and Voice Control for the visually and physically handicapped respectively’ GovTech, ‘We Build for Everyone’
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  • 26. ‘… so-called TraceTogether tokens are an alternative to the government's contact tracing smartphone app. They are aimed at people who do not own or prefer not to use a mobile phone. The first batch of the devices are being distributed to vulnerable elderly people who have little or no family support or have mobility problems.’ BBC News, June 2020
  • 27. Case study 2: driverless cars – where do they fit into disability mobilities?
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  • 29. Green Man + ‘Green Man+ allocates a longer green man time for the elderly and Persons with Disabilities (PWD). Elderly pedestrians and PWD can expect up to 13 seconds more green man time when they make use of signalised pedestrian crossings fitted with Green Man+. They simply need to tap their CEPAS-compliant senior citizen concession card or PWD concession card on the reader mounted above the standard push-button on the traffic light pole to extend green man time by between 3 and 13 seconds, depending on the width of the crossings.’ Singapore Land Transport Authority, ‘Green Man +’
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  • 34. G. Goggin, & K. V. Zhuang, ‘Disability and Micromobilities in an Asian Communicative City’ (2022) How do actors designing urban mobilities engage with and account for disabled peoples’ contemporary mobilities – and how their everyday practices fit into plans/evolving systems for cars, public transport & micro-mobilities?
  • 35. challenges • persistence of overarching, disabling ways that disability is approached; • slow progress in taking up approaches such as co- and participatory design • sub-optimal policy frameworks and innovation eco-systems • puzzle of how to understand and better connect technology and inclusive design efforts with disability across a range of other groups • Opportunity/need to experiment with education in design, communication, technology – how can we teach contemporary disability & inclusive/responsible design? & help embed into key sites in the wider tech/social ecosystem?