Ethical Issues in Research Conducted in Darfur

Ethics at the extremes: Lessons From Population Health Surveys in Darfur Ghaiath Hussein MBBS, MD Comm. Med. (Part I, Sudan) MHSc. Student, Joint Center for Bioethics (U of T) Ethical Challenges to Research in Darfur National Council on Ethics in Human Research (NCER) conference, Ottawa February 16, 2008

Disclaimer and Competing Interests ,[object Object],[object Object],Ethical Challenges to Research in Darfur

In this presentation ,[object Object],[object Object],[object Object],[object Object],[object Object],Ethical Challenges to Research in Darfur

Darfur in a nutshell ,[object Object],[object Object],[object Object],[object Object],Ethical Challenges to Research in Darfur

Examples of conducted studies ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Ethical Challenges to Research in Darfur

Ethical Challenges to Research in Conflicts ,[object Object],[object Object],[object Object],[object Object],Ethical Challenges to Research in Darfur

Ethical issues in focus ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Ethical Challenges to Research in Darfur

1. Informed Consent “ I’m …. (name of interviewer) from … (name of agency) . This study is not a census. We are studying… (aim of the study), and we need to ask you some questions about …, and to do… This will take about 30 minutes of your time. All the information that you will provide will be strictly confidential , and your answers will never be identified . You will not be given any direct aid, or compensation for participating in this survey. May I start now?” Modified from Sudan Household Health Survey ( www.shhs.i8.com ) Ethical Challenges to Research in Darfur

Ethical Issues About Consent Ethical Challenges to Research in Darfur (Hussein, G., 2007)

2. Selection Bias ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Ethical Challenges to Research in Darfur Accessible Limited access No access

3. Conflict of Interests Ethical Challenges to Research in Darfur ,[object Object],[object Object],[object Object],[object Object]

Political Tools? Ethical Challenges to Research in Darfur Good and “ethical”?

4. Benefits of Conducted Surveys ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Ethical Challenges to Research in Darfur

5. Potential Risks to Participants ,[object Object],[object Object],[object Object],[object Object],Ethical Challenges to Research in Darfur

Two hours late! No water today! ,[object Object],Ethical Challenges to Research in Darfur

Risks to survey teams ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Ethical Challenges to Research in Darfur What to do? How to get them out? Do you mean alive or dead?

Few steps forward ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Ethical Challenges to Research in Darfur

Acknowledgements Thanks to my “Teachers” in the JCB: And to the heroes whom I worked with in Darfur Ethical Challenges to Research in Darfur

[object Object],[object Object],[object Object],[object Object],[object Object],Ethical Challenges to Research in Darfur Ghaiath Hussein: [email_address] www.bioethicsnet.googlepages.com

Ethical Issues in Research Conducted in Darfur

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