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Lewy Body Dementia An Emerging Disease Part 1: What is it?     Presented by The Lewy Body Dementia Association, Inc . Increasing Knowledge  Sharing Experience  Building Hope
Dementia is: A set of symptoms that includes a decline in mental abilities Degenerative: Progressive decline Treatable but not curable Most common Alzheimer's: 50% of all dementias  LBD: 15-20% of all dementias ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Others Vascular LBD Alzheimer's
LBD isn’t Alzheimer’s Disease! But it may accompany Alzheimer’s not specifically yes Lethal selectively indiscriminately Kills brain cells fluctuating symptoms general decline  Result extracts  acetylcholine   from nerve cells. weakens, then strangles Action Lewy bodies Placques and Tangles Brain Autopsy LBD AD  
Lewy body in neuron of brain. Red areas: where Lewy bodies are found in brain. Lewy bodies are: Very tiny abnormal protein structures. The kind of symptoms (and the disease)  depends on where the bodies reside in the brain
Lewy body dementia (LBD) (often called Dementia with Lewy bodies (DLB)   Parkinson’s disease (PD) Parkinson’s disease with dementia (PDD) LBD is a member of the  Lewy Body Disease Family
Both Both Both PDD Movement problems Motor Substantia nigra  PD Dementia Cognition (memory, thinking) Cerebral cortex LBD Symptoms Function controlled Location  in brain Disease name
Why haven’t we heard of LBD before now? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
SPECT (Single-Photon Emission  Computed Tomography ) ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],How do we know it’s LBD?
LBD Diagnosis Dementia:   Must be present for any LBD/PDD diagnosis Core Features Fluctuating cognition Recurrent  visual hallucinations Parkinsonism Suggestive Features REM sleep behavior disorder (RBD) Abnormal result on brain scans (PET, SPECT) Diagnosis Probable:   Dementia and 2 core, or    1 core and 1 or more  suggestive symptoms Possible:   Dementia and only 1 core feature, or      1 or  more suggestive symptoms
Other symptoms likely to occur with LBD (but not used for diagnosis) Autonomic problems Falls Unresponsiveness Other hallucinations Urinary system problems Delusions Anger, depression, sadness Difficulty swallowing Excessive daytime sleeping Restless Leg Syndrome
[object Object],[object Object],[object Object],[object Object],[object Object],This concludes Part 1 of  Lewy Body Dementia, An Emerging Disease
Office Phone: 404-935-6444 Office Email:  [email_address] Website:  www.lbda.org Helpline phone:  800-539-9767     800-LEWY-SOS Helpline email:  [email_address] P.O. Box 451429 Atlanta, GA 31145 Contacting the LBDA Thank You for your participation  in this learning experience. Increasing Knowledge  Sharing Experience  Building Hope

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What Is Lewy Body Dementia

  • 1. Lewy Body Dementia An Emerging Disease Part 1: What is it? Presented by The Lewy Body Dementia Association, Inc . Increasing Knowledge Sharing Experience Building Hope
  • 2.
  • 3. LBD isn’t Alzheimer’s Disease! But it may accompany Alzheimer’s not specifically yes Lethal selectively indiscriminately Kills brain cells fluctuating symptoms general decline Result extracts acetylcholine from nerve cells. weakens, then strangles Action Lewy bodies Placques and Tangles Brain Autopsy LBD AD  
  • 4. Lewy body in neuron of brain. Red areas: where Lewy bodies are found in brain. Lewy bodies are: Very tiny abnormal protein structures. The kind of symptoms (and the disease) depends on where the bodies reside in the brain
  • 5. Lewy body dementia (LBD) (often called Dementia with Lewy bodies (DLB) Parkinson’s disease (PD) Parkinson’s disease with dementia (PDD) LBD is a member of the Lewy Body Disease Family
  • 6. Both Both Both PDD Movement problems Motor Substantia nigra PD Dementia Cognition (memory, thinking) Cerebral cortex LBD Symptoms Function controlled Location in brain Disease name
  • 7.
  • 8.
  • 9. LBD Diagnosis Dementia: Must be present for any LBD/PDD diagnosis Core Features Fluctuating cognition Recurrent visual hallucinations Parkinsonism Suggestive Features REM sleep behavior disorder (RBD) Abnormal result on brain scans (PET, SPECT) Diagnosis Probable: Dementia and 2 core, or 1 core and 1 or more suggestive symptoms Possible: Dementia and only 1 core feature, or 1 or more suggestive symptoms
  • 10. Other symptoms likely to occur with LBD (but not used for diagnosis) Autonomic problems Falls Unresponsiveness Other hallucinations Urinary system problems Delusions Anger, depression, sadness Difficulty swallowing Excessive daytime sleeping Restless Leg Syndrome
  • 11.
  • 12. Office Phone: 404-935-6444 Office Email: [email_address] Website: www.lbda.org Helpline phone: 800-539-9767 800-LEWY-SOS Helpline email: [email_address] P.O. Box 451429 Atlanta, GA 31145 Contacting the LBDA Thank You for your participation in this learning experience. Increasing Knowledge Sharing Experience Building Hope

Notes de l'éditeur

  1. Be sure to review this presentation at least twice before you show it so you will know what you want to stop and discuss and when to click to change or advance a slide. The notes are NOT to be read as a part of the presentation, but are here to help you answer questions, or add interest. We recommend that you check all references just so you will know more about the subject. Please do not alter this slide presentation. It is the copyrighted property of The Lewy Body Dementia Association and can only be altered legally by a chosen representative of this organization. Do look for places where you can add personal information verbally. Personal information makes a presentation much more interesting. Here are some guidelines: Time is limited, so be organized. Choose examples from your own experiences that clearly show any of the symptoms mentioned. (Not just the ones highlighted…) Be selective. Choose only the best examples. Three or four at most. Be specific. Talk only about the events around the symptom on the slide adding only what is needed to clarify. For example, “my LO went into the hospital with an unrelated health problem” not “my loved one had been having digestion problems for many years and the doctor finally said he needed surgery so we talked it over and finally decided….” WRITE down what you want to add, so you won’t hem and haw. Use these notes to write your own notes on, or if you prefer, type them out on separate sheets of paper. You will find it best if you separate your notes by slide rather than putting them all on one sheet of paper.