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Reducing	
  Cancer	
  Among	
  Women	
  of	
  Color	
  
                 Challenge	
  
              Ques%on	
  and	
  Answer	
  	
  
                   Webinar	
  
                       12.6.12	
  
On	
  the	
  Call:	
  
              	
  Dr.	
  David	
  Hunt,	
  Medical	
  Officer	
  -­‐	
  ONC	
  
              	
  Dr.	
  Paris	
  Butler,	
  Clinical	
  Advisory	
  to	
  the	
  Deputy	
  Assistant	
  Secretary	
  
              	
  for	
  Minority	
  Health	
  
              	
  Hemali	
  Thakkar,	
  Challenger	
  Manager	
  –	
  Health	
  2.0	
  


Today’s	
  Agenda:	
  
              	
  Introduc/ons	
  
              	
  Brief	
  Challenge	
  Overview	
  
              	
  Q&A	
  


                                             Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
  
                                                                                                                         2	
  
                                               Health	
  Informa/on	
  Technology	
  
ONC	
  and	
  I2	
  Goals	
  

•     Better Health, Better Care, Better Value through Quality Improvement	

      •  Further the mission of the Department of Health and Human Services 	

      •  Highlight programs, activities, and issues of concern	



•     Spur Innovation and Highlight Excellence                          	

	

      •  Motivate, inspire, and lead	



•     Community building – Development of ecosystem 	


•     Stimulate private sector investment	





                                     Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
  
                                                                                              3	
  
                                       Health	
  Informa/on	
  Technology	
  
Over	
  300,000	
  new	
  breast	
  and	
  gynecologic	
  
cancers	
  are	
  diagnosed	
  each	
  year	
  with	
  68,000	
  
deaths	
  annually.	
  	
  




                        Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
  
                                                                                 4	
  
                          Health	
  Informa/on	
  Technology	
  
Breast	
  Cancer	
  

 hZp://www.cdc.gov/cancer/breast/	
  




In	
  the	
  United	
  States	
  in	
  2008,*	
  210,203	
  women	
  
were	
  diagnosed	
  with	
  breast	
  cancer,	
  and	
  
40,589	
  women	
  died	
  from	
  the	
  disease.†	
  Except	
  
for	
  skin	
  cancer,	
  breast	
  cancer	
  is	
  the	
  most	
  
common	
  cancer	
  among	
  American	
  women.	
  	
  

*Latest	
  year	
  for	
  which	
  sta/s/cs	
  are	
  available.	
  
†Source:	
  USCS.	
  
                                                   Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
  
                                                                                                            5	
  
                                                     Health	
  Informa/on	
  Technology	
  
Gynecologic	
  Cancers	
  




  Each	
  gynecologic	
  cancer	
  is	
  unique,	
  with	
  different	
  signs,	
  symptoms,	
  risk	
  factors	
  (things	
  
  that	
  may	
  increase	
  your	
  chance	
  of	
  geFng	
  a	
  disease),	
  and	
  prevenHon	
  strategies.	
  Every	
  
  year,	
  more	
  than	
  80,000	
  women	
  in	
  the	
  U.S.	
  are	
  told	
  they	
  have	
  a	
  gynecologic	
  cancer,	
  
  and	
  more	
  than	
  25,000	
  women	
  die	
  from	
  a	
  gynecologic	
  cancer.*	
  

   *Source:	
  U.S.	
  Cancer	
  Sta0s0cs	
  Working	
  Group	
  
                                                Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
  
                                                                                                                               6	
  
                                                  Health	
  Informa/on	
  Technology	
  
Age-­‐Adjusted	
  Cancer	
  Incidence	
  and	
  Death	
  Rates:	
  Female	
  Breast	
  and	
  Gynecologic	
  by	
  and	
  
Race	
  and	
  Ethnicity,	
  United	
  States	
  



                                                                                                             Asian/Pacific        American Indian/
                                              All Races              White                  Black              Islander            Alaska Native                Hispanic

  Female Breast Cancer
  Incidence                                            121.9                 122.6                   118                   87.9                        65.6              92.8

 Female Breast Cancer Death
 Rates                                                   22.5                  21.9                31.2                    11.9                        12.8              14.6

  Female Gynecologic
  Cancer Incidence                                       48.4                  48.9                45.5                    34.4                        31.3              45.8

 Female Gynecologic Cancer
 Death Rates                                             15.5                  15.3                18.9                    10.3                        11.9              12.6


Rates	
  are	
  per	
  100,000	
  persons	
  and	
  are	
  age-­‐adjusted	
  to	
  the	
  2000	
  U.S.	
  standard	
  popula/on	
  (19	
  age	
  groups-­‐Census	
  P25-­‐1130).	
  

                                          hZp://apps.nccd.cdc.gov/uscs/cancersbyraceandethnicity.aspx	
  
                                                                  Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
  
                                                                                                                                                                         7	
  
                                                                    Health	
  Informa/on	
  Technology	
  
*Rates	
  are	
  per	
  100,000	
  persons	
  and	
  are	
  age-­‐adjusted	
  to	
  the	
  2000	
  U.S.	
  standard	
  populaHon	
  (19	
  age	
  groups-­‐Census	
  P25-­‐1130).	
  
140	
  




120	
  
                                                                                                                      Female	
  Breast	
  Incidence	
  

                                                                                                                      Female	
  Genital	
  System	
  Incidence	
  
100	
  




  80	
  




  60	
  




  40	
  




  20	
  




    0	
  
             All	
  Races	
  	
               White	
  	
                     Black	
  	
           Asian/Pacific	
  Islander	
     American	
  Indian/Alaska	
            Hispanic	
  
                                                                        Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
              Na/ve	
  
                                                                                                                                                                                             8	
  
                                                                          Health	
  Informa/on	
  Technology	
  
*Rates	
  are	
  per	
  100,000	
  persons	
  and	
  are	
  age-­‐adjusted	
  to	
  the	
  2000	
  U.S.	
  standard	
  populaHon	
  (19	
  age	
  groups-­‐Census	
  P25-­‐1130).	
  
35	
  




30	
  




                                                                                                                  Female	
  Breast	
  Death	
  Rates	
  
25	
  

                                                                                                                  Female	
  Genital	
  Death	
  Rates	
  

20	
  




15	
  




10	
  




  5	
  




  0	
  
               All	
  Races	
  	
               White	
  	
  
                                                                        Office	
  Black	
  	
   Na/onal	
  Asian/Pacific	
  Islander	
   American	
  Indian/Alaska	
  Na/ve	
  
                                                                                of	
  the	
              Coordinator	
  for	
                                                  Hispanic	
  
                                                                                                                                                                                              9	
  
                                                                          Health	
  Informa/on	
  Technology	
  
While	
  the	
  incidence	
  and	
  prevalence	
  of	
  these	
  cancers	
  are	
  
widespread	
  as	
  depicted	
  by	
  this	
  data,	
  dispari/es	
  in	
  
preven/on,	
  early	
  treatment,	
  quality	
  of	
  care,	
  and	
  
outcomes	
  result	
  in	
  higher	
  morbidity	
  and	
  mortality	
  rates	
  
among	
  minority	
  and	
  underserved	
  women.	
  




                            Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
  
                                                                                     10	
  
                              Health	
  Informa/on	
  Technology	
  
The	
  Challenge	
  

  •  The	
  Challenge	
  calls	
  on	
  sohware	
  developers	
  to	
  create	
  an	
  applica/on	
  
     for	
  mobile	
  devices,	
  in	
  mul/ple	
  languages,	
  that	
  can	
  help	
  
     underserved	
  and	
  minority	
  women	
  fight	
  and	
  prevent	
  cancer.	
  

  •  Providing	
  general	
  informa/on	
  regarding	
  preven/ve	
  and	
  screening	
  
     services	
  for	
  breast	
  and	
  gynecologic	
  cancers—including,	
  but	
  not	
  
     limited	
  to,	
  benefits,	
  /ming,	
  scheduling,	
  and	
  loca/on.	
  

  •  Allowing	
  for	
  the	
  interface	
  with	
  pa/ent	
  health	
  records	
  or	
  provider-­‐
     sponsored	
  pa/ent	
  portals	
  to	
  provide	
  specific	
  reminders	
  and	
  trigger	
  
     electronic	
  health	
  record-­‐based	
  clinical	
  decision	
  support	
  regarding	
  
     the	
  /ming	
  of	
  preven/ve	
  services.	
  



                                     Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
  
                                                                                                   11	
  
                                       Health	
  Informa/on	
  Technology	
  
The	
  Challenge	
  (cont’d)	
  

  •  Suppor/ng	
  the	
  storage,	
  viewing,	
  and	
  even	
  the	
  exchange	
  of	
  
     complex	
  pa/ent	
  care	
  plans.	
  	
  In	
  par/cular,	
  the	
  applica/on	
  will	
  
     help	
  strengthen	
  communica/on	
  among	
  provider	
  care	
  teams,	
  
     possibly	
  spread	
  out	
  across	
  large	
  geographic	
  loca/ons,	
  to	
  
     afford	
  op/mal	
  remote	
  follow-­‐up	
  (e.g.	
  be	
  able	
  to	
  send	
  pa/ent	
  
     informa/on	
  to	
  electronic	
  health	
  records	
  via	
  Direct,	
  
     hZp://directproject.org/).	
  

  •  Suppor/ng	
  pa/ent	
  engagement	
  and	
  care	
  giver	
  support	
  with	
  
     applica/ons	
  that	
  help	
  pa/ents	
  and/or	
  their	
  caregivers	
  keep	
  
     track	
  of	
  complex	
  care	
  plans,	
  such	
  as	
  connec/ons	
  to	
  
     community	
  health	
  workers,	
  promotores	
  de	
  salud,	
  or	
  pa/ent	
  
     navigators.	
  
                                    Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
  
                                                                                                12	
  
                                      Health	
  Informa/on	
  Technology	
  
Judging	
  Criteria	
  
•    PaHent	
  engagement:	
  Incorpora/ng	
  pa/ent-­‐reported	
  informa/on	
  

•    Quality	
  and	
  accessibility	
  of	
  informaHon:	
  Providing	
  high	
  quality,	
  evidence-­‐based	
  informa/on	
  and	
  
     interven/ons	
  using	
  plain	
  language,	
  a	
  clear	
  display	
  that	
  considers	
  usability	
  on	
  a	
  small-­‐screen	
  
     interface	
  (Web	
  Usability	
  and	
  Aging,	
  Usability	
  and	
  Mobile	
  Devices),	
  and	
  targe/ng	
  pa/ents	
  with	
  a	
  
     range	
  of	
  health	
  literacy	
  levels	
  

•    Targeted	
  and	
  acHonable	
  informaHon:	
  Providing	
  tailored	
  informa/on,	
  recommenda/ons,	
  and	
  
     reminders	
  

•    Links	
  to	
  online	
  communiHes	
  and/or	
  social	
  media:	
  Link	
  pa/ents	
  with	
  others	
  who	
  are	
  facing	
  the	
  
     same	
  health	
  challenges	
  through	
  social	
  media	
  sites	
  or	
  organiza/ons,	
  such	
  as	
  the	
  American	
  Cancer	
  
     Society,	
  and	
  to	
  other	
  sources	
  of	
  support,	
  such	
  as	
  community	
  health	
  workers,	
  pa/ent	
  navigators,	
  or	
  
     promotores	
  de	
  salud	
  

•    InnovaHveness	
  and	
  usability:	
  Innova/veness	
  and	
  an	
  easy-­‐to-­‐use	
  interface	
  for	
  pa/ents	
  with	
  a	
  range	
  
     of	
  experiences	
  and	
  comfort	
  levels	
  with	
  technology	
  

•    Non-­‐English	
  language	
  availability:	
  Availability	
  of	
  the	
  tool	
  in	
  languages	
  used	
  in	
  minority	
  and	
  
     underserved	
  communi/es	
  



                                                     Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
  
                                                                                                                                                  13	
  
                                                       Health	
  Informa/on	
  Technology	
  
Timeline	
  
Submission	
  Period	
  Begins:	
  August	
  23,	
  2012	
  
Submission	
  Period	
  for	
  Entries	
  Ends:	
  February	
  5,	
  2013	
  
Evalua/on	
  Process	
  for	
  Entries	
  Begins:	
  February	
  8,	
  2013	
  
Evalua/on	
  Process	
  for	
  Entries	
  Ends:	
  February	
  19,	
  2013	
  
Winners	
  no/fied:	
  February	
  24,	
  2013	
  
Winners	
  Announced:	
  Conference	
  TBD,	
  March-­‐April	
  2013	
  




                              Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
  
                                                                                       14	
  
                                Health	
  Informa/on	
  Technology	
  
Prizes	
  


   First	
  Place:	
  $85,000	
  +	
  demo	
  opp	
  at	
  conf	
  
               Second	
  Place:	
  $10,000	
  
                 Third	
  Place:	
  $5,000	
  

       Not	
  to	
  men%on:	
  recogni%on,	
  publicity,	
  credibility	
  and	
  reach!	
  




                                 Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
  
                                                                                               15	
  
                                   Health	
  Informa/on	
  Technology	
  
Ques/ons?	
  


         www.health2challenge.org	



                Contact Hemali:	

         hemali@health2con.com	


                 Office	
  of	
  the	
  Na/onal	
  Coordinator	
  for	
  
                                                                          16	
  
                   Health	
  Informa/on	
  Technology	
  

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Reducing Cancer Challenge Webinar Deck (12/6/12)

  • 1. Reducing  Cancer  Among  Women  of  Color   Challenge   Ques%on  and  Answer     Webinar   12.6.12  
  • 2. On  the  Call:    Dr.  David  Hunt,  Medical  Officer  -­‐  ONC    Dr.  Paris  Butler,  Clinical  Advisory  to  the  Deputy  Assistant  Secretary    for  Minority  Health    Hemali  Thakkar,  Challenger  Manager  –  Health  2.0   Today’s  Agenda:    Introduc/ons    Brief  Challenge  Overview    Q&A   Office  of  the  Na/onal  Coordinator  for   2   Health  Informa/on  Technology  
  • 3. ONC  and  I2  Goals   •  Better Health, Better Care, Better Value through Quality Improvement •  Further the mission of the Department of Health and Human Services •  Highlight programs, activities, and issues of concern •  Spur Innovation and Highlight Excellence •  Motivate, inspire, and lead •  Community building – Development of ecosystem •  Stimulate private sector investment Office  of  the  Na/onal  Coordinator  for   3   Health  Informa/on  Technology  
  • 4. Over  300,000  new  breast  and  gynecologic   cancers  are  diagnosed  each  year  with  68,000   deaths  annually.     Office  of  the  Na/onal  Coordinator  for   4   Health  Informa/on  Technology  
  • 5. Breast  Cancer   hZp://www.cdc.gov/cancer/breast/   In  the  United  States  in  2008,*  210,203  women   were  diagnosed  with  breast  cancer,  and   40,589  women  died  from  the  disease.†  Except   for  skin  cancer,  breast  cancer  is  the  most   common  cancer  among  American  women.     *Latest  year  for  which  sta/s/cs  are  available.   †Source:  USCS.   Office  of  the  Na/onal  Coordinator  for   5   Health  Informa/on  Technology  
  • 6. Gynecologic  Cancers   Each  gynecologic  cancer  is  unique,  with  different  signs,  symptoms,  risk  factors  (things   that  may  increase  your  chance  of  geFng  a  disease),  and  prevenHon  strategies.  Every   year,  more  than  80,000  women  in  the  U.S.  are  told  they  have  a  gynecologic  cancer,   and  more  than  25,000  women  die  from  a  gynecologic  cancer.*   *Source:  U.S.  Cancer  Sta0s0cs  Working  Group   Office  of  the  Na/onal  Coordinator  for   6   Health  Informa/on  Technology  
  • 7. Age-­‐Adjusted  Cancer  Incidence  and  Death  Rates:  Female  Breast  and  Gynecologic  by  and   Race  and  Ethnicity,  United  States   Asian/Pacific American Indian/ All Races White Black Islander Alaska Native Hispanic Female Breast Cancer Incidence 121.9 122.6 118 87.9 65.6 92.8 Female Breast Cancer Death Rates 22.5 21.9 31.2 11.9 12.8 14.6 Female Gynecologic Cancer Incidence 48.4 48.9 45.5 34.4 31.3 45.8 Female Gynecologic Cancer Death Rates 15.5 15.3 18.9 10.3 11.9 12.6 Rates  are  per  100,000  persons  and  are  age-­‐adjusted  to  the  2000  U.S.  standard  popula/on  (19  age  groups-­‐Census  P25-­‐1130).   hZp://apps.nccd.cdc.gov/uscs/cancersbyraceandethnicity.aspx   Office  of  the  Na/onal  Coordinator  for   7   Health  Informa/on  Technology  
  • 8. *Rates  are  per  100,000  persons  and  are  age-­‐adjusted  to  the  2000  U.S.  standard  populaHon  (19  age  groups-­‐Census  P25-­‐1130).   140   120   Female  Breast  Incidence   Female  Genital  System  Incidence   100   80   60   40   20   0   All  Races     White     Black     Asian/Pacific  Islander   American  Indian/Alaska   Hispanic   Office  of  the  Na/onal  Coordinator  for   Na/ve   8   Health  Informa/on  Technology  
  • 9. *Rates  are  per  100,000  persons  and  are  age-­‐adjusted  to  the  2000  U.S.  standard  populaHon  (19  age  groups-­‐Census  P25-­‐1130).   35   30   Female  Breast  Death  Rates   25   Female  Genital  Death  Rates   20   15   10   5   0   All  Races     White     Office  Black     Na/onal  Asian/Pacific  Islander   American  Indian/Alaska  Na/ve   of  the   Coordinator  for   Hispanic   9   Health  Informa/on  Technology  
  • 10. While  the  incidence  and  prevalence  of  these  cancers  are   widespread  as  depicted  by  this  data,  dispari/es  in   preven/on,  early  treatment,  quality  of  care,  and   outcomes  result  in  higher  morbidity  and  mortality  rates   among  minority  and  underserved  women.   Office  of  the  Na/onal  Coordinator  for   10   Health  Informa/on  Technology  
  • 11. The  Challenge   •  The  Challenge  calls  on  sohware  developers  to  create  an  applica/on   for  mobile  devices,  in  mul/ple  languages,  that  can  help   underserved  and  minority  women  fight  and  prevent  cancer.   •  Providing  general  informa/on  regarding  preven/ve  and  screening   services  for  breast  and  gynecologic  cancers—including,  but  not   limited  to,  benefits,  /ming,  scheduling,  and  loca/on.   •  Allowing  for  the  interface  with  pa/ent  health  records  or  provider-­‐ sponsored  pa/ent  portals  to  provide  specific  reminders  and  trigger   electronic  health  record-­‐based  clinical  decision  support  regarding   the  /ming  of  preven/ve  services.   Office  of  the  Na/onal  Coordinator  for   11   Health  Informa/on  Technology  
  • 12. The  Challenge  (cont’d)   •  Suppor/ng  the  storage,  viewing,  and  even  the  exchange  of   complex  pa/ent  care  plans.    In  par/cular,  the  applica/on  will   help  strengthen  communica/on  among  provider  care  teams,   possibly  spread  out  across  large  geographic  loca/ons,  to   afford  op/mal  remote  follow-­‐up  (e.g.  be  able  to  send  pa/ent   informa/on  to  electronic  health  records  via  Direct,   hZp://directproject.org/).   •  Suppor/ng  pa/ent  engagement  and  care  giver  support  with   applica/ons  that  help  pa/ents  and/or  their  caregivers  keep   track  of  complex  care  plans,  such  as  connec/ons  to   community  health  workers,  promotores  de  salud,  or  pa/ent   navigators.   Office  of  the  Na/onal  Coordinator  for   12   Health  Informa/on  Technology  
  • 13. Judging  Criteria   •  PaHent  engagement:  Incorpora/ng  pa/ent-­‐reported  informa/on   •  Quality  and  accessibility  of  informaHon:  Providing  high  quality,  evidence-­‐based  informa/on  and   interven/ons  using  plain  language,  a  clear  display  that  considers  usability  on  a  small-­‐screen   interface  (Web  Usability  and  Aging,  Usability  and  Mobile  Devices),  and  targe/ng  pa/ents  with  a   range  of  health  literacy  levels   •  Targeted  and  acHonable  informaHon:  Providing  tailored  informa/on,  recommenda/ons,  and   reminders   •  Links  to  online  communiHes  and/or  social  media:  Link  pa/ents  with  others  who  are  facing  the   same  health  challenges  through  social  media  sites  or  organiza/ons,  such  as  the  American  Cancer   Society,  and  to  other  sources  of  support,  such  as  community  health  workers,  pa/ent  navigators,  or   promotores  de  salud   •  InnovaHveness  and  usability:  Innova/veness  and  an  easy-­‐to-­‐use  interface  for  pa/ents  with  a  range   of  experiences  and  comfort  levels  with  technology   •  Non-­‐English  language  availability:  Availability  of  the  tool  in  languages  used  in  minority  and   underserved  communi/es   Office  of  the  Na/onal  Coordinator  for   13   Health  Informa/on  Technology  
  • 14. Timeline   Submission  Period  Begins:  August  23,  2012   Submission  Period  for  Entries  Ends:  February  5,  2013   Evalua/on  Process  for  Entries  Begins:  February  8,  2013   Evalua/on  Process  for  Entries  Ends:  February  19,  2013   Winners  no/fied:  February  24,  2013   Winners  Announced:  Conference  TBD,  March-­‐April  2013   Office  of  the  Na/onal  Coordinator  for   14   Health  Informa/on  Technology  
  • 15. Prizes   First  Place:  $85,000  +  demo  opp  at  conf   Second  Place:  $10,000   Third  Place:  $5,000   Not  to  men%on:  recogni%on,  publicity,  credibility  and  reach!   Office  of  the  Na/onal  Coordinator  for   15   Health  Informa/on  Technology  
  • 16. Ques/ons?   www.health2challenge.org Contact Hemali: hemali@health2con.com Office  of  the  Na/onal  Coordinator  for   16   Health  Informa/on  Technology