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Life beyond infertility:
Reconstructing their lives
BAIDYA JL
DEPARTMENT OF OBSTETRICS & GYNAECOLOGY
AGMC, AGARTALA, TRIPURA
Aim of this talk
SENSITIZE TO UNDERSTAND & DEAL THE
BIOLOGICALLY CHILDLESS COUPLE
Objectives of the talk
 Introduction : Magnitude of the problem
 Consequences of Childlessness
 Quality of life
 Cope up with situation
 Other health issues
 What we can do to reconstruct their lives
 World wide more than 70 millions people suffer from
infertility
 Majority being residents of developing countries
 Lack of well established data in India
 Developing countries experience negative
consequences of childlessness to greater degree
Introduction
Introduction
 Infertility problems are treated as ancillary problem in
overpopulated country like India
 Childlessness is not a life threatening condition
 Programme planners & policy makers have little or no
attention in reproductive health services
 Treating clinicians & society solely confront this problems
Emotional consequences of an
infertility can be
devastating……………………………………
………………..very few life problems
more emotionally painful and
challenging than infertility
Ms Pamela F. Pressman
Director of the infertility counselling
program
Factors influencing
psychological stress
1. “Having Children is a Major Focus of Life”
2. “The Female Role and Social Pressure”
3. “Effect on Sexual Life”
Quality of life
 The crisis of childlessness is devastating & painful as it trend to
be chronic
 Crisis usually precipitated by loss or the anticipation of loss
 Women receive major blames
 Women finds difficulties in confronting the crisis
Quality Of Life: Common emotional responses
 Depression (15 – 54%)
 Stress, Guilt, shame
 Anger, Loss of control ( 8 -28%)
 Relationship problems
 Personal identity change, Isolation
 Loss of sexual fulfilment
 Irrational pursuit of treatment, financial loss
Men & women may
experience & response
differently
What are those differences?
Different perceptions
• Parenthood
• Cause
• Emotional
response
• Role
• Workplace
• Expression
Men
• Ambiguous
• HE is not
• Strong guilt,
reluctant
• Optimist
• Distraction
• Anger
Women
• Primary goal
• Takes responsibility
• Searched endlessly
• Pessimistic
• Less productive
• Depresses
QOL : impact on couples relationship
 Depression most commonly expressed condition
 Lifelong goal unmet- lead to fear, anger
 First life crisis for the couple – poorly prepared to cope
 Different roles in the cause – misunderstood & uncared for
 Above all factors – difficulties in communication with each other
QOL: within the family
 Unhappiness has direct effect on sexual life
 Childlessness is a curse of GOD – fertile ground for divorce or separation
 Men usually resorted with addiction – alcohol, drugs, tobacco, country
spirit
 Physical & mental tortures in extended family settings
QOL: stigma in the community
 Children are indicators of family’s wealth & prosperity – childless
parents loose leadership role in different forum of community
 Reported to engage in sex with multiple partners (both sex)
 Some childless men are compelled to acquire second wife
QOL: stigma in the community
 Stigma even continues after the death
 Infertility also presents stressors in the financial
domain – on insurance coverage?
 “Its always the woman’s fault” – highly stigmatised in
community
How do they accept the life !?
Coping strategies
KUBLER ROSS CURVE
Coping strategies
“Sometimes it is really difficult to imagine life
without children, but you have to find a way of
coping to prevent doing something stupid; this you
do by redirecting your energy towards other
ventures”
Healthy coping strategies
So methods of coping :
 Strengthening of inner strength,
 Self-confidence,
 True acceptance their fate,
 Trying to carry on by focusing on the future
Unhealthy coping strategies
 Social isolation
 Abuse of alcoholic beverage
 Engaging sex with multiple partners
Through counselling
BEST TIME TO INTERVENE DURING TRANSITION PERIOD
Reconstruction of their lives
Interventions
 Lot can be done !
 Early referral must
 Mental health professional able to asses &
intervene better
Primary aims of psychological
intervention
 Enable to “Cope up”
 Decision making in
alternate parenting options
 Avoid potential conflicts –
partnership
 Rediscover & revitalize life
“beyond desire for a Child”
 Improve communications
between partner &
physicians
 Improve acceptance if
medical treatment fails
 Give support in finding
alternative perspectives
Reconstruction of their lives:
implications for counselling
 Adaptation to unintentional biological childlessness is slow &
painful process
 Need of emotional & psychological support in early stage of
transition
 Need for support for those waiting for adoption & other
parenting options
 Explore & new goals in life those who deny parenting
Quality of Health
One must not forget
Health risks
 Raised concerns
 Related to causes that responsible for infertility
 E.g. PCOD, Genital TB, Endometriosis
 Related to infertility treatment
 E.g. Clomiphene Citrate, Gonadotropin, GnRH
Health risks
 Complications related to Causes:
 Metabolic X syndrome
 Diabetes mellitus
 Premalignant & malignant diseases of endometrium
 Osteoporosis
 Chronic pelvic Pain
 de novo malignancy of endometrioma of ovary
Quality of Health: Risk of cancer
There are three types of cancer that would seem to have a
plausible biological link to the hormone regimens used in
ovarian stimulation : Breast, Ovarian, and Endometrial
cancers.
Dr. Roberta Ness,
Chair of the Department of Epidemiology
The University of Pittsburgh
Quality of
Health
 Clomiphene usage
and risk of ovarian,
breast, and
endometrial
cancers.
SOURCE: Louise Brinton, National
Cancer Institute, personal
communication, 2006.
Quality of Health: risk of cancer
 There's no evidence that fertility drugs elevate the risk of
breast cancer.
 Infertility, not the assisted reproduction therapy, certainly
increases the risk of ovarian cancer.
 But for uterine cancer, where the data are too sparse to
lead to any conclusion
Quality of Health: Risk of NON
Gynaecological cancer
 Exogenous hormones administered for infertility
treatment might be linked with Thyroid cancer &
Melanoma
 NO STRONG EVIDENCE
On lighter
note !!
Thanks for giving me an
opportunity to be here
!!!

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Life beyond infertility: how to reconstruct their lives

  • 1. Life beyond infertility: Reconstructing their lives BAIDYA JL DEPARTMENT OF OBSTETRICS & GYNAECOLOGY AGMC, AGARTALA, TRIPURA
  • 2. Aim of this talk SENSITIZE TO UNDERSTAND & DEAL THE BIOLOGICALLY CHILDLESS COUPLE
  • 3. Objectives of the talk  Introduction : Magnitude of the problem  Consequences of Childlessness  Quality of life  Cope up with situation  Other health issues  What we can do to reconstruct their lives
  • 4.  World wide more than 70 millions people suffer from infertility  Majority being residents of developing countries  Lack of well established data in India  Developing countries experience negative consequences of childlessness to greater degree Introduction
  • 5. Introduction  Infertility problems are treated as ancillary problem in overpopulated country like India  Childlessness is not a life threatening condition  Programme planners & policy makers have little or no attention in reproductive health services  Treating clinicians & society solely confront this problems
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  • 8. Emotional consequences of an infertility can be devastating…………………………………… ………………..very few life problems more emotionally painful and challenging than infertility Ms Pamela F. Pressman Director of the infertility counselling program
  • 9. Factors influencing psychological stress 1. “Having Children is a Major Focus of Life” 2. “The Female Role and Social Pressure” 3. “Effect on Sexual Life”
  • 10. Quality of life  The crisis of childlessness is devastating & painful as it trend to be chronic  Crisis usually precipitated by loss or the anticipation of loss  Women receive major blames  Women finds difficulties in confronting the crisis
  • 11. Quality Of Life: Common emotional responses  Depression (15 – 54%)  Stress, Guilt, shame  Anger, Loss of control ( 8 -28%)  Relationship problems  Personal identity change, Isolation  Loss of sexual fulfilment  Irrational pursuit of treatment, financial loss Men & women may experience & response differently
  • 12. What are those differences? Different perceptions • Parenthood • Cause • Emotional response • Role • Workplace • Expression Men • Ambiguous • HE is not • Strong guilt, reluctant • Optimist • Distraction • Anger Women • Primary goal • Takes responsibility • Searched endlessly • Pessimistic • Less productive • Depresses
  • 13. QOL : impact on couples relationship  Depression most commonly expressed condition  Lifelong goal unmet- lead to fear, anger  First life crisis for the couple – poorly prepared to cope  Different roles in the cause – misunderstood & uncared for  Above all factors – difficulties in communication with each other
  • 14. QOL: within the family  Unhappiness has direct effect on sexual life  Childlessness is a curse of GOD – fertile ground for divorce or separation  Men usually resorted with addiction – alcohol, drugs, tobacco, country spirit  Physical & mental tortures in extended family settings
  • 15. QOL: stigma in the community  Children are indicators of family’s wealth & prosperity – childless parents loose leadership role in different forum of community  Reported to engage in sex with multiple partners (both sex)  Some childless men are compelled to acquire second wife
  • 16. QOL: stigma in the community  Stigma even continues after the death  Infertility also presents stressors in the financial domain – on insurance coverage?  “Its always the woman’s fault” – highly stigmatised in community
  • 17. How do they accept the life !?
  • 19. Coping strategies “Sometimes it is really difficult to imagine life without children, but you have to find a way of coping to prevent doing something stupid; this you do by redirecting your energy towards other ventures”
  • 20. Healthy coping strategies So methods of coping :  Strengthening of inner strength,  Self-confidence,  True acceptance their fate,  Trying to carry on by focusing on the future
  • 21. Unhealthy coping strategies  Social isolation  Abuse of alcoholic beverage  Engaging sex with multiple partners
  • 22. Through counselling BEST TIME TO INTERVENE DURING TRANSITION PERIOD Reconstruction of their lives
  • 23. Interventions  Lot can be done !  Early referral must  Mental health professional able to asses & intervene better
  • 24. Primary aims of psychological intervention  Enable to “Cope up”  Decision making in alternate parenting options  Avoid potential conflicts – partnership  Rediscover & revitalize life “beyond desire for a Child”  Improve communications between partner & physicians  Improve acceptance if medical treatment fails  Give support in finding alternative perspectives
  • 25. Reconstruction of their lives: implications for counselling  Adaptation to unintentional biological childlessness is slow & painful process  Need of emotional & psychological support in early stage of transition  Need for support for those waiting for adoption & other parenting options  Explore & new goals in life those who deny parenting
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  • 27. Quality of Health One must not forget
  • 28. Health risks  Raised concerns  Related to causes that responsible for infertility  E.g. PCOD, Genital TB, Endometriosis  Related to infertility treatment  E.g. Clomiphene Citrate, Gonadotropin, GnRH
  • 29. Health risks  Complications related to Causes:  Metabolic X syndrome  Diabetes mellitus  Premalignant & malignant diseases of endometrium  Osteoporosis  Chronic pelvic Pain  de novo malignancy of endometrioma of ovary
  • 30. Quality of Health: Risk of cancer There are three types of cancer that would seem to have a plausible biological link to the hormone regimens used in ovarian stimulation : Breast, Ovarian, and Endometrial cancers. Dr. Roberta Ness, Chair of the Department of Epidemiology The University of Pittsburgh
  • 31. Quality of Health  Clomiphene usage and risk of ovarian, breast, and endometrial cancers. SOURCE: Louise Brinton, National Cancer Institute, personal communication, 2006.
  • 32. Quality of Health: risk of cancer  There's no evidence that fertility drugs elevate the risk of breast cancer.  Infertility, not the assisted reproduction therapy, certainly increases the risk of ovarian cancer.  But for uterine cancer, where the data are too sparse to lead to any conclusion
  • 33. Quality of Health: Risk of NON Gynaecological cancer  Exogenous hormones administered for infertility treatment might be linked with Thyroid cancer & Melanoma  NO STRONG EVIDENCE
  • 35. Thanks for giving me an opportunity to be here !!!