My presentation for the keynote lecture on the conference of the International Society of Shared Decision Making (#ISDM2001) in Maastricht (june 20th, 2011)

1. The power of The Individual Formerly Known As Patient (TIFKAP) Jan A.M. Kremer, gynaecologist Radboud University Nijmegen Medical Centre @JKNL #ISDM2011 j.kremer@obgyn.umcn.nl Maastricht, June 20th, 2011

2. Inspiration

4. Disruptive innovations make things more affordable and simple

6. Spectacular developments of internet 2.0 and its social consequences

7. Web 2.0 is a platform of virtual communication & participation

9. Patient comes from the Latin word Patientia: patience, suffering, endurance

11. ReproductiveMedicine

12. Head of the IVF team

13. 1 of 6 couples

14. 16.000 IVF treatments

16. What do youthink of our IVF care?

17. Patient power

18. Fromparadigm shift todream

19. 1. Digital IVF Clinic General information 1.0 interviews, education leaflets, PDA Personal Health Record (PHR) test results, pictures, letters, reports Communication chat and forum (P2D & P2P)

22. Almost 4000 patients,

23. > 100.000 forum items

24. Patients are the motor of this innovation

25. More trust, less complaints, better culture

27. 3. PatientCentredness Questionnaire

28. 4. Patients & Guidelinedevelopement

29. 5. Patients & Educationdevelopement HELP US! In our community, youfind wiki’s with information aboutyourfertilitytreatments. This information is not complete sinceyourknowledge & experiences are stilllacking. Please help us. It is a verysimple: 1. Go toourmijnzorgnet.nl 2. Go to the wiki 3. Addyour information

32. Risks of twins

33. How to make the choicevan Peperstraten et al, Patient EducCouns, 2009

34. Patients make the betterandcheaperchoice

35. 7. Next step: Health communities We have organized Healthcare from the institution of the provider We should organize Healthcare from the network of the patient MijnZorgNet (MyCareNet) is a provider of Health Communities

36. Three kinds of communities Public Health Communities Dutch Community for Infertility Private Health Communities Nijmegen IVF centre Personal Health Communities Health community of Jan Kremer

38. from god to guide

41. from better & expensive, to simple and affordable