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BREAKING THE
BAD NEWS
Dr. Liza Manalo, MSc.
Palliative Care, Cancer Center
The Medical City
Breaking Bad News:
 S-P-I-K-E-S Strategy

Community Oncology, March/April 2005



    Robert A. Buckman, MD, PhD
    University of Toronto, Canada
S-Setting

Privacy
Involve significant others
Sit down
Look attentive and calm
Listening mode: silence & repetition
Availability

             Community Oncology, March/April 2005
P-Patient’s perception

Find out how much the patient or
surrogate decision-maker knows.

“What did you think was going on?”
“What have you been told about all this so
far?”
“Are you worried that this might be
something serious?”
I-Invitation

Find out how much the patient or
surrogate decision-maker wants to
know.
 “Are you the kind of person who prefers to know all
the details about what is going on?”
“How much information would you like me to give
you about diagnosis and treatment?”
“Would you like me to give you details of what is
going on or would you prefer that I just tell you about
treatments I am proposing?”
K-Knowledge
Share the information
 Warning shot :
  • “Unfortunately, I’ve got some bad news to tell you,
      Mrs. Dela Cruz.”
    • “Mrs. Dela Cruz, I’m so sorry to have to tell you….”
     Pause : Wait for them to take a deep breath
      and get ready to hear the bad news
     Use short, simple, clear sentences
     Avoid jargon or technical scientific language
     Tailor the rate at which you provide
      information
     to the patient/surrogate decision-maker
E-Empathy

  Step 1: Listen for and identify the
  emotion (or mixture of emotions).

• “How does that make you feel?”
• “What do you make of what I’ve just told you?”


  Step 2: Identify the cause or source
  of the emotion
E-Empathy
Step 3: Show your patient/surrogate decision-
maker that you have identified the emotion and its
origin
   •“Hearing the results of the tests is clearly a major shock
   to you.”
   •“Obviously, this piece of news is very upsetting.”
   •“Clearly, this is very distressing.”
 Empathetic silence: Wait for them to take a deep breath
and process the bad news
Answer questions patiently
Be sensitive and compassionate
Respond to the patient’s or surrogate decision-maker’s
thoughts and feelings
 Identify the emotionally critical misperception (ECM)
E-Empathy

Validation – normalize the patient’s or surrogate
decision-maker’s feelings
     •“I can understand how you can feel that way.”
   Let the patient or surrogate decision-maker
  know that showing emotion is perfectly normal,
  to minimize feelings of embarrassment and
  isolation
   Assure non-abandonment: Inform the patient or
  surrogate decision-maker that you will be
  coaching them through the next steps
S-Strategy/Summary
 Educate, summarize, and concretize
  plan of action
   Ensure that the patient or surrogate decision-
    maker understands the information so that you
    and they are both on the same page.
   Summarize the information in your discussion
    and give the patient or surrogate decision-maker
    an opportunity to voice any major concerns or
    questions.
   Outline a step-by-step plan, explain it to the
    patient or surrogate decision-maker, and
    contract about the next step.
Common Communication Error:
    Information overload and "medspeak"
              Emergency Room:
• Mrs. Dela Cruz: “Doctor, how is my husband doing?”
• Dr. Reyes: “He had a stroke.”
• Mrs. Dela Cruz: “Stroke?” But he is only 51. How big is it?”
• Dr. Reyes: “Pretty big according to the CT scan. It revealed
  hemorrhage or a bleed on the right parieto-temporal lobe, with
  subarachnoid and intraventricular extension. Problem is that he is
  comatose and hypertensive right now. Also, the pupils are equally
  dilated and non- reactive and the brainstem reflexes are absent.
  Anyway…., the Neuro folks are coming. They will explain things
  more. Meantime, don’t worry!”
• Mrs. Dela Cruz: (thinking can-you-talk-to-me-in-English or
  Tagalog?): “Doc will he make it? I am so worried….”
Breaking the Bad News –
               Emergency Room:
               BETTER VERSION
• Mrs. Dela Cruz: “Doctor, how is my husband doing?”
• Dr. Reyes: “Mrs. Dela Cruz, let us find a place to sit down.”
• Dr. Reyes: “I am afraid that I have some bad news for you.”
Pause for a few seconds (you may want to count till ten) allowing
  wife to prepare herself for the news.
• Dr. Reyes: “Your husband has had a stroke.”
Pause and allow Mrs. Dela Cruz to digest the information.
• Mrs. Dela Cruz: “He had a stroke?”
• Dr. Reyes: “Yes. I am afraid so.”
Pause and allow Mrs. Dela Cruz to digest the information.
• Mrs. Dela Cruz: “Stroke? But he is only 51. How big is it?”
Breaking the Bad News –
                Emergency Room:
                BETTER VERSION
• Dr. Reyes: “I ran some initial tests on him. Looks like it is a rather
  big bleed. You did great by bringing him in so quickly.”
• Mrs. Dela Cruz: “Doc will he make it? I am so worried.…”
• Dr. Reyes: “Mrs. Dela Cruz, we already know that your husband has
  a stroke and I have started him treatment to remove the pressure on
  the brain. I have talked to the neurology specialists. They will be
  here momentarily to take over. I’m afraid however that even if we do
  everything we can, the damage to his brain is such that I feel we will
  not be able to pull him through, I’m sorry.”
Pause and allow Mrs. Dela Cruz to digest the information.
• Dr. Reyes: “How are you doing? What is going through your head?”
Pause and allow Mrs. Dela Cruz to digest the information and
  formulate her questions.
Phraseology :
             Do's and Don'ts
What not to say                  What to say
• "I know exactly how you        • "My past experience with
  feel."                           many patients in this
  Sweeping statements that         situation has taught me
  are not grounded in              that you must be in
  personal or professional         distress right now."
  experiences are hard to        • "I can imagine how upset
  believe.                         you must be."



                     http://endoflife.stanford.edu/M19_communic/dos_and_donts.html
Phraseology :
             Do's and Don'ts

What not to say                   What to say
• "Your husband have              • "Unfortunately, the
  failed medical                    __________ therapy
  decompression therapy."           does not seem to be
This implies that it is the         working very well."
  patient's fault that the
  therapies are not working.




                      http://endoflife.stanford.edu/M19_communic/dos_and_donts.html
Phraseology :
             Do's and Don'ts

What not to say                   What to say
• "There is nothing else we       • "Looks like the ________
  can do."                          is not working very well.
                                    However, you can be
                                    sure that we will do
                                    everything in our power to
                                    make sure that you (your
                                    husband) won't suffer."



                      http://endoflife.stanford.edu/M19_communic/dos_and_donts.html
What not to say
• "There is nothing more that can be done. I am going to
  refer you to hospice and palliative care."


What to say
•   "Doctor: As we have just discussed, it looks like the ________
    treatment we tried is not working. So we have to stop the
    ________medication.
•   Mrs. Dela Cruz: What do we do next, doc?
•   Doctor: At this time, I do not have other viable medications that I can
    offer to you”
•   Mrs. Dela Cruz: .....
•   Doctor: I would like to refer you to hospice and palliative care.
    Hospice professionals have a lot of expertise in treating symptoms
    and increasing comfort and quality of life. They will help your
    husband by managing your husband’s ________________
    (dyspnea, agitation/restlessness, respiratory secretions, etc).
                             http://endoflife.stanford.edu/M19_communic/dos_and_donts.html
DNR Discussions
          with Surrogate Decision-Maker:
         Patient With a Life-Limiting Illness
• What not to say
• “Mrs. Dela Cruz, do you want every thing done for your husband?”
• What the doctor might say instead
• Dr. Reyes: “Mrs. Dela Cruz, I want to talk to you more about what we call
   advance directives and Do Not Resuscitate orders for your husband.”
(Pause and give the decision-maker time to digest the information.)
• “As you know, your husband had a massive stroke and the medical team
   members agree that his prognosis is grave and his chances for survival and
   recovery nil.”
• “In thinking about decisions regarding resuscitation there is a whole
   spectrum of choices. In event of an adverse situation, some patients would
   like to be connected to life support and would like us to do heroic life
   sustaining treatments. Others do not want such measures.”
(Pause and give the decision-maker time to digest the information.)
                                       http://endoflife.stanford.edu/M19_communic/dnr_disc_bbn.html
DNR Discussions
       with Surrogate Decision-Maker:
      Patient With a Life-Limiting Illness
•  Mrs. Dela Cruz: “But I don’t want my husband to die.”
•  Dr. Reyes: Mrs. Dela Cruz, of course you want your husband to live,
   but with good quality of life. I do not want you and him to suffer and
   as your doctor, I will do what is in my power to help both of you.”
(Pause and give the decision-maker time to digest the information.)
• Mrs. Dela Cruz: “Yes. I do not want him to suffer.”
(Pause and give the decision-maker time to digest the information.)
• Dr. Reyes: “Your husband is now in coma. If his heart were to stop,
   putting him on life support will not prolong life. It would only prolong
   the dying process.”
(Pause and give the decision-maker time to digest the information.)



                                      http://endoflife.stanford.edu/M19_communic/dnr_disc_bbn.html
DNR Discussions
       with Surrogate Decision-Maker:
      Patient With a Life-Limiting Illness

•  Mrs. Dela Cruz: ……
(Pause and give the decision-maker time to digest the information.)
• Dr. Reyes: “Things look grim for your husband and the increasing
   intracranial pressure has compressed the brain that at this point,
   any life support measures would be ineffective.”
(Pause and give the decision-maker time to digest the information).




                                    http://endoflife.stanford.edu/M19_communic/dnr_disc_bbn.html
DNR Discussions
       with Surrogate Decision-Maker:
      Patient With a Life-Limiting Illness
•   Mrs. Dela Cruz: ……
•   Dr. Reyes: “In a situation like this, it is my opinion that we should hold
    back on futile resuscitative measures, but really focus on making your
    husband comfortable.”
(Pause and give the decision-maker time to digest the information).
• Mrs. Dela Cruz:……
(If decision-maker still seems reluctant)
• Dr. Reyes: “I want you to think a little more about this and we can talk
    again in a while. I want you to remember that no matter what, I will still
    be your husband’s doctor and I am here to help both of you.”




                                      http://endoflife.stanford.edu/M19_communic/dnr_disc_bbn.html
Breaking Bad News:
       S-P-I-K-E-S Strategy
S – Setting
P – Patient’s Perception
I – Invitation
K – Knowledge
E – Empathy
S – Strategy/Summary
                    Before you tell, ASK!
              “What is your understanding of your illness?”

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Breaking the Bad News

  • 1. BREAKING THE BAD NEWS Dr. Liza Manalo, MSc. Palliative Care, Cancer Center The Medical City
  • 2. Breaking Bad News: S-P-I-K-E-S Strategy Community Oncology, March/April 2005 Robert A. Buckman, MD, PhD University of Toronto, Canada
  • 3. S-Setting Privacy Involve significant others Sit down Look attentive and calm Listening mode: silence & repetition Availability Community Oncology, March/April 2005
  • 4. P-Patient’s perception Find out how much the patient or surrogate decision-maker knows. “What did you think was going on?” “What have you been told about all this so far?” “Are you worried that this might be something serious?”
  • 5. I-Invitation Find out how much the patient or surrogate decision-maker wants to know.  “Are you the kind of person who prefers to know all the details about what is going on?” “How much information would you like me to give you about diagnosis and treatment?” “Would you like me to give you details of what is going on or would you prefer that I just tell you about treatments I am proposing?”
  • 6. K-Knowledge Share the information  Warning shot : • “Unfortunately, I’ve got some bad news to tell you, Mrs. Dela Cruz.” • “Mrs. Dela Cruz, I’m so sorry to have to tell you….”  Pause : Wait for them to take a deep breath and get ready to hear the bad news  Use short, simple, clear sentences  Avoid jargon or technical scientific language  Tailor the rate at which you provide information to the patient/surrogate decision-maker
  • 7. E-Empathy Step 1: Listen for and identify the emotion (or mixture of emotions). • “How does that make you feel?” • “What do you make of what I’ve just told you?” Step 2: Identify the cause or source of the emotion
  • 8. E-Empathy Step 3: Show your patient/surrogate decision- maker that you have identified the emotion and its origin •“Hearing the results of the tests is clearly a major shock to you.” •“Obviously, this piece of news is very upsetting.” •“Clearly, this is very distressing.”  Empathetic silence: Wait for them to take a deep breath and process the bad news Answer questions patiently Be sensitive and compassionate Respond to the patient’s or surrogate decision-maker’s thoughts and feelings  Identify the emotionally critical misperception (ECM)
  • 9. E-Empathy Validation – normalize the patient’s or surrogate decision-maker’s feelings •“I can understand how you can feel that way.”  Let the patient or surrogate decision-maker know that showing emotion is perfectly normal, to minimize feelings of embarrassment and isolation  Assure non-abandonment: Inform the patient or surrogate decision-maker that you will be coaching them through the next steps
  • 10. S-Strategy/Summary  Educate, summarize, and concretize plan of action  Ensure that the patient or surrogate decision- maker understands the information so that you and they are both on the same page.  Summarize the information in your discussion and give the patient or surrogate decision-maker an opportunity to voice any major concerns or questions.  Outline a step-by-step plan, explain it to the patient or surrogate decision-maker, and contract about the next step.
  • 11. Common Communication Error: Information overload and "medspeak" Emergency Room: • Mrs. Dela Cruz: “Doctor, how is my husband doing?” • Dr. Reyes: “He had a stroke.” • Mrs. Dela Cruz: “Stroke?” But he is only 51. How big is it?” • Dr. Reyes: “Pretty big according to the CT scan. It revealed hemorrhage or a bleed on the right parieto-temporal lobe, with subarachnoid and intraventricular extension. Problem is that he is comatose and hypertensive right now. Also, the pupils are equally dilated and non- reactive and the brainstem reflexes are absent. Anyway…., the Neuro folks are coming. They will explain things more. Meantime, don’t worry!” • Mrs. Dela Cruz: (thinking can-you-talk-to-me-in-English or Tagalog?): “Doc will he make it? I am so worried….”
  • 12. Breaking the Bad News – Emergency Room: BETTER VERSION • Mrs. Dela Cruz: “Doctor, how is my husband doing?” • Dr. Reyes: “Mrs. Dela Cruz, let us find a place to sit down.” • Dr. Reyes: “I am afraid that I have some bad news for you.” Pause for a few seconds (you may want to count till ten) allowing wife to prepare herself for the news. • Dr. Reyes: “Your husband has had a stroke.” Pause and allow Mrs. Dela Cruz to digest the information. • Mrs. Dela Cruz: “He had a stroke?” • Dr. Reyes: “Yes. I am afraid so.” Pause and allow Mrs. Dela Cruz to digest the information. • Mrs. Dela Cruz: “Stroke? But he is only 51. How big is it?”
  • 13. Breaking the Bad News – Emergency Room: BETTER VERSION • Dr. Reyes: “I ran some initial tests on him. Looks like it is a rather big bleed. You did great by bringing him in so quickly.” • Mrs. Dela Cruz: “Doc will he make it? I am so worried.…” • Dr. Reyes: “Mrs. Dela Cruz, we already know that your husband has a stroke and I have started him treatment to remove the pressure on the brain. I have talked to the neurology specialists. They will be here momentarily to take over. I’m afraid however that even if we do everything we can, the damage to his brain is such that I feel we will not be able to pull him through, I’m sorry.” Pause and allow Mrs. Dela Cruz to digest the information. • Dr. Reyes: “How are you doing? What is going through your head?” Pause and allow Mrs. Dela Cruz to digest the information and formulate her questions.
  • 14. Phraseology : Do's and Don'ts What not to say What to say • "I know exactly how you • "My past experience with feel." many patients in this Sweeping statements that situation has taught me are not grounded in that you must be in personal or professional distress right now." experiences are hard to • "I can imagine how upset believe. you must be." http://endoflife.stanford.edu/M19_communic/dos_and_donts.html
  • 15. Phraseology : Do's and Don'ts What not to say What to say • "Your husband have • "Unfortunately, the failed medical __________ therapy decompression therapy." does not seem to be This implies that it is the working very well." patient's fault that the therapies are not working. http://endoflife.stanford.edu/M19_communic/dos_and_donts.html
  • 16. Phraseology : Do's and Don'ts What not to say What to say • "There is nothing else we • "Looks like the ________ can do." is not working very well. However, you can be sure that we will do everything in our power to make sure that you (your husband) won't suffer." http://endoflife.stanford.edu/M19_communic/dos_and_donts.html
  • 17. What not to say • "There is nothing more that can be done. I am going to refer you to hospice and palliative care." What to say • "Doctor: As we have just discussed, it looks like the ________ treatment we tried is not working. So we have to stop the ________medication. • Mrs. Dela Cruz: What do we do next, doc? • Doctor: At this time, I do not have other viable medications that I can offer to you” • Mrs. Dela Cruz: ..... • Doctor: I would like to refer you to hospice and palliative care. Hospice professionals have a lot of expertise in treating symptoms and increasing comfort and quality of life. They will help your husband by managing your husband’s ________________ (dyspnea, agitation/restlessness, respiratory secretions, etc). http://endoflife.stanford.edu/M19_communic/dos_and_donts.html
  • 18. DNR Discussions with Surrogate Decision-Maker: Patient With a Life-Limiting Illness • What not to say • “Mrs. Dela Cruz, do you want every thing done for your husband?” • What the doctor might say instead • Dr. Reyes: “Mrs. Dela Cruz, I want to talk to you more about what we call advance directives and Do Not Resuscitate orders for your husband.” (Pause and give the decision-maker time to digest the information.) • “As you know, your husband had a massive stroke and the medical team members agree that his prognosis is grave and his chances for survival and recovery nil.” • “In thinking about decisions regarding resuscitation there is a whole spectrum of choices. In event of an adverse situation, some patients would like to be connected to life support and would like us to do heroic life sustaining treatments. Others do not want such measures.” (Pause and give the decision-maker time to digest the information.) http://endoflife.stanford.edu/M19_communic/dnr_disc_bbn.html
  • 19. DNR Discussions with Surrogate Decision-Maker: Patient With a Life-Limiting Illness • Mrs. Dela Cruz: “But I don’t want my husband to die.” • Dr. Reyes: Mrs. Dela Cruz, of course you want your husband to live, but with good quality of life. I do not want you and him to suffer and as your doctor, I will do what is in my power to help both of you.” (Pause and give the decision-maker time to digest the information.) • Mrs. Dela Cruz: “Yes. I do not want him to suffer.” (Pause and give the decision-maker time to digest the information.) • Dr. Reyes: “Your husband is now in coma. If his heart were to stop, putting him on life support will not prolong life. It would only prolong the dying process.” (Pause and give the decision-maker time to digest the information.) http://endoflife.stanford.edu/M19_communic/dnr_disc_bbn.html
  • 20. DNR Discussions with Surrogate Decision-Maker: Patient With a Life-Limiting Illness • Mrs. Dela Cruz: …… (Pause and give the decision-maker time to digest the information.) • Dr. Reyes: “Things look grim for your husband and the increasing intracranial pressure has compressed the brain that at this point, any life support measures would be ineffective.” (Pause and give the decision-maker time to digest the information). http://endoflife.stanford.edu/M19_communic/dnr_disc_bbn.html
  • 21. DNR Discussions with Surrogate Decision-Maker: Patient With a Life-Limiting Illness • Mrs. Dela Cruz: …… • Dr. Reyes: “In a situation like this, it is my opinion that we should hold back on futile resuscitative measures, but really focus on making your husband comfortable.” (Pause and give the decision-maker time to digest the information). • Mrs. Dela Cruz:…… (If decision-maker still seems reluctant) • Dr. Reyes: “I want you to think a little more about this and we can talk again in a while. I want you to remember that no matter what, I will still be your husband’s doctor and I am here to help both of you.” http://endoflife.stanford.edu/M19_communic/dnr_disc_bbn.html
  • 22. Breaking Bad News: S-P-I-K-E-S Strategy S – Setting P – Patient’s Perception I – Invitation K – Knowledge E – Empathy S – Strategy/Summary Before you tell, ASK! “What is your understanding of your illness?”