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White Paper—Be The Match
                           Transforming IT
                           to Save Lives
                           The story of how Be The Match is
                           leveraging technology to give critically
                           ill patients a chance at life




       Sav g lives s
                           This is one in a series of stories told by NetApp
                           customers that demonstrate how an organization’s
                           storage architecture has a direct impact on its success.
                           This is the story of Be The Match® and how its NetApp
                           based shared IT infrastructure is helping save more
                           lives than ever before.
The flow of data is critical for all
                            organizations, but for Be The Match,
                            lives literally depend on it. In 2007,
                            Be The Match was helping to
                            facilitate 3,700 transplants annually.
                            But how many more lives could
                            Be The Match save if IT were an
                            enabler, not a constraint?




“There is no way            Executive Summary
                            Thousands of patients with
                                                                        With a shared IT infrastructure built
                                                                        on a NetApp® storage foundation,
 we could have              life‑threatening diseases such as           Be The Match is dramatically reducing
                                                                        the time to transplant and steadily
                            leukemia, lymphoma, and sickle cell
 achieved our growth        disease need a marrow transplant            increasing the number of transplants
                            but don’t have a match in their family.     it facilitates annually. According to
 numbers or gained          More than 70% of patients depend            Jones, “Deploying a storage archi‑

 the efficiencies we        on Be The Match to find a match.
                            To call its data “mission critical” would
                                                                        tecture that is efficient, that is flexible,
                                                                        is absolutely key to decision making
 have…without               be an understatement. Operated by
                            the nonprofit National Marrow Donor
                                                                        and driving more patients to trans‑
                                                                        plant sooner.”
 building our IT            Program ® (NMDP), Be The Match
                                                                        Eliminating Barriers
                            helps connect these patients with
 foundation on              donors. By providing patients access
                                                                        When Jones arrived at Be The Match,
                                                                        he set out to rethink the role tech‑
 NetApp storage.”           to a registry of more than 15 million
                            donors and 400,000 umbilical cord
                                                                        nology should play in helping the
                                                                        organization deliver on its mandate
                            blood units, Be The Match facilitates
Michael Jones                                                           to save lives.
Chief Information Officer
                            thousands of potentially lifesaving
Be The Match                transplants every year.                     Diseases like leukemia and lymphoma
                                                                        can progress in a matter of months or
                            Data is at the core of the registry and
                                                                        weeks, so speed is critical. The best
                            the transplant process. The more
                                                                        outcomes are achieved when Be The
                            efficiently it flows, the faster critical
                                                                        Match can deliver the right cells at
                            decisions can be made and the
                                                                        precisely the right time in the process.
                            greater the chance that patients can
                            be saved. This is what inspired Be          How much faster could Be The Match
                            The Match Chief Information Officer         help facilitate transplants if it were
                            Michael Jones, newly hired in 2007,         not limited by its infrastructure?
                            to set a bold goal for the organiza‑        How many more lives could it
                            tion: remove technology barriers to         potentially save?
                            connect more patients to more donors
                            faster and ultimately save more lives.      Aligning IT with the organization’s
                                                                        goals became Jones’ top priority.
Accelerating Data Flow
                                                  to Save More Lives
                                                  Be The Match transformed IT into a catalyst for
                                                  achieving lifesaving goals. Faster data access
                                                  speeds the process of matching patients with
                                                  potential donors.



                                                      3,70
                                                    ransplants per ear
                                                                                         5,50
                                                                                        ransplants per ear
                                                                                                                       10,0 0
                                                                                                                     ransplants per ear
                                                            20 7                                201                     goal by 2015




                                              “The problem was that without                     requirements by 900TB and dramati‑
                                              a complete IT transformation, we                  cally simplified management, allowing
                                              knew we simply could not handle the               it to scale from 65TB to 350TB without
                                              expected data growth and complexity               adding headcount.
                                              with our existing landscape of dispa‑
                                                                                                Jones explains, “There is no way
                                              rate systems and storage silos.”
                                                                                                we could have achieved our growth
                                              Transforming IT                                   numbers or gained the efficiencies we
                                              NetApp storage is at the heart of                 have—with no increases in headcount
                                              Be The Match’s IT transformation,                 or expenses—without building our
                                              accelerating the transplant process               foundation on NetApp storage.”
                                              by speeding service delivery and
                                                                                                Changing Lives
 A CEO’s Perspective                          improving information visibility.
                                                                                                As a result of its overall transformation
“Faster decisions and real‑time information   Seamless scalability and faster
 directly impact the lives of our patients.                                                     program, Be The Match is seeing
                                              data integration and processing
 With NetApp at the foundation of our                                                           results that extend far beyond the
 IT architecture we’ve been able to speed     enable the organization to quickly
                                                                                                data center—results that are saving
 up the entire process to help more people    develop and bring to market new
 in less time, and do it cost effectively.”                                                     lives. Since 2007, the number of
                                              lifesaving capabilities.
                                                                                                transplants per year has risen steadily
Jeffrey W. Chell, M.D.
Chief Executive Officer                       “Faster decisions and real‑time                   from 3,700 to 5,500. Be The Match
Be The Match                                  information have a direct impact                  expects to reach its goal of 10,000
                                              on the lives of our patients. With                annual transplants by 2015.
                                              NetApp at the foundation of our
                                                                                                Its newly integrated application suite,
                                              IT architecture, we’ve been able to
                                                                                                which includes consolidating its
                                              speed up the entire process, help
                                                                                                storage on NetApp, has enabled
                                              more people in less time, and do
                                                                                                Be The Match to:
                                              it cost effectively,” says Jeffrey
                                              W. Chell, M.D., chief executive                   •	 Cut time to transplant by 15%.
                                              officer, Be The Match.                               Be The Match has already shaved
                                                                                                   two weeks from time to transplant
                                              With the built‑in efficiencies of
                                                                                                   and is on track to meet its goal of
                                              its NetApp storage infrastructure,
                                                                                                   dropping time to transplant from
                                              Be The Match has reduced capacity
                                                                                                   96 to 45 days.
“The need for             •	 Double annual donor registrations.
                             With its new shared IT infrastructure,
                                                                                                     therapies could help treat many
                                                                                                     other diseases,” says Chell, “NetApp
 Be The Match’s              Be The Match built a new donor
                             recruitment portal that helped
                                                                                                     solutions will allow us to accelerate
                                                                                                     those opportunities to further improve
 work might grow             increase annual donor registrations                                     and save lives.”
                             from an average of 360,000 per
 100-fold over the           year from 2000 to 2008 to about
                                                                                                     Join the Registry
                                                                                                     If you are interested in helping
 next two decades…           850,000 per year for the last
                             two years.                                                              Be The Match support patients,
                                                                                                     join the Be The Match Registry today
 NetApp solutions         •	 Improve the accuracy of its                                             at www.BeTheMatch.org. You could
 will allow us to            matching algorithm. Be The
                             Match uses a proprietary matching
                                                                                                     be the one to save a life.

 accelerate those            algorithm that is significantly more
                             complex than blood typing pro‑
                                                                                                     About Be The Match

 opportunities to            grams. With the ability to more                                         Be The Match engages a growing
                                                                                                     community of people inspired to help
                             quickly integrate patient outcome
 further improve             data, Be The Match is accelerating                                      patients who need a marrow or
                                                                                                     umbilical cord blood transplant from
 and save lives.”            the evolution of its algorithm to
                             improve matching accuracy and                                           an unrelated donor. The National
                             boost survival rates.                                                   Marrow Donor Program (NMDP),
Jeffrey W. Chell, M.D.                                                                               a leader in the field of marrow and
Chief Executive Officer   •	 Extend lifesaving services to the                                       cord blood transplantation, operates
Be The Match
                             global community. Today, 50% of                                         Be The Match, which provides oppor‑
                             Be The Match transplants cross an                                       tunities for the public to become
                             international border. Be The Match                                      involved in saving the lives of people
                             is helping to save more lives by                                        with leukemia, lymphoma and other
                             making its search algorithm and                                         life‑threatening diseases. Volunteers
                             resources available to 525 partners                                     can join the Be The Match Registry—
                             in more than 40 countries via a                                         the world’s largest and most diverse
                             NetApp based private cloud.                                             listing of potential marrow donors and
                                                                                                     donated cord blood units—as well as
                          The Bottom Line
                                                                                                     contribute financially to Be The Match
                          Rethinking its storage infrastructure
                                                                                                     Foundation or give their time.
                          led Be The Match to an ambitious
                          business transformation that is saving                                     About NetApp
                          the lives of critically ill patients around                                NetApp creates innovative storage
                          the world. Once limited by its archi‑                                      and data management solutions that
                          tecture, Be The Match can now                                              accelerate business breakthroughs
                          take in more data, process it faster,                                      and deliver outstanding cost efficien‑
                          and provide ready access to the                                            cy. Discover our passion for helping
                          information transplant physicians                                          companies around the world go
                          need, 24/7.                                                                further, faster at www.netapp.com.
                          “The need for Be The Match’s
                          work might grow 100‑fold over the
                          next two decades, and our cellular




                          © 2011 NetApp, Inc. All rights reserved. No portions of this document may be reproduced without prior written consent of NetApp, Inc.
                          Specifications are subject to change without notice. NetApp, the NetApp logo, and Go further, faster are trademarks or registered trademarks of
                          NetApp, Inc. in the United States and/or other countries National Marrow Donor Program, Be The Match, and Be The Match Registry are registered
                          trademarks of National Marrow Donor Program. All other brands or products are trademarks or registered trademarks of their respective holders and
                          should be treated as such. WP‑7144‑0911

www.netapp.com

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The story of how Be The Match is leveraging technology to give critically ill patients a chance at life

  • 1. White Paper—Be The Match Transforming IT to Save Lives The story of how Be The Match is leveraging technology to give critically ill patients a chance at life Sav g lives s This is one in a series of stories told by NetApp customers that demonstrate how an organization’s storage architecture has a direct impact on its success. This is the story of Be The Match® and how its NetApp based shared IT infrastructure is helping save more lives than ever before.
  • 2. The flow of data is critical for all organizations, but for Be The Match, lives literally depend on it. In 2007, Be The Match was helping to facilitate 3,700 transplants annually. But how many more lives could Be The Match save if IT were an enabler, not a constraint? “There is no way Executive Summary Thousands of patients with With a shared IT infrastructure built on a NetApp® storage foundation, we could have life‑threatening diseases such as Be The Match is dramatically reducing the time to transplant and steadily leukemia, lymphoma, and sickle cell achieved our growth disease need a marrow transplant increasing the number of transplants but don’t have a match in their family. it facilitates annually. According to numbers or gained More than 70% of patients depend Jones, “Deploying a storage archi‑ the efficiencies we on Be The Match to find a match. To call its data “mission critical” would tecture that is efficient, that is flexible, is absolutely key to decision making have…without be an understatement. Operated by the nonprofit National Marrow Donor and driving more patients to trans‑ plant sooner.” building our IT Program ® (NMDP), Be The Match Eliminating Barriers helps connect these patients with foundation on donors. By providing patients access When Jones arrived at Be The Match, he set out to rethink the role tech‑ NetApp storage.” to a registry of more than 15 million donors and 400,000 umbilical cord nology should play in helping the organization deliver on its mandate blood units, Be The Match facilitates Michael Jones to save lives. Chief Information Officer thousands of potentially lifesaving Be The Match transplants every year. Diseases like leukemia and lymphoma can progress in a matter of months or Data is at the core of the registry and weeks, so speed is critical. The best the transplant process. The more outcomes are achieved when Be The efficiently it flows, the faster critical Match can deliver the right cells at decisions can be made and the precisely the right time in the process. greater the chance that patients can be saved. This is what inspired Be How much faster could Be The Match The Match Chief Information Officer help facilitate transplants if it were Michael Jones, newly hired in 2007, not limited by its infrastructure? to set a bold goal for the organiza‑ How many more lives could it tion: remove technology barriers to potentially save? connect more patients to more donors faster and ultimately save more lives. Aligning IT with the organization’s goals became Jones’ top priority.
  • 3. Accelerating Data Flow to Save More Lives Be The Match transformed IT into a catalyst for achieving lifesaving goals. Faster data access speeds the process of matching patients with potential donors. 3,70 ransplants per ear 5,50 ransplants per ear 10,0 0 ransplants per ear 20 7 201 goal by 2015 “The problem was that without requirements by 900TB and dramati‑ a complete IT transformation, we cally simplified management, allowing knew we simply could not handle the it to scale from 65TB to 350TB without expected data growth and complexity adding headcount. with our existing landscape of dispa‑ Jones explains, “There is no way rate systems and storage silos.” we could have achieved our growth Transforming IT numbers or gained the efficiencies we NetApp storage is at the heart of have—with no increases in headcount Be The Match’s IT transformation, or expenses—without building our accelerating the transplant process foundation on NetApp storage.” by speeding service delivery and Changing Lives A CEO’s Perspective improving information visibility. As a result of its overall transformation “Faster decisions and real‑time information Seamless scalability and faster directly impact the lives of our patients. program, Be The Match is seeing data integration and processing With NetApp at the foundation of our results that extend far beyond the IT architecture we’ve been able to speed enable the organization to quickly data center—results that are saving up the entire process to help more people develop and bring to market new in less time, and do it cost effectively.” lives. Since 2007, the number of lifesaving capabilities. transplants per year has risen steadily Jeffrey W. Chell, M.D. Chief Executive Officer “Faster decisions and real‑time from 3,700 to 5,500. Be The Match Be The Match information have a direct impact expects to reach its goal of 10,000 on the lives of our patients. With annual transplants by 2015. NetApp at the foundation of our Its newly integrated application suite, IT architecture, we’ve been able to which includes consolidating its speed up the entire process, help storage on NetApp, has enabled more people in less time, and do Be The Match to: it cost effectively,” says Jeffrey W. Chell, M.D., chief executive • Cut time to transplant by 15%. officer, Be The Match. Be The Match has already shaved two weeks from time to transplant With the built‑in efficiencies of and is on track to meet its goal of its NetApp storage infrastructure, dropping time to transplant from Be The Match has reduced capacity 96 to 45 days.
  • 4. “The need for • Double annual donor registrations. With its new shared IT infrastructure, therapies could help treat many other diseases,” says Chell, “NetApp Be The Match’s Be The Match built a new donor recruitment portal that helped solutions will allow us to accelerate those opportunities to further improve work might grow increase annual donor registrations and save lives.” from an average of 360,000 per 100-fold over the year from 2000 to 2008 to about Join the Registry If you are interested in helping next two decades… 850,000 per year for the last two years. Be The Match support patients, join the Be The Match Registry today NetApp solutions • Improve the accuracy of its at www.BeTheMatch.org. You could will allow us to matching algorithm. Be The Match uses a proprietary matching be the one to save a life. accelerate those algorithm that is significantly more complex than blood typing pro‑ About Be The Match opportunities to grams. With the ability to more Be The Match engages a growing community of people inspired to help quickly integrate patient outcome further improve data, Be The Match is accelerating patients who need a marrow or umbilical cord blood transplant from and save lives.” the evolution of its algorithm to improve matching accuracy and an unrelated donor. The National boost survival rates. Marrow Donor Program (NMDP), Jeffrey W. Chell, M.D. a leader in the field of marrow and Chief Executive Officer • Extend lifesaving services to the cord blood transplantation, operates Be The Match global community. Today, 50% of Be The Match, which provides oppor‑ Be The Match transplants cross an tunities for the public to become international border. Be The Match involved in saving the lives of people is helping to save more lives by with leukemia, lymphoma and other making its search algorithm and life‑threatening diseases. Volunteers resources available to 525 partners can join the Be The Match Registry— in more than 40 countries via a the world’s largest and most diverse NetApp based private cloud. listing of potential marrow donors and donated cord blood units—as well as The Bottom Line contribute financially to Be The Match Rethinking its storage infrastructure Foundation or give their time. led Be The Match to an ambitious business transformation that is saving About NetApp the lives of critically ill patients around NetApp creates innovative storage the world. Once limited by its archi‑ and data management solutions that tecture, Be The Match can now accelerate business breakthroughs take in more data, process it faster, and deliver outstanding cost efficien‑ and provide ready access to the cy. Discover our passion for helping information transplant physicians companies around the world go need, 24/7. further, faster at www.netapp.com. “The need for Be The Match’s work might grow 100‑fold over the next two decades, and our cellular © 2011 NetApp, Inc. All rights reserved. No portions of this document may be reproduced without prior written consent of NetApp, Inc. Specifications are subject to change without notice. NetApp, the NetApp logo, and Go further, faster are trademarks or registered trademarks of NetApp, Inc. in the United States and/or other countries National Marrow Donor Program, Be The Match, and Be The Match Registry are registered trademarks of National Marrow Donor Program. All other brands or products are trademarks or registered trademarks of their respective holders and should be treated as such. WP‑7144‑0911 www.netapp.com