MiHIN Statewid Consumer Directory ADT Active Care Relationship Service

1. Statewide Consumer Directory
Giving consumers a voice in handling their
personal health information
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2. Overview
• Michigan’s HIE landscape
• Status quo
• Statewide Consumer Directory (SCD) approach
• Initial use cases
• Summary
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3. MiHIN Statewide
Shared Services
MDCH Data Hub
Medicaid
MSSS
State
LABS
Doctors & Community
Providers
HIE QOs
(Qualified sub-state HIEs)
Network of Networks:
Data
Warehouse
3
PIHPs
Health Plan QOs
(more coming)
Single point of
entry/exit for state
Virtual QOs
Pharmacies
(more coming)
Immunizations
MI Syndromic
Surveillance System
MI Disease
Surveillance System
Consumer QOs
(more coming)
Federal
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4. Fragmentation – Data Everywhere
• Personal Health Records (PHRs) e.g. Microsoft HealthVault,
NoMoreClipBoard, Lucy, PHIM, Humetrix
• Patient/Member Portals attached to EHRs e.g. MyChart (Epic), athenahealth,
FollowMyHealth (Allscripts), myHealthButton/Portal (MI Medicaid)
• Specialized Registries for Consents such as:
• Advance Directives (e.g. living wills, do not resuscitate, etc.)
• Organ Donor
• Behavioral health and SUD types of information (e.g. standard consents)
• Clinical trials
• Active Care Relationships (and ability to dispute provider attributions)
• Language of preference
• Literacy issue – language at 6th grade level
• Patient Navigator
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5. Problem Statement
• National push for consumers to manage their own health information
• Consumers need to control access to their data
• Start with Medicaid beneficiaries
• No consistent electronic place today where consumers can specify
preferences regarding how and where to share patient-controlled data
• Providers have no central service to retrieve consumer preferences
• Fragmentation will increase without a unifying service
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6. Mint.com “money sharing” paradigm
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7. Solution: take control of your healthcare data…
and how it is shared
• Patient-Provider attributions
• In Case of Emergency (ICE)
• Family support information
Key
Relationships
• Patient-controlled data
• Where is PHI storedPointers
• Behavioral Health/SUD
• Advance Directives
• Who can access data
Consents
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8. Interaction with other services
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Medicaid Member
Portal / App
(myHealthPortal /
myHealthButton)
Personal
Health
Records
Patient
Portals
Consumer Apps
Advance
Directives
Shared
Object
Model
Consumer
Directory
Provider
Directory
Services
Directory
Person
Matching
Patient-
Provider
Attributions
Organ
Donors
Identity
Services
Master
Person
Index
Identity Credentialing
and Access Management
(MICAM, HICAM)
Peace of Mind
Registry
Gift of Life
Registry

9. Persona-driven scenarios
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10. Consumer’s view
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11. Advance Directives Use Case
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12. Statewide Consumer Directory
12Copyright 2015 Michigan Health Information Network Shared Services
One place for
consumers
Identify your care
team
Indicate preferences
for consent
Specify how and
where to share data
Define where your
health data is stored
One place for
providers
Find a patient’s care
team
Recognize patient’s
wishes
Locate critical
patient documents
Identify where to
send patient data

13. Questions
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Jeff Livesay
Associate Director
livesay@mihin.org
Rick Wilkening
Director
wilkening@mihin.org
Amy Grasso
Project Manager
grasso@mihin.org