2. share insights on
some of the
complexities of these
partnerships
insights come from
professional and
personal experiences
with AS men (mostly)
from an exhaustive
review of the literature
3. WHY ARE AS MARRIAGES
IMPORTANT?
1.
Increasing
prevalence
• estimate that at least
1:120 people have AS
• Some believe this is
now down to 1:88
2.
Gendered
relevance
• More males than
females are diagnosed
4. Implications over time
Early on, the ASC slice
of the pie seems lower
than any others
But as these same
children mature, it
seems the yellow
wedge gets bigger —
at the expense of the
red and orange wedges
IAN, 2009 – State of Nation
5. Is AS a "relationship disorder“?
“Someone with AS probably has great intentions
initially… He wants to make his spouse happy but can't
read the signs. At the beginning of the courtship, the
woman could become his obsession and she has
probably never experienced such attention. Five years
down the line, however, when he has focussed on
something else and returns from work, yet forgets to
say hello and goes to the garage to take the car apart,
things are very different. Women often begin to
believe, "He's either got AS —or he's the most selfish
man on the planet!"
(Maxime Aston, 2003)
6. The ‘expert’s opinion’
ASpies are challenged by varying degrees of
difficulty with processing speed, sensory issues,
anxiety, depression, perseveration and rigidity in
thinking, as well as executive functioning.
difficulty intuitively understanding what another
person may know, think, or feel (empathic
connection)
variability in the level of social relatedness and
functioning
often feel emotionally or socially disconnected
7. What are the most common
puzzlers?
Inability to communicate effectively
Estrangement
Dependency
Handling conflict
Differences
Commonalities
Expectations and needs
8. Is there anything mentioned that has “resonated” with you… or maybe even
disturbed you a little?
Can we open up a dialogue around any “noticings” you may have had?
9. The Early Years
Some people with AS have traits which attract partners;
seen as highly intelligent, gentle, appreciative, loyal,
receptive of caretaking, well read, interesting, creative,
and possibly ‘interesting’ (unusual, or quirky)
Non-AS partners may appreciate that their partner with AS
“marches to the beat of a different drummer”
They may not exhibit some of the negative social or
interpersonal attributes that they may have encountered in
other potential partners, or previous partners.
When we first met fifteen years ago, part of what initially
attracted me to her (besides the fact that she is incredibly
hot), was that she was independent and didn’t seem to care
what other people thought or said. She danced to the beat of
her own drum so to speak. I didn’t realize until much later
that there was no level of compromise in this.
10. The Early Years (con’t)
Non-AS women may
be attracted to an
AS partners who
appear safe and
faithful — and won’t
leave them.
Significant issues
may go unnoticed,
ignored, or glossed
over by non-AS
partner (the differences
seem to be explained away)
AS partners present
their best selves
during this courtship
period
Completed college
successfully; found a
professional niche
People with AS can
be & are good
partners (contrary to
popular belief)
11. Then one partner begins to
twist the Cube…
AS + non--AS couples have the most
difficulty in their relationship because of
the lack of alignment (mismatch) of needs
and expectations. When relationship is not
meeting their needs and expectations, they
become confused and don’t understand
why their relationship difficulties seem so
different from others’.
This is what many women long to sort out.
They want to understand what is a typical
relationship issue, what is unique to their
relationship, what is gender-based, and
what is AS related…
12. PAUSE & REFLECT:
Ask yourself, if it’s hard for you to relate to your AS partner, how much
harder is it for them to relate to you? You may know your reasons for
doing and feeling whatever you do, but do you think it makes any sense to
them?
13. On-going relational challenges
The problems persist as individuals with AS
are often reluctant to seek help; complicated
by their lack of self-awareness and difficulty
seeing the consequences of their behavior
through another’s’ eyes. Negative
experiences with prior help-seeking often
adds to their reluctance.
Very often the woman without AS is blamed
for being controlling and overly demanding.
Partners with AS may struggle to talk about
and relate their ‘real’ emotions and feelings.
14. What Else???
Problems persist when help is
sought ‘too late’ — when the
dysfunctional dynamics have a
secured a strong foothold
the issue is the emotional
entanglements that couples get into
as they try to enlist their partner in
helping them to outwork their past
15. ‘Rubik’ Communications
Misunderstood communication can present some
of the biggest challenges for AS + non-AS
couples, as though they are speaking different
languages.
Most people know how to communicate, but it
seems to go haywire in the marriage…
Couples who say they need to learn
communication skills are hoping it
will be a lot simpler than it usually is
to heal the relationship.
16. COMMUNICATION
DIFFERENCES
When the woman says certain things to their
partners with AS during a conversation, the men
either do not seem to listen, often do not respond, or
they respond inappropriately to a piece of what was
said.
Instead, perhaps they focus on some other technical
detail, rather than understanding the intent and the
meaning of the sentence in the context in which it is
spoken. There is a lack of back and forth dialogue.
17.
18. “The Cube-bicle” (…sorry David…)
Sexual Intimacy
Sensory issues can impact the
physical response of the man with
AS.
Lack of understanding how his
partner may be responding to his
touch.
Inability to rapidly process and
adjust to nonverbal feedback.
A lack of spontaneity, and tendency
toward rigidity or routine (if something
works, he may be resistant to trying
something new instead).
19. Sexual Intimacy issues
ASpie may have minimal or no drive
to have sex
Some, at the other extreme, desire
frequent sex with themselves or
multiple partners.
Emotional disconnection, so partners
feel disenfranchised or angry;
difficult for either partner to want
physical intimacy.
Occasionally, depending on a
woman’s specific sexual history, sex
without mutual emotional con
nection can be traumatic.
20. Issues that affect the non-AS partner
The longer a couple has been together
without awareness of AS, the larger the
impact on the relationship.
► Social isolation can be a problem for the
non-AS partner. One may be content or
has the neurological makeup to spend a lot
of time alone with his ‘perservations’…
► Common for the non-AS partner to report
that it is difficult to get social and emotional
support.
►
21. More Issues (con’t)
Woman views her husband as an extra child,
because he can seem demanding, inconsiderate,
and incompetent in certain ways…
It is more likely that AS + non-AS
couples, because of genetics, will
have one or more children with on
the Spectrum.
ASpies are likely to have
encountered a great deal of
frustration, rejection, and failure
22. Then the Cube-cible turns up the heat…
Many AS men are socially and emotionally
dependent on their partners; yet they are often
unaware of the impact of their behavior on
others, and tend to blame others for interpersonal
problems. When a woman attempts to work
through a problem in the relationship, the man
with AS may respond to his partner’s feedback,
expectations, requests or demands with denial,
withdrawal, or even verbal abuse. His rage or
depression, problems with stable employment, or
limited ability to parent, then become additional
stressors.
24. The majority of non-AS persons decide to
go ahead and marry their AS partners;
almost in spite of what they may have
discovered…
Like spouses of addicts, once the “heat
becomes too much”, by some process of
attrition the relationship ends up being
more one of practicality and convenience
for the person with Asperger’s Syndrome
than for the loving and meeting of
emotional needs of marital bliss.
This then creates the “crucible” of marriage
that David Schnarch talks about in his book
“Passionate Marriage”
25. SUGGESTIONS FROM THE
TRENCHES
non-AS partner- shift your
“paradigm” (focus) from
what you’re not getting from
your AS partner to see and
value the strengths s/he
brings into the relationship
26. SUGGESTIONS FROM THE
TRENCHES
AS partners - reconsider our
perception of our partner and of
ourselves
because of the differences in the way
our brains work, a lot of what our
partner is telling us about our role in
problems is probably correct
Avoid the blame game
27. PARTING SHOTS…
For both non-AS + AS partners,
try to listen to one another in a
non-defensive way. Ask for
clarification of things you don't
understand in a simple,
respectful, and low key way.
(ASpie’s need to strive to be not
so effusive)
28. PARTING SHOTS…
► Become
students of each other's
culture. Pretend that you are learning a
new language from a new country. If you
are an AS, remember that, in many ways,
your partner is from another place ― the
County NT.
► If you are non-AS, remember that your AS
partner is from another culture. Celebrate
your DIVERSITY and the differences.
29.
30. Works Cited
Carely, M.. (1999). Asperger’s from the inside-out. London:
J.K.P.
Doidge, N. (2007). The Brain that Changes itself. London:
Penguin Books Ltd.
Holliday Willey, L. (1999). Pretending to be Normal. London:
J.K.P.
Schnarch, D. (1999). Passionate Marriage. Melbourne:
Scribe Publ.
Simone, R. (2011). AsperGirls. London: J.K.P.
Notes de l'éditeur
{"16":"I’ve often wondered about this “lack of concentration”…\nIs it that we can’t keep focussed long enough to hear what’s being said?\nOr, we tend to direct the focus onto something “perceived” to be said, rather than the intended context of the message conveyed!\n","5":"If people view AS as a “disorder”, could it best be defined as a RELATIONSHIP DISORDER -- as Ego-centricity and other specific AS traits come to bear on the relationship…\nThe complaint most often heard in the counselling room is difficulty with communication as a CORE aspect; including difficulty with language pragmatics and conventions of social behaviors that are ‘intuitive’ to the non-autistic majority. \nWhereas most ASpies have normal or even very high IQ, our brains seem to process information and sensory stimuli differently than persons without AS.\n","22":"Prolonged or profound negative life experiences are quite likely to have contributed to a reservoir of rage or depression, whether overt or buried. AS men are less likely than non-AS men to have friendships that provide camaraderie and peer support. Their families of origin may have a history of mis-understanding or rejecting them. Some may have broken off ties with their parents and siblings entirely because of complex family situations.\nPeople sometimes have difficulty accurately pinpointing the source of their anger or frustration, and may react to a “last straw” rather than to a previous root cause. This is where a good therapist can help the couple identify the true source of their emotions.\n","11":"WHY DOES OUR CUBE LOOK SO DIFFERENT FROM …….. CUBE?\nAs with many relationships, difficulties arise when both partners don’t have enough mutual and self-knowledge to go into the relationship with their eyes wide open. AS + non-AS couples have the most difficulty in their relationship because of the mismatch of needs and expectations. The women are often the ones who seek outside help. When their relationship is not meeting their needs and expectations, they are confused and don’t understand why their relationship difficulties seem so different from others’. This is what many women have come longing to sort out. They want to understand what is a typical relationship issue, what is unique to their relationship, what is gender-based, and what is AS related. It is crucial for the counsellor to be able to distinguish between characteristics that are associated with the traits of AS that are neurologically-based, versus someone’s personality or emotional make up.\n","28":"READ THE TWO POINTS ABOVE…\nI realize that I have only scratched the surface here. I welcome any comments, experiences, critiques, queries and suggestions. I hope that you found something USEFUL from this talk that you may take away with you; useful in that it might offer some “insider insights” to help celebrate and thrive in your marriage.\n","17":"More often than not we Aspies are easily distracted and lose our focus… tending to result in half-finished conversations… \nMy wife & I have had MANY discussions where I’ve wished for heaps of puppies!!!\n \nDoes this ring any bells for anyone? How does it influence your way of communicating?\n","6":"According to the ‘experts’, ASpies are challenged by varying degrees of difficulty with processing speed, sensory issues, anxiety, depression, perseveration and rigidity in thinking, as well as executive functioning.\nMany have difficulty intuitively understanding what another person may know, think, or feel, although they may be able to use their intellectual skills to compensate for this difficulty.\nThere is a spectrum of variability in the level of social relatedness and functioning of people with AS.\nMany ASpie’s feel emotionally or socially disconnected from others — and feel like outsiders in their world. According to Goldman (2006), people skills rather than academic abilities are the biggest predictor of success in life—and that is precisely the most challenging area for ASpies in relations of any type. With a wide range of talents, interests, and personality, there are adults with AS who compensate and manage fairly well in the world…\n","23":"The combination of rigidity and rage in a man with AS can, and sometimes does, result in emotional (and even physical) abuse. When this is the case, what is more common is that the wife will “walk on eggshells” in an effort to prevent precipitating their partner’s rage. The reverse can happen too – that the man with AS walks on eggshells for fear of precipitating anger, demeaning treatment, or talk of separation or divorce held as a threat over the relationship. \nIn some cases (more often than we realize) women who are attracted to men with AS have innate Asperger’s traits themselves. They, like their partners, may be very bright people who like to think and talk about things on an intellectual level. However, they may not see their own Asperger’s traits; instead, they may project them onto their partners. (A good therapist aware of AS can help the woman gain insight into her own issues and neurology)\nSometimes with understanding of AS, the couple’s issues can get resolved, but sometimes they continue to resurface again and again. There may be no simple or fully satisfactory solutions to the complex issues that AS + non-AS couples face. \n","12":"WHY DOES OUR CUBE LOOK SO DIFFERENT FROM …….. CUBE?\nWomen without AS might need social interaction with people outside the marriage, the AS men might be content with fewer friends and desire lots of solitary time. The women’s expectations might be that household and child rearing chores are shared, and perhaps receive the men’s full verbalized agreement – but the men may not initiate chores un-reminded, because of executive functioning problems. Non-AS women want to share the events of their day, emotions, and feelings with their partner and get supportive feedback, but many people with AS have difficulty talking about and expressing emotions and feelings. It may not occur to them to ask about their partner’s experiences. They don’t expect someone to ask these questions of them, and therefore don’t intuitively realize that other people may have these expectations.\n","1":"WHO AM I?\nMY DEEPLY HELD CORE BELIEFS….\n“I DO NOT WISH FOR A CURE FOR A.S. WHAT I WISH FOR IS A CURE FOR THE COMMON ILL THAT PERVADES ALL TOO MANY LIVES…. THE ILL THAT MAKES PEOPLE COMPARE THEMSELVES TO A ‘NORMAL’ MEASURED IN TERMS OF PERFECTION, MOST OF WHICH ARE IMPOSSIBLE FOR ANYONE TO REACH.”\n","29":"If you didn’t find it of much help, I pray you’ll forget everything you heard before you even exit the hall!\n \nTHANK YOU FOR LISTENING…….\nANY QUESTIONS????\n","18":"In non-AS + non-AS relationships, couples can experience sexual compatibility as well as couples who experience painful emotional and sexual mis-match (esp. libidos). Couples report a mixed array of experiences around sexual intimacy. Many seem to enjoy and seek frequent physical contact that satisfies both partners. However, a variety of Asperger’s traits may complicate having fulfilling intimate relations with their partner:\nSensory issues can impact the physical response of the man with AS. Sensory issues include not wanting much time because of to be touched, sensitivity to a type of touch, physical awkwardness, aversion to particular sounds, tastes, and smells.\nInability to understand how his partner may be responding to his touch.\nInability to rapidly process and adjust to nonverbal feedback.\nA lack of spontaneity, and tendency toward rigidity or routine (if something works, he may be resistant to trying something new instead).\n","7":"These don’t sound too much different from the average couple coming to a therapist to help sort out very common relational issues, am I right?\nFor those couples committed to staying together, a therapist knowledgeable about AS can first help the couple to understand their differences, commonalities, expectations and needs, and then with awareness of AS, help the couple learn how to change practical aspects of their life together to better accommodate the needs of each individual.\nFor couples who choose not to stay together, awareness of AS may enable the process of separating with fewer conflicts or blame than might otherwise occur.\n","24":"Occasionally, women who were dating men with AS seek out ways to learn what to expect so that they can make realistic, informed decisions before deciding to commit to their partners. In many cases, I’ve heard the majority of these women do decide to go ahead and marry their AS partners; almost inspite of what they may have discovered. They often say “He was different from other men. I just thought he was a bit quirky, is all….”\n‘Normal’ expectations of marriage\nPeople not on the Spectrum enter into marriage with the expectations that their marriage relationship will become priority; and will be about togetherness, mutual terms and meeting of emotional needs. Simply put, Asperger’s Syndrome creates problems in relationship particularly because the partner with AS does not have the same relational needs as the non-AS partner and he / she is mostly unable to instinctively recognize or meet the emotional needs of his / her partner. From my own experiences in three separate marriages – which can result in the second bullet above.\n","13":"For all of us, AS and non-AS alike, it’s much easier to anticipate the needs and desires of another person by “putting ourselves into their shoes” based on our own needs and expectations: it is much harder if the other person is neurologically “wired” significantly differently from us. People without AS can often have success when putting themselves into the other’s shoes but AS + non-AS partners have a harder problem to solve. In order to succeed, they must each construct a sufficiently accurate abstraction of what the other will need, desire, think, and feel. For those with AS, this is different in the majority of social situations they encounter. In AS + non-AS couples, this kind of challenge in one or both directions contributes to the too frequent failures of communication.\n","2":"WHY AM I UP HERE SPEAKING TO YOU? WHAT PRIVILEGES ME TO DO THIS?\nFor years, like Liane Holliday Willey, I “Pretended to be Normal” (whatever that is)\nThrough much strife in trying to resolve conflicts, I’ve had some mild epiphanies\nI reckon my perservation shave helped me to read enough around this topic to share some other’s ideas as well\nRecite the main idea →→ SHARING INSIDER INSIGHTS\nEmphasize that this would go down best if I’m not a “talking head” up front, but that we have a korero (dialogue)\n","19":"Some men with AS may have minimal or no drive to have sex. However, we have heard about a small minority of men at the other extreme who desire frequent sex with themselves or multiple partners.\nIf they lack emotional connection with their partners, or if their partners are feeling disconnected from or angry with their partners, it’s difficult for either partner to have or want physical intimacy.\nOccasionally, depending on a woman’s specific history and emotional make up, sex without mutual emotional connection can be traumatic.\nCouples may choose not to have sexual relations in order to avoid conflict and disappointment -- increasing emotional isolation. A small percentage of men, possibly because of a life-long frustration of undiagnosed AS, have rage that can be triggered by stress and the demands of difficult relationships. \n","8":"These don’t sound too much different from the average couple coming to a therapist to help sort out very common relational issues, am I right?\nFor those couples committed to staying together, a therapist knowledgeable about AS can first help the couple to understand their differences, commonalities, expectations and needs, and then with awareness of AS, help the couple learn how to change practical aspects of their life together to better accommodate the needs of each individual.\nFor couples who choose not to stay together, awareness of AS may enable the process of separating with fewer conflicts or blame than might otherwise occur.\n","25":"As I see it, the only hope for our relationship lies in our tenacity and joint desires — willingness of the person with Asperger’s Syndrome to gain as much insight as possible into the realities of his / her differences, recognise the impact it has on their relationship, and even seek professional guidance and co-operate with their partner to develop a more healthy, mutuality inclusive relationship. Surely this has to be a condition of entering marriage or continuing in an already established marriage. \nHere’s some tips on how one might accomplish this:\n","3":"I hope to address some major issues facing couples, in which women without AS are very often partnered to a man with AS (in my experience, most couples are either non-AS/AS or AS/AS, female-to-male). No definitive prevalence studies exist, but some experts estimate that at least 1:120 people have AS, only about half of whom are diagnosed (I’ve heard anecdotal stats as low as 1:88).\nIt has long been established that ASD affects more boys that girls. Even so, the stability exhibited between 2006 (1 boy to 4.5 girls) and 2008 (1 boy to 4.66 girls) when some minority groups increase by over 100% is remarkable, is it not?\nIn four CDC studies over the past twelve years, the ratios of boys to girls diagnosed varied little. The now-famous "1 in 88" actually means a rate of 1 in 54 boys compared to 1 in 252 girls (though the CDC offers no hypothesis as to why boys might be more likely to receive a diagnosis of ASD than girls). \n Add prevalence graphs and pie charts showing details that support this stance\n","20":"The longer a couple has been together without awareness of AS, the larger the impact on the relationship. Social isolation can be a problem for the partner of a man with AS. He may be content or has the neurological makeup to spend a lot of time alone with his special interest. Even if he is willing to go out with his partner, the social engagements can feel unrewarding, stressful or embarrassing to such an extent that the wife stops going out socially with him. Her social contacts of all kinds may become limited and impoverished, and her isolation extreme. A therapist can guide the partner in making social contacts on her own, independent of her partner.\n Furthermore, it is common for the woman to report that it is difficult to get social and emotional support. She may not feel comfortable turning to her family or friends, who may not see the issues in the relationship and don’t understand why she feels stressed. If they do realize that the relationship is difficult, they may not understand why she stays.\n","9":"REVIEW THE ABOVE POINTS…\nSTRESS THE MAIN POINTS IN THE QUOTATION\n","26":"TO THE AS PARTNERS – HEED WELL\nTHIS IS REALLY A HUGE SHIFT THAT WILL TAKE YEARS\nAVOID THE “BLAME GAME”\nWATCH FOR TRIGGERS\nRECOGNIZE TRANSFERENCES / C-TRANSFERENCES\n","15":"I used to find myself kind of dismissing this concern... thinking couples just didn't have language for what the "real" problem was. Of late, I have tried to stay more in the narrative of what is going on, and hear how my spouse arrives at her conclusions, so that I can work with HER version of a communication issue.\nBut, I rarely find that the problems in my AS + non-AS marriage falls under the umbrella of conveying words/ideas. I suppose though, that it is so common a couple comes to the realization that their attempts to articulate themselves to their spouse are not working, and their experience of feeling heard and/or validated is not happening .... and calling that "communication" seems reasonable.\nWe’re originally trained by our families how to ‘communicate’ and then may have cultivated our own styles. Ultimately we use so much more than words…\n","4":"Why is this important to us now and in future?\nMost marriages are Spectrumites in the yellow and orange wedges.\nAs these children mature in to adults and marry, these persons will expand the yellow (from the orange and red) as their traits ‘evolve’\nLongitudinal studies not yet realized\n","21":"The partner may become one of the few adults with whom she spends time. The extent of the woman’s unexpressed emotional pain is often hidden because of her isolation and the lack of understanding of those in her life. When she says that she thinks of her husband as an extra child, because he can seem demanding, inconsiderate, and incompetent in certain ways, she is often at a point of crisis. In addition to wanting to learn ways to improve their relationship, she is also deeply in need of connection with others who truly understand what she is going through.\nFor many women, motherhood brings opportunities for new social connections — to other mothers, and their children. By shifting her focus to childrearing, instead of the issues in the relationship, the partner may get more of her relational needs met. On the other hand, the AS + non-AS couple is more likely than average, because of genetics, to have one or more children with an autism spectrum disorder. If so, the mother is quite likely to be blamed for the child’s difficult behavior and perceived as a “bad mother” by relatives, neighbors, and teachers. She is likely to be avoided or excluded by other parents in the schools, the neighborhood, her family, and the wider community. This can further add to the women’s feelings of isolation.\n","10":"REVIEW EACH POINT WITH SOME EXPLANATIONS\n"}