Denis Costello - EURORDIS - Presenting on how patient groups use social media, 25 Sept 2011, Stockholm

1. Serving patient communities through social mediaecco/esmo Stockholm 2011 Denis Costello Web Communications Officer, EURORDIS

2. 2 EURORDIS at your service www.eurordis.org

3. Serving the Patient Community 3

4. 4 Blogs – e-advocacy: developing the patients’ voice http://www.rarediseaseblogs.net

5. 5 Engagement via Twitter http://www.twitter.com/eurordis

6. 6 Rare Disease Day – An awareness platform http://www.rarediseaseday.org

7. 7 Live streaming – grow an audience http://www.livestream.com/eurordis

8. 8 Example – Networking patients www.marshallsmith.org

9. 9 Example –collaborative authoring www.marshallsmith.org

10. 10 www.rareconnect.org

12. Side effects