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Designing for Community as
the Source of Care
Co-creating Care where it happens

                                          Peter Jones
                                     Redesign Research
                                OCAD University, Toronto
Copyright © 2012, Peter Jones
Design for Care:                              designforcare.com
 Innovations in Healthcare Experience                    @designforcare



 “What if Design was designed as     Rethinking Care
 a care profession?” And if …        1. Design as Caregiving
                                     2. Co-Creating Care
 Healthcare as systems of services   3. Seeking Health

 Enabling those who serve people     Rethinking Patients
 seeking care: Health practice &     4. Design for Patient Agency
 care organizations.                 5. Patient-Centered Care Service

 • People not patients.              Rethinking Care Systems
 • Systemic, touches every sector    6. Innovating Points of Care
 • Cases, Methods, Experiences       7. Designing Healthy Information Technology
                                     8. Systemic Design in Healthcare Innovation
                                     9. Futures in Service Innovation



Copyright © 2012, Peter Jones
Copyright © 2012, Peter Jones
Real care occurs in-place, a
                    community we share with others.

       Caring requires knowing, trust, patience, humility,
       honesty, & the primacy of life’s rhythms.

       “… there must also be developmental change on
       the other as a result of what I do; I must actually
       help the other grow.” M Mayerhoff




Copyright © 2012, Peter Jones
Schools of Design Thinking in Healthcare

           •     User Experience / IxD / IA
           •     Service Design
           •     Evidence-Based Design
           •     Environmental Design
           •     Participatory Design
           •     Generative Design
           •     Radical Innovation

           • We tend to forget – Sociotechnical systems

Copyright © 2012, Peter Jones
Copyright © 2012, Peter Jones
SERVICE




   7
Copyright © 2012, Peter Jones
A Healthcare Revolution?

   Two trends are preparing ux for what’s next :
   • Tech - Mobile & Health 2.0
   • Social - ePatient & patient-centered

   • Our investment matters
         The way we design for care now defines our field




Copyright © 2012, Peter Jones
What’s your Possibility?

   • Choose your Context
         Consumer Health
         Care Practice
         Healthcare Organizations
         Education, Policy & Institutions


   • From designing services to co-creating care



Copyright © 2012, Peter Jones
Copyright © 2012, Peter Jones
People are health-seekers
           A health-seeking journey occurs over a lifetime, a continuity
           that proceeds through youth, adulthood, & older age.




Copyright © 2012, Peter Jones
Design more for value demand
Less for failure demand

• From systems perspective,
  disease focus is intervention
• Patient context is temporary
• Prevention, adherence, & continuity




Copyright © 2012, Peter Jones
Copyright © 2012, Peter Jones
Where does Health Live?




Copyright © 2012, Peter Jones
Where does Health Live?

           Dis-eases emerge from so many factors …

           Can we design for:
           •     Home conditions
           •     Connectedness - Friends & family circles -
           •     Autonomy, mobility & communications
           •     Neighborhood, safety, food supply
           •     = community



Copyright © 2012, Peter Jones
Copyright © 2012, Peter Jones
How does identity change as a patient?




Copyright © 2012, Peter Jones
Copyright © 2012, Peter Jones
Copyright © 2012, Peter Jones
Copyright © 2012, Peter Jones
Copyright © 2012, Peter Jones
Can we distribute care resources
                                among different points of connection?




Copyright © 2012, Peter Jones
Copyright © 2012, Peter Jones
•   Person-Family
                                •   Person-Community
                                •   Patient-Patient
                                •   Patient-Providers
                                •   Providers-Community




Copyright © 2012, Peter Jones
Design skillsets in healthcare


 Community “All 4 at once”

 D3.0 & 4.0 require power
 tools of systems &
 collaboration.

 Transfer down:
 - Sensemaking mindset
 - Stakeholders
 - Reframing power
 - Adjacency




Copyright © 2012, Peter Jones
                                                   Adapted from Humantific with permission
Healthcare Design Contexts in …

         Community engagement
         Healthcare networks
         Public health - Prevention
D3.0 & 4.0 “Changemaking”
         Policy development
         Transforming education
Power tools are necessary:

- Systemic design approaches.
           Clinical practices for complex care
- Multi-stakeholder collaboration.
           New organizational modes
- Participatory research.
- StrategicRedesigning business models
            innovation.
           Service systems
- Design of practice & service.
           Clinical education


Copyright © 2012, Peter Jones
D3 & D4




Atrial Fibrillation Care

Many health services treat chronic &
complex illness as exceptions. Patients fall
between the cracks & are shuttled around,
getting fragmented care. By not adapting to
the changing reality of the chronic
demographic, costs rise as hospitals increase
their exception cases.
 Copyright © 2012, Peter Jones
                                     Morra, et al (2010). Reconnecting the pieces to optimize care in Atrial Fibrillation in Ontario.
Atrial Fibrillation System Redesign

                                The improvement of individual experience is
                                an effect in healthcare. Nice but not
                                systemic. Redesign institutional practices &
                                business models.

   28
Copyright © 2012, Peter Jones
Community Design
        Research Concept
           OCAD University Toronto
           Strategic Foresight & Innovation

           Winning team, 2011 Rotman Design Challenge
           Mayo Mom Service Design Concept
           Martin Ryan, Jen Chow, Jessica Mills, Josina Vink, Phouphet Sihavong




Copyright © 2012, Peter Jones
1st place Rotman Design Challenge
                                Mayo Clinic



                                The United States has one of the
                                lowest rates of breastfeeding of any
                                country in the developed world.

                                Only 13% of children are exclusively
                                breastfed for the first 6 months.

                                Correlated with fewer infections,
                                illnesses, & diseases, such as asthma,
                                diabetes and obesity.

                                 If 90% of U.S. babies were breastfed
                                 for 6 months, save $13 billion /year


Copyright © 2012, Peter Jones
Living communities are co-creative.
                                                                • P2P network & service
                                                                • Simple & decentralized
                                                                • Enduring connections




MDes Strategic Peter Jones & Innovation
 Copyright © 2012, Foresight
                                          © 2011 Ryan, et al.
Understanding the design moment



  The Experience of                                                                        Human-centered
    Breastfeeding                                                                            Intervention




                         Research Design                             Research Design
                          Understanding phase                       Expert interviews
                          Expert interviews                                    Midwife
                          Lactation Consultant
                                                  “The Latch”                Sociologist
                          Child Life Specialist   Moment of
                          Anthropologist           Wellness                     Moms
                                                                In-depth interviews with
                          Moms & Dads                            mothers focused on the
                          In-depth interviews                   moment of intervention.


© 2011 Ryan, et al.Peter Jones
 Copyright © 2012,
Prepare a mother for the emotional and       Offer safe, unbiased, emotional support and
  physical challenges ahead to ensure ingoing     positive reinforcement during the “latch
  assumption is not that “it comes naturally”       experience” when it is needed most




Copyright © 2012,al.
© 2011 Ryan, et Peter Jones
MAYO MOM




                 Facilitate Connection




                Connection



                              NEW MOM




CopyrightRyan, et al. Jones
© 2011 © 2012, Peter
How do we design for healthy communities?



                                                              D4.0 design
                                                            research skills

                                                            Co-creative for
                                                           Social Systems

                                                           Complex – all 4

                                                         Trans-disciplinary

                                                     Not-radical Innovation




Copyright © 2012, Peter Jones
Copyright © 2012, Peter Jones
Thank you.
                                @redesign          @designforcare

                                designforcare.com
                                designdialogues.com
                                redesignresearch.com



                                Strategic Innovation Lab
                                OCAD University Toronto
                                Strategic Foresight & Innovation




Copyright © 2012, Peter Jones

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Medlove 2012 Berlin: Design for Community Care

  • 1. Designing for Community as the Source of Care Co-creating Care where it happens Peter Jones Redesign Research OCAD University, Toronto Copyright © 2012, Peter Jones
  • 2. Design for Care: designforcare.com Innovations in Healthcare Experience @designforcare “What if Design was designed as Rethinking Care a care profession?” And if … 1. Design as Caregiving 2. Co-Creating Care Healthcare as systems of services 3. Seeking Health Enabling those who serve people Rethinking Patients seeking care: Health practice & 4. Design for Patient Agency care organizations. 5. Patient-Centered Care Service • People not patients. Rethinking Care Systems • Systemic, touches every sector 6. Innovating Points of Care • Cases, Methods, Experiences 7. Designing Healthy Information Technology 8. Systemic Design in Healthcare Innovation 9. Futures in Service Innovation Copyright © 2012, Peter Jones
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  • 4. Real care occurs in-place, a community we share with others. Caring requires knowing, trust, patience, humility, honesty, & the primacy of life’s rhythms. “… there must also be developmental change on the other as a result of what I do; I must actually help the other grow.” M Mayerhoff Copyright © 2012, Peter Jones
  • 5. Schools of Design Thinking in Healthcare • User Experience / IxD / IA • Service Design • Evidence-Based Design • Environmental Design • Participatory Design • Generative Design • Radical Innovation • We tend to forget – Sociotechnical systems Copyright © 2012, Peter Jones
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  • 7. SERVICE 7 Copyright © 2012, Peter Jones
  • 8. A Healthcare Revolution? Two trends are preparing ux for what’s next : • Tech - Mobile & Health 2.0 • Social - ePatient & patient-centered • Our investment matters The way we design for care now defines our field Copyright © 2012, Peter Jones
  • 9. What’s your Possibility? • Choose your Context Consumer Health Care Practice Healthcare Organizations Education, Policy & Institutions • From designing services to co-creating care Copyright © 2012, Peter Jones
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  • 11. People are health-seekers A health-seeking journey occurs over a lifetime, a continuity that proceeds through youth, adulthood, & older age. Copyright © 2012, Peter Jones
  • 12. Design more for value demand Less for failure demand • From systems perspective, disease focus is intervention • Patient context is temporary • Prevention, adherence, & continuity Copyright © 2012, Peter Jones
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  • 14. Where does Health Live? Copyright © 2012, Peter Jones
  • 15. Where does Health Live? Dis-eases emerge from so many factors … Can we design for: • Home conditions • Connectedness - Friends & family circles - • Autonomy, mobility & communications • Neighborhood, safety, food supply • = community Copyright © 2012, Peter Jones
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  • 17. How does identity change as a patient? Copyright © 2012, Peter Jones
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  • 22. Can we distribute care resources among different points of connection? Copyright © 2012, Peter Jones
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  • 24. Person-Family • Person-Community • Patient-Patient • Patient-Providers • Providers-Community Copyright © 2012, Peter Jones
  • 25. Design skillsets in healthcare Community “All 4 at once” D3.0 & 4.0 require power tools of systems & collaboration. Transfer down: - Sensemaking mindset - Stakeholders - Reframing power - Adjacency Copyright © 2012, Peter Jones Adapted from Humantific with permission
  • 26. Healthcare Design Contexts in … Community engagement Healthcare networks Public health - Prevention D3.0 & 4.0 “Changemaking” Policy development Transforming education Power tools are necessary: - Systemic design approaches. Clinical practices for complex care - Multi-stakeholder collaboration. New organizational modes - Participatory research. - StrategicRedesigning business models innovation. Service systems - Design of practice & service. Clinical education Copyright © 2012, Peter Jones
  • 27. D3 & D4 Atrial Fibrillation Care Many health services treat chronic & complex illness as exceptions. Patients fall between the cracks & are shuttled around, getting fragmented care. By not adapting to the changing reality of the chronic demographic, costs rise as hospitals increase their exception cases. Copyright © 2012, Peter Jones Morra, et al (2010). Reconnecting the pieces to optimize care in Atrial Fibrillation in Ontario.
  • 28. Atrial Fibrillation System Redesign The improvement of individual experience is an effect in healthcare. Nice but not systemic. Redesign institutional practices & business models. 28 Copyright © 2012, Peter Jones
  • 29. Community Design Research Concept OCAD University Toronto Strategic Foresight & Innovation Winning team, 2011 Rotman Design Challenge Mayo Mom Service Design Concept Martin Ryan, Jen Chow, Jessica Mills, Josina Vink, Phouphet Sihavong Copyright © 2012, Peter Jones
  • 30. 1st place Rotman Design Challenge Mayo Clinic The United States has one of the lowest rates of breastfeeding of any country in the developed world. Only 13% of children are exclusively breastfed for the first 6 months. Correlated with fewer infections, illnesses, & diseases, such as asthma, diabetes and obesity. If 90% of U.S. babies were breastfed for 6 months, save $13 billion /year Copyright © 2012, Peter Jones
  • 31. Living communities are co-creative. • P2P network & service • Simple & decentralized • Enduring connections MDes Strategic Peter Jones & Innovation Copyright © 2012, Foresight © 2011 Ryan, et al.
  • 32. Understanding the design moment The Experience of Human-centered Breastfeeding Intervention Research Design Research Design Understanding phase Expert interviews Expert interviews Midwife Lactation Consultant “The Latch” Sociologist Child Life Specialist Moment of Anthropologist Wellness Moms In-depth interviews with Moms & Dads mothers focused on the In-depth interviews moment of intervention. © 2011 Ryan, et al.Peter Jones Copyright © 2012,
  • 33. Prepare a mother for the emotional and Offer safe, unbiased, emotional support and physical challenges ahead to ensure ingoing positive reinforcement during the “latch assumption is not that “it comes naturally” experience” when it is needed most Copyright © 2012,al. © 2011 Ryan, et Peter Jones
  • 34. MAYO MOM Facilitate Connection Connection NEW MOM CopyrightRyan, et al. Jones © 2011 © 2012, Peter
  • 35. How do we design for healthy communities? D4.0 design research skills Co-creative for Social Systems Complex – all 4 Trans-disciplinary Not-radical Innovation Copyright © 2012, Peter Jones
  • 36. Copyright © 2012, Peter Jones
  • 37. Thank you. @redesign @designforcare designforcare.com designdialogues.com redesignresearch.com Strategic Innovation Lab OCAD University Toronto Strategic Foresight & Innovation Copyright © 2012, Peter Jones