4. 4
No Chronic
Conditions
55%
One or More
Chronic
Conditions
45%
People with One or More
Chronic Conditions Use:
72% of All Physician Visits
76% of All Hospital Admissions
80% of Total Hospital Days
88% of All Prescriptions
96% of All Home Care Visits
Chronic Care:
A Universal 21st Century Challenge
WHO has developed a plan for worldwide attention
to chronic care
6. 6
Evidence-based
Clinical Change
Concepts
A Recipe for Improving Outcomes
Learning Model
System Change
Concepts
What are we trying to
accomplish?
How will we know that a
change is an improvement?
What change can we make that
will result in improvement?
Model for Improvement
Act Plan
Study Do
System change strategy
Select
Topic
Planning
Group
Identify
Change
Concepts
Participants
Prework
LS 1
P
S
A D
P
S
A D
LS 3LS 2
Action Period Supports
E-mail Visits Web-site
Phone Assessments
Senior Leader Reports
Event
A D
P
S
(12 months time frame)
7. 7
System Change Concepts
Why a Chronic Care Model?
• Emphasis on physician, not system,
behavior.
• Characteristics of successful interventions
weren’t being categorized usefully.
• Commonalities across chronic conditions
unappreciated.
9. 9
Essential Element of Good Chronic Illness Care
Informed,
Activated
Patient
Productive
Interactions
Prepared
Practice
Team
Productive means that the work of evidence-based chronic disease care gets done in a
systematic way, and patient needs are met.
10. 10
What characterizes an “informed, activated patient”?
Informed,
Activated
Patient
They have the motivation, information, skills,
and confidence necessary to
effectively make decisions about
their health and manage it.
sufficient
information to
become a wise
decision-maker
related to their
illness
understanding
the importance
of their role in
managing the
illness.
11. 11
What characterizes a “prepared”
practice team?
Prepared
Practice
Team
At the time of the interaction they have
the patient information, decision support, and
resources necessary to deliver
high-quality care.
organized,
trained, and
equipped to
conduct
productive
interactions
12. 12
• Assessment of self-management skills and confidence as
well as clinical status.
• Tailoring of clinical management by stepped protocol.
• Collaborative goal-setting and problem-solving resulting
in a shared care plan.
• Active, sustained follow-up.
Informed,
Activated
Patient
Productive
Interactions
Prepared
Practice
Team
How would I recognize a
productive interaction?
productive interaction is one that assures that
patient needs for evidence-based clinical and
behavioral care information and support to
become better self-managers, and monitoring over
time are met.
13. 13
Productive
Interactions
Informed,
Activated
Patient and
Caregiver
Prepared,
Proactive
Practice Team
Health System
Health Care Organization
Self-
Management
Support
Delivery
System
Design
Decision
Support
Clinical
Information
Systems
Community
Resources and
Policies
Improved Outcomes
Wagner, 1996
Elements:
1. Self-Management support: Empower and prepare patients to manage their health and health
care.
2. Delivery system design: Assure the delivery of effective, efficient clinical care and self-
management support.
3. Decision support: Promote clinical care that is consistent with scientific evidence and patient
preferences.
4. Clinical information system: Organize patient and population data to facilitate efficient and
effective care.
5. Community: Mobilize community resources to meet needs of patients.
6. Health care organization: Create a culture, organization, and mechanisms that promote safe,
high-quality care.
14. What Are Chronic Diseases?
>A chronic disease persistent or recurring disease,
usually affecting a person for three months or
longer.
• are non communicable illnesses that are prolonged
in duration, do not resolve spontaneously, and are
rarely cured completely.
15. Chronic disease vs Chronic illness
• often used interchangeably in the clinical literature and in health
services policy and organization, they convey different meanings;
• Chronic disease is defined on the basis of the biomedical
disease classification, and includes diabetes, asthma, and
depression.
• Chronic illness is the personal experience of living with the
affliction that often accompanies chronic disease. It is often
not recognized in health systems, because it does not fit into
a biomedical or administrative classification.
15
16. 16
Components of Chronic Disease Care
• Patient experience of care
• Care delivery teams
• Organizations within which
delivery teams and patients
interact
• Regulatory and payment
environment
18. 18
Characteristics of Chronic Disease:
• Last a lifetime
• Accumulate with age
• Generally progressive
• Life-shaping
• Different meaning in different cultures
19. 19
Goals of Chronic Disease Care
1. Manage the disease to reduce exacerbations.
2. Prevent the transition from impairment to disability, and
from disability to handicap.
3. Encourage patient to play an active role in managing
his/her disease but avoid allowing the disease to dominate
the person’s life.
4. Provide care in a culturally sensitive manner.
5. Integrate medical care with other aspects of life without
medicalizing those aspects.
20. Case Study
• Terri Schiavo Case
Reflection:
a. If you were Terri Schiavo’s husband what will be your decision on the case of
your wife?
b. Is the family of Terri Schiavo selfish ?
c. Did the US supreme court made the right decision?
d. Discuss the case of Terri Schiavo using the CCM (Chronic Care Model)
20
23. 23
What is involved
• New definitions
– Prevention
– Patients’ roles
– Time
– Place
• New approaches
– Professional roles
– Expectations
– Information technology
– Management
25. 25
Definitions: Patients’ Roles
• 365/24/7
– Shared responsibility
– Shared risk
• Ongoing communication
• Shared decision making
– Need better information
– Need time
26. 26
Definitions: Time
• Episode vs. Encounter
• Pay-off horizon
– Up-front investment recovered over time
• Manage by change, not routine
– Scheduling appointments
– Length of appointments
28. 28
What is involved
• New definitions
– Prevention
– Patients’ roles
– Time
– Place
• New approaches
– Professional roles
– Expectations
– Information technology
– Management
29. 29
New Approaches: Professional Roles
• Downward delegation
– non-physicians
– non-professionals
• Primary care
– simple cases
– complex cases
• New teams
– Specialists, nutritionist & therapist
32. 32
New Approaches: Management
Case Management Variations
• Eligibility management – not all health practitioner
not all patient
• Care coordination – all areas are involved
• Utilization management – proper resources
proper patient
• Disease management
– Often independent
– Targeted
• Chronic care management -
34. 34
New Approaches: Management
• Patient self-care
– Education
– Motivation
– Attitudinal change
• Nurse-patient partnerships
– Information based
– Patient empowering
35. 35
New Approaches: Information Technology
Problems with too much as well as too little information.
Need to focus provider & patient attention on salient data
• Just in time information
• Structured information
– Clinical glidepaths
37. 37
Clinical Glidepath
• A CLINICAL GLIDEPATH is a way to observe one or more
parameters of a patient’s condition on a regular basis to be
able to compare the observed state with the expected
state.
• It is a tool to improve communication between patients
and primary care providers.
• If the patients stays within the expected course, nothing
need be done.
• But if the patient’s clinical course deviates, this change
should trigger immediate closer attention to ward off a
problem while it is early.
39. 39
Strategies for Improving Chronic Disease Care
• Interdisciplinary team care
• Group care – nurses or doctors
• Information systems
– Electronic medical record
– Computerized physician order entry
– Clinical tracking systems
• Mobile computing
40. 40
Evidence of Success
• Some encouraging signs but no clear trend
• Increased clinic visits and reorganization associated with
fewer hospitalizations and urgent care visits in;
COPD Diabetes
Pneumonia Chronic renal failure
CHF Depression
Angina
Ashton, NEJM, 2003
41. 41
Quality care related to better survival among vulnerable
older patients
Higashi, Ann Int Med, 2005
Self-management programs for diabetes and
hypertension improve outcomes
Chodosh, Ann Int Med, 2005
Medication adherence reduces hospitalizations for
diabetes, hypertension, hypercholesterolemia and CHF
Sokol, Med. Care, 2005
42. 42
“The prevailing evidence appears to be that while
disease management programs improve
adherence to practice guidelines and lead to
better control of the disease, their net effects
on health care costs are not clear.”
CBO, 2004
43. 43
Payment Issues
• Providers expect to be paid for what they do
• Who will invest in primary care
• Medicare (PHILHEALTH)
– Expand coverage to include new services
• Monitoring
• Counseling
– Share savings from decreased inpatient/ER utilization
– Pay more per visit for fewer visits
– Pay for episodes instead of incidents
– Pay for outcomes
44. 44
Conclusions
• Chronic disease is here to stay
• More must be done to bring the health care system into
alignment
• There is good scientific evidence to show better care is
possible
• Managed care does not seem to be the magic carpet
– If managed care is to have any success, need better case mix
payment system
• Changing the payment system is necessary but not
sufficient
As we began to look at this literature it became clear that a number of different ingredients are needed to improve the quality of chronic illness care. First of all, there has to be a clear understanding of the clinical interventions that make a difference. Usually those are represented in evidence-based guidelines. You then need ideas for changing the system (such as the CCM) to increase the likelihood that those evidence-based clinical changes get done. But what we’ve found is that such change is extremely difficult. So you need an approach to changing systems, such as the Model for Improvement used by the Institute for Healthcare Improvement. These three provide the intellectual foundation for quality improvement.
The final piece that is needed is a learning model that permits busy practices to take this intellectual foundation and make it real, and for us that has been the Breakthrough Series Collaborative.
In the past, deficiencies were attributed to bad physicians who just didn’t do the right thing. Instead, the emphasis needs to be on the system and the care it delivers.
The literature hadn’t been organized in a way that made it easy to understand how researchers achieved better results.
Research is primarily condition-specific because of funding sources. We need to be able to provide care in a way that works for patients with asthma, depression or multiple sclerosis. We need to do this for our own sanity and for our patients’, who can’t be expected to deal with a system where they have five case managers, seven providers and charts in every one of those places.
Our premise is that good outcomes at the bottom of the Model (better health status and patient satisfaction) result from productive interactions. To have productive interactions the practice must be redesigned in four areas (shown in the middle): self-management support (how we help patients live with their conditions), delivery system design (who’s on the health care team and in what ways we interact with patients), decision support (what is the best care and how do we make it happen every time), and clinical information systems (how do we capture and use critical information for clinical care). These four aspects of care are at the practice level.
Some aspects of larger healthcare organizations influence clinical care. The health system itself exists in a larger community. Resources and policies in the community also influence the kind of care that can be delivered. It is not accidental that self-management support is on the edge between the health system and the community. Some programs that support patients exist in the community. It is the most visible part of care to the patient, followed by delivery system design. They know what kind of appointments they get and who they see. They may be unaware of the guidelines that describe best care (but we should work to change that) and they may be totally unaware of how we keep information to provide that care. We’ll talk about each in detail in the following slides.
Wagner EH, Davis C, Schaefer J, Von Korff M, Austin B. A survey of leading chronic disease management programs: Are they consistent with the literature? Managed Care Quarterly. 1999; 7(3):56-66.
Bodenheimer T, Wagner EH, Grumbach K. Improving primary care for patients with chronic illness: the chronic care model, Part 2. JAMA 2002 Oct 16; 288(15):1909-14.
Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A., Improving chronic illness care: translating evidence into action. Health Aff (Millwood). 2001 Nov-Dec; 20(6):64-78.
The essential element of good chronic illness care is a productive interaction, versus current interactions that tend to be frustrating for both patients and providers. An interaction can be a face-to-face visit, a phone call or an email message. Productive means that the work of evidence-based chronic disease care gets done in a systematic way, and patient needs are met.
Wagner EH, Davis C, Schaefer J, Von Korff M, Austin B. A survey of leading chronic disease management programs: Are they consistent with the literature? Managed Care Quarterly. 1999; 7(3):56-66
To maximally improve outcomes, we need a different kind of patient. “Informed” means the patient has sufficient information to become a wise decision-maker related to their illness. Patients also need to be “activated” by understanding the importance of their role in managing the illness.
The other side of the productive interaction is a practice team that is organized, trained, and equipped to conduct productive interactions.
The overarching definition of a productive interaction is one that assures that patient needs for evidence-based clinical and behavioral care information and support to become better self-managers, and monitoring over time are met.