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HIV and AIDS Situation in
Malawi: Towards Universal
         Access

         Dr Sam Phiri
      Executive Director
       Lighthouse Trust


          Global Community Links
Presentation outline


•HIV situation and national
response

•ART program
•The Lighthouse Initiative
•Challenges




                 Global Community Links
HIV and AIDS Situation In Malawi
•Current statistics:
  – Population – 13 Million
  – 12% HIV prevalence among 15-49 years
  – 1.6% HIV Incidence
  – 900, 000 people living with HIV/AIDS
•Impact of AIDS:
  – About 70,000 adult and child deaths annually
  – 700,000 orphans directly related to AIDS
•HIV Prevalence in most at risk populations
  – FSW – 70.7% (2006)
  – MSM – 21.4% (2009)




                       Global Community Links
HIV Prevalence by Age
                                          19.00%
20.00%
18.00%
                                                               17.10%          15.30%
• Content
16.00%
14.00%
                                       13.80%
12.00%
10.00%                      12.30%
                                                                    11.30%
 8.00%
 6.00%   8.00%
 4.00%
 2.00%
 0.00%




                                                                                45
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                              -2



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                        9



                                4



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                an
                 15




                              Global Community Links
HIV Prevalence by Education
 20.0%
                                                                  17.5%
 18.0%                   15.5%
 16.0%
                                                                               14.9%
• Content
 14.0%       16.6%
 12.0%                           13.9%              14.2%
 10.0%
  8.0%
  6.0%
  4.0%
  2.0%
  0.0%
                       -5



                                  -8



                                               -2



                                                            -4



                                                                          ry
            e
         on




                                                                          a
                     1



                                 6



                                            1



                                                         3



                                                                       nd
         N



                   d



                              d


                                          rm



                                                       rm



                                                                     co
                 St



                            St


                                       Fo



                                                    Fo



                                                                  se
                                                                st
                                                             Po




                                       Global Community Links
HIV Prevalence by Marital Status
   50.00%
   45.00%                                                     42.90%

• Content
   40.00%
   35.00%                                            32.60%
   30.00%
   25.00%                                                                22.60%
   20.00%   17.30%
                                   14.80%
                      13.30%
   15.00%
   10.00%
    5.00%
    0.00%
            Single   Cohabiting    Married       Divorced     Widowed   Separated




                            Global Community Links
National HIV Prevalence by
                             Year
               20
                       18.5
                                 16.9          17
               15                                            15
% Prevalence




                                                                     13.5

               10                                                           Malawi Median


               5


               0
                    1998      2001         2003          2005     2007




                                        Global Community Links
HIV Prevalence by Locality
               30


               25      25.3
                                 22.5
                       20.9      21.1          21.7
               20                              20.8              20.4
% prevalence




                                                                 17        17.6   Rural
               15                              14.5                        15     Semi-Urban
                                                                 13        12.3   Urban
                       11.2      10.7
               10


               5


               0
                    1998      2001         2003            2005         2007




                                        Global Community Links
Prevalence trends in 15-19 and
         15-24 age groups
               25




               20
                       19.1
                                 18.3
% Prevalence




               15                15.2
                       14.3                       14.3              15 - 19
                                                             12.3   15 - 24

               10                                 10.3
                                                             9.5



               5




               0
                    1998      2003           2005         2007




                                 Global Community Links
Malawi National HIV and
              AIDS Response
• Prevention and behaviour change
•Treatment, care and support
•Impact mitigation
•Mainstreaming and decentralisation
•Research, monitoring and evaluation
•Resource mobilisation and utilisation
   – Main funding from Global Fund and other partners
•Policy and Partnerships



                       Global Community Links
ART Scale Up Plans
(2004-2005) and (2006-2010)
• Phased selection of facilities
•Free ART to HIV-positive eligible patients
•One first-line ART regimen only “Lamivudine +
Stavudine + Nevirapine”
•“Push” system of ART supply to facilities
•Standardized system of monitoring/reporting
•Quarterly structured supervision



                     Global Community Links
Progress in cumulative
patients alive on ART in public and
           private sector




             Global Community Links
National outcomes (cumulative
         analysis) March 2011
•                           Number          %
    Enrolled to ART         365, 191
    Alive on ART            264, 512        72
    Dead                    42, 549         12
    Lost to Follow Up 66, 662               16

    Stopped ART             1, 761          <1



                   Global Community Links
Malawi’s response to new WHO
     recommendations
•Eligibility
     – Stage 3 or 4
     – CD4+ cell < 350
     – PMTCT Option B+ - All pregnant and lactating HIV
        infected women
•Regimen
•Tenofovir + Lamivudine + Efavirenz (TDF – 300 + 3TC 300 + EFV 600)
single FDC
•Challenge
     – Round 10 application to Global fund not successful
•Phased approach
     – Maintain current regimen except
          • New pregnant and lactating women
          • New TB/HIV co-infected patients
          • First line alternative for severe lipodystrophy




                       Global Community Links
Challenges - Opportunities

•Slow behaviour change response
•Inadequate professional human resource
•Residual social and cultural practices
•Maintaining sustainable financial support
•Balancing HIV agenda with general health
agenda
•Early mortality among patients initiated on
ART

                 Global Community Links
Public Trust Initiative to
complement Government



        Global Community Links
Lighthouse Strategic Approach
   Client-centered care based on 3-prong technical
   approach:
   •To expand high-quality, integrated HIV and AIDS
   prevention, treatment, care and support services
   •To promote innovative approaches for HIV
   prevention, treatment, care and support through
   program development, piloting, evaluation and
   dissemination;
   •To build and strengthen capacity for HIV and AIDS
   treatment, care and support in Malawi.




                      Global Community Links
The Lighthouse Trust
•Centre of Excellence for integrated continuum of
HIV prevention, treatment, care and support
•2 clinics: MPC and Lighthouse
  1. HIV Testing and counselling including 31 HC in Lilongwe
  2. ART service provision
      • 10,000 patient visits/month
      • > 15,000 patients alive on ART
      • Integrated with TB, FP, STI, and PMTCT
  3. Home- and community-based care
  4. Capacity building
      • National trainers in HTC, ART, palliative care
      • Supports MOH in Supervision, mentoring and coaching



                        Global Community Links
HIV Testing and Counseling


           (HTC)



        Global Community Links
HTC Services
Lighthouse urban HTC sites :
   – Lighthouse and Martin Preuss Centre clinics
   – Kamuzu Central Hospital medical wards, paediatric
     wards, antenatal
   – STI clinic
   – Maula prison
   – Chinsapo
Rural health center outreach
    31 rural Lilongwe HTC sites supported for HTC to ANC
     mothers
    Increasing links to prevention of mother to child
     transmission services



                      Global Community Links
HIV Testing and Counseling




       Global Community Links
Total HTC client visits
                                                                               HTC Cummulative Encounters


                 4500

                 4000

                 3500
Clients Tested




                 3000

                 2500

                 2000

                 1500

                 1000

                 500

                   0
                        Jan-01

                                 Jul-01

                                          Jan-02

                                                   Jul-02

                                                            Jan-03

                                                                     Jul-03

                                                                              Jan-04

                                                                                        Jul-04

                                                                                                 Jan-05

                                                                                                          Jul-05

                                                                                                                   Jan-06

                                                                                                                            Jul-06

                                                                                                                                     Jan-07

                                                                                                                                              Jul-07

                                                                                                                                                       Jan-08

                                                                                                                                                                Jul-08

                                                                                                                                                                         Jan-09

                                                                                                                                                                                  Jul-09

                                                                                                                                                                                           Jan-10

                                                                                                                                                                                                    Jul-10

                                                                                                                                                                                                             Jan-11

                                                                                                                                                                                                                      Jul-11
                                                                              Clients Testing Positive                      Clients Testing Negative




                                                                                       Global Community Links
The Lighthouse Clinic

 A Specialist Clinic for
     HIV and AIDS


         Global Community Links
Clinic Registration




       Global Community Links
Clinical Care
•Free, public HIV/AIDS clinic
   – 15,000 on ART by December 2010
   – 56% female
   – 91% on first line medications
   – 9% children under 15 years
•Routine follow-up visits include:
   – Regular appointments at intervals of 1, 2, or 3
     months
   – Diagnosis and treatment of opportunistic infections
   – Initiation and maintenance of prophylactic therapy
   – Referral to other services especially at KCH



                         Global Community Links
Clinical case review




          Global Community Links
Lighthouse Trust cumulative
 outcomes: Q4, 2010
                                  Number        % of ever
                                                enrolled
Ever enrolled in ART              24,590
Alive on ART                      14,293        59%
Dead                              1,771         7%
Defaulted                         3,310         13%
Stopped ART                       440           2%
Transferred-out                   4,766         19%




                       Global Community Links
Total Clinic Reviews
                       14,000


                                                    New Patients
                       12,000
                                                    Follow-ups

                       10,000                                                                                      MPC Opened
Clinic Client Visits




                        8,000
                                                                                                    Limits
                                                                                                   Imposed
                        6,000                                                   Free
                                         Lighthouse Centre                      ARVs
                                               Opens
                        4,000



                        2,000



                           0
                                                                                                     May-05
                                           Nov-01




                                                                                                                                                           Nov-08
                                Apr-01




                                                                       Aug-03
                                                     Jun-02

                                                              Jan-03



                                                                                 Mar-04




                                                                                                                                         Sep-07

                                                                                                                                                  Apr-08




                                                                                                                                                                                      Aug-10
                                                                                                              Dec-05

                                                                                                                       Jul-06




                                                                                                                                                                    Jun-09

                                                                                                                                                                             Jan-10



                                                                                                                                                                                               Mar-11
                                                                                                                                Feb-07
                                                                                          Oct-04




                                                                                                   Global Community Links
Electronic Data Management
•Lighthouse and MPC implemented a real-time electronic
data system (EDS) in 2005
•Collection of patient level information on all ART patients
    – Registration, vitals, nurse visits, clinical care, and
      dispensing records
•Uses touch screen technology
•Label scanners and printers facilitate easier monitoring
and supervision for blood samples and drug dispensing.
•Near completeness of patient level data from 2006
onward.
•All patient EDS data is accessed through an Access
database for effective monitoring and evaluation




                       Global Community Links
The Lighthouse
 Community Home Based Care


 Quality Care at Home
for the Chronically Sick
    in Lilongwe City




       Global Community Links
Home based care (HBC) program
•Leader in promotion of Palliative Care
    – End of life care for terminal and dying patients
•Works through existing community groups to encourage ownership
and sustainability
•Patients identified through:
    – Lighthouse or MPC referral
    – Community volunteers
    – Local hospitals
•Dedicated, well-trained community nurses provide quality care
    – 150 patients, on average, per month
    – Patients receive 2 nurse visits/week for medication and follow-up
    – Patients receive visits from community volunteers for psycho-social
      support




                              Global Community Links
Community Home Based Care




     Global Community Links
Clients Registered




                                                       1000
                                                                2000
                                                                       3000
                                                                              4000
                                                                                     5000
                                                                                            6000
                                                                                                   7000




                                                   0
                                          Nov-05

                                          Feb-06

                                          May-06

                                          Aug-06

                                          Nov-06

                                          Feb-07




                         HBC
                                          May-07




                         CV
                                          Aug-07




                         LH
                                          Nov-07

                                          Feb-08

                                          May-08

                                          Aug-08
                         LHMPC (Bottom)
                         HC

                                          Nov-08
                                                                                                                                uptake
                                                                                                          Ndife Amodzi




Global Community Links
                                          Feb-09
                         Other




                                          May-09

                                          Aug-09

                                          Nov-09

                                          Feb-10

                                          May-10

                                          Aug-10

                                          Nov-10

                                          Feb-11

                                          May-11
                                                                                                                         Total Ndife Amodzi client
Capacity Building Role
•MoH certified Training Courses:
    – ART, HTC, and palliative care
    – Over 1,000 clinicians and nurses trained in
      ART provision
•Provides clinical attachment for ART & HTC
•National supervision teams for HTC and ART
•Mentoring for new ART/HTC sites
•Leader in national policy development and
piloting

                     Global Community Links
Challenges…




  Global Community Links
Space challenges in clinic reception




      Global Community Links
Lighthouse challenges
•Balancing service quality with overwhelming demand

•Balancing service delivery with capacity building

•Balancing service delivery with operational research

•Maintaining high community volunteer retention

•Financial support for human resource



                      Global Community Links
A cross section of the Lighthouse Team




               Global Community Links
•




Global Community Links

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Dr Sam Phiri: HIV and AIDS Situation in Malawi

  • 1. HIV and AIDS Situation in Malawi: Towards Universal Access Dr Sam Phiri Executive Director Lighthouse Trust Global Community Links
  • 2. Presentation outline •HIV situation and national response •ART program •The Lighthouse Initiative •Challenges Global Community Links
  • 3. HIV and AIDS Situation In Malawi •Current statistics: – Population – 13 Million – 12% HIV prevalence among 15-49 years – 1.6% HIV Incidence – 900, 000 people living with HIV/AIDS •Impact of AIDS: – About 70,000 adult and child deaths annually – 700,000 orphans directly related to AIDS •HIV Prevalence in most at risk populations – FSW – 70.7% (2006) – MSM – 21.4% (2009) Global Community Links
  • 4. HIV Prevalence by Age 19.00% 20.00% 18.00% 17.10% 15.30% • Content 16.00% 14.00% 13.80% 12.00% 10.00% 12.30% 11.30% 8.00% 6.00% 8.00% 4.00% 2.00% 0.00% 45 Le 15 15 20 25 30 35 40 + ss -1 -2 -2 -2 -3 -3 -4 th 9 4 4 9 4 9 4 an 15 Global Community Links
  • 5. HIV Prevalence by Education 20.0% 17.5% 18.0% 15.5% 16.0% 14.9% • Content 14.0% 16.6% 12.0% 13.9% 14.2% 10.0% 8.0% 6.0% 4.0% 2.0% 0.0% -5 -8 -2 -4 ry e on a 1 6 1 3 nd N d d rm rm co St St Fo Fo se st Po Global Community Links
  • 6. HIV Prevalence by Marital Status 50.00% 45.00% 42.90% • Content 40.00% 35.00% 32.60% 30.00% 25.00% 22.60% 20.00% 17.30% 14.80% 13.30% 15.00% 10.00% 5.00% 0.00% Single Cohabiting Married Divorced Widowed Separated Global Community Links
  • 7. National HIV Prevalence by Year 20 18.5 16.9 17 15 15 % Prevalence 13.5 10 Malawi Median 5 0 1998 2001 2003 2005 2007 Global Community Links
  • 8. HIV Prevalence by Locality 30 25 25.3 22.5 20.9 21.1 21.7 20 20.8 20.4 % prevalence 17 17.6 Rural 15 14.5 15 Semi-Urban 13 12.3 Urban 11.2 10.7 10 5 0 1998 2001 2003 2005 2007 Global Community Links
  • 9. Prevalence trends in 15-19 and 15-24 age groups 25 20 19.1 18.3 % Prevalence 15 15.2 14.3 14.3 15 - 19 12.3 15 - 24 10 10.3 9.5 5 0 1998 2003 2005 2007 Global Community Links
  • 10. Malawi National HIV and AIDS Response • Prevention and behaviour change •Treatment, care and support •Impact mitigation •Mainstreaming and decentralisation •Research, monitoring and evaluation •Resource mobilisation and utilisation – Main funding from Global Fund and other partners •Policy and Partnerships Global Community Links
  • 11. ART Scale Up Plans (2004-2005) and (2006-2010) • Phased selection of facilities •Free ART to HIV-positive eligible patients •One first-line ART regimen only “Lamivudine + Stavudine + Nevirapine” •“Push” system of ART supply to facilities •Standardized system of monitoring/reporting •Quarterly structured supervision Global Community Links
  • 12. Progress in cumulative patients alive on ART in public and private sector Global Community Links
  • 13. National outcomes (cumulative analysis) March 2011 • Number % Enrolled to ART 365, 191 Alive on ART 264, 512 72 Dead 42, 549 12 Lost to Follow Up 66, 662 16 Stopped ART 1, 761 <1 Global Community Links
  • 14. Malawi’s response to new WHO recommendations •Eligibility – Stage 3 or 4 – CD4+ cell < 350 – PMTCT Option B+ - All pregnant and lactating HIV infected women •Regimen •Tenofovir + Lamivudine + Efavirenz (TDF – 300 + 3TC 300 + EFV 600) single FDC •Challenge – Round 10 application to Global fund not successful •Phased approach – Maintain current regimen except • New pregnant and lactating women • New TB/HIV co-infected patients • First line alternative for severe lipodystrophy Global Community Links
  • 15. Challenges - Opportunities •Slow behaviour change response •Inadequate professional human resource •Residual social and cultural practices •Maintaining sustainable financial support •Balancing HIV agenda with general health agenda •Early mortality among patients initiated on ART Global Community Links
  • 16. Public Trust Initiative to complement Government Global Community Links
  • 17. Lighthouse Strategic Approach Client-centered care based on 3-prong technical approach: •To expand high-quality, integrated HIV and AIDS prevention, treatment, care and support services •To promote innovative approaches for HIV prevention, treatment, care and support through program development, piloting, evaluation and dissemination; •To build and strengthen capacity for HIV and AIDS treatment, care and support in Malawi. Global Community Links
  • 18. The Lighthouse Trust •Centre of Excellence for integrated continuum of HIV prevention, treatment, care and support •2 clinics: MPC and Lighthouse 1. HIV Testing and counselling including 31 HC in Lilongwe 2. ART service provision • 10,000 patient visits/month • > 15,000 patients alive on ART • Integrated with TB, FP, STI, and PMTCT 3. Home- and community-based care 4. Capacity building • National trainers in HTC, ART, palliative care • Supports MOH in Supervision, mentoring and coaching Global Community Links
  • 19. HIV Testing and Counseling (HTC) Global Community Links
  • 20. HTC Services Lighthouse urban HTC sites : – Lighthouse and Martin Preuss Centre clinics – Kamuzu Central Hospital medical wards, paediatric wards, antenatal – STI clinic – Maula prison – Chinsapo Rural health center outreach  31 rural Lilongwe HTC sites supported for HTC to ANC mothers  Increasing links to prevention of mother to child transmission services Global Community Links
  • 21. HIV Testing and Counseling Global Community Links
  • 22. Total HTC client visits HTC Cummulative Encounters 4500 4000 3500 Clients Tested 3000 2500 2000 1500 1000 500 0 Jan-01 Jul-01 Jan-02 Jul-02 Jan-03 Jul-03 Jan-04 Jul-04 Jan-05 Jul-05 Jan-06 Jul-06 Jan-07 Jul-07 Jan-08 Jul-08 Jan-09 Jul-09 Jan-10 Jul-10 Jan-11 Jul-11 Clients Testing Positive Clients Testing Negative Global Community Links
  • 23. The Lighthouse Clinic A Specialist Clinic for HIV and AIDS Global Community Links
  • 24. Clinic Registration Global Community Links
  • 25. Clinical Care •Free, public HIV/AIDS clinic – 15,000 on ART by December 2010 – 56% female – 91% on first line medications – 9% children under 15 years •Routine follow-up visits include: – Regular appointments at intervals of 1, 2, or 3 months – Diagnosis and treatment of opportunistic infections – Initiation and maintenance of prophylactic therapy – Referral to other services especially at KCH Global Community Links
  • 26. Clinical case review Global Community Links
  • 27. Lighthouse Trust cumulative outcomes: Q4, 2010 Number % of ever enrolled Ever enrolled in ART 24,590 Alive on ART 14,293 59% Dead 1,771 7% Defaulted 3,310 13% Stopped ART 440 2% Transferred-out 4,766 19% Global Community Links
  • 28. Total Clinic Reviews 14,000 New Patients 12,000 Follow-ups 10,000 MPC Opened Clinic Client Visits 8,000 Limits Imposed 6,000 Free Lighthouse Centre ARVs Opens 4,000 2,000 0 May-05 Nov-01 Nov-08 Apr-01 Aug-03 Jun-02 Jan-03 Mar-04 Sep-07 Apr-08 Aug-10 Dec-05 Jul-06 Jun-09 Jan-10 Mar-11 Feb-07 Oct-04 Global Community Links
  • 29. Electronic Data Management •Lighthouse and MPC implemented a real-time electronic data system (EDS) in 2005 •Collection of patient level information on all ART patients – Registration, vitals, nurse visits, clinical care, and dispensing records •Uses touch screen technology •Label scanners and printers facilitate easier monitoring and supervision for blood samples and drug dispensing. •Near completeness of patient level data from 2006 onward. •All patient EDS data is accessed through an Access database for effective monitoring and evaluation Global Community Links
  • 30. The Lighthouse Community Home Based Care Quality Care at Home for the Chronically Sick in Lilongwe City Global Community Links
  • 31. Home based care (HBC) program •Leader in promotion of Palliative Care – End of life care for terminal and dying patients •Works through existing community groups to encourage ownership and sustainability •Patients identified through: – Lighthouse or MPC referral – Community volunteers – Local hospitals •Dedicated, well-trained community nurses provide quality care – 150 patients, on average, per month – Patients receive 2 nurse visits/week for medication and follow-up – Patients receive visits from community volunteers for psycho-social support Global Community Links
  • 32. Community Home Based Care Global Community Links
  • 33. Clients Registered 1000 2000 3000 4000 5000 6000 7000 0 Nov-05 Feb-06 May-06 Aug-06 Nov-06 Feb-07 HBC May-07 CV Aug-07 LH Nov-07 Feb-08 May-08 Aug-08 LHMPC (Bottom) HC Nov-08 uptake Ndife Amodzi Global Community Links Feb-09 Other May-09 Aug-09 Nov-09 Feb-10 May-10 Aug-10 Nov-10 Feb-11 May-11 Total Ndife Amodzi client
  • 34. Capacity Building Role •MoH certified Training Courses: – ART, HTC, and palliative care – Over 1,000 clinicians and nurses trained in ART provision •Provides clinical attachment for ART & HTC •National supervision teams for HTC and ART •Mentoring for new ART/HTC sites •Leader in national policy development and piloting Global Community Links
  • 35. Challenges… Global Community Links
  • 36. Space challenges in clinic reception Global Community Links
  • 37. Lighthouse challenges •Balancing service quality with overwhelming demand •Balancing service delivery with capacity building •Balancing service delivery with operational research •Maintaining high community volunteer retention •Financial support for human resource Global Community Links
  • 38. A cross section of the Lighthouse Team Global Community Links