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shinecharity.org.uk
                                               info@shinecharity.org.uk
                                                         42 Park Road
                                                         Peterborough
                                                             PE1 2UQ
                                                        01733 555988




Management of hydrocephalus
Shunt alert cards                     will need to be re-referred to the
                                      hydrocephalus clinic via your GP.
A small information card stating
the type of shunt a person has        						
and the symptoms of malfunction.      Baseline scans
Mainly for use in emergency
situations.   Available  through      Even though you are not experiencing
Shine and your local Support and      any problems with your shunt, it is
Development Worker (see overleaf      advisable that a baseline scan is
for more information).                taken when you are well. This will
                                      help to determine treatment, should
					                                 you develop any pressure problems,
GP leaflet                            the consultant will then know the
                                      size of your ventricles when well. If
A guide to hydrocephalus will         you have not had a scan in the last 5
be sent to your GP on request.        years, you may need a referral - see
Remember, you may be the              referral procedures above.
only patient he/she has with
hydrocephalus, so he/she will         					
need all the information available.   Eye check

				                                  Individuals with a shunt are advised
Referral procedure                    to have eye checks every 6 months.
                                      Raised intracranial pressure may
If you have not been seen by a        cause pressure at the back of the
neurosurgeon in the last 5 years      eyes. Eye checks therefore assist
to have your shunt checked, you       early diagnosis.
Management of hydrocephalus

                                Hydrocephalus




Managed by a shunt?              3rd Ventriculostomy?       Not managed / arrested?




   Shunt checked in                                              Have you seen a
                                Are you monitored by a
 the last 5 years by a                                          neurosurgeon in the
                                    neurosurgeon?
    neurosurgeon?                                                   last 5 years

 YES         NO                NO            YES                    NO       YES



                         Ask your GP to      A baseline scan            Please see
Do you carry a
                          refer you to a    maybe due, please          overleaf and
 shunt card?
                         neurosurgeon?      overleaf for details         continue

 YES         NO                                                     NO



                           Please see         Do you have an
                          overleaf and        eye check every
                            continue           6-12 months?




         Are you aware of these symptoms listed?
Infants                       Toddlers               Children 		
                                                       & Adults
  Enlargement of head           Enlargement of head
  Full, tense fontanelle        Fever                  Headache
  Swelling, redness on          Vomiting               Vomiting
  shunt tract                   Headache               Fever, swelling,
  Fever                         Irritability           redness on shunt tract
  Irritability                  Sleepiness             Irritability
  Seizures                      Swelling, redness on   Ataxia
  Sunset eyes                   shunt tract            Personality changes
                                Seizures               Visual disturbances
                                                       Decline in academic
                                                       performance
                                                       Confusion
 Have you a combination                                Seizures
of any of these symptoms                               Sleepiness
     at the moment?                                    Incontinence

    YES             YES                NO
INTERMITTENTLY   ALL THE TIME




Options:
1. Contact GP (24 hours)
2. Contact consultant via         Need to attend         If you are already
secretary advice (9-5)               specialist              referred to a
3. Contact children’s              neurosurgical        neurosurgeon, you
ward (24 hours), adults           centre within 4       will usually receive
go to A&E.                      hours of symptoms        appointments for
4. Contact Shine on:                appearing.         check-ups every year
01733 555988.                                                    or so.
that an information sheet about
SHUNT ALERT CARDS                       hydrocephalus, specially written for
                                        doctors, is sent to their GP.
Shine has a series of Shunt Alert
Cards, for adults and children.         Teachers and employers can ask
These should be carried at all times    for ‘Shunt malfunctions: a guide to
by people with hydrocephalus            symptoms and suggested actions
treated by a shunt (this will include   for schools/employers’.
some people with spina bifida).

The cards are available from Shine,
Telephone 01733 555988.

The card emphasises that, if the
cardholder is showing signs similar
to those which occur when there
is shunt blockage or infection,
urgent assessment of shunt
function should be carried out in
a specialist neuro-surgical unit
in order to eliminate shunt failure
as a cause. People applying for a
Shunt Alert Card can also request



Help us
Shine relies on people’s generosity and support so we can help our clients
who depend on us for help and advice - people with hydrocephalus,
spina bifida, their families and carers. To donate to Shine please visit
www.shinecharity.org.uk or call 01733 555988.
This information has been produced by Shine’s medical advisers and
approved by Shine’s Medical Advisory Committee of senior medical
professionals.
                   Shine - Registered charity no.249338
To see our full range of information sheets and to find out how to donate
            to Shine please visit www.shinecharity.org.uk

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Management of hydrocephalus

  • 1. shinecharity.org.uk info@shinecharity.org.uk 42 Park Road Peterborough PE1 2UQ 01733 555988 Management of hydrocephalus Shunt alert cards will need to be re-referred to the hydrocephalus clinic via your GP. A small information card stating the type of shunt a person has and the symptoms of malfunction. Baseline scans Mainly for use in emergency situations. Available through Even though you are not experiencing Shine and your local Support and any problems with your shunt, it is Development Worker (see overleaf advisable that a baseline scan is for more information). taken when you are well. This will help to determine treatment, should you develop any pressure problems, GP leaflet the consultant will then know the size of your ventricles when well. If A guide to hydrocephalus will you have not had a scan in the last 5 be sent to your GP on request. years, you may need a referral - see Remember, you may be the referral procedures above. only patient he/she has with hydrocephalus, so he/she will need all the information available. Eye check Individuals with a shunt are advised Referral procedure to have eye checks every 6 months. Raised intracranial pressure may If you have not been seen by a cause pressure at the back of the neurosurgeon in the last 5 years eyes. Eye checks therefore assist to have your shunt checked, you early diagnosis.
  • 2. Management of hydrocephalus Hydrocephalus Managed by a shunt? 3rd Ventriculostomy? Not managed / arrested? Shunt checked in Have you seen a Are you monitored by a the last 5 years by a neurosurgeon in the neurosurgeon? neurosurgeon? last 5 years YES NO NO YES NO YES Ask your GP to A baseline scan Please see Do you carry a refer you to a maybe due, please overleaf and shunt card? neurosurgeon? overleaf for details continue YES NO NO Please see Do you have an overleaf and eye check every continue 6-12 months? Are you aware of these symptoms listed?
  • 3. Infants Toddlers Children & Adults Enlargement of head Enlargement of head Full, tense fontanelle Fever Headache Swelling, redness on Vomiting Vomiting shunt tract Headache Fever, swelling, Fever Irritability redness on shunt tract Irritability Sleepiness Irritability Seizures Swelling, redness on Ataxia Sunset eyes shunt tract Personality changes Seizures Visual disturbances Decline in academic performance Confusion Have you a combination Seizures of any of these symptoms Sleepiness at the moment? Incontinence YES YES NO INTERMITTENTLY ALL THE TIME Options: 1. Contact GP (24 hours) 2. Contact consultant via Need to attend If you are already secretary advice (9-5) specialist referred to a 3. Contact children’s neurosurgical neurosurgeon, you ward (24 hours), adults centre within 4 will usually receive go to A&E. hours of symptoms appointments for 4. Contact Shine on: appearing. check-ups every year 01733 555988. or so.
  • 4. that an information sheet about SHUNT ALERT CARDS hydrocephalus, specially written for doctors, is sent to their GP. Shine has a series of Shunt Alert Cards, for adults and children. Teachers and employers can ask These should be carried at all times for ‘Shunt malfunctions: a guide to by people with hydrocephalus symptoms and suggested actions treated by a shunt (this will include for schools/employers’. some people with spina bifida). The cards are available from Shine, Telephone 01733 555988. The card emphasises that, if the cardholder is showing signs similar to those which occur when there is shunt blockage or infection, urgent assessment of shunt function should be carried out in a specialist neuro-surgical unit in order to eliminate shunt failure as a cause. People applying for a Shunt Alert Card can also request Help us Shine relies on people’s generosity and support so we can help our clients who depend on us for help and advice - people with hydrocephalus, spina bifida, their families and carers. To donate to Shine please visit www.shinecharity.org.uk or call 01733 555988. This information has been produced by Shine’s medical advisers and approved by Shine’s Medical Advisory Committee of senior medical professionals. Shine - Registered charity no.249338 To see our full range of information sheets and to find out how to donate to Shine please visit www.shinecharity.org.uk