This document discusses citizens and communities taking control through self-directed support. It acknowledges past elders and expresses a mixture of hope and fear around ongoing change and uncertainty in federal systems. The document discusses true citizenship as finding purpose, freedom, community, and love rather than being defined by services or institutions. It presents examples of self-directed support in other countries and ways that services could change to support self-management and community organizations. The document outlines examples of community organizations taking action and ways people can work together for social change, such as developing new ideas and narratives, and organizing to create power through pride and unity rather than giving power away.

1. Consumers
or
Citizens [and
families!]
&
Communities
in
Control

2. Acknowledging our
elders past and present

7. A mixture of
hope and fear
• Ongoing change and uncertainty
located in federal systems
• Hope for extra resources, fairer
distributions and self-direction
• Fear of bureaucracy, inflexibility and
new forms of dependence
• Reactivity to the system, rather than
pro-active strategy

8. 1. True Citizenship

9. There is a revolution going on.
We are beginning to realise
that everyone, every human
being is important.
We are beginning to see that
every human being is beautiful.
At the heart of this revolution
are not the powerful, the
wealthy or intelligent.
It is people with disabilities
who are showing us what is
important: love, community
and the freedom to be
ourselves.
Jean Vanier

10. What’s our dream for those we love?
or
a life of citizenship
freedom, meaning,
contribution
Money? Power? Fame?

11. an ordinary life is not
enough

12. Wendy Perez

14. How we discover our citizenship
1. Finding our sense of purpose
2. Having the freedom to pursue it
3. Having enough money to be free
4. Having a home where we belong
5. Getting help from other people
6. Making life in community
7. Finding, sharing and giving love

17. What are the new
institutions?
• Day centres, not jobs
• Care homes, not homes
• Special buses, not a car
• Respite, not a holiday
• Therapy, not fun
• Befriending, not love

19. 2. Choice & Control

21. Countries where self-directed support is happening

27. 3. Beyond Services

28. TY Tim Keilty
Service
providers:
coming to
a galaxy
near you
soon

29. TY Tere Dawson
Service
providers:
Is it helpful
to make
them the
bad guys?

30. How did
institutions close?
• Moral outrage + sense of hope
• Advocacy and campaigning
• Professional leadership
• Offering politicians a new narrative
• Unlocking resources
• Testing out solutions for real

35. How could we help
services change?
• Supporting self-management
• Offering shared management
• Partners for change
• Community organisations
• Self-organising cooperatives
• Knowledge hubs

36. 4. Citizens in Action

39. Community
Brokerage

41. It’s My Life

42. Help & Connect

43. What can we do
for each other?
• Help each other
• Teach each other
• Recognise our power
• Organise to create
• Partners in transformation

44. 5. Social Strategies

45. …there is reliable evidence that the threshold of grave or
systematic violations of the rights of persons with
disabilities has been met in the State party… The core
elements of the rights to independent living and being
included in the community, an adequate standard of living and
social protection and their right to employment have been
affected… freedom of choice and control over their daily
activities restricted, the extra cost of disability has been set
aside and income protection has been curtailed as a result of
benefit cuts, while the expected policy goal of achieving
decent and stable employment is far from being attained
UN Committee on the Rights of Persons with Disabilities:
Inquiry concerning the United Kingdom of Great Britain and
Northern Ireland carried out by the Committee under article 6 of
the Optional Protocol to the Convention
6th October 2016
UN declares UK Government fails to respect disability rights

46. Resistance has been weak
• Academics, charities and
advocates depend on state
funding
• Laws have been changed to
make it harder for
organisations to speak out
• Legal aid has been cut
• Media and think tanks are
funded by private corporations
• BBC are fearful of losing
income
• Trade unions are weak
• Disability community is divided
• Mortgages, debt and job
insecurity makes people
fearful

47. How to do
social change
• New ideas
• ‘Unionise’
• Breakdown silos
• Create a new narrative

48. Pride
+
Organisation
=
Power

52. We don’t need
to give our
power away

54. Let’s do what citizens do…
work together for a better world

55. Don’t be divided by diversity

56. for later