Presentation at #Doctors20 about the Patient Opinion Leader and their relationship with pharma. Who is a POL? Is pharma approaching the right people?

1. 5th Edition – Paris -- June 4-5, 2015
Nuria Zúñiga
@tulupus

2. 5th Edition – Paris -- June 4-5, 2015
• I am a person like any other: dreams, goals,
achievements, …
• I also have lupus
• I know how it is like to live with a chronic illness
• My lupus has made change my life: dreams, goals,
achievements, …
• I listen to other patients

3. 5th Edition – Paris -- June 4-5, 2015
Other patients
Lupus got complicated…

4. 5th Edition – Paris -- June 4-5, 2015
I am only a patient that has put a voice to
what it feels like to live with a chronic illness.
By listening to people this web has become
what it is today and I have become a POL
(pledge out loud) person.
Now I write about…
• Treatments
• Psychology
• Family

5. 5th Edition – Paris -- June 4-5, 2015
• "Patient Opinion Leaders (POL), are individuals who are well versed in a
disease either as sufferers or caretakers of individuals with chronic
disorders and share their knowledge on the particular disease with
others" and that in most cases happen to share this knowledge in social
media: Twitter, Facebook, blogs...”
How deep is my knowledge in lupus?
Is that the question???

6. 5th Edition – Paris -- June 4-5, 2015
The right questions are:
• Do I know how it feels like to live with a chronic illness?
• Do I know what patients need?
• Can I help pharma help patients, doctors and relatives?
• Am I responsible when I talk about health?

7. 5th Edition – Paris -- June 4-5, 2015
Yes…Do you have
lupus?
Many illnesses are
treated with drugs that
are not specifically
indicated for that
condition

8. 5th Edition – Paris -- June 4-5, 2015
I collaborate with several Pharma companies in projects
not directly related to lupus.
Pharma
Health
Specialists
Patients

9. 5th Edition – Paris -- June 4-5, 2015
Other patient common needs:
• Psychology.
• Social awareness.
• Treatment adherence.
• Healthy life habits.
• Patient education.

10. 5th Edition – Paris -- June 4-5, 2015

11. 5th Edition – Paris -- June 4-5, 2015
Nuria Zúñiga
@tulupus
http://tulupusesmilupus.com