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UNIT-XV: Care of Terminally ill patient
SHRI VINOBA BHAVE COLLEGE OF NURSINGH,
SILVASSA 1
Mrs. P. Vadivukkarasi Ramanadin,
Professor, Dept. Of OBG (N),
Shri Vinoba Bhave College of Nursing,
Shri Vinoba Bhave Civil Hospital,
Silvassa, DNH.
• Concepts of Loss, Grief, grieving process
• Signs of clinical death
• Care of dying patient;
• special considerations
• -Advance directives:
• euthanasia will dying declaration , organ
donation etc
• Medico-legal issues
• Care of dead body:
• Equipment, procedure and care of unit
• Autopsy
o Embalming
2SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Loss is an actual or potential situation in
which something that is valued is changed or
no longer available.
 People can experience the loss of body
image, a significant other, a sense of well-
being, a job, personal possessions, or beliefs.
Illness and hospitalization often produce
losses.
 Loss is an inevitable part of life
3SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Necessary loss, which is a part of life. They learn to
expect that most necessary losses are eventually replaced
by something different or better.
 A maturational loss is a form of necessary loss and
includes all normally expected life changes across the life
span. A mother feels loss when her child leaves home for
the first day of school.
 Unwanted, or unexpected loss. Some losses seem
unnecessary and are not part of expected.
 Situational loss. For example, a person in an automobile
accident sustains an injury with physical changes that
make it impossible to return to work or school, leading to
loss of function, income, life goals, and self-esteem.
4SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 An actual loss occurs when a person can no longer
feel, hear, see, or know a person or object.
Examples include the loss of a body part, death of a
family member, or loss of a job. Lost valued objects
include those that wear out or are misplaced, stolen,
or ruined by disaster. A child grieves the loss of a
favorite toy washed away in a flood.
 A perceived loss is uniquely defined by the person
experiencing the loss and is less obvious to other
people. For example, some people perceive rejection
by a friend to be a loss, which creates a loss of
confidence or changes their status in a group. How an
individual interprets the meaning of the perceived
loss affects the intensity of the grief response.
5SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Sudden versus Predictable Loss
 Sudden or shocking losses due to events like
crimes, accidents, or suicide can be traumatic.
There is no way to prepare. They can challenge
your sense of security and confidence in the
predictability of life. You may experience
symptoms such as sleep disturbance, nightmares,
distressing thoughts, depressed mood, social
isolation, or severe anxiety.
 Predictable losses, like those due to terminal
illness, sometimes allow more time to prepare
for the loss. However, they create two layers of
grief: the grief related to the anticipation of the
loss and the grief related to the loss itself
6SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Grief is a natural part of the healing process.
Grief is a strong, sometimes overwhelming
emotion for people.
 The reasons for grief are many, such as the
loss of a loved one, the loss of health, or the
letting go of a long-held dream. Dealing with
a significant loss can be one of the most
difficult times in a person's life.
 Individual experiences of grief vary and are
influenced by the nature of the loss.
 Pattern of physical and emotional responses
to bereavement may vary
7SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Grief is the emotional response to a loss, manifested in ways
unique to an individual and based on personal experiences,
cultural expectations, and spiritual beliefs (Walter and McCoyd,
2009)
 Mourning: Coping with grief involves a period of mourning, the
outward, social expressions of grief and the behavior associated
with loss. Most mourning rituals are culturally influenced, learned
behaviors.
A reaction activated by a person to assist in overcoming a great
personal loss
It is the behavioral process through which grief is eventually
resolved or altered; it is often influenced by culture, spiritual
beliefs, and
 Bereavement
A common depressed reaction to the death of a loved one
Encompasses both grief and mourning and includes the emotional
responses and outward behaviors of a person experiencing loss
(AACN, 2008).
 It is the subjective response experienced by the surviving loved
ones. 8SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Normal Grief. Normal (uncomplicated) grief is a
common, universal reaction characterized by
complex emotional, cognitive, social, physical,
behavioral, and spiritual responses to loss and
death.
 Anticipatory Grief. A person experiences
anticipatory grief, The unconscious process of
disengaging or “letting go” before the actual loss or
death occurs, especially in situations of prolonged
or predicted loss (Simon, 2008). When grief extends
over a long period of time, people absorb loss
gradually and begin to prepare for its inevitability.
They experience intense responses to
grief (e.g., shock, denial, and tearfulness) before
the actual death occurs and often feel relief when it
finally happens.
9SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Disenfranchised Grief. People experience disenfranchised
grief, also Known as marginal or unsupported grief, when
their relationship to the deceased person is not socially
sanctioned, cannot be openly shared, or seems of lesser
significance. The person’s loss and grief do not meet the
norms of grief acknowledged by his or her culture.
 Ambiguous Loss. Sometimes people experience losses that
are marked by uncertainty. Ambiguous loss, a type of
disenfranchised grief, occurs when the lost person is
physically present but not psychologically available, as in
cases of severe dementia or severe brain injury.
 complicated grief a person has a prolonged or
significantly difficult time moving forward after a loss. He
or she experiences a chronic and disruptive yearning for
the deceased; has trouble accepting the death and trusting
others; and/or feels excessively bitter, emotionally numb,
or anxious about the future.
10SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Exaggerated Grief: A person with an exaggerated
grief response often exhibits self-destructive or
maladaptive behavior, obsessions, or psychiatric
disorders. Suicide is a risk for these people.
 Delayed Grief: A person’s grief response is unusually
delayed or postponed, often because the loss is so
overwhelming that the person must avoid the full
realization of the loss. A delayed grief response is
frequently triggered by a second loss, sometimes
seemingly not as significant as the first loss.
 Masked Grief: Sometimes a grieving person behaves
in ways that interfere with normal functioning but is
unaware that he is in grief
11SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Whether the death is expected or
unexpected.
 The personality of the bereaved.
 The religious beliefs 
 The age of the bereaved.
12SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
According to Kübler-Ross’s there are five
stages of normal grief that were first
proposed by Elisabeth Kübler-Ross
 Denial
 Anger
 Bargaining
 Depression
 Acceptance
Denial : It is a normal reaction to rationalize
overwhelming emotions. It is a defense
mechanism that buffers the immediate
shock. It is a conscious or unconscious refusal
to accept facts, information, reality, etc.
13SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Anger: Anger can manifest in different ways.
People dealing with emotional upset can be
angry with themselves, and/or with others,
especially those close to them.
 Bargaining: The third stage involves the
hope that the individual can somehow undo
or avoid a cause of grief.  The normal
reaction to feelings of helplessness and
vulnerability is often a need to regain
control. This is a weaker line of defense to
protect us from the painful reality.
14SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Depression: During the fourth stage, the
grieving person begins to understand the
certainty of death. It's natural to feel
sadness and regret, fear, uncertainty, etc. It
shows that the person has at least begun to
accept the reality.
 Acceptance: In this last stage, individuals
begin to come to terms with their mortality
or inevitable future, or that of a loved one,
or other tragic event. This stage varies
according to the person's situation. This
phase is marked by withdrawal and calm.
This is not a period of happiness and must be
distinguished from depression.
15SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Feelings
• Sorrow
• Fear
• Anger
• Guilt or self-reproach
• Anxiety
• Loneliness
• Fatigue
• Helplessness/hopelessness
• Yearning
 Cognitions (Thought Patterns)
• Disbelief
• Confusion or memory problems
• Problems with decision making
• Inability to concentrate
• Feeling the presence of the deceased
16SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Physical Sensations
• Headaches
• Nausea and appetite disturbances
• Tightness in the chest and throat
• Insomnia
• Oversensitivity to noise
• Sense of depersonalization (“Nothing seems real”)
• Feeling short of breath, choking sensation
• Muscle weakness
• Lack of energy
• Dry mouth
 Behaviors
• Crying and frequent sighing
• Distancing from people
• Absentmindedness
• Dreams of the deceased
• Keeping the deceased’s room intact
• Loss of interest in regular life events
• Wearing objects that belonged to the deceased
17SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Frequent, intense, or prolonged exposure to
grief and loss places nurses at risk for
developing compassion fatigue. Compassion
fatigue, described as physical, emotional,
and spiritual exhaustion resulting from
seeing patients suffer, leads to a decreased
capacity to show compassion or empathize
with suffering people
18SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Palliative Care: in Acute and Restorative Settings. Interventions
for people who face chronic life-threatening illnesses or who are at
the end of life need palliative care. Palliative care focuses on the
prevention, relief, reduction, or soothing of symptoms of disease
or disorders throughout the entire course of an illness, including
care of the dying and bereavement follow-up for the family. The
primary goal of palliative care is to help patients and families
achieve the best possible quality of life. Although it is especially
important in advanced or chronic illness, it is appropriate for patients
of any age, with any diagnosis, at any time, or in any setting.
 Hospice Care. Hospice care is a philosophy and a model for the
care of terminally ill patients and their families. Hospice is not a
place but rather a patient- and family-centered approach to care.
It gives priority to managing a patient’s pain and other symptoms;
comfort; quality of life; and attention to physical, psychological,
social, and spiritual needs and resources. Patients accepted into a
hospice program usually have less than 6 to 12 months to live.
Hospice services are available in home, hospital, extended care, or
nursing home settings.
19SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Clinical death is the medical term for cessation
of blood circulation and breathing, the two
necessary criteria to sustain life.[1]
 It occurs when
the heartstops beating in a regular rhythm, a
condition calledcardiac arrest.
 At the onset of clinical death, consciousness is
lost within several seconds.
 Measurable brain activity stops within 20 to 40
seconds.
  Absence of pulse, heart beat and respirations
 Pupil becoming fixed and not reacting to light
 Absence of all refluxes.
 Rigor mortis: Stiffing of the body after death.
The arms & legs cannot be bent or straightened
while rigor mortis is present unless the tendons
are torn
20SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Sign of approaching death
 Respiration becomes irregular, rapid and
shallow breath or very slow 
 Circulatory changes cause alterations in the
temperature, pulse and respirations. Radial
pulse gradually fails
 Usually the pulsations are seen even after
the patient has stopped breathing
 Hiccoughs, Nausea, Vomiting, abdominal
distensions are seen. the patient feels the
inability to swallow.
 “DEATH RATTLE”-A rattling sound heard in
throat caused by secretions that the patient
cannot cough longer. 
21SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 The skin may become pale, cool and sweats
lot (cold sweats).Ears and nose are cold to
touch.
 -Reflexes and pain are gradually lost. Patient
may be restless due to lack of oxygen
 CHANGES IN SIGHT, SPEECH, AND HEARING.-
Sight gradually fail. The pupil’s fails to react
to light. Eyes are sunken and half closed.
22SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Psychological support: The psychological need:
 Relief from loneliness, fear and depression.
 Maintenance of security, self confidence and dignity.
 Maintenance of hope. 
 Meeting the spiritual needs according to his religious
customs.
 SYMPTOMATIC MANAGEMENT 
 Problem associated with breathing:
 The dying person who is restless, apprehensive
and short of breath may be given-
 Oxygen inhalation to remove his discomfort. 
 Elevation of the patient’s head and shoulders may
make breathing easier.
 Keep the room well ventilated and keep crowed
away.
 Periodic suctioning is necessary.
23SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Problem associated with eating and
drinking: Anorexia, nausea, and vomiting
are commonly seen in dying patient person
 The patient is unable to swallow even the
sips of water poured in the mouth.
 Most of them may require I.V fluids. If they
can tolerate the oral fluids, sips of water is
given with teaspoon.
 That will help the patient to keep the mouth
moist. 
 Give frequent oral hygiene.
 Apply emollients to the dry lips.
 The denture are removed and kept safely.
24SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Problem associated with elimination:
Constipation, retention of urine and
incontinence of urine and stool are some of
problem faced by the patient. 
 Catheterization has to be done
 Through skin and Perineal care is to be
given, to keep the patient clean and to
prevent skin breakdown.
 Problem associated with immobility:
 Frequent skin care should be given with
particular attention to the pressure point.
 Patient should be comfortably placed and
their position frequently changed in the bed.
25SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Problem associated with sense organ: 
 Since the patient loses sight, before given
any care to the patient, the nurse should
touch the patient and say what she is going
to do.
 Since the hearing is retained longer, speak
only what is appropriate.
 Avoid whispering any think in patient room.
 Speak distinctly so that patient may
understand what is done for him.
 Since the eyes are opened, protect the eyes
from corneal ulceration with protective
ointment.
26SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Problem associated with rest and sleep: 
 Patient may distressing symptoms in these
patients.
 Patient should not be disturbed while
sleeping. 
 The visitors should be instructed not to
disturbed the patient during his resting. 
 Maintain calm and quit environment. 
 Problem associated with cleanliness and
grooming:
 Cleanliness and appearance are important
until the end.
 Cleanliness of the skin, hair, mouth, and
cloth has to be maintained.
27SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
Cassen (1991) suggests seven essential features in the
management of the dying patient:
 Concern: Empathy, compassion, and involvement are
essential.
 Competence: Skill and knowledge can be as reassuring as
warmth and concern.
 Communication: Allow patients to speak their minds and
get to know them.
 Children: If children want to visit the dying, it is generally
advisable; they bring consolation to dying patients.
 Cohesion: Family cohesion reassures both the patient and
family.
 Cheerfulness: A gentle, appropriate sense of humor can
be palliative; a somber or anxious demeanor should be
avoided.
 Consistency: Continuing, persistent attention is highly
valued by patients who often fear that they are a burden
and will be abandoned; consistent physician involvement
mitigates these fears.
28SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 The person who deals with the dying patient must commit
(Schwartz and Karasu, 1997) to:
 Deal with mental anguish and fear of death,
 Try to respond appropriately to patient’s needs by listening
carefully to the complaints and
 Be fully prepared to accept their own counter transferences, as
doubts, guilt and damage to their narcissism are encountered.
 Management of the dying patient often elicits anxiety in nursing
staff.  Education and role playing can improve perspective
taking and empathetic skills, respect each other’s point of view
as well as appreciate the situation of patient and their families.
 Developing a sense of control and efficacy.
 Encouraging peer groups for families coping with bereavement.
 Developing increased resourcefulness in dealing with death
related situations.
 Recognizing that a moderate level of death anxiety is
acceptable.
 Improving our understanding of pain and suffering will also
improve communication and effective interactions.
29SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  After the physician has pronounced death
legally documented the death in the medical
record, care of the body is usually performed
by the nurse. 
 An autopsy consent may be requested &
obtained if required.
  If the patient is to be an organ donor
arrangements will be made immediately.
  The family often wishes to view the body
before final preparations are made, they
may be allowed. 
 If the patient had any valuables, they are
handed over to the relatives
30SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  Make body look as natural & beautiful as
possible.
 Perform his last duty tenderly.
 Protect other patients from unpleasant
sights and sounds which could frighten them
  ARTICLES REQUIRED 
 Articles for bath
 Extra bandages and cotton swabs
 Perineal pads Sheets
 Restraints for jaw, hands and legs.
 Pair of gloves Thumb forceps
 Patients own set of clothes.
31SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Rigor mortis is the stiffening of the body that occurs about 2
to 4 hours after death. Rigor mortis starts in the involuntary
muscles (heart, bladder, and so on), then progresses to the
head, neck, and trunk, and finally reaches the extremities.
 Algor mortis is the gradual decrease of the body’s
temperature after death. When blood circulation terminates
and the hypothalamus ceases to function, body temperature
falls about 1°C (1.8°F) per hour until it reaches room
temperature. Simultaneously, the skin loses its elasticity and
can easily be broken when removing dressings and adhesive
tape.
After blood circulation has ceased, the red blood cells break
down, releasing hemoglobin, which discolors the surrounding
tissues. This discoloration, referred to as livor mortis, appears
in the lowermost or dependent areas of the body. Tissues after
death become soft and eventually liquefied by bacterial
fermentation. The hotter the temperature, the more rapid the
change. Therefore, bodies are often stored in cool places to
delay this process.
32SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Rigor Mortis: body becomes stiff within 4 hours
after death as a result of decreased ATP
production. ATP keeps muscles soft and supple.
 Algor Mortis: Temperature decreases by a few
degrees each hour. The skin loses its elasticity
and will tear easily.
 Livor Mortis: Dependant parts of body become
discolored. The patient will likely be lying on
their back, their backside being the 'dependant'
body part. The discoloration is a result of blood
pooling, as the hemoglobin breaks down.
33SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
34SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
Remove all tubes and
other devices from
the patients body.
The patient looks
more peaceful
Reduce the
anxiety of
the relatives
Comfort
consult close
relatives before
preparing the body
for removal from the
ward to the mortuary
where the relatives
will receive the body
To meet customs
and wish of the
relatives in caring
for the body
Reduce the
tension of
relatives
If the relatives
require, the nurse
should help them to
sponge the patient as
necessary. brush and
comb hair. 
To reduce odor
and for aesthetic
sense for normal
appearance
Appearance
of the body
after death
should be
presentable
Replace soiled
dressing with cleaned
ones
To avoid odor For better
appearance
comfort
35SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
Apply perineal pads
and plug the rectum &
vagina (in females)
with cotton balls.).
To prevent soiling
of bed and the
patient cloth
After death
there may
be leaking
of
secretions
form
orifices
Safety
Provide clean
cloths(own
For better
appearance
Take care of valuables
and personal
belongings by handing
over to members of
family.
For legal
considerations
Allow members of
family to see the
patient & remain in
the room & remember
that the body is still
dear to someone.
Provide emotional
support and helps
grieving process by
helping family to
accept death
It allows
them to
ventilate
their grief
and feelings
36SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
37SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Advance Directive is a Scottish term, but in other parts of the
UK these documents are also called Advance Decisions.
 An advance directive tells the health care team what kind of
care the patient would like to have if he is unable to make
medical decisions (e.g., if in coma)
 A good advance directive describes the kind of treatment the
patient would want depending on the sickness
 An Advance Directive allows you to make a refusal of treatment
in advance of a time when you can’t communicate your wishes,
or don’t have the capacity to make a decision. It only comes
into effect if either of these situations occur.
 You can use an Advance Directive to refuse any treatment,
including life-sustaining treatment such as resuscitation,
artificial nutrition and hydration, or breathing machines.  An
Advance Directive enables healthcare professionals to know
what your wishes are even if you cannot tell them
yourself, e.g. if you had severe dementia or were in a coma.
 If you change your mind you can change your Advance Directive
to reflect this. If you have mental capacity and can
communicate your wishes then your Advance Directive will not
apply.
38SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 An Advance Health Care Directive (AHCD) is a generic term for a document
that instructs others about your medical care should you be unable to make
decisions on your own. It only becomes effective under the circumstances
delineated in the document, and allows you to do either or both of the
following:
 Appoint a health care agent. The AHCD allows you to appoint a health
care agent (also known as “Durable Power of Attorney for Health Care,”
“Health Care Proxy,” or “attorney-in-fact”), who will have the legal
authority to make health care decisions for you if you are no longer able to
speak for yourself. This is typically a spouse, but can be another family
member, close friend, or anyone else you feel will see that your wishes and
expectations are met. The individual named will have authority to make
decisions regarding artificial nutrition and hydration and any other
measures that prolong life—or not.
 Prepare instructions for health care. The AHCD allows you to make
specific written instructions for your future health care in the event of any
situation in which you can no longer speak for yourself. Otherwise known as
a “Living Will,” it outlines your wishes about life-sustaining medical
treatment if you are terminally ill or permanently unconscious, for
example.
 The Advance Health Care Directive provides a clear statement of wishes
about your choice to prolong your life or to withhold or withdraw
treatment. You can also choose to request relief from pain even if doing so
hastens death. A standard advance directive form provides room to state
additional wishes and directions and allows you to leave instructions about
organ donations.
39SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 While most people would prefer to die in their own homes, the
norm is still for terminally-ill patients to die in the hospital,
often receiving ineffective treatments that they may not really
want. Their friends and family members can become embroiled
in bitter arguments about the best way to care for the patient
and consequently miss sharing the final stage of life with their
loved one. Also, the opinions and wishes of the dying person
are often lost in all the chaos.
 It’s almost impossible to know what a dying person’s wishes
truly are unless the issues have been discussed ahead of time.
Planning ahead with an Advance Health Care Directive can give
your principal caregiver, family members, and other loved ones
peace of mind when it comes to making decisions about your
future health care. It lets everyone know what is important to
you, and what is not. Talking about death with those close to
us is not about being ghoulish or giving up on life, but a way to
ensure greater quality of life, even when faced with a life-
limiting illness or tragic accident. When your loved ones are
clear about your preferences for treatment, they’re free to
devote their energy to care and compassion
40SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Euthanasia literally means “good death”. It is
basically to bring about the death of a terminally
ill patient or a disabled. Generally, the word
euthanasia is defined as the act or practice of
painlessly putting to death or withdrawing
treatment from a person suffering an incurable
disease. [3] From the definition, one can say that
euthanasia is an unethical act as much as it is a
great sin for those who strongly believe in God.
Euthanasia is intentionally killing another person
to relieve his or her suffering. [4] It is not the
withdrawal or withholding of treatment that
results in death, or necessary pain and symptom-
relief treatment that might shorten life, if that is
the only effective treatment. It is the intentional
killing by act or omission of a dependent human
being for his or her alleged benefits.
41SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
Euthanasia can be classified in different ways, including:
 Active euthanasia (action)– where a person deliberately intervenes to
end someone’s life – for example, by injecting them with a large dose
of sedatives  
 Passive euthanasia (ommission) – where a person causes death
by withholding or withdrawing treatment that is necessary to
maintain life, such as withholding antibiotics from someone
withpneumonia  
 Voluntary euthanasia – where a person makes a conscious decision to
die and asks for help to do this
 Non-voluntary euthanasia – where a person is unable to give
their consent (for example, because they are in a coma or are
severely brain damaged) and another person takes the decision on
their behalf, often because the ill person previously expressed a wish
for their life to be ended in such circumstances
 Involuntary euthanasia – where a person is killed against their
expressed wishes
42SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 A will is a document by which a person regulates
the rights of others over his property or family
after death.
 A statement by a person who is conscious and kno
ws that death is imminent concerning what he 
or
she believes to be the cause or circumstances of 
death that can be introduced into evidence 
during a trial in certain cases
  A person who makes a dying declaration must,
however, be competent at the time he or she ma
kes a statement, otherwise, it is inadmissible.
43SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 ORGAN DONATION
 A person 18 years or older and of sound mind can donate all or
any part of their own body for the following purposes:
 For medical or dental education
 Research
 Advancement of medical or dental science
 Therapy
 Transplantation
 The request for organ donation should be done   by patent in the
presence of a physician or a nurse
 Organs removed from the body following the death cannot be
sold.
 All organ donation are voluntary and there should not be any
compulsion for the patient / family members
 Organs usually donated :- kidney, heart, lungs, liver, bone,
cornea 
 Organ donation should take place with in 2-6hrs after the death.
44SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Organ transplantation is truly one of the miracles of modern
medicine, saving the lives of many patients and improving
the quality of life for many more.
 Given the ever-increasing gap between the number of organs
needed and the supply, nurses have an ethical obligation to
help ensure that the desires of people who want to donate
organs are respected.
 Nurses have to ensure that the consent process is informed
and voluntary.
 Information to the patient should consist of a balanced
discussion of the available options and counseling to help
patients or their families reach the choice that is best for
them, including the provision of information about the
urgent need for organs and the consolation that many
families derive from knowing that their loved one was able
to help others.
45SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 ·          Abuse of children, elderly, and spouse
 ·          Drug-related injury
 ·          Unknown cause of death
 ·          Suicide
 ·          Violent death
 ·          Poisoning
 ·          Accidents
 ·          Suspicion of criminal action
 o   Obtain death reports
 o   Do investigation -the natural death and infant/child death
 o   Conduct post mortem , sexual assault/child abuse examinations
 o   Collaborate with organ/tissue procurement agencies
 o   Provide link between pathologists and lay investigative staff
 o   Normally, only uniformed officers attend the natural death scene
 o   Understand subtle signs of abuse and neglect
 o   Collaborate with pathologist to determine the appropriate
medical records
 o   Review medical records once received
 o   Obtain follow-up information
46SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Inform the nurse in charge and inform the
medical staff of the patient’s death
 In the case of an expected adult death, a
registered nurse deemed competent by the
Trust may confirm death
 Confirmation of death must be recorded in
the patient’s healthcare record
 An unexpected death must be confirmed by
the attending medical officer and if
confirmed the service manager should be
contacted or duty manager out of hours.
Incident form to be completed
47SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Inform the patient’s relatives/next of kin of
the patient’s death. Ensure that this is
handled in a sensitive and appropriate
manner with as much privacy as possible.
 Ask if the relatives wish to see the chaplain
or an appropriate religious leader or other
appropriate person to the person’s faith or
ethnic origins that need to be attended to
immediately
48SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 If relatives are in the hospital ask if they
wish to assist with the last offices and/or if
they have any particular wishes regarding
the procedure
 If the relatives are not in the hospital ask if
they wish to view the body on the ward or at
a later date
 Assemble required equipment
 Wash hands and put on disposable gloves and
apron
49SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Any injuries sustained whilst carrying out the
procedures on the deceased must be reported
through the Trust risk system and follow the
Trust Sharps and Inoculation Management
Procedure
 Lay the patient on their back with one pillow in
place (adhere to the Moving and Handling Policy)
 Straighten the patient’s limbs (if possible) and
place their arms by their sides
 Gently close the patient’s eyes if open by
applying light pressure for 30 seconds. If corneal
or eye donation to take place, close the eye with
gauze moistened with normal saline
50SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Do not apply tape
 If syringe driver in situ, disconnect and
remove battery In cases where there is no
referral to the coroner required infusions can
be discontinued and infusion lines, cannulae,
drainage and other tubes can be removed If
referred to the coroner endo-tracheal tubes,
catheters and infusion lines should remain in
situ. (see section 3) Discard all sharps into a
sharps bin as per Trust Sharps and
Inoculation Management Procedure
51SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Place a receiver between the patient’s legs
and drain the bladder by pressing on the
lower abdomen. Pads and pants can be used
to absorb any leakage
 Exuding wounds should be covered with
absorbent gauze and secured with an
occlusive dressing
 Wash the patient if necessary, unless
requested not to do so for religious/cultural
reasons or patient has died in suspicious
circumstances
52SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 It may be important to the family and carers
to assist with washing, thereby continuing
the care given to the patient in the period
before death
 Clean the patient’s teeth and gums using a
moistened, soft small headed nylon
toothbrush and or suction to remove any
debris and secretions Clean any dentures and
replace them in the mouth – a small pillow or
rolled up towel placed under the patient’s
chin may help to keep the jaw closed and
teeth in situ
53SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Tidy the hair as soon as possible after death and
arrange into the preferred style (if known)
 Patients should not be shaved; usually a funeral
director will do this. Some faiths prohibit shaving
 Remove all jewellery, in the presence of another
nurse, unless requested by the family to do
otherwise. Any jewellery removed must be
documented on a property form and placed in
the hospital safe until collected by the family.
Wedding rings may be left in situ and taped in
place. Any jewellery remaining on the body
should be documented on the identification card
accompanying the patient to the mortuary or
undertakers
54SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Record all property in the patient property book and pack
in a labelled property bag, keeping secure until collected
by the family. Pack personal property showing
consideration for the feelings of those receiving it. Discuss
the issues of soiled clothes sensitively with the family and
ask whether they wish them to be disposed of or returned
 Unless a specific request has been made by the family for
alternative clothes the patient should be dressed in a
hospital gown
 If relatives are present at the time of death, or attend
the hospital shortly after, staff should ensure that they are
given the Trust Bereavement information copies of which
are available on the ward.
 Relatives should be told to contact the relevant Trust
officer who supports bereavement or the patient’s GP to
collect the death certificate
55SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Label one wrist and one ankle with an
identification band containing the following
information:  Full name  NHS Number 
Date of Birth
 Complete patient identification cards and
notification of death book clearly in capitals
 If the patient has an implant device such as a
pacemaker or an infectious disease is known
or suspected – record this fact on both
patient identification cards
56SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Tape one identification card to clothing or
hospital gown Wrap the body in a sheet, ensuring
that face to feet are covered and that all limbs
are held securely in position
 If the body may be infectious or there is a risk of
leakage of body fluids place the body in a body
bag and put the second identification card into
the pocket of the body bag
 If the deceased person has a known infectious
disease Category 3 & 4 they must be placed in a
heavy duty body bag and you must inform anyone
else who comes in contact with this patient e.g.
funeral directors, porters.
57SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Remove gloves and aprons. Dispose of equipment
according to local policy and wash hands
 If mortuary on site request porters to remove
body from the ward to the mortuary
 If no on site mortuary, contact local funeral
directors or the funeral directors according to
the relatives wishes Screen off the area where
removal of the body will occur
 Screen off the area where removal of the body
will occur
 Record all the details and actions in the nursing
records Any property retained on the ward out of
hours must be stored in a secure area and any
valuables stored in the ward or hospital safe
58SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  —it is also known as a post-mortem
examination, 
 It is a highly specialized surgical procedure that
consists of a thorough examination of a corpse to
determine the cause and manner of death and to
evaluate any disease or injury that may be
present. It is usually performed by a specialized
medical doctor called a pathologist.
 Autopsies are performed for either legal or
medical purposes.

59SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
Autopsies are divided into 2 categories:
 Medical, authorized by the decedent,
decedent's family or healthcare surrogate
 forensic, authorized by statute.
60SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 AUTOPSY
 An autopsy or postmortem examination is an examination of
the  body after death.
 It is performed in certain cases such as:
 o   Committed suicide
 o   Unknown cause of death
 o   Unknown dead bodies
 o   Homicide (The killing of one human being by another )
 ·         The organs and tissues of the body are examined to
establish the exact cause of death , to learn more about a
disease
 ·         A consent should be obtain from the immediate relative
:surviving spouse, adult children, parents, siblings.
 ·         After an autopsy , hospitals cannot retain any tissues/
organs without the permission of the person who signed the
consent form

61SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 It is the art and science of preserving human remains by
treating them (in its modern form with chemicals) to
forestall decomposition.
 The intention is to keep them suitable for public display at a
funeral, for religious reasons, or for medical and scientific
purposes such as their use as anatomical specimens.[1]
 
 The three goals of embalming
are sanitization, presentation and preservation (or
restoration).
 Embalming has a very long and cross cultural history, with
many cultures giving the embalming processes a greater
religious meaning.
 Embalming prevents the process through
injection of chemicals into the body to destroy the bacteria
 It is the process of preserving dead body from decay
 Injection of chemicals into the body to destroy the bacteria ;
thereby prevents rapid decomposition of tissues.
 Embalming fluid contains a mixture of formaldehyde,
methanol, ethanol and other solvents
62SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
 Make sure the body is face up
 Remove any clothing that the person is
wearing. 
 Disinfect the mouth, eyes, nose, and other
orifices
 Shave the body. 
 Break the rigor mortis by massaging the
body.
 Setting the Features
1. Close the eyes.
2. Close the mouth and set it naturally
3. Moisturize the features. A small amount of
creme should be used on the eyelids and lips
4. Casketing the Body
63SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
Process of Embalming
 Embalming fluid is injected into the arteries of the deceased during
embalming. Many other body fluids may be drained or aspirated and
replaced with the fluid as well. The process of embalming is designed
to slow decomposition of the body.
 The actual embalming process usually involves 4 parts:
 Arterial embalming: which involves the injection of embalming
chemicals into the blood vessels, usually via the right common carotid
artery. Blood is drained from the right jugular vein.
 Cavity embalming: The suction of the internal fluids of the corpse
and the injection of embalming chemicals into the body cavities,
using an aspirator and trocar.
 Hypodermic embalming: The injection of embalming chemicals
under the skin as needed.
 Surface embalming: Which supplements the other methods especially
for visible, injured body parts.
64SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA

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Care of terminally ill patients

  • 1. UNIT-XV: Care of Terminally ill patient SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA 1 Mrs. P. Vadivukkarasi Ramanadin, Professor, Dept. Of OBG (N), Shri Vinoba Bhave College of Nursing, Shri Vinoba Bhave Civil Hospital, Silvassa, DNH.
  • 2. • Concepts of Loss, Grief, grieving process • Signs of clinical death • Care of dying patient; • special considerations • -Advance directives: • euthanasia will dying declaration , organ donation etc • Medico-legal issues • Care of dead body: • Equipment, procedure and care of unit • Autopsy o Embalming 2SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 3.  Loss is an actual or potential situation in which something that is valued is changed or no longer available.  People can experience the loss of body image, a significant other, a sense of well- being, a job, personal possessions, or beliefs. Illness and hospitalization often produce losses.  Loss is an inevitable part of life 3SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 4.  Necessary loss, which is a part of life. They learn to expect that most necessary losses are eventually replaced by something different or better.  A maturational loss is a form of necessary loss and includes all normally expected life changes across the life span. A mother feels loss when her child leaves home for the first day of school.  Unwanted, or unexpected loss. Some losses seem unnecessary and are not part of expected.  Situational loss. For example, a person in an automobile accident sustains an injury with physical changes that make it impossible to return to work or school, leading to loss of function, income, life goals, and self-esteem. 4SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 5.  An actual loss occurs when a person can no longer feel, hear, see, or know a person or object. Examples include the loss of a body part, death of a family member, or loss of a job. Lost valued objects include those that wear out or are misplaced, stolen, or ruined by disaster. A child grieves the loss of a favorite toy washed away in a flood.  A perceived loss is uniquely defined by the person experiencing the loss and is less obvious to other people. For example, some people perceive rejection by a friend to be a loss, which creates a loss of confidence or changes their status in a group. How an individual interprets the meaning of the perceived loss affects the intensity of the grief response. 5SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 6.  Sudden versus Predictable Loss  Sudden or shocking losses due to events like crimes, accidents, or suicide can be traumatic. There is no way to prepare. They can challenge your sense of security and confidence in the predictability of life. You may experience symptoms such as sleep disturbance, nightmares, distressing thoughts, depressed mood, social isolation, or severe anxiety.  Predictable losses, like those due to terminal illness, sometimes allow more time to prepare for the loss. However, they create two layers of grief: the grief related to the anticipation of the loss and the grief related to the loss itself 6SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 7.  Grief is a natural part of the healing process. Grief is a strong, sometimes overwhelming emotion for people.  The reasons for grief are many, such as the loss of a loved one, the loss of health, or the letting go of a long-held dream. Dealing with a significant loss can be one of the most difficult times in a person's life.  Individual experiences of grief vary and are influenced by the nature of the loss.  Pattern of physical and emotional responses to bereavement may vary 7SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 8.  Grief is the emotional response to a loss, manifested in ways unique to an individual and based on personal experiences, cultural expectations, and spiritual beliefs (Walter and McCoyd, 2009)  Mourning: Coping with grief involves a period of mourning, the outward, social expressions of grief and the behavior associated with loss. Most mourning rituals are culturally influenced, learned behaviors. A reaction activated by a person to assist in overcoming a great personal loss It is the behavioral process through which grief is eventually resolved or altered; it is often influenced by culture, spiritual beliefs, and  Bereavement A common depressed reaction to the death of a loved one Encompasses both grief and mourning and includes the emotional responses and outward behaviors of a person experiencing loss (AACN, 2008).  It is the subjective response experienced by the surviving loved ones. 8SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 9.  Normal Grief. Normal (uncomplicated) grief is a common, universal reaction characterized by complex emotional, cognitive, social, physical, behavioral, and spiritual responses to loss and death.  Anticipatory Grief. A person experiences anticipatory grief, The unconscious process of disengaging or “letting go” before the actual loss or death occurs, especially in situations of prolonged or predicted loss (Simon, 2008). When grief extends over a long period of time, people absorb loss gradually and begin to prepare for its inevitability. They experience intense responses to grief (e.g., shock, denial, and tearfulness) before the actual death occurs and often feel relief when it finally happens. 9SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 10.  Disenfranchised Grief. People experience disenfranchised grief, also Known as marginal or unsupported grief, when their relationship to the deceased person is not socially sanctioned, cannot be openly shared, or seems of lesser significance. The person’s loss and grief do not meet the norms of grief acknowledged by his or her culture.  Ambiguous Loss. Sometimes people experience losses that are marked by uncertainty. Ambiguous loss, a type of disenfranchised grief, occurs when the lost person is physically present but not psychologically available, as in cases of severe dementia or severe brain injury.  complicated grief a person has a prolonged or significantly difficult time moving forward after a loss. He or she experiences a chronic and disruptive yearning for the deceased; has trouble accepting the death and trusting others; and/or feels excessively bitter, emotionally numb, or anxious about the future. 10SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 11.  Exaggerated Grief: A person with an exaggerated grief response often exhibits self-destructive or maladaptive behavior, obsessions, or psychiatric disorders. Suicide is a risk for these people.  Delayed Grief: A person’s grief response is unusually delayed or postponed, often because the loss is so overwhelming that the person must avoid the full realization of the loss. A delayed grief response is frequently triggered by a second loss, sometimes seemingly not as significant as the first loss.  Masked Grief: Sometimes a grieving person behaves in ways that interfere with normal functioning but is unaware that he is in grief 11SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 12.  Whether the death is expected or unexpected.  The personality of the bereaved.  The religious beliefs   The age of the bereaved. 12SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 13. According to Kübler-Ross’s there are five stages of normal grief that were first proposed by Elisabeth Kübler-Ross  Denial  Anger  Bargaining  Depression  Acceptance Denial : It is a normal reaction to rationalize overwhelming emotions. It is a defense mechanism that buffers the immediate shock. It is a conscious or unconscious refusal to accept facts, information, reality, etc. 13SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 14.  Anger: Anger can manifest in different ways. People dealing with emotional upset can be angry with themselves, and/or with others, especially those close to them.  Bargaining: The third stage involves the hope that the individual can somehow undo or avoid a cause of grief.  The normal reaction to feelings of helplessness and vulnerability is often a need to regain control. This is a weaker line of defense to protect us from the painful reality. 14SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 15.  Depression: During the fourth stage, the grieving person begins to understand the certainty of death. It's natural to feel sadness and regret, fear, uncertainty, etc. It shows that the person has at least begun to accept the reality.  Acceptance: In this last stage, individuals begin to come to terms with their mortality or inevitable future, or that of a loved one, or other tragic event. This stage varies according to the person's situation. This phase is marked by withdrawal and calm. This is not a period of happiness and must be distinguished from depression. 15SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 16.  Feelings • Sorrow • Fear • Anger • Guilt or self-reproach • Anxiety • Loneliness • Fatigue • Helplessness/hopelessness • Yearning  Cognitions (Thought Patterns) • Disbelief • Confusion or memory problems • Problems with decision making • Inability to concentrate • Feeling the presence of the deceased 16SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 17.  Physical Sensations • Headaches • Nausea and appetite disturbances • Tightness in the chest and throat • Insomnia • Oversensitivity to noise • Sense of depersonalization (“Nothing seems real”) • Feeling short of breath, choking sensation • Muscle weakness • Lack of energy • Dry mouth  Behaviors • Crying and frequent sighing • Distancing from people • Absentmindedness • Dreams of the deceased • Keeping the deceased’s room intact • Loss of interest in regular life events • Wearing objects that belonged to the deceased 17SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 18.  Frequent, intense, or prolonged exposure to grief and loss places nurses at risk for developing compassion fatigue. Compassion fatigue, described as physical, emotional, and spiritual exhaustion resulting from seeing patients suffer, leads to a decreased capacity to show compassion or empathize with suffering people 18SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 19.  Palliative Care: in Acute and Restorative Settings. Interventions for people who face chronic life-threatening illnesses or who are at the end of life need palliative care. Palliative care focuses on the prevention, relief, reduction, or soothing of symptoms of disease or disorders throughout the entire course of an illness, including care of the dying and bereavement follow-up for the family. The primary goal of palliative care is to help patients and families achieve the best possible quality of life. Although it is especially important in advanced or chronic illness, it is appropriate for patients of any age, with any diagnosis, at any time, or in any setting.  Hospice Care. Hospice care is a philosophy and a model for the care of terminally ill patients and their families. Hospice is not a place but rather a patient- and family-centered approach to care. It gives priority to managing a patient’s pain and other symptoms; comfort; quality of life; and attention to physical, psychological, social, and spiritual needs and resources. Patients accepted into a hospice program usually have less than 6 to 12 months to live. Hospice services are available in home, hospital, extended care, or nursing home settings. 19SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 20.  Clinical death is the medical term for cessation of blood circulation and breathing, the two necessary criteria to sustain life.[1]  It occurs when the heartstops beating in a regular rhythm, a condition calledcardiac arrest.  At the onset of clinical death, consciousness is lost within several seconds.  Measurable brain activity stops within 20 to 40 seconds.   Absence of pulse, heart beat and respirations  Pupil becoming fixed and not reacting to light  Absence of all refluxes.  Rigor mortis: Stiffing of the body after death. The arms & legs cannot be bent or straightened while rigor mortis is present unless the tendons are torn 20SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 21.  Sign of approaching death  Respiration becomes irregular, rapid and shallow breath or very slow   Circulatory changes cause alterations in the temperature, pulse and respirations. Radial pulse gradually fails  Usually the pulsations are seen even after the patient has stopped breathing  Hiccoughs, Nausea, Vomiting, abdominal distensions are seen. the patient feels the inability to swallow.  “DEATH RATTLE”-A rattling sound heard in throat caused by secretions that the patient cannot cough longer.  21SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 22.  The skin may become pale, cool and sweats lot (cold sweats).Ears and nose are cold to touch.  -Reflexes and pain are gradually lost. Patient may be restless due to lack of oxygen  CHANGES IN SIGHT, SPEECH, AND HEARING.- Sight gradually fail. The pupil’s fails to react to light. Eyes are sunken and half closed. 22SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 23.  Psychological support: The psychological need:  Relief from loneliness, fear and depression.  Maintenance of security, self confidence and dignity.  Maintenance of hope.   Meeting the spiritual needs according to his religious customs.  SYMPTOMATIC MANAGEMENT   Problem associated with breathing:  The dying person who is restless, apprehensive and short of breath may be given-  Oxygen inhalation to remove his discomfort.   Elevation of the patient’s head and shoulders may make breathing easier.  Keep the room well ventilated and keep crowed away.  Periodic suctioning is necessary. 23SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 24.  Problem associated with eating and drinking: Anorexia, nausea, and vomiting are commonly seen in dying patient person  The patient is unable to swallow even the sips of water poured in the mouth.  Most of them may require I.V fluids. If they can tolerate the oral fluids, sips of water is given with teaspoon.  That will help the patient to keep the mouth moist.   Give frequent oral hygiene.  Apply emollients to the dry lips.  The denture are removed and kept safely. 24SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 25.  Problem associated with elimination: Constipation, retention of urine and incontinence of urine and stool are some of problem faced by the patient.   Catheterization has to be done  Through skin and Perineal care is to be given, to keep the patient clean and to prevent skin breakdown.  Problem associated with immobility:  Frequent skin care should be given with particular attention to the pressure point.  Patient should be comfortably placed and their position frequently changed in the bed. 25SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 26.  Problem associated with sense organ:   Since the patient loses sight, before given any care to the patient, the nurse should touch the patient and say what she is going to do.  Since the hearing is retained longer, speak only what is appropriate.  Avoid whispering any think in patient room.  Speak distinctly so that patient may understand what is done for him.  Since the eyes are opened, protect the eyes from corneal ulceration with protective ointment. 26SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 27.  Problem associated with rest and sleep:   Patient may distressing symptoms in these patients.  Patient should not be disturbed while sleeping.   The visitors should be instructed not to disturbed the patient during his resting.   Maintain calm and quit environment.   Problem associated with cleanliness and grooming:  Cleanliness and appearance are important until the end.  Cleanliness of the skin, hair, mouth, and cloth has to be maintained. 27SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 28. Cassen (1991) suggests seven essential features in the management of the dying patient:  Concern: Empathy, compassion, and involvement are essential.  Competence: Skill and knowledge can be as reassuring as warmth and concern.  Communication: Allow patients to speak their minds and get to know them.  Children: If children want to visit the dying, it is generally advisable; they bring consolation to dying patients.  Cohesion: Family cohesion reassures both the patient and family.  Cheerfulness: A gentle, appropriate sense of humor can be palliative; a somber or anxious demeanor should be avoided.  Consistency: Continuing, persistent attention is highly valued by patients who often fear that they are a burden and will be abandoned; consistent physician involvement mitigates these fears. 28SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 29.  The person who deals with the dying patient must commit (Schwartz and Karasu, 1997) to:  Deal with mental anguish and fear of death,  Try to respond appropriately to patient’s needs by listening carefully to the complaints and  Be fully prepared to accept their own counter transferences, as doubts, guilt and damage to their narcissism are encountered.  Management of the dying patient often elicits anxiety in nursing staff.  Education and role playing can improve perspective taking and empathetic skills, respect each other’s point of view as well as appreciate the situation of patient and their families.  Developing a sense of control and efficacy.  Encouraging peer groups for families coping with bereavement.  Developing increased resourcefulness in dealing with death related situations.  Recognizing that a moderate level of death anxiety is acceptable.  Improving our understanding of pain and suffering will also improve communication and effective interactions. 29SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 30.   After the physician has pronounced death legally documented the death in the medical record, care of the body is usually performed by the nurse.   An autopsy consent may be requested & obtained if required.   If the patient is to be an organ donor arrangements will be made immediately.   The family often wishes to view the body before final preparations are made, they may be allowed.   If the patient had any valuables, they are handed over to the relatives 30SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 31.   Make body look as natural & beautiful as possible.  Perform his last duty tenderly.  Protect other patients from unpleasant sights and sounds which could frighten them   ARTICLES REQUIRED   Articles for bath  Extra bandages and cotton swabs  Perineal pads Sheets  Restraints for jaw, hands and legs.  Pair of gloves Thumb forceps  Patients own set of clothes. 31SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 32.  Rigor mortis is the stiffening of the body that occurs about 2 to 4 hours after death. Rigor mortis starts in the involuntary muscles (heart, bladder, and so on), then progresses to the head, neck, and trunk, and finally reaches the extremities.  Algor mortis is the gradual decrease of the body’s temperature after death. When blood circulation terminates and the hypothalamus ceases to function, body temperature falls about 1°C (1.8°F) per hour until it reaches room temperature. Simultaneously, the skin loses its elasticity and can easily be broken when removing dressings and adhesive tape. After blood circulation has ceased, the red blood cells break down, releasing hemoglobin, which discolors the surrounding tissues. This discoloration, referred to as livor mortis, appears in the lowermost or dependent areas of the body. Tissues after death become soft and eventually liquefied by bacterial fermentation. The hotter the temperature, the more rapid the change. Therefore, bodies are often stored in cool places to delay this process. 32SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 33.  Rigor Mortis: body becomes stiff within 4 hours after death as a result of decreased ATP production. ATP keeps muscles soft and supple.  Algor Mortis: Temperature decreases by a few degrees each hour. The skin loses its elasticity and will tear easily.  Livor Mortis: Dependant parts of body become discolored. The patient will likely be lying on their back, their backside being the 'dependant' body part. The discoloration is a result of blood pooling, as the hemoglobin breaks down. 33SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 34. 34SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 35. Remove all tubes and other devices from the patients body. The patient looks more peaceful Reduce the anxiety of the relatives Comfort consult close relatives before preparing the body for removal from the ward to the mortuary where the relatives will receive the body To meet customs and wish of the relatives in caring for the body Reduce the tension of relatives If the relatives require, the nurse should help them to sponge the patient as necessary. brush and comb hair.  To reduce odor and for aesthetic sense for normal appearance Appearance of the body after death should be presentable Replace soiled dressing with cleaned ones To avoid odor For better appearance comfort 35SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 36. Apply perineal pads and plug the rectum & vagina (in females) with cotton balls.). To prevent soiling of bed and the patient cloth After death there may be leaking of secretions form orifices Safety Provide clean cloths(own For better appearance Take care of valuables and personal belongings by handing over to members of family. For legal considerations Allow members of family to see the patient & remain in the room & remember that the body is still dear to someone. Provide emotional support and helps grieving process by helping family to accept death It allows them to ventilate their grief and feelings 36SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 37. 37SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 38.  Advance Directive is a Scottish term, but in other parts of the UK these documents are also called Advance Decisions.  An advance directive tells the health care team what kind of care the patient would like to have if he is unable to make medical decisions (e.g., if in coma)  A good advance directive describes the kind of treatment the patient would want depending on the sickness  An Advance Directive allows you to make a refusal of treatment in advance of a time when you can’t communicate your wishes, or don’t have the capacity to make a decision. It only comes into effect if either of these situations occur.  You can use an Advance Directive to refuse any treatment, including life-sustaining treatment such as resuscitation, artificial nutrition and hydration, or breathing machines.  An Advance Directive enables healthcare professionals to know what your wishes are even if you cannot tell them yourself, e.g. if you had severe dementia or were in a coma.  If you change your mind you can change your Advance Directive to reflect this. If you have mental capacity and can communicate your wishes then your Advance Directive will not apply. 38SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 39.  An Advance Health Care Directive (AHCD) is a generic term for a document that instructs others about your medical care should you be unable to make decisions on your own. It only becomes effective under the circumstances delineated in the document, and allows you to do either or both of the following:  Appoint a health care agent. The AHCD allows you to appoint a health care agent (also known as “Durable Power of Attorney for Health Care,” “Health Care Proxy,” or “attorney-in-fact”), who will have the legal authority to make health care decisions for you if you are no longer able to speak for yourself. This is typically a spouse, but can be another family member, close friend, or anyone else you feel will see that your wishes and expectations are met. The individual named will have authority to make decisions regarding artificial nutrition and hydration and any other measures that prolong life—or not.  Prepare instructions for health care. The AHCD allows you to make specific written instructions for your future health care in the event of any situation in which you can no longer speak for yourself. Otherwise known as a “Living Will,” it outlines your wishes about life-sustaining medical treatment if you are terminally ill or permanently unconscious, for example.  The Advance Health Care Directive provides a clear statement of wishes about your choice to prolong your life or to withhold or withdraw treatment. You can also choose to request relief from pain even if doing so hastens death. A standard advance directive form provides room to state additional wishes and directions and allows you to leave instructions about organ donations. 39SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 40.  While most people would prefer to die in their own homes, the norm is still for terminally-ill patients to die in the hospital, often receiving ineffective treatments that they may not really want. Their friends and family members can become embroiled in bitter arguments about the best way to care for the patient and consequently miss sharing the final stage of life with their loved one. Also, the opinions and wishes of the dying person are often lost in all the chaos.  It’s almost impossible to know what a dying person’s wishes truly are unless the issues have been discussed ahead of time. Planning ahead with an Advance Health Care Directive can give your principal caregiver, family members, and other loved ones peace of mind when it comes to making decisions about your future health care. It lets everyone know what is important to you, and what is not. Talking about death with those close to us is not about being ghoulish or giving up on life, but a way to ensure greater quality of life, even when faced with a life- limiting illness or tragic accident. When your loved ones are clear about your preferences for treatment, they’re free to devote their energy to care and compassion 40SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 41.  Euthanasia literally means “good death”. It is basically to bring about the death of a terminally ill patient or a disabled. Generally, the word euthanasia is defined as the act or practice of painlessly putting to death or withdrawing treatment from a person suffering an incurable disease. [3] From the definition, one can say that euthanasia is an unethical act as much as it is a great sin for those who strongly believe in God. Euthanasia is intentionally killing another person to relieve his or her suffering. [4] It is not the withdrawal or withholding of treatment that results in death, or necessary pain and symptom- relief treatment that might shorten life, if that is the only effective treatment. It is the intentional killing by act or omission of a dependent human being for his or her alleged benefits. 41SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 42. Euthanasia can be classified in different ways, including:  Active euthanasia (action)– where a person deliberately intervenes to end someone’s life – for example, by injecting them with a large dose of sedatives    Passive euthanasia (ommission) – where a person causes death by withholding or withdrawing treatment that is necessary to maintain life, such as withholding antibiotics from someone withpneumonia    Voluntary euthanasia – where a person makes a conscious decision to die and asks for help to do this  Non-voluntary euthanasia – where a person is unable to give their consent (for example, because they are in a coma or are severely brain damaged) and another person takes the decision on their behalf, often because the ill person previously expressed a wish for their life to be ended in such circumstances  Involuntary euthanasia – where a person is killed against their expressed wishes 42SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 43.  A will is a document by which a person regulates the rights of others over his property or family after death.  A statement by a person who is conscious and kno ws that death is imminent concerning what he  or she believes to be the cause or circumstances of  death that can be introduced into evidence  during a trial in certain cases   A person who makes a dying declaration must, however, be competent at the time he or she ma kes a statement, otherwise, it is inadmissible. 43SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 44.  ORGAN DONATION  A person 18 years or older and of sound mind can donate all or any part of their own body for the following purposes:  For medical or dental education  Research  Advancement of medical or dental science  Therapy  Transplantation  The request for organ donation should be done   by patent in the presence of a physician or a nurse  Organs removed from the body following the death cannot be sold.  All organ donation are voluntary and there should not be any compulsion for the patient / family members  Organs usually donated :- kidney, heart, lungs, liver, bone, cornea   Organ donation should take place with in 2-6hrs after the death. 44SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 45.  Organ transplantation is truly one of the miracles of modern medicine, saving the lives of many patients and improving the quality of life for many more.  Given the ever-increasing gap between the number of organs needed and the supply, nurses have an ethical obligation to help ensure that the desires of people who want to donate organs are respected.  Nurses have to ensure that the consent process is informed and voluntary.  Information to the patient should consist of a balanced discussion of the available options and counseling to help patients or their families reach the choice that is best for them, including the provision of information about the urgent need for organs and the consolation that many families derive from knowing that their loved one was able to help others. 45SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 46.  ·          Abuse of children, elderly, and spouse  ·          Drug-related injury  ·          Unknown cause of death  ·          Suicide  ·          Violent death  ·          Poisoning  ·          Accidents  ·          Suspicion of criminal action  o   Obtain death reports  o   Do investigation -the natural death and infant/child death  o   Conduct post mortem , sexual assault/child abuse examinations  o   Collaborate with organ/tissue procurement agencies  o   Provide link between pathologists and lay investigative staff  o   Normally, only uniformed officers attend the natural death scene  o   Understand subtle signs of abuse and neglect  o   Collaborate with pathologist to determine the appropriate medical records  o   Review medical records once received  o   Obtain follow-up information 46SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 47.  Inform the nurse in charge and inform the medical staff of the patient’s death  In the case of an expected adult death, a registered nurse deemed competent by the Trust may confirm death  Confirmation of death must be recorded in the patient’s healthcare record  An unexpected death must be confirmed by the attending medical officer and if confirmed the service manager should be contacted or duty manager out of hours. Incident form to be completed 47SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 48.  Inform the patient’s relatives/next of kin of the patient’s death. Ensure that this is handled in a sensitive and appropriate manner with as much privacy as possible.  Ask if the relatives wish to see the chaplain or an appropriate religious leader or other appropriate person to the person’s faith or ethnic origins that need to be attended to immediately 48SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 49.  If relatives are in the hospital ask if they wish to assist with the last offices and/or if they have any particular wishes regarding the procedure  If the relatives are not in the hospital ask if they wish to view the body on the ward or at a later date  Assemble required equipment  Wash hands and put on disposable gloves and apron 49SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 50.  Any injuries sustained whilst carrying out the procedures on the deceased must be reported through the Trust risk system and follow the Trust Sharps and Inoculation Management Procedure  Lay the patient on their back with one pillow in place (adhere to the Moving and Handling Policy)  Straighten the patient’s limbs (if possible) and place their arms by their sides  Gently close the patient’s eyes if open by applying light pressure for 30 seconds. If corneal or eye donation to take place, close the eye with gauze moistened with normal saline 50SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 51.  Do not apply tape  If syringe driver in situ, disconnect and remove battery In cases where there is no referral to the coroner required infusions can be discontinued and infusion lines, cannulae, drainage and other tubes can be removed If referred to the coroner endo-tracheal tubes, catheters and infusion lines should remain in situ. (see section 3) Discard all sharps into a sharps bin as per Trust Sharps and Inoculation Management Procedure 51SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 52.  Place a receiver between the patient’s legs and drain the bladder by pressing on the lower abdomen. Pads and pants can be used to absorb any leakage  Exuding wounds should be covered with absorbent gauze and secured with an occlusive dressing  Wash the patient if necessary, unless requested not to do so for religious/cultural reasons or patient has died in suspicious circumstances 52SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 53.  It may be important to the family and carers to assist with washing, thereby continuing the care given to the patient in the period before death  Clean the patient’s teeth and gums using a moistened, soft small headed nylon toothbrush and or suction to remove any debris and secretions Clean any dentures and replace them in the mouth – a small pillow or rolled up towel placed under the patient’s chin may help to keep the jaw closed and teeth in situ 53SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 54.  Tidy the hair as soon as possible after death and arrange into the preferred style (if known)  Patients should not be shaved; usually a funeral director will do this. Some faiths prohibit shaving  Remove all jewellery, in the presence of another nurse, unless requested by the family to do otherwise. Any jewellery removed must be documented on a property form and placed in the hospital safe until collected by the family. Wedding rings may be left in situ and taped in place. Any jewellery remaining on the body should be documented on the identification card accompanying the patient to the mortuary or undertakers 54SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 55.  Record all property in the patient property book and pack in a labelled property bag, keeping secure until collected by the family. Pack personal property showing consideration for the feelings of those receiving it. Discuss the issues of soiled clothes sensitively with the family and ask whether they wish them to be disposed of or returned  Unless a specific request has been made by the family for alternative clothes the patient should be dressed in a hospital gown  If relatives are present at the time of death, or attend the hospital shortly after, staff should ensure that they are given the Trust Bereavement information copies of which are available on the ward.  Relatives should be told to contact the relevant Trust officer who supports bereavement or the patient’s GP to collect the death certificate 55SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 56.  Label one wrist and one ankle with an identification band containing the following information:  Full name  NHS Number  Date of Birth  Complete patient identification cards and notification of death book clearly in capitals  If the patient has an implant device such as a pacemaker or an infectious disease is known or suspected – record this fact on both patient identification cards 56SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 57.  Tape one identification card to clothing or hospital gown Wrap the body in a sheet, ensuring that face to feet are covered and that all limbs are held securely in position  If the body may be infectious or there is a risk of leakage of body fluids place the body in a body bag and put the second identification card into the pocket of the body bag  If the deceased person has a known infectious disease Category 3 & 4 they must be placed in a heavy duty body bag and you must inform anyone else who comes in contact with this patient e.g. funeral directors, porters. 57SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 58.  Remove gloves and aprons. Dispose of equipment according to local policy and wash hands  If mortuary on site request porters to remove body from the ward to the mortuary  If no on site mortuary, contact local funeral directors or the funeral directors according to the relatives wishes Screen off the area where removal of the body will occur  Screen off the area where removal of the body will occur  Record all the details and actions in the nursing records Any property retained on the ward out of hours must be stored in a secure area and any valuables stored in the ward or hospital safe 58SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 59.   —it is also known as a post-mortem examination,   It is a highly specialized surgical procedure that consists of a thorough examination of a corpse to determine the cause and manner of death and to evaluate any disease or injury that may be present. It is usually performed by a specialized medical doctor called a pathologist.  Autopsies are performed for either legal or medical purposes.  59SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 60. Autopsies are divided into 2 categories:  Medical, authorized by the decedent, decedent's family or healthcare surrogate  forensic, authorized by statute. 60SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 61.  AUTOPSY  An autopsy or postmortem examination is an examination of the  body after death.  It is performed in certain cases such as:  o   Committed suicide  o   Unknown cause of death  o   Unknown dead bodies  o   Homicide (The killing of one human being by another )  ·         The organs and tissues of the body are examined to establish the exact cause of death , to learn more about a disease  ·         A consent should be obtain from the immediate relative :surviving spouse, adult children, parents, siblings.  ·         After an autopsy , hospitals cannot retain any tissues/ organs without the permission of the person who signed the consent form  61SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 62.  It is the art and science of preserving human remains by treating them (in its modern form with chemicals) to forestall decomposition.  The intention is to keep them suitable for public display at a funeral, for religious reasons, or for medical and scientific purposes such as their use as anatomical specimens.[1]    The three goals of embalming are sanitization, presentation and preservation (or restoration).  Embalming has a very long and cross cultural history, with many cultures giving the embalming processes a greater religious meaning.  Embalming prevents the process through injection of chemicals into the body to destroy the bacteria  It is the process of preserving dead body from decay  Injection of chemicals into the body to destroy the bacteria ; thereby prevents rapid decomposition of tissues.  Embalming fluid contains a mixture of formaldehyde, methanol, ethanol and other solvents 62SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 63.  Make sure the body is face up  Remove any clothing that the person is wearing.   Disinfect the mouth, eyes, nose, and other orifices  Shave the body.   Break the rigor mortis by massaging the body.  Setting the Features 1. Close the eyes. 2. Close the mouth and set it naturally 3. Moisturize the features. A small amount of creme should be used on the eyelids and lips 4. Casketing the Body 63SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA
  • 64. Process of Embalming  Embalming fluid is injected into the arteries of the deceased during embalming. Many other body fluids may be drained or aspirated and replaced with the fluid as well. The process of embalming is designed to slow decomposition of the body.  The actual embalming process usually involves 4 parts:  Arterial embalming: which involves the injection of embalming chemicals into the blood vessels, usually via the right common carotid artery. Blood is drained from the right jugular vein.  Cavity embalming: The suction of the internal fluids of the corpse and the injection of embalming chemicals into the body cavities, using an aspirator and trocar.  Hypodermic embalming: The injection of embalming chemicals under the skin as needed.  Surface embalming: Which supplements the other methods especially for visible, injured body parts. 64SHRI VINOBA BHAVE COLLEGE OF NURSINGH, SILVASSA