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Medicine 2.0 and Science 2.0
where do they intersect?
               Walter Jessen, Ph.D.
               http://www.walterjessen.com

               - Highlight HEALTH
                http://www.highlighthealth.com

               - Next Generation Science
                http://www.nextgenerationscience.com


                           Science Online 2010, January 16, 2010
What is Medicine 2.0?

Medicine 2.0 applications, services and tools are Web-
based services for health care consumers, caregivers,
patients, health professionals and biomedical
researchers, that use Web 2.0 technologies as well as
semantic web and virtual reality tools, to enable and
facilitate specifically social networking, participation,
apomediation, collaboration, and openness within and
between these user groups.

                 Eysenbach G. Medicine 2.0: social networking, collaboration, participation,
                 apomediation, and openness. J Med Internet Res. 2008 Aug 25;10(3):e22.
Five themes emerge from Web 2.0 in
health, healthcare, medicine and science

1. Social networking                  Session questions
2. Participation                      ‣ How are these themes
                                         being applied in science?
3. Apomediation
                                      ‣ What are the reasons
4. Collaboration                         some themes are better
                                         applied than others?
5. Openness

                   Eysenbach G. Medicine 2.0: social networking, collaboration, participation,
                   apomediation, and openness. J Med Internet Res. 2008 Aug 25;10(3):e22.
Medicine 2.0 map: main user groups of
current applications

                    Consumer/Patient
                            Health 2.0




                         Medicine 2.0


           E-learning                             Science 2.0
     Health Professionals               Biomedical Researchers
                  Eysenbach G. Medicine 2.0: social networking, collaboration, participation,
                  apomediation, and openness. J Med Internet Res. 2008 Aug 25;10(3):e22.
Science 2.0 map: main user groups of
current services and applications

                            Public
                 consume/benefit knowledge




                       Science 2.0


       navigate knowledge            produce knowledge
         Publishers                     Researchers
Session discussion

‣ How can Science 2.0 be expanded
 to include other groups?

‣ What are the social and cultural
 obstacles to widespread adoption
 of Science 2.0?
  - “Scientists are too busy.”
  - “Scientists aren’t social.”

‣ Are there other themes?
Social Networking
 and Participation

 Advantages
 ‣ Stay current on new research
 ‣ Share and discuss ideas


http://www.nextgenerationscience.com
Topic: Science Social Networks
Social Networking
and Participation

‣ Achieved critical mass because
  they’re not specific to science

‣ Features such as lists, rooms,
  pages and groups provide for
  specification:
  - The Life Scientists room on
    FriendFeed
    http://friendfeed.com/the-life-scientists

  - Bora’s Twitter list of Science
    Online 2010 participants
    http://twitter.com/BoraZ/
    scienceonline2010/
Session discussion:
Social Networking and Participation

‣ Why are some science social networks more successful
 than others?
‣ For researchers, what are the immediate benefits?
‣ What are the disadvantages?
‣ How do you integrate social networking into your
 workflow?
‣ Where could there be improvement?
Apomediation
‣ Apomediaries can help users
  navigate the flood of
  information afforded by the
  Internet and digital media
‣ Mediation you experience
  when you:
  - read reviews on Netflix.com
  - notice several friends using
    an application or resource
‣ Publisher tools:
  - Connotea (NPG)
  - 2collab (Elsevier)
  - CiteULike
    (sponsored by Springer)
Collaboration
‣ The examples above focus on collaborative writing
‣ What about finding collaborators or performing research?
Session discussion:
Apomediation and Collaboration

‣ Why are some science social networks more successful
 than others?
‣ For researchers, what are the immediate benefits?
‣ What are the disadvantages?
‣ How do you integrate social networking into your
 workflow?
‣ Where could there be improvement?
Openness


‣ Open Source Science means:
 - Open Source: the use of open and freely accessible software
     tools for scientific research and collaboration.
 -   Open Notebook: transparency in experimental design and
     data management.
 -   Open Data: public accessibility of scientific data, which
     allows for distribution, reuse and derived works.
 -   Open Access: public access to scholarly literature.
Session discussion:
Openness
‣ Issues with open data (privacy, IP, patents)
‣ Can researchers truly be open with unpublished data?



“Much of the work presented at conferences and documented on
posters is unpublished. In fact, the whole idea of a conference/
poster is to share with other researchers current projects and data
before it’s published. The intention isn’t to enable widespread
distribution of the information, but rather controlled circulation
and localized discussion. “               From: Unpublished Data, No Pictures Please
Session discussion:
Openness
                   Presentation rights:




                  http://www.flickr.com/photos/24801682@N08/3662760870/
Session discussion:
Openness

‣ Can researchers truly be open with unpublished data?




Dr Rex Chisolm, Chair of the ASCB Public Information Committee (and Dean for Research at Northwestern University):


“The real goal is to limit specific tweeting of prepublication data,
not the general concepts, the enthusiasm (or not) for an idea
heard at the meeting, or comments about the meeting itself.”

                           From: Tweeting expressly prohibited at American Society of Cell Biology annual meeting
Medicine 2.0
Conferences

‣ 2010 in Maastricht, Netherlands

‣ Spring 2011: Barcelona, Spain

‣ Fall 2011: Stanford University

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Medicine 2.0 and Science 2.0 – where do they intersect?

  • 1. Medicine 2.0 and Science 2.0 where do they intersect? Walter Jessen, Ph.D. http://www.walterjessen.com - Highlight HEALTH http://www.highlighthealth.com - Next Generation Science http://www.nextgenerationscience.com Science Online 2010, January 16, 2010
  • 2. What is Medicine 2.0? Medicine 2.0 applications, services and tools are Web- based services for health care consumers, caregivers, patients, health professionals and biomedical researchers, that use Web 2.0 technologies as well as semantic web and virtual reality tools, to enable and facilitate specifically social networking, participation, apomediation, collaboration, and openness within and between these user groups. Eysenbach G. Medicine 2.0: social networking, collaboration, participation, apomediation, and openness. J Med Internet Res. 2008 Aug 25;10(3):e22.
  • 3. Five themes emerge from Web 2.0 in health, healthcare, medicine and science 1. Social networking Session questions 2. Participation ‣ How are these themes being applied in science? 3. Apomediation ‣ What are the reasons 4. Collaboration some themes are better applied than others? 5. Openness Eysenbach G. Medicine 2.0: social networking, collaboration, participation, apomediation, and openness. J Med Internet Res. 2008 Aug 25;10(3):e22.
  • 4. Medicine 2.0 map: main user groups of current applications Consumer/Patient Health 2.0 Medicine 2.0 E-learning Science 2.0 Health Professionals Biomedical Researchers Eysenbach G. Medicine 2.0: social networking, collaboration, participation, apomediation, and openness. J Med Internet Res. 2008 Aug 25;10(3):e22.
  • 5. Science 2.0 map: main user groups of current services and applications Public consume/benefit knowledge Science 2.0 navigate knowledge produce knowledge Publishers Researchers
  • 6. Session discussion ‣ How can Science 2.0 be expanded to include other groups? ‣ What are the social and cultural obstacles to widespread adoption of Science 2.0? - “Scientists are too busy.” - “Scientists aren’t social.” ‣ Are there other themes?
  • 7. Social Networking and Participation Advantages ‣ Stay current on new research ‣ Share and discuss ideas http://www.nextgenerationscience.com Topic: Science Social Networks
  • 8. Social Networking and Participation ‣ Achieved critical mass because they’re not specific to science ‣ Features such as lists, rooms, pages and groups provide for specification: - The Life Scientists room on FriendFeed http://friendfeed.com/the-life-scientists - Bora’s Twitter list of Science Online 2010 participants http://twitter.com/BoraZ/ scienceonline2010/
  • 9. Session discussion: Social Networking and Participation ‣ Why are some science social networks more successful than others? ‣ For researchers, what are the immediate benefits? ‣ What are the disadvantages? ‣ How do you integrate social networking into your workflow? ‣ Where could there be improvement?
  • 10. Apomediation ‣ Apomediaries can help users navigate the flood of information afforded by the Internet and digital media ‣ Mediation you experience when you: - read reviews on Netflix.com - notice several friends using an application or resource ‣ Publisher tools: - Connotea (NPG) - 2collab (Elsevier) - CiteULike (sponsored by Springer)
  • 11. Collaboration ‣ The examples above focus on collaborative writing ‣ What about finding collaborators or performing research?
  • 12. Session discussion: Apomediation and Collaboration ‣ Why are some science social networks more successful than others? ‣ For researchers, what are the immediate benefits? ‣ What are the disadvantages? ‣ How do you integrate social networking into your workflow? ‣ Where could there be improvement?
  • 13. Openness ‣ Open Source Science means: - Open Source: the use of open and freely accessible software tools for scientific research and collaboration. - Open Notebook: transparency in experimental design and data management. - Open Data: public accessibility of scientific data, which allows for distribution, reuse and derived works. - Open Access: public access to scholarly literature.
  • 14. Session discussion: Openness ‣ Issues with open data (privacy, IP, patents) ‣ Can researchers truly be open with unpublished data? “Much of the work presented at conferences and documented on posters is unpublished. In fact, the whole idea of a conference/ poster is to share with other researchers current projects and data before it’s published. The intention isn’t to enable widespread distribution of the information, but rather controlled circulation and localized discussion. “ From: Unpublished Data, No Pictures Please
  • 15. Session discussion: Openness Presentation rights: http://www.flickr.com/photos/24801682@N08/3662760870/
  • 16. Session discussion: Openness ‣ Can researchers truly be open with unpublished data? Dr Rex Chisolm, Chair of the ASCB Public Information Committee (and Dean for Research at Northwestern University): “The real goal is to limit specific tweeting of prepublication data, not the general concepts, the enthusiasm (or not) for an idea heard at the meeting, or comments about the meeting itself.” From: Tweeting expressly prohibited at American Society of Cell Biology annual meeting
  • 17. Medicine 2.0 Conferences ‣ 2010 in Maastricht, Netherlands ‣ Spring 2011: Barcelona, Spain ‣ Fall 2011: Stanford University