The document discusses how patients are playing an active role in maintaining their health through social media. It describes how patients use social media as a virtual community to exchange information and provide social support to each other. The document also discusses how big data can be used for knowledge discovery and drug safety monitoring to supplement traditional clinical practices and empower patients.
Fostering Friendships - Enhancing Social Bonds in the Classroom
Patient Powered Research with Big Data and Connected Communities by Assoc. Prof. Christopher Yang
1. WKWSCI
SYMPOSIUM
2014
Big Data, Big Ideas for Smarter Communities
Patient Powered Research with
Big Data and Connected Communities
Chris Yang
College of Computing and Informatics
Drexel University
2. • Healthcare is transforming
Reactive Care Proactive and Preventive care
Episodic Response Continuous Well-being Monitoring
Clinic-centric practice Patient-centered practice
Training-based Interventions Globally Aggregated Evidence
• Patients are playing active role in maintaining their health
WKWSCI SYMPOSIUM 2014
Big Data, Big Ideas for Smarter Communities
3. Social Media
• With the advance of Web 2.0 technologies, the Web is not only a resource that patients look
for health information but also a virtual community where patients interact with each other to
provide different kinds of social support and exchange information where they may not be
able to obtain from local health professionals.
“e-patients are looking for ‘just-in-time
someone-like-me” health information”
- Boase et al, 2006; Fox & Jones, 2009
*E-patient: internet user that is looking for health information
“e-patients are looking for a
sense of community”
-Wright & Bell, 2003
72%
read patient blog,
health newsgroup,
or health website
39%
used social
networking site
26%
shared or viewed
updates
6. Integrate with Leading Health Devices
WKWSCI SYMPOSIUM 2014
Big Data, Big Ideas for Smarter Communities
7. • We are now utilizing diverse data to provide
automated and augmented insight, discovery, and
evidence-based health and wellness decision support
• a cyber-based empowering of patients and healthy
individuals that enables them to play a substantial
role in their own health and treatment
WKWSCI SYMPOSIUM 2014
Big Data, Big Ideas for Smarter Communities
9. WKWSCI
SYMPOSIUM
2014
Big Data, Big Ideas for Smarter Communities
Informational Support Offered
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
Referral Advice Opinion Personal Fact
1. K. Chuang and C. C. Yang, “A Study of Social Positions In an Online Alcoholism Community,” Proceedings of International Conference on
Social Computing, Behavioral-Cultural Modeling, and Prediction, Washington, D.C., April 2 – 5, 2013.
2. K. Chuang and C. C. Yang, “Interaction Patterns of Nurturant Support Exchanged in Online Health Social Networking,” Journal of Medical
Internet Research, vol. 14, no.3, 2012.
3. K. Chuang and C. C. Yang, “ A Study of Informational Support Exchanges in MedHelp Alcoholism Community,” Proceedings of International
Conference on Social Computing, Behavioral-Cultural Modeling, and Prediction , College Park, MD, April 3-5, 2012.
4. K. Chuang and C. C. Yang, “Helping You to Help Me: Exploring Supportive Interaction in Online Health Community,” Proceedings of ASIS&T
2010, Pittsburgh, PA, October 22-27, 2010.
5. K. Chuang and C. C. Yang, “Social Support in Online Healthcare Social Network,” Proceedings of iConference, Urbana-Champaign, IL, February
3-6, 2010.
Referral refers the recipient to a resource
Advice suggests actions to deal with
situation
Opinion a view or judgment formed about
something, not necessarily based
on fact or knowledge
Personal
experience
stories about person’s
experiences or incidents as a
way of presenting information.
Fact reassesses the situation and
presents facts.
10. Nurturant Support Offered
Esteem Gives positive comments
validating a recipient’s self-
concept, alleviating feelings of
guilt as a person; includes
compliments, validation, and
relief from blame
Networking Focuses on messages to broaden
support seekers’ social network so
they don’t feel alone, by
connecting them to others with
similar situations; includes access,
presence, and companions
Emotional Gives expressions that support
recipient’s feelings or reciprocates
emotion; the emphasis of this
category is on supporting
emotional states rather than the
recipient’s identity or self-concept0%
10%
20%
30%
40%
50%
60%
Esteem Networking Emotional
WKWSCI SYMPOSIUM 2014
Big Data, Big Ideas for Smarter Communities
11. 11
Drug Safety Signal Detection
• Adverse drug reactions (ADRs) are
causing a substantial amount of
hospital admissions and deaths
– 5.3% of hospital admission were
associated with ADRs
– 7% of medical errors were
attributed to ADRs
• Pre-marketing review process
cannot possibly identify all potential
adverse effects.
• Post-marketing surveillance
programs must be conducted to
identify new adverse effects and
evaluate their potential impact on
the public health
WKWSCI SYMPOSIUM 2014
Big Data, Big Ideas for Smarter Communities
14. Drug-Drug Interaction Detection
• Drug-drug interactions (DDIs)
– a significant drug safety problem for health consumers
– may account for up to 30% of unexpected adverse drug
reactions
– often caused by shared pathways of metabolism or interesting
pathways of drug action
– DDIs detection is of great clinical importance because most
interactions could result in precaution of prescription, absolute
contraindications of combination use, or even drug withdrawal
from market
14
WKWSCI SYMPOSIUM 2014
Big Data, Big Ideas for Smarter Communities
16. • Healthcare social media empowered patients
to connect with other patients and health
professionals
– Exchange information as well as nurturant
support
– A new platform health intervention
• Big data for knowledge discovery to
supplement the traditional clinical approach
WKWSCI SYMPOSIUM 2014
Big Data, Big Ideas for Smarter Communities
