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THE NAMES PROJECT
MEMORIAL AIDS QUILT
AN EXAMPLE IN AWARENESS
WHAT IS
THE MEMORIAL QUILT?
  Memorial	
  for	
  AIDS	
  vic1ms	
                  Knowledge	
   about	
   HIV/AIDS	
   was	
  
  	
                                                   limited	
   during	
   the	
   1me	
   of	
   The	
  
                                                       Quilt’s	
   crea1on.	
   Those	
   who	
   were	
  
  Largest	
  folk-­‐art	
  quilt	
  ever	
  made	
     infected	
   were	
   dying	
   painfully	
   and	
  
  	
                                                   very	
  rapidly.	
  The	
  Quilt	
  memorializes	
  
  Created	
  in	
  1987	
                              vic1ms	
   of	
   AIDS	
   as	
   individuals,	
  
                                                       rather	
  than	
  sta1s1cs.	
  
  	
  
  	
                                                   	
  
                                                       	
  
  	
  
  	
                                                   	
  
  	
                                                   	
  
                                                       	
  
  	
  
THE PROBLEM
WITH DYING
  AIDS	
  s1gma	
  caused	
  issues	
  for	
  some	
     The	
   Quilt	
   is	
   a	
   way	
   to	
   remember	
  
  	
                                                     AIDS	
   vic1ms	
   as	
   individuals	
   who	
  
                                                         would	
   have	
   otherwise	
   disappeared	
  
  Families	
  wouldn’t	
  have	
  funerals	
             aQer	
   their	
   deaths.	
   Homophobic	
  
  	
                                                     intolerance	
  and	
  “untouchable”	
  view	
  
  Cemeteries/funeral	
   homes	
   would	
               of	
  AIDS	
  pa1ents	
  contributed	
  to	
  the	
  
  not	
  handle	
  remains	
  of	
  AIDS	
  vic1ms	
     lack	
   of	
   ceremony	
   at	
   many	
   of	
   their	
  
  	
                                                     deaths.	
  
                                                         	
  
  	
  
  	
                                                     	
  
  	
                                                     	
  
                                                         	
  
  	
  
  	
                                                     	
  
MEMORIES
CREATED IN PANELS

The Quilt, on display at the mall in
Washington, D.C. Its massive size made its
message hard to ignore. Tens of thousands
of coffin-sized panels make up the 12’ x 12’
blocks.
MEMORIES
CREATED IN PANELS
Awareness was raised when celebrities
like Rock Hudson were honored with
panels for The Quilt
MEMORIES
CREATED IN PANELS
The NAMES Project will take multiple panels
for one person. Pedro Zamora, who gained
recognition for coming out as HIV+ on MTV’s
The Real World, has 21 panels.
GETTING TESTED
HIV SCREENING
AWARENESS IN YOUNG PEOPLE
EDUCATION
WHAT WE NEED TODAY
AMERICANS AGES 13-29 ARE EXPERIENCING A RAPID RATE OF INFECTION


Approximately 48% of adolescents infected
with HIV are unaware they have the virus.
Needs Have Changed                                          Why So High?                                                           Awareness
Although	
   there	
   is	
   s1ll	
   a	
   nega1ve	
      Facts	
   about	
   HIV	
   infec1on	
   and	
                         People	
   who	
   don’t	
   seek	
   out	
  
s 1 g m a	
   a n d	
   m i s i n f o r m a 1 o n	
         transmission	
   are	
   available,	
   tes1ng	
                       informa1on	
   don’t	
   learn	
   anything.	
  
s u r r o u n d i n g	
   A I D S	
   i n	
   m a n y	
     is	
   available,	
   so	
   why	
   is	
   this	
   rate	
   of	
     Leading	
   by	
   example	
   and	
   holding	
  
communi1es,	
   it	
   is	
   not	
   the	
   new	
         infec1on	
   s1ll	
   so	
   high?	
   Have	
   people	
               community	
   leaders	
   and	
   physicians	
  
“mystery”	
   disease	
   it	
   was	
   in	
   the	
       become	
   complacent	
   or	
   forgoVen	
                            responsible	
  is	
  key.	
  
1980s.	
                                                    how	
   serious	
   HIV	
   is?	
   Is	
   it	
   just	
  
                                                            a d o l e s c e n t / y o u n g 	
   a d u l t	
  
                                                            “invincibility”	
  syndrome?	
  
CHICAGO
PUBLIC SCHOOLS

As of 2008, Chicago Public       sex education program must be
Schools’ Comprehensive Sexual    offered at all CPS schools, and
Health Education Program has     all students are required to
included information about       attend unless they have a
transmission of and protection   written objection from a parent.
from HIV in grades 5-12. The
COLLEGES
IN CHICAGO
                Easy to find   On-campus       Campus          Referral to
                info           health center   hosted events   outside facility

Art Institute        X              X
 Columbia                           X                                 X
 Roosevelt           X                              X
  DePaul                                                              ?
   CCC               X                              X                 X
PHYSICIANS
HAVE RESPONSIBILITIES
In 2006, the CDC revised its guidelines to urge health care providers
to routinely offer HIV tests for patients 13-64 years old. Health care
providers aren’t doing their jobs. Over 700 pediatricians surveyed in
a 2005 study said they:

“felt uncomfortable discussing sexual issues with
adolescent patients, and more than half said
they did not have sufficient training to talk to
them about testing for sexually transmitted
diseases or HIV.”
PHYSICIANS
HAVE RESPONSIBILITIES
Many doctors cite the step of requiring written consent as “taking too
long”.


In 2008, the written consent requirement for an HIV test was waived at
Stroger Hospital in Chicago. Numbers of patients
                                         who agreed
to testing at Stroger jumped from 62% to 87% after this
change.
HIV INFECTION
IS PREVENTABLE



 Facilities in Chicago are available –   Speak up to doctors who are not
 they just aren’t being used by          offering tests!
 everyone.


 Adults and healthcare providers         HIV inf ection is completely
 need to be an extension of sex          preventable. Something everyone
 education in schools.                   can do that makes a big difference
                                         is being aware of their status.
KNOW YOUR STATUS
RAISE AWARENESS
It is important that EVERYONE help foster a “Know
Your Status” environment.



  Being open and candid about being         When testing is more common,
  tested helps to present HIV testing       LBGTQ youth who avoid getting
  as a normal preventative care             tested for fear of being outed will
  practice                                  be less afraid to participate.


  When people across all walks of life      Encouraging a “Know Your Status”
  are getting tested, it helps to further   environment can help prevent late
  dispel the myth that HIV is a “gay        diagnoses and further spread of HIV
  disease”                                  infection for all kinds of people.

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Biology of AIDS Presentation

  • 1. THE NAMES PROJECT MEMORIAL AIDS QUILT AN EXAMPLE IN AWARENESS
  • 2. WHAT IS THE MEMORIAL QUILT? Memorial  for  AIDS  vic1ms   Knowledge   about   HIV/AIDS   was     limited   during   the   1me   of   The   Quilt’s   crea1on.   Those   who   were   Largest  folk-­‐art  quilt  ever  made   infected   were   dying   painfully   and     very  rapidly.  The  Quilt  memorializes   Created  in  1987   vic1ms   of   AIDS   as   individuals,   rather  than  sta1s1cs.                        
  • 3. THE PROBLEM WITH DYING AIDS  s1gma  caused  issues  for  some   The   Quilt   is   a   way   to   remember     AIDS   vic1ms   as   individuals   who   would   have   otherwise   disappeared   Families  wouldn’t  have  funerals   aQer   their   deaths.   Homophobic     intolerance  and  “untouchable”  view   Cemeteries/funeral   homes   would   of  AIDS  pa1ents  contributed  to  the   not  handle  remains  of  AIDS  vic1ms   lack   of   ceremony   at   many   of   their     deaths.                      
  • 4. MEMORIES CREATED IN PANELS The Quilt, on display at the mall in Washington, D.C. Its massive size made its message hard to ignore. Tens of thousands of coffin-sized panels make up the 12’ x 12’ blocks.
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  • 6. MEMORIES CREATED IN PANELS Awareness was raised when celebrities like Rock Hudson were honored with panels for The Quilt
  • 7. MEMORIES CREATED IN PANELS The NAMES Project will take multiple panels for one person. Pedro Zamora, who gained recognition for coming out as HIV+ on MTV’s The Real World, has 21 panels.
  • 9. EDUCATION WHAT WE NEED TODAY AMERICANS AGES 13-29 ARE EXPERIENCING A RAPID RATE OF INFECTION Approximately 48% of adolescents infected with HIV are unaware they have the virus. Needs Have Changed Why So High? Awareness Although   there   is   s1ll   a   nega1ve   Facts   about   HIV   infec1on   and   People   who   don’t   seek   out   s 1 g m a   a n d   m i s i n f o r m a 1 o n   transmission   are   available,   tes1ng   informa1on   don’t   learn   anything.   s u r r o u n d i n g   A I D S   i n   m a n y   is   available,   so   why   is   this   rate   of   Leading   by   example   and   holding   communi1es,   it   is   not   the   new   infec1on   s1ll   so   high?   Have   people   community   leaders   and   physicians   “mystery”   disease   it   was   in   the   become   complacent   or   forgoVen   responsible  is  key.   1980s.   how   serious   HIV   is?   Is   it   just   a d o l e s c e n t / y o u n g   a d u l t   “invincibility”  syndrome?  
  • 10. CHICAGO PUBLIC SCHOOLS As of 2008, Chicago Public sex education program must be Schools’ Comprehensive Sexual offered at all CPS schools, and Health Education Program has all students are required to included information about attend unless they have a transmission of and protection written objection from a parent. from HIV in grades 5-12. The
  • 11. COLLEGES IN CHICAGO Easy to find On-campus Campus Referral to info health center hosted events outside facility Art Institute X X Columbia X X Roosevelt X X DePaul ? CCC X X X
  • 12. PHYSICIANS HAVE RESPONSIBILITIES In 2006, the CDC revised its guidelines to urge health care providers to routinely offer HIV tests for patients 13-64 years old. Health care providers aren’t doing their jobs. Over 700 pediatricians surveyed in a 2005 study said they: “felt uncomfortable discussing sexual issues with adolescent patients, and more than half said they did not have sufficient training to talk to them about testing for sexually transmitted diseases or HIV.”
  • 13. PHYSICIANS HAVE RESPONSIBILITIES Many doctors cite the step of requiring written consent as “taking too long”. In 2008, the written consent requirement for an HIV test was waived at Stroger Hospital in Chicago. Numbers of patients who agreed to testing at Stroger jumped from 62% to 87% after this change.
  • 14. HIV INFECTION IS PREVENTABLE Facilities in Chicago are available – Speak up to doctors who are not they just aren’t being used by offering tests! everyone. Adults and healthcare providers HIV inf ection is completely need to be an extension of sex preventable. Something everyone education in schools. can do that makes a big difference is being aware of their status.
  • 15. KNOW YOUR STATUS RAISE AWARENESS It is important that EVERYONE help foster a “Know Your Status” environment. Being open and candid about being When testing is more common, tested helps to present HIV testing LBGTQ youth who avoid getting as a normal preventative care tested for fear of being outed will practice be less afraid to participate. When people across all walks of life Encouraging a “Know Your Status” are getting tested, it helps to further environment can help prevent late dispel the myth that HIV is a “gay diagnoses and further spread of HIV disease” infection for all kinds of people.