From Looking for Missing Pieces to Recognizing the Bigger Picture: What Health Workers can learn from Art
1. From Looking for Missing Pieces to
Recognizing the Bigger Picture: What
Health Workers can Learn from Art
Olaf Kraus de Camargo
@DevPeds
March 3rd – 5th 2016, Hamilton Convention Centre
http://tinyurl.com/pickwell
2. Curing x Curating
• Same Latin origin: curare = to take care
Understanding cure as elimination of illness makes
us focus more on the diagnosis than on the person
Curating: selecting and exposing pieces of art –
putting them in context
What could be the role of “curating” in health care?
3. The Power of Diagnosis
• Power to the diagnostician:
Ability of prognosis (knowing before) (chance of
dying, years of life left, ability to reach milestones,
future opportunities on the job market)
4. The Power of Diagnosis
• Power to the therapy provider:
Select access to care
Specialize treatment
Fend off competition (”not qualified”)
5. The Power of Diagnosis
• Hope to the “patient”
Get rid of the disease (be “cured”)
6. The Process of Diagnosis
• “Looking for missing pieces” – a process of ruling out
Did the child meet all the developmental milestones?
Did the child grow within the normal range?
Has the child presented with other health problems?
Does the child have an abnormal physical exam?
Is there a family history for a specific diagnosis?
8. Meet Lars*
• Boy, 4 years old
Ex-preemie of 32 weeks, birth weight 1665g (ICD10: P07.12)
Double-outlet-right-ventricle (ICD10: Q20.2)
Valvular and infundibular pulmonary stenosis (ICD10: Q24.4)
Global developmental delay (ICD10: F70.0)
*Kraus de Camargo O, Simon L. Die ICF-CY in der Praxis. Bern: Verlag Hans Huber; 2013
14. Far from the Tree*
*Solomon A. Far From the Tree: Parents,
Children and the Search for Identity,
Scribner; 2012
15. Meet Lars*
• Boy, 4 years old
Father is in jail
Custody disputes between parents and CAS is involved
Disagreements between professionals if Lars should be allowed to visit his dad
Required multiple hospitalizations
Has difficulty to establish trusting relationships, shy, withdrawn
Gets easily stressed in Kindergarten, educators are not sure what to expect from him
and how to support him
*Kraus de Camargo O, Simon L. Die ICF-CY in der Praxis. Bern: Verlag Hans Huber; 2013
16. Appreciating People with Health Problems
• What is the first thing you see and hear?
• Boy, 4 years old
Father is in jail
17. Appreciating People with Health Problems
• Where do your eyes and your mind go next?
• Who takes care of this kid?
Custody disputes between parents and CAS is involved
18. Appreciating People with Health Problems
• Consider how life set up this person in front of you: her family, work, living
environment
Gets easily stressed in Kindergarten, educators are not sure what to expect
from him and how to support him
• Consider how life presents: balance, emphasis, and trajectory.
Disagreements between professionals if Lars should be allowed to visit his dad
Required multiple hospitalizations
Has difficulty to establish trusting relationships, shy, withdrawn
19. Appreciating People with Health Problems
• Look again – what does it mean to you?
A 4 year old boy in need - How can I help?
Importance of getting all professionals on the same page –
interprofessional collaboration
Importance of identifying facilitators, strengths and resilience in the
family and the support system
Importance of stable and trusting relationships
20. Health Professionals as Curators
• Appreciate persons beyond their diagnosis
• See persons in the context of their life situation
• Take care of persons by looking at the big picture