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Data & Technological Citizenship

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Introduction to the project to Provincial, Territorial and Federal Open Data Public Officials.

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Data & Technological Citizenship

  1. 1. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Data & Technological Citizenship (aka public purpose research) Dec. 1, 2020 | Monthly COGWG Teleconference / *ODJ*| Teams Dr. Tracey P. Lauriault Associate Professor, Critical Media and Big Data, School of Journalism and Communication, Carleton University Tracey.Lauriault@Carleton.ca @TraceyLauriault https://orcid.org/0000-0003-1847-2738
  2. 2. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Contents 2 1. Research Team & Collaborators 2. Introduction 3. Objectives 4. Rationale 5. Theoretical Framework • Critical Data Studies • Data & Technological Citizenship • Rights Based Approach to Data during a Crisis 5. Current Topic Areas 6. References 7. Acknowledgements 8. Other Research
  3. 3. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data 1. What is the Tracing COVID-19 Project? 3
  4. 4. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Research Team 4 PRINCIPAL INVESTIGATOR Tracey P. Lauriault Critical Media and Big Data, School of Journalism and Communication, Carleton University https://orcid.org/0000-0003-1847-2738 RESEARCH ASSISTANT, DESIGN, & COORDINATION Kit Chokly Graduate Student, School of Journalism and Communication, Carleton University kitchokly.com RESEARCH ASSISTANT, OPEN SCIENCE Amanda Hunter Graduate Student, School of Journalism and Communication, Carleton University https://www.linkedin.com/in/amanda-hunter- b0382372/ RESEARCH ASSISTANT, ACCESSIBILITY Aidan Battley Undergraduate student in Communications and Media Studies, Carleton University linkedin.com/in/aidan-battley-3b1274132/ RESEARCH ASSISTANT, COMMUNICATION Meelo Fairfax-Angod Undergraduate Student in Communications and Media Studies, Carleton University https://www.linkedin.com/in/meelofairfaxangod/ RESEARCH ASSISTANT, DISABILITY STUDIES Megan Linton Graduate Student, School of Public Policy and Administration, Carleton University https://www.meganmqlinton.com/ RESEARCH ASSISTANT, FIRST NATION DATA Kirstei Abbot Indigenous Student Advisor & Assistant Program Coordinator https://orcid.org/0000-0002-0631-5463 COLLABORATOR, FNIGC Dr. Aaron Franks Senior Manager, First Nation Information Governance Centre; to explore the topic of Indigenous Data Sovereignty and open data and open science. COLLABORATOR, FNIGC Melissa Dane Research Office, OCAP® and Information Governance; First Nation Information Governance Centre, to explore the topic of Indigenous Data Sovereignty and open data and open science. 1. Tracing COVID-19 Research Team & Collaborators
  5. 5. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Objectives The project’s objectives are to: 1. Compare official COVID-19 public health data reports to identify gaps and best practices 2. Identify and support the building of framework datasets to standardize reporting 3. Analyze data standards and protocols to support data management, interoperability and cross-jurisdictional reporting 4. Publish case-studies, resources, archives of official reporting, and a glossary 5. Rapid research by conducting expert analysis, peer review, knowledge mobilization and provide evidence-based recommendations to improve how data are reported 6. Train students to do rapid response research and develop a network of experts. 5 Research Results Datalibre @Data_Tracing Started: March, 2020 Funded by: Carleton University COVID-19 Rapid Research Response Grant
  6. 6. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Rationale • Official COVID-19 public health data are inconsistently reported, impeding comparability, and the ability to assess impact and target actions. • Data to inform the inequities experienced by Indigenous & racialized groups are inadequate as are data about people with disabilities, gender beyond the binary and some classes of labour • Lack of framework and foundational datasets upon which analysis can be made – data infrastructure • There is a lack of standards & protocols in reporting impeding interoperability • Need to rapidly report observations and critical data research to advance and frame public policy about the response 6
  7. 7. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Theoretical Framework The project is theoretically informed by: 1. Critical Data Studies • Data have social and material shaping qualities and they are never politically neutral • Data are inseparable from the people and institutions who create & own them nor from the practices, techniques, and infrastructures of their life-cycle • Data are viewed as a social and technological assemblage 2. Data & Technological Citizenship • Data & their technologies are political, and actors beyond government ought to actively be part of the deliberations of how data are created, managed and used 3. Rights-based approach to the management of data & technologies • A pandemic is a crisis, but this does not mean that rights ought to be waved in the name of efficiency, expediency and technological solutionism 7
  8. 8. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Current topic areas • Intersectional Empiricism 1. Indigenous Rights & Traditional Knowledge approaches to data 2. Critical race theory & data 3. Critical gender & feminist theory & data 4. Critical disability studies – social model of disability & data • Openness • Open science • Open government • Open data • Design & Communication 8
  9. 9. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data 9 Intersectionality and Data Visualization (Chokly & Lauriault)
  10. 10. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data What kind of demographic data are reported? (Shields & Lauriault) • Comparative analysis of the data reported on Official Federal, Provincial and Territorial Websites (Shields & Lauriault) • What kind of demographic data are reported in official COVID19 reports? • Age • sex variables • labour classifications • Indigenous, Black and Racialized People • Disability 10
  11. 11. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Disability & COVID-19 • What does a social model of disability of COVID-19 data reporting look like? (Battley, Linton & Lauriault) • What are standardized classifications? • Are official sites accessible? • What datasets are missing? Datasets on accessible accommodation and long term dwellings? • How are people with disabilities classified in CERB? ODSP? Taxation? 11
  12. 12. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data 12 Residences for people with disabilities - Megan Linton, Section of MA Thesis in Sociology Where is the typology?
  13. 13. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Open Science, Open Government & Open Data • What type of open principles should apply to COVID-19 Data and reporting? (Hunter & Lauriault) • Open by Default? • How do the principles of FAIR + RDA + OEDC + Open Science + OCAP apply to COVID-19 Data? • What principles should be applied to COVID-19 data & what is missing? • What does the COVID-19 data lifecycle look like? • How does official report fare according to these? 13
  14. 14. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data • Research Questions: • Are COVID-19 data open in Canada? • Under what licenses are COVID-19 data made available? • Are there active open data initiatives at all levels of government? And are they publishing COVID-19 Data? (Federal, Provincial, Territorial) • Methodology 1. Whether or not the information were open 2. The License under which the data are available (which determines how one can access/reuse the data) 3. Whether or not the respective province or territory has an open data mandate 4. Whether or not the respective province or territory has an open data portal • Framework • Canada’s 2018-2020 National Action Plan on Open Government, • Roadmap for Open Science, • Directive on Open Government • Model Policy on Scientific Integrity • The Open Data Charter (ODC) • FAIR Principles 14 Are COVID-19 Data Open in Canada? (Hunter & Lauriault)
  15. 15. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data • Amanda Hunter Proposed MA Thesis Research Question: • “How do the ideals of data, information and knowledge sovereignty and governance, compare with those of open science and is an Indigenous open science possible?” • Scoping work on Openness and data sovereignty with FNIGC. (Frank, Dane, Hunter, Abbot & Lauriault) 15 Open science and Open Data, Reconciliation and Sovereignty
  16. 16. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Framework Data • Framework data (Lauriault) • are a “set of continuous and fully integrated geospatial [or topical] data that provide context and reference information for the country. Framework data are expected to be widely used and generally applicable, either underpinning or enabling geospatial applications” P.7. 16
  17. 17. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data References • @Rede4BlackLives Protocol https://rede4blacklives.com/the-protocol/ • Agency and Citizenship in a Technological Society http://www.sfu.ca/~andrewf/copen5-1.pdf • Canadian Geospatial Data Infrastructure Framework Data http://ftp.geogratis.gc.ca/pub/nrcan_rncan/publications/ess_sst/288/288855/cgdi_ip_09_e.pdf • CanCOVID Speaker Series: Integrating age, sex, gender, race and other factors into COVID research https://www.youtube.com/watch?v=HbZ3IAWTJAg&pbjreload=10 • Critical Race Theory, Race Equity, and Public Health: Toward Antiracism Praxis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2837428/ • Data Feminism https://mitpress.mit.edu/books/data-feminism • Data Standards for the Identification and Monitoring of Systemic Racism https://www.ontario.ca/document/data-standards-identification-and-monitoring-systemic-racism • Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics https://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8/ • First Nation Health Councils http://fnhc.ca/ • First Nations Information Governance OCAP Principles https://fnigc.ca/ • GO-FAIR Starter Kit https://www.go-fair.org/resources/rdm-starter-kit/ • HHI The Signal Code: A Human Rights Approach to Information During Crisis https://hhi.harvard.edu/publications/signal-code-human-rights-approach-information-during- crisis • Lam, Andrew, Oct. 2020 COVID-19 Long-Term Care (LTC) Deaths in Canada https://public.tableau.com/profile/andrew.lam3968#!/vizhome/CanadaLTCCOVID- 19Deaths/LTC_Deaths_Canada • Linton, Megan, Nov. 2020, ‘Warehouses like this are not the answer’: Exposing the crisis of long-term care in Manitoba, Canadian Dimensions, https://canadiandimension.com/articles/view/warehouses-like-this-not-the-answer-exposing-crisis-long-term-care-manitoba • Nested Models for Critical Studies of Race & Racism: Creating Measures of Supraindividual Racism https://www.youtube.com/watch?v=04OZ3BFPpVg&feature=youtu.be • OECD Principles and Guidelines for Access to Research Data from Public Funding https://www.oecd.org/science/inno/open-science.htm • Open Government Canada https://open.canada.ca/en/about-open-government • Research Data Alliance (RDA) The final version of the RDA COVID-19 Recommendations and Guidelines for Data Sharing, published 30 June 2020 https://www.rd- alliance.org/group/rda-covid19-rda-covid19-omics-rda-covid19-epidemiology-rda-covid19-clinical-rda-covid19-1 • Roadmap to Open Science https://www.ic.gc.ca/eic/site/063.nsf/eng/h_97992.html • Toward a Critical Data Studies http://mural.maynoothuniversity.ie/5683/1/KitchinLauriault_CriticalDataStudies_ProgrammableCity_WorkingPaper2_SSRN-id2474112.pdf • WHO ICD International Classification of Functioning, Disability and Health (ICF) https://www.who.int/classifications/icf/en/ 17
  18. 18. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data Current Outputs • October 13, Tracing COVID-19 Data: Analysis of Open Science and Open Data standards for COVID-19 data in Canada • September 22, Presentation: Visualizing COVID Data Critically • July 20, Page Scraping & Data Management Workshop #2 with First Nation Information Governance Centre and Powered By Data • July 15, Tracing COVID-19 Data: Open Science Innovation, Open Science Article • July 14, Tracing COVID-19 Data: Visualizing Intersectionality, Intersectionality Article • July 7, OLIP Health and Wellbeing Sector Table Meeting Slides http://datalibre.ca/2020/07/03/olip-health-and-wellbeing/ • June 1, Tracing COVID-19 Data: Project Description: http://datalibre.ca/2020/06/01/tracing-covid-19-data-data-and- technological-citizenship-during-the-covid-19-pandemic/ • May 30, Applications de traçage de contacts: entre doute et inquiétude https://www.lesoleil.com/opinions/point-de- vue/applications-de-tracage-de-contacts-entre-doute-et-inquietude-ec471da8755aa3efa84afd5da47b025e • Apr. 17, COVID-19 Demographic Reporting http://datalibre.ca/2020/04/17/covid-19-demographic-reporting/ • Apr. 7, Framework Data by Health Region? http://datalibre.ca/2020/04/07/where-is-the-national-map-of-covid-19- data-by-public-health-units-in-canada/ • Mar. 31, Data Humanitarianism during a Pandemic http://datalibre.ca/2020/03/31/data-humanitarianism-during-a- pandemic/ • Mar. 25, COVID-19 Cell Phone Tracking Data – A Health Surveillance Privacy Paradox? http://datalibre.ca/2020/03/25/covid-19-cell-phone-tracking-data-a-health-surveillance-privacy-paradox/ 18
  19. 19. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data 19 Acknowledgements Carleton University Rapid Response Research Grant http://datalibre.ca/tracing-covid-19-data/ Contact Tracey.lauriault@carleton.ca Questions?
  20. 20. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data 2. Other Research 20
  21. 21. http://doi.org/10.22215/CURRRG/2020.TracingCOVID19data • 2020 Co-Applicant, Exploration Competition of the New Frontiers in Research Fund (NFRF), Imagining Canada’s Digital Twins with Carleton University PIs Stephen Fai Architecture, and Co-Applicants Tessa Hebb Distinguished Research Fellow, Alex Ramirez School of Business and Mario Santana Architectural Conservation and Sustainability Engineering • 2020 Lead researcher, Open North Open Smart City Policy Briefs, Internet of Things and Smart Home abuse with MA Student Olivia Faria, and Shared Transportation in Open Smart Cities with MA Students Donato Leone and Julie Ivanoff. • 2019 Lead Researcher, Community Equity Data Analysis, Ottawa Local Immigration Partnership Community Grant Completed • Co-Principal Investigator, NOI New Frontiers in Research Fund - Exploration 2019, Imagining Canada's Digital Twin, PI Stephen Fai, Carleton University. • 2019 Co-Applicant, Study on Shared Mobility Policy in Canada, Transportation Canada, PI Stephen Fai, Architecture, Carleton University. • 2018 – 2019 Co-Applicant, SSHRC Partnership Engage Grant, Canadian Smart Cities: An Inventory of Action, PI Pamela Robinson, School of Regional and Urban Planning, Ryerson University • 2016 – 2019 Core Project Team Collaborator, Natural Resources Canada GeoConnections Grant, Open Smart Cities, with Open North, and scholars from computers science and law at the Universities of Toronto and Ottawa, and partners from the cities of Edmonton, Guelph, Ottawa and Montreal as well the provinces of Ontario • 2018 – 2019 Co-Applicant, SSHRC Partnership Grant LOI, GeoThink 2.0 • 2016 – 2018 Collaborator, SSHRC Collaborator Insight Development Grant, Making Data Matter: analyzing the material effects of big data use in the agrifood sector, PI Kelly Bronson, Sociological and Anthropological Studies, University of Ottawa • 2016 – 2017 Co-Applicant SSHRC Connection Grant, Data Power 2017 Conference, with scholars from the universities of Carleton, Ryerson Sheffield and Leeds, PI Merlyna Lim, Communication and Media Studies, Carleton 21 Ongoing Research – Tracey P. Lauriault (https://orcid.org/0000-0003-1847-2738) • 2020 Co-Applicant, Architecture, Multidisciplinary Research Catalyst Fund (MRCF): Urban Futures: intra/inter, Carleton University. PI, Stephen Fai, Architecture, Carleton University • 2018 – 2024 Co-Applicant, SSHRC Insight Grant, Strategies for Enhancing the Financial Sustainability of Canada's Charities PI Susan Philipps, School of Public Policy and Administration, Carleton University • 2018 – 2022 Co-Applicant, SSHRC Partnership Development Grant, Mobility Control in the Digital Age: The Everyday Securing of Human, Financial and Data Mobilities, PI David Grondin, Communication, Université de Montréal • 2015Faculty of Public Affairs New Faculty Starter Grant, Carleton University