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Breakout Session:
Engaging Youth in Research
Youth today are some of the most active avid users of technology, yet digital
outreach and digital privacy still remains difficult for many healthcare providers
and researchers. So why not streamline the process by involving youth and
young adults alike? Come learn how speakers from the University of
Pennsylvania and California Adolescent Health Collaborative are using new
and on the ground research methods to engage youth users in the adoption of
data collection and how these methods are shaping the way we use tech!
Project PARTNER
(Partnering with Adolescents to Ready
The Newest Engaged Researchers)
How youth can use smartphone
technology for research
Project PARTNER
(Partnering with Adolescents to Ready The Newest Engaged Researchers)
Funders
This project was funded through a Patient-Centered Outcomes Research
Institute (PCORI) Eugene Washington PCORI Engagement Award (2984-
PHI)
Disclosure
I have no actual or potential conflict of interest in relation to this
presentation.
California Adolescent Health Collaborative
R. Eugene Lee, MAEd
§ Project Manager and Curriculum Specialist
California Adolescent Health Collaborative
§ CAHC aims to improve the wellness of youth by building capacity in
systems and seeding innovation through research.
§ Projects throughout the Bay Area and California’s Central Valley.
§ A program of the Public Health Institute
§ Offices are located in Oakland, CA
2018 CALIFORNIA ADOLESCENT HEALTH COLLABORATIVE 4
About Project PARTNER
§ Develop Advisory Boards through community-based youth serving
organization, train youth in research techniques, and engage in community
health issues.
Two Advisory Boards
§ 6 Youth Researchers/Leaders
§ 6 Adult Allies
Research Framework
§ Patient-Center Outcome Research (PCOR)
§ Clinical Effectiveness Research (CER)
§ Community-Based Participatory Research (CBPR)
§ [Process Evaluation with focus on program and curriculum design.]
Two Different Advisory Board Sites
§ Oakland, CA
§ Merced, CA
2018 CALIFORNIA ADOLESCENT HEALTH COLLABORATIVE 5
About Project PARTNER
Phase I: Research Curriculum
§ Research Basics
§ Evaluation
§ PCOR, CER, and CBPR
§ Ethics
§ Community Analysis
§ Leadership Development
§ Team Building Exercises
Phase III: Evaluate the Process
§ Create a Digital Storytelling
presentation about the process,
their experiences, and community
impacts.
Phase II: Community Health
§ Investigate Community Health
Issues
§ Prioritize Health Issues
§ Develop Research Questions
Cross-site Meetings
§ Advisory Boards travel to each
others communities and present
on their community health issues.
2018 CALIFORNIA ADOLESCENT HEALTH COLLABORATIVE 6
Youth Tech Health
Phase I: Curriculum Training and
Assessment
§ Kahoots!
§ https://kahoot.com/
§ Google Forms
§ https://www.google.com/forms/about/
2016 CALIFORNIA ADOLESCENT HEALTH COLLABORATIVE 7
Youth Tech Health
Phase II: Community Health
Investigation
§ Streetwyze
§ https://www.streetwyze.com/
2016 CALIFORNIA ADOLESCENT HEALTH COLLABORATIVE 8
Youth Tech Health
Phase III: Digital Storytelling
§ Plotagon
§ https://plotagon.com/
§ iMovie – Apple iPhone
§ https://www.apple.com/imovie/
2016 CALIFORNIA ADOLESCENT HEALTH COLLABORATIVE 9
Livingston Community Health
Advisory Board
Ana Santos
TIP Core Program Supervisor
Aspiranet
Merced, CA
About our Advisory Board – Youth Leaders
Number of Youth Leaders:
• 5 current participants, (10 participants
throughout the project)
Grade Levels: 10th-12th grade, College
Schools
• El Capitan High School
• Merced High School
• Yosemite High School
• University of California, Merced
About our Advisory Board – Adult Allies
Number of Adult Allies:
• 5 current participants, (8
participants throughout the project)
Occupations:
• Health Educators
• Community-Based Organization
Managers & Supervisors
• Peer Support Staff
Reasons for Joining PARTNER:
• “Rewarding to see youth in my
community engaged”
• “Learn from the youth”
• “Working along side youth to shed
light on current issues”
Organizations:
Planned Parenthood
All Moms Matter
Aspiranet
Curriculum Highlighted Lesson:
Quantitative and Qualitative Research Techniques
Survey Development Practice Digital Survey Development Practice
Community Health Issues
and Priority Health Issue
Leading Causes of Death in
Merced County:
• Cardiovascular Disease
• Cancer
• Injury/Violence
• Respiratory Disease
• Stroke
• Diabetes
Guest Speaker:
Kristynn Sullivan, PhD
Epidemiologist
(Specializes in Epidemiology and
Accreditation Coordination)
Merced County Department of
Public Health
Priority Health Issue of Focus:
Risky behaviors that lead to STIs
• Common Issue
• More interesting an issue to youth to
explore than the other community
health issues
• High rates in the California Central
Valley, twice as high as non-central
valley counties and just as high as
some coastal/urban counties.
• Youth Issue
• There is a lot of misinformation
among youth about STIs
• Conservative Area (thus becomes a
neglected issue)
• Stigma around accessing testing and
treatment
• Inadequate education, availability,
and cultural acceptance on condom
use.
Research Question Development
Original Research Questions:
• Education:
1. Why aren’t Merced Unified High School District students accessing sexual health services?
2. What’s the relationship between awareness of services and use of services?
3. Do students who utilize sexual health services have lower rates of STIs?
• Prevention:
How can community-based and/or youth-serving organizations get adolescents to feel confident and
comfortable to speak with their partners about sexual boundaries and condom use and
contraceptives?
• Intervention:
1. How can community-based organizations increase STI testing rates among adolescents (14-18 years
old) in their communities?
2. What percent of adolescent patients (14-18 years old) in Merced who test positive for chlamydia,
access treatment within one (1) month?
Selected Research Questions
Final Research Questions:
Education:
1. Why aren’t Merced Unified High School District students accessing sexual
health services?
2. What’s the relationship between awareness of services and use of services?
Project PARTNER
Bailey, Carter, Jennifer, Jenny, Julisa, and Wilson
Asian Health Services Advisory Board
Oakland, CA
About our Advisory Board
Number of Adult Allies: 3
• Occupations:
Medical Assistant
Volunteers
Graduate Students
• Organizations:
Asian Health Services
University of California, San Francisco
Number of Youth: 8
• Grade Levels: 10th-12th
• Schools
• Oakland High School
• Oakland Tech High School
• Castro Valley High School
• Arroyo High School
• Advisory Board Decision-Making
Process:
Fist of Five
Debates
Curriculum Highlight:
Team Building Exercises!!!
Community Health Issues
What our data said about: Stress
Health Threats:
• Family expectations
• School work
• Extracurriculars
• Relationships
• Trauma
Health Behaviors
• Substance abuse
• Eating disorders
• Self-harm
• Anxiety, anger issues, change in
personality,
• Withdrawals, thoughts of suicide
Health Outcome:
• Sickness
• Restlessness
• Exercising less
• Addictions
Prioritizing Community Health Issue
Priority Health Issue is:
Urban factors that lead to adolescent stress
• Areas of Interest:
- Excelling in school
- Maintaining Work/Deadlines
- Extra-Curricular Activity involvement
- Peer pressure to succeed
- Sleep Deprivation from
above factors
- High Expectations from
parents/guardiancies
(model minority)
Research Question Development
First Round (Initial) of Research Questions:
• How does age affect stress levels?
• To what extent did evolution contribute to our stress pronity?
• How does the environment and society affect the amount of stress
in Oakland teens?
• How does the bridging generational gap between parents and
teenagers affect stress?
Research Question Development
Final Research Question:
• How does stress from parental expectations on academic success
lead to suicidal thoughts in second generation Asian-American
youth (ages 13 to 18 years old) in the Bay Area?
R. Eugene Lee
California Adolescent
Health Collaborative
Robert.Lee@phi.org
Anna Santos
Aspiranet
asantos@aspiranet.org
Krystal Win
Asian Health Services
kwin@ahschc.org
Denise Lee
Asian Health Services
dlee@ahschc.org

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Project PARTNER (Partnering with Adolescents to Ready The Newest Engaged Researcher): How youth can use smartphone technology for research.

  • 1. Breakout Session: Engaging Youth in Research Youth today are some of the most active avid users of technology, yet digital outreach and digital privacy still remains difficult for many healthcare providers and researchers. So why not streamline the process by involving youth and young adults alike? Come learn how speakers from the University of Pennsylvania and California Adolescent Health Collaborative are using new and on the ground research methods to engage youth users in the adoption of data collection and how these methods are shaping the way we use tech!
  • 2. Project PARTNER (Partnering with Adolescents to Ready The Newest Engaged Researchers) How youth can use smartphone technology for research
  • 3. Project PARTNER (Partnering with Adolescents to Ready The Newest Engaged Researchers) Funders This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (2984- PHI) Disclosure I have no actual or potential conflict of interest in relation to this presentation.
  • 4. California Adolescent Health Collaborative R. Eugene Lee, MAEd § Project Manager and Curriculum Specialist California Adolescent Health Collaborative § CAHC aims to improve the wellness of youth by building capacity in systems and seeding innovation through research. § Projects throughout the Bay Area and California’s Central Valley. § A program of the Public Health Institute § Offices are located in Oakland, CA 2018 CALIFORNIA ADOLESCENT HEALTH COLLABORATIVE 4
  • 5. About Project PARTNER § Develop Advisory Boards through community-based youth serving organization, train youth in research techniques, and engage in community health issues. Two Advisory Boards § 6 Youth Researchers/Leaders § 6 Adult Allies Research Framework § Patient-Center Outcome Research (PCOR) § Clinical Effectiveness Research (CER) § Community-Based Participatory Research (CBPR) § [Process Evaluation with focus on program and curriculum design.] Two Different Advisory Board Sites § Oakland, CA § Merced, CA 2018 CALIFORNIA ADOLESCENT HEALTH COLLABORATIVE 5
  • 6. About Project PARTNER Phase I: Research Curriculum § Research Basics § Evaluation § PCOR, CER, and CBPR § Ethics § Community Analysis § Leadership Development § Team Building Exercises Phase III: Evaluate the Process § Create a Digital Storytelling presentation about the process, their experiences, and community impacts. Phase II: Community Health § Investigate Community Health Issues § Prioritize Health Issues § Develop Research Questions Cross-site Meetings § Advisory Boards travel to each others communities and present on their community health issues. 2018 CALIFORNIA ADOLESCENT HEALTH COLLABORATIVE 6
  • 7. Youth Tech Health Phase I: Curriculum Training and Assessment § Kahoots! § https://kahoot.com/ § Google Forms § https://www.google.com/forms/about/ 2016 CALIFORNIA ADOLESCENT HEALTH COLLABORATIVE 7
  • 8. Youth Tech Health Phase II: Community Health Investigation § Streetwyze § https://www.streetwyze.com/ 2016 CALIFORNIA ADOLESCENT HEALTH COLLABORATIVE 8
  • 9. Youth Tech Health Phase III: Digital Storytelling § Plotagon § https://plotagon.com/ § iMovie – Apple iPhone § https://www.apple.com/imovie/ 2016 CALIFORNIA ADOLESCENT HEALTH COLLABORATIVE 9
  • 10. Livingston Community Health Advisory Board Ana Santos TIP Core Program Supervisor Aspiranet Merced, CA
  • 11. About our Advisory Board – Youth Leaders Number of Youth Leaders: • 5 current participants, (10 participants throughout the project) Grade Levels: 10th-12th grade, College Schools • El Capitan High School • Merced High School • Yosemite High School • University of California, Merced
  • 12. About our Advisory Board – Adult Allies Number of Adult Allies: • 5 current participants, (8 participants throughout the project) Occupations: • Health Educators • Community-Based Organization Managers & Supervisors • Peer Support Staff Reasons for Joining PARTNER: • “Rewarding to see youth in my community engaged” • “Learn from the youth” • “Working along side youth to shed light on current issues” Organizations: Planned Parenthood All Moms Matter Aspiranet
  • 13. Curriculum Highlighted Lesson: Quantitative and Qualitative Research Techniques Survey Development Practice Digital Survey Development Practice
  • 14. Community Health Issues and Priority Health Issue Leading Causes of Death in Merced County: • Cardiovascular Disease • Cancer • Injury/Violence • Respiratory Disease • Stroke • Diabetes Guest Speaker: Kristynn Sullivan, PhD Epidemiologist (Specializes in Epidemiology and Accreditation Coordination) Merced County Department of Public Health Priority Health Issue of Focus: Risky behaviors that lead to STIs • Common Issue • More interesting an issue to youth to explore than the other community health issues • High rates in the California Central Valley, twice as high as non-central valley counties and just as high as some coastal/urban counties. • Youth Issue • There is a lot of misinformation among youth about STIs • Conservative Area (thus becomes a neglected issue) • Stigma around accessing testing and treatment • Inadequate education, availability, and cultural acceptance on condom use.
  • 15. Research Question Development Original Research Questions: • Education: 1. Why aren’t Merced Unified High School District students accessing sexual health services? 2. What’s the relationship between awareness of services and use of services? 3. Do students who utilize sexual health services have lower rates of STIs? • Prevention: How can community-based and/or youth-serving organizations get adolescents to feel confident and comfortable to speak with their partners about sexual boundaries and condom use and contraceptives? • Intervention: 1. How can community-based organizations increase STI testing rates among adolescents (14-18 years old) in their communities? 2. What percent of adolescent patients (14-18 years old) in Merced who test positive for chlamydia, access treatment within one (1) month?
  • 16. Selected Research Questions Final Research Questions: Education: 1. Why aren’t Merced Unified High School District students accessing sexual health services? 2. What’s the relationship between awareness of services and use of services?
  • 17. Project PARTNER Bailey, Carter, Jennifer, Jenny, Julisa, and Wilson Asian Health Services Advisory Board Oakland, CA
  • 18. About our Advisory Board Number of Adult Allies: 3 • Occupations: Medical Assistant Volunteers Graduate Students • Organizations: Asian Health Services University of California, San Francisco Number of Youth: 8 • Grade Levels: 10th-12th • Schools • Oakland High School • Oakland Tech High School • Castro Valley High School • Arroyo High School • Advisory Board Decision-Making Process: Fist of Five Debates
  • 20. Community Health Issues What our data said about: Stress Health Threats: • Family expectations • School work • Extracurriculars • Relationships • Trauma Health Behaviors • Substance abuse • Eating disorders • Self-harm • Anxiety, anger issues, change in personality, • Withdrawals, thoughts of suicide Health Outcome: • Sickness • Restlessness • Exercising less • Addictions
  • 21. Prioritizing Community Health Issue Priority Health Issue is: Urban factors that lead to adolescent stress • Areas of Interest: - Excelling in school - Maintaining Work/Deadlines - Extra-Curricular Activity involvement - Peer pressure to succeed - Sleep Deprivation from above factors - High Expectations from parents/guardiancies (model minority)
  • 22. Research Question Development First Round (Initial) of Research Questions: • How does age affect stress levels? • To what extent did evolution contribute to our stress pronity? • How does the environment and society affect the amount of stress in Oakland teens? • How does the bridging generational gap between parents and teenagers affect stress?
  • 23. Research Question Development Final Research Question: • How does stress from parental expectations on academic success lead to suicidal thoughts in second generation Asian-American youth (ages 13 to 18 years old) in the Bay Area?
  • 24.
  • 25. R. Eugene Lee California Adolescent Health Collaborative Robert.Lee@phi.org Anna Santos Aspiranet asantos@aspiranet.org Krystal Win Asian Health Services kwin@ahschc.org Denise Lee Asian Health Services dlee@ahschc.org