3. HFH ACUTE HOSPITAL NETWORK
29 MAY 2018
IHF UPDATES
Marie Lynch
Head of Healthcare Programmes
4. The Hospice Friendly Hospitals Programme seeks to ensure that end of
life, palliative and bereavement care are central to the everyday
business of hospitals.
The HFH Programme supports individual hospitals, hospital groups
and the HSE.
Supporting hospitals through the HFH Programme
7. HFH Timeline:
HFH Key Milestones
2005-2006 2007 2007-2013 2009-2013 2014 2016 2017
Joint IHF &
HSE pilot in
Our Lady of
Lourdes
Hospital,
Drogheda
HFH
Programm
e
Launched
12.5 End-of-
Life Care
Development
Coordinators
recruited to
support
national
rollout
Acute,
Community
and
Maternity
Networks
established
40 Hospitals
were linked to
HFH
programme
and 4 acute
hospitals
directly
employed
EOLC
Coordinators
47 Hospitals
are now linked
to HFH
programme
and 7 acute
hospitals/
hospital
groups directly
employ EOLC
Coordinators
• Joint HFH and
HSE Oversight
Group is being
established to
support the
embedding of the
HFH programme
within HSE
Structures.
• EOLC appointed
in Tallaght
• 10 Year
Anniversary
8. CEO
Sharon Foley
&
Head of healthcare
Marie Lynch
Education team
Breffni, Bryan,
Sharon
HFH development/
outreach coordinator
Joanne
Brennan
Georgina
Buffini/
Alice Anderson
(Mat Leave)
Admin Support
Bronagh Curran
D & D project
manager
Mary
Lovegrove
Prof Cillian
Twomey
Chair of HSE
HFH Oversight
Committee
HSE Acute
Hospital Division
Ciaran
Browne &
Kathy
Keenan
9. 06/07/18 Presentation Title goes here 9
47 Hospitals linked to the HFH Programme
Saolta
RCSI
IE
RCSI Hospitals Groups
Rotunda Hospital, Dublin
Beaumont Hospital
Connolly Hospital, Blanchardstown
Cavan General Hospital
Louth County Hospital, Dundalk
Our Lady of Lourdes Hospital, Drogheda
Saolta University Health Care Group
University Hospital Galway and Merlin Park
Letterkenny General Hospital
Sligo Regional Hospital
Mayo General Hospital
Roscommon County Hospital
Portiuncula Hospital, Ballinasloe
Ireland East Hospitals Group
Mater Misericordiae University Hospital
National Maternity Hospital, Holles St
Midland Regional Hospital Mullingar
St Luke's General Hospital, Kilkenny
Wexford General Hospital
Our Lady's Hospital, Navan
St Columcilles Hospital
South / South West Hospital Group
Cork University Hospital
Cork University Maternity Hospital
Bantry General Hospital
Mallow General Hospital
South Victoria University Hospital
Mercy University Hospital
South Tipperary General Hospital
Kerry General Hospital
University Hospital Waterford
S / SW
Dublin Midlands Hospital Group
St James's Hospital
Tallaght Hospital
The Coombe Women and Infant University Hospital
Naas General Hospital
Midland Regional Hospital, Portlaoise
Tullamore Hospital
DM
University of Limerick Hospitals Group
University Hospital, Limerick
University Maternity Hospital, Limerick
Nenagh Hospital
Ennis Hospital
St John’s Hospital
UL
Mar 2018
Children’s Hospitals
Our Lady's Children's Hospital, Crumlin
Templet St Children’s University Hospital
Private Hospitals
Mater Private Hospital
The Galway Clinic
Bons Secours Hospital, Dublin
The Beacon Hospital, Dublin
The Hermitage Medical Clinic
5
2
5 5
4
2
9
3
1
10. End-of-Life Care Coordinators Mar 2017
Hospital Group Location of Coordinator WTE Post created in:
1 Ireland East Mater Hospital (Diarmuid Ó Coimin) 1.0 WTE 2010
2 Dublin Midlands St James’s Hospital (Bettina Korn) 1.0 WTE 2011
3 Dublin Midlands Tallaght Hospital –(Ann Hickey) 1.0 WTE 2017
4 Saolta
Sligo Regional Hospital
(Ann Hayes)
1.0 WTE 2015
5 RCSI Connolly Hospital (Debby Gregg)
0.25
WTE
2008
6 RCSI Beaumont Hospital (Gill Rufli)
0.50
WTE
2013
7 South/South West Serving all hospitals in the group (Post Vacant) 1.0 WTE 2015
8 University of Limerick Serving all hospitals in the group (Denis Casey) 1.0 WTE 2011
12. HFH 2018
• Outreach
• Proactive support EOLC committees
• Small grants announcement – July
2018
• Strategic
• Link with Oversight
• D & D
• Long term vision
• Business case
• EOLC coordinators
• Evidence based approach
• Metric session
• Engagement
• Networks
• Repository – change HUB
13. HSE Change HUB
• Existing end of life care themes
• Opportunity to demonstrate work and share
• Case studies
14. Using the HFH network
• GDPR
• What suggestions have you to improve the HFH network
• What topics would you like
• Patient Engagement
• Maternity and child
17. Current work of Oversight Group
Education/Training
•Sub-group formed Jan 2018
•Chaired by Patricia Blunden
HSE Change Management Resources
•First Meeting Feb 20 2018
•Time Frame – 10 Months
•Review of “Final Journeys” training
course
•Identification of additional delivery
platforms (eg Change Hub, HSE
Induction)
•Work with National Occupational
Health Clinical Lead on staff self-
care
18. Current work of Oversight Group
Care delivered at End-of-Life
• Sub-group formed July 2017
• Chaired by Margaret McKiernan
• Developing national standard
patient/carer literature on the
death and bereavement process
• Consultation process 12 Feb –
12 March- 50 responses received
• Finalised in the summer
• Other patient booklets for consideration:
• Post Mortem process
• Receiving diagnosis of life
• Update HSE Bereavement
How can we reduce the variability in care
delivery at end of life across hospitals ?
19. Mapping HFH with HSE QI framework
Support QI End Of Life initiatives
in Hospitals
National Approach to QI within HFH
20. Experience in ED
Communications re treatment
Emotional support
Discharge planning
Involvement in treatment
decisions
Physical discomfort
Conversations with HIQA to
introduce a national
bereaved relatives survey –
building on Voices MaJam
22. Enhancing bereavement care in
Ireland: Feasibility Study
HFH Acute Hospital Network Meeting
29th
May 2018
Dr Amanda Roberts
Bereavement Development Officer
23. Enhancing bereavement care in Ireland: Feasibility
Study
BACKGROUND TO THE STUDY
•National Bereavement Fora held in 2016 & 2017
• Attended by organisations and people involved in the provision of
bereavement care
• Fora attendees agreed:
1. A need for bereavement care to become a national priority at
government level
2. Agree and plan for a collective strategic approach to
bereavement care in Ireland
3. The next step in this process – commission a feasibility study to
enhance bereavement care in Ireland
More info: email amanda.roberts@hospicefoundation.ie
24. Enhancing bereavement care in Ireland: Feasibility
Study
THE STUDY
•Study commissioned by the IHF and conducted by an independent
researcher
•Overseen by a Project Advisory Committee (PAC) which included
stakeholders involved in the provision of bereavement care in Ireland
•Study aims:
1. Establish the vision for a national approach to bereavement care in Ireland
2. Develop an implementation framework for enhancing bereavement care in
Ireland
More info: email
amanda.roberts@hospicefoundation.ie
25. Enhancing bereavement care in Ireland: Feasibility
Study
SOME IDENTIFIED PRIORITES
•The development of a framework, standards and guidance documents
for bereavement care in Ireland
•Signposting of services and a bereavement resource website
•Public awareness campaign with a focus on normal responses to bereavement
•Mapping of bereavement services locally
•Lobby professional bodies e.g competency training
•Advocate and lobby on bereavement related issues
More info: email
amanda.roberts@hospicefoundation.ie
26. Enhancing bereavement care in Ireland:
Feasibility Study
THE NEXT STEP
Forum for individuals and organisations with a focus or interest in
bereavement care
The findings of the feasibility study will be presented at this year’s Forum and
attendees will be given the opportunity to engage in developing and agreeing
a common approach.
Attendees will also have the opportunity to hear from a number of speakers
who have been involved in some recent developments in bereavement care
in Ireland.
More info: email
amanda.roberts@hospicefoundation.ie
28. How We are Funded
We rely upon voluntary support to keep our programmes and services working
across Ireland.
95% of our income comes from our donors, philanthropic benefactors,
sponsors, corporates, event participants and committee members.
5% of our income comes from statutory sources and these funds began in 2015.
Our heartfelt thanks to everyone that has joined us. Your
generosity helps us achieve meaningful impact for so many
people.
To donate, receive news about our events or to get involved please
see: hospicefoundation.ie or call the fundraising team on 01
679 3188
Notes de l'éditeur
Welcome background to those here for first time
Context of HFH within HC programmes and Where people die
What people die from
This is how we describe the HFH programme
Supported via HFH dev officer – Alice, and education team, Mary from D and D and CEO / Sen management
21 Hospitals represented here today
Congrats to Tallaght
Last meeting in March
AHCD session
Patient Engagement
Met with CEO of HIQA to recommend next NPES would refer more explicitly to end of life and he indicated his interest in themed inspection.
Report launch 15 DEC –
5 diagnosis categories
Patient involvement
Quality improvement
Compassion
Bereavement
Staff support
Metrics and measures