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New model of information systems and Electronic Health Records in Catalonia
1. 1
Developing a new model of
information systems and
Electronic Health Records in
Catalonia
Dr Josep Vidal-Alaball. Head of the Central Catalonia Primary Care
Innovation and Research Unit
2. 2
Table of contents
Catalonia. Catalan Health System
Catalan Digital Health Platform
Performing during the pandemic
Digital Health Strategy Plan
4. 4
Catalan Health System
> 160
Health care entities to
provide health care
Universal coverage
The publicly health care system of Catalonia
was founded in 1990 under the principle of
universality; so all individuals and
communities are able to receive the health
services.
Mixed health care model
Integrates into a single public network of
public use all health resources, whether or not
they are publicly owned.
Includes entities historically dedicated to
health care: mutual societies, foundations,
health consortiums, red cross, church
centers…
10,000 M€
Catalan Health Service budget for
2020. The system is funded from
general taxation and government
founds and contributions.
More than 1 in 4 people in
Catalonia have an additional
private health insurance
5. 5
Catalan Health System
>16,000
Applications across the Catalan Health System:
1 EHR for primary care.
> 29 EHR products in the Intermediate care
At least 10 different systems for social care
940
Facilities that range from primary health
care centres to hospitals and
intermediate care centres.
8. 8
Huge heterogeneity of data models
• 71 hospitals and 29 different vendor products
• Each tertiary hospital has around 800 silos of information
• Each secondary hospital has around 400 silos of information
• Probably there are more than 16k silos of patient related
biggest source (and growing fast due to digital health solutions)
• Huge heterogeneity of proprietary data models
Catalan Digital Health Platforms
11. 11
Catalan Digital Health Platforms. Limitations:
Broad ecosystem of
applications with buried
and data models.
Old-fashioned solutions
and a dramatic increase in
technical debt.
Communication
between service providers and
the NHS through static and
incoherent interoperability
solutions.
High costs for maintenance,
corrective and evolutionary
development.
Difficulties to scale-up
innovations and best practices.
Rigid model that does not
foster adaptation to change.
12. 12
Despite complexity: GOOD performance of the Platforms
• Quick shift to Telemedicine
• eConsultation
• My Health App
• Teleworking / remote working
• Paperless
Not so well:
• Videoconferences
• Nursing homes
• Public Health (but SIVIC project)
Performing during the pandemic
14. 14
• eConsulta is an asynchronous teleconsultation service between citizens and health care
professionals
• The service was introduced in 2015 and was phased in gradually until 2017, when it
became established as a service available to all Primary Care Teams.
• Initially for Family Physicians, can now also be used by pediatricians, midwives, and
nurses.
• Recently introduced in hospitals (Consultants).
• It is as part of the electronic health care records of the public healthcare system of
Catalonia.
Performing during the pandemic: eConsultations
15. 15
• From the patient’s point of view, eConsulta is one of the services offered in their
Personal Health Folder, a personal digital space that provides access to personal
access to personal health information, allowing them to make enquiries and perform
specific actions.
• Following a secure authentication process, patients can access an interface that
allows them to submit their query and attach files, if necessary.
• The portal can be customized and keeps a record of previous teleconsultations.
Performing during the pandemic: eConsultations
18. 18
• COVID-19 has led to a significant increase in the use by citizens and health care
professionals.
• Number of e-consultations per 1,000 inhabitants has increased from 5.61 before
pandemic to 33.10 after.
• Currently: 13,000,000 consultations (100.000/week), 20,000 professionals and more
than 2,000,000 citizens
• It has been a great tool in the fight against the virus, enabling citizens to receive remote
assistance (ie, sick leave), updating of electronic prescription plans or monitoring oral
anticoagulant use, among others.
Performing during the pandemic: eConsultations
21. 21
• Consolidate a person-centred model of
information systems that enables
clinical and managerial decision-
making across the care cycle.
• Establish a governance model of
information systems with a solid
community support while ensuring care
continuity.
• Set out a financing framework to
ensure implementation and
sustainability over time
• Create environments and opportunities
to design and implement innovative
person-centred ICT-based care
services.
• Set out an ambitious roadmap, yet
realistic, which will allow a long-lasting,
successful and safe implementation of
the new model
Digital Health Strategy Plan. Goals:
23. 23
• AIM: to transfer core services, data and capabilities to a new paradigm based
on a knowledge-driven platform, within a service infrastructure and a
modern application development environment.
• We are building an INFOSTRUCTURE
• We will decouple data from applications, storing data in an open format
• This will enable data to follow the patient
Digital Health Strategy Plan
24. 24
The aim of such a platform is to allow health professionals to structurally
represent their knowledge with a longitudinal vision. This representation
becomes requirements for software development (transactional and
informational) in an automated manner
Knowledge-driven platform
• Separate semantic definitions from software and
databases
• Define a method of formal and explicit
representation of this semantics
• Be focused on the requirements of representation in
the field of Health
• Have tools that give autonomy to "knowledge
specialists" in the management of semantic
definitions
• Provide tools that allow the translation of this formal
semantics, highly complex, into software solutions
25. 25
• The longitudinal Electronic Health Record (EHR) for all the Catalan Health System is the main
piece of the Strategic Plan.
• Represents the functional and technical repository of all the information of citizens that need to
be registered and shared throughout the health system.
• It is not just, or mainly, a technological update, but a model for data management and an
architecture of information systems that corresponds to and anticipates the changes that are
taking place in the healthcare model in:
citizen's relations with the healthcare system
work processes
relations between the professionals themselves
A unique Electronic Health Record
26. 26
Some functionalities:
1. Transactional capacity. The system could serve, at the same time, as
an ordinary medical record history system for organizations that cannot
afford to maintain and/or upgrade their current system.
2. Communication tool. Professionals interacting via the EHR must be
able to interact regardless of their profile, both among themselves and
with citizens.
3. Integration of the citizen’s personal data. When a professional deems
appropriate, viewing and integration of the data collected by the citizen
must be allowed either through the personal health folder or telehealth
and mobility health applications.
4. Integration of information from other healthcare systems.
A unique Electronic Health Record
27. 27
Some functionalities:
5. Service layer (API). Different APIs for accessing the information
contained in the unique data model should be developed. In this way,
professionals, service providing entities, and industry can develop
innovative services around the EHR.
6. Integration of information given by the patient about
complementary therapies not included in the Catalan Health Service
7. Advanced search system. A semantic system is required to easily find
information about a citizen or other fields or literal expressions within the
EHR.
8. Analytical repository of data. Available to providers to facilitate the
analysis of large amounts of data with reduced response times.
A unique Electronic Health Record
28. 28
Already a new viewer for the Shared Electronic Health Records
A unique Electronic Health Record
30. 30
New semantic search system
A unique Electronic Health Record
• More agile
• Predictive search: as
you type it shows the
results as you type.
• Tolerant of spelling
mistakes.
• Search in different
languages.
• Search by particles
(results independent
of order).
• Sorted by frequency.
31. 31
Big Data processing and analytics:
• A data repository with analytical objectives is part of the EHR.
• This warehouse incorporates:
Data from healthcare processes and resources
Data from different types of devices (medical technology or patients’
External data from other sources of health information, both from
health, social services, justice, or education, among others) and from
networks, public records, and, in general, open data) and in different
sensors, etc.).
• The model is a combination of concepts and technologies from the Data
that will include a wide variety of processes and analytical tools.
Innovation and Digital Transformation
32. 32
Telehealth and Mobility:
• The use of these technologies should contribute to the evolution of the
healthcare model towards a more preventive and more personalized
model.
• These technologies must serve to establish new models of care and
communication channels between professionals and citizens
• Citizens must be offered the possibility of interacting with the healthcare
system remotely, to the greatest extent possible, and preferably from
their cell phone as this is the most widespread technology and it can
easily replace other remote care tools.
• The implementation of these technologies must be universal
Innovation and Digital Transformation
33. 33
Artificial Intelligence:
• AI is considered complementary and not a substitute for the work of
different health professionals to increase the value, quality, and safety of
healthcare practice.
• AI is based on the construction of information-based products and
services, such as assistants for speech or writing recognition, diagnostic
assistance, proposing or recommending treatments, responding to
consultations through natural language, recognizing patents and
predictions of behavior, or automating control and resource planning.
Innovation and Digital Transformation
35. 35
The Internet of Things:
• The Plan proposes IoT to be a new source of data with great future
growth.
• There are numerous IoT applications in the healthcare field.
scenarios where data on assets and infrastructure are collected within
hospitals or mobile elements (ambulances, hospital beds, people)
scenarios where the data collected is from patients (sensors in
hospitals, at home, while moving about, etc.).
• Depending on the type of data collected, there will be different
technological, security, ethical, and legal implications.
Innovation and Digital Transformation
37. 37
Views for the future:
• This will foster better integration and collaboration
• It will help scaling-up innovations
• We believe the key point is establishing a strong data governance
and industry
• We know this won’t be easy but political commitment helps!
Digital Health Strategy Plan
38. 38
Jordi Piera Jimenez and Oscar Solans Fernandez
Digital Health Strategy Office and eHealth Office.
Catalan Department of Health
For the provision of information and slides
Special thanks to
First I will talk briefly about the Catalan health system,
then about the current platform and how it performed during the pandemic
and finally I will introduce the new model of digitalisation of the health system within the digital health plan.
Catalonia, is located in the northeast Spain and with a population of 7.7 million habitants
Catalonia has a health care system that provides publicly financed universal health coverage free at the point of access for everyone who lives in Catalonia.
It is a mixed health care model funded with taxes that grants equal access to a wide range of benefits offered by a single publicly available network of health care resources, not all of which are publicly owned.
The network also includes a range of health care organizations (eg, mutual societies, public and private foundations, health consortiums) that have historically provided health care services.
More than one in four people in Catalonia have an additional private health insurance, which does not make them lose their right to public health care.
Health care facilities comprise from small primary care centres to big complex hospitals
Currently there is a single EHR for primary care but 29 different EHR products in the intermediate care hospitals and at least 10 different systems for social care records.
Here is a schematic representation of this health information system
And here is a historical perspective on how the current system developed.
Starting first with EHRs in hospitals and primary care centres in the late 80s.
Continuing in the early 2000s with electronic prescribing and shared health records.
to the citizen's personal health record and remote consultations.
While there is a common EHR in primary care, this is not the case in hospitals where there is a great heteronicity of models and information is dispersed in many silos.
For this reason, a shared electronic health record was developed.
This has made it possible to share information between the various health care providers.
Some information has been shared in a structured way, such as medical images, laboratory results, vaccinations, medication, diagnoses, but others, such as clinical notes, have not.
This system, used for more than 30 years, has its limitations.
1- Too many different models
2- Difficulties in communication between the different suppliers.
3- High maintenance costs
4- Ageing of the system
5- Difficulties in implementing innovations.
6- Rigid and difficult to adapt model
The system enabled a rapid move to telemedicine during the pandemic.
Applications that were already developed, such as e-consultation or the Personal Health Folder application, allowed patients to remain in contact with primary care centres during the pandemic.
It also allowed many health professionals to telework.
It also made it possible to stop using paper for drug prescriptions and sick notes.
Now we have just implemented the SIVIC project which is an innovative project at national level and in which we have 30 sentinel primary care teams that are collecting 20 samples from 330 patients with upper respiratory infections and where 20 different types of viruses are analysed (multiplex). The whole process is integrated with Public Health and samples are also being collected in a representation of Hospital centres (here severe upper respiratory tract infections are collected).
Nursing Homes has implemented the primary care clinical station in more than 700 nursing homes and we are now working on a model of integration in the Shared Electronic Health Record of all of them.
This graph reflects the huge change in the type of visits that occurred during the first months of the pandemic.
Face-to-face visits were drastically reduced and telephone visits and econsultations were introduced.
Whats is the econsulta?
Itis an asynchronous teleconsultation service between citizens and health care professionals
The service was introduced in 2015 and was phased in gradually until 2017, when it became established as a service available to all Primary Care Teams.
Initially for Family Physicians, can now also be used by pediatricians, midwives, and nurses.
Recently introduced in hospitals (Consultants).
It is as part of the electronic health care records of the public healthcare system of Catalonia
eConsulta is one of the services offered in their Personal Health Folder, a personal digital space that provides access to personal health information, allowing them to make enquiries and perform specific actions
Here we can see a picture of the personal health folder App and how to access the econsults.
Here is an image of how patients and health professionals see the practice portal.
And as I said, eConsultation has been used massively during the pandemic.
The number of consultations per 1000 inhabitants has multiplied by 6 and currently there are more than 100,000 consultations per week and it is used by more than 20,000 professionals and more than 2 million people in Catalonia.
This graph shows the dramatic increase of this asynchronous telemedicine tool.
But even before the pandemic, it was decided that it was time to update all these health information systems.
With this in mind, the Catalan Information Systems Master Plan was drawn up
This plan has several goals:
To Consolidate a person-centred model of information systems that enables clinical and managerial decision-making across the care cycle.
To Establish a governance model of information systems.
To Set out a financing framework to ensure implementation and sustainability over time
To Create environments and opportunities to design and implement innovative person-centred ICT-based care services.
To Set out an ambitious roadmap, which will allow a long-lasting, successful and safe implementation of the new model
This is a picture of what the current system looks like and what it will look like under the new plan.
The AIM of the plan is to transfer of core services, data and capabilities to a new knowledge-driven platform,
We want to built an INFOSTRUCTURE which is The technical infrastructure supporting an information system.
The new integrated longitudinal EHR, that will include data from primary, community, mental, social and hospital care, is the main piece of the Plan and represents a functional and technical repository of all the information collected from citizens that must be registered and shared throughout the health system.
It is not just, or mainly, a technological update, but a model for data management and an architecture of information systems that corresponds to and anticipates the changes that are taking place in the healthcare model.
The new EHR will be able to decouple data from applications, storing data in an open format.
This will enable data to follow the patient and will foster better integration and collaboration, helping scaling-up innovations and promoting personalised medicine.
It is called a Knowledge-driven platform because wants to allow health professionals to structurally represent their knowledge with a longitudinal vision
The longitudinal Electronic Health Record for all the Catalan Health System is the main piece of the Strategic Plan.
And this It is not just, a technological update, but a model for data management
Some functionalities of the EHR are:
Transactional capacity. The system could serve, at the same time, as an ordinary medical record history system for organizations that cannot afford to maintain and/or upgrade their current system.
Communication tool. Professionals interacting via the EHR must be able to interact regardless of their profile, both among themselves and with citizens.
Integration of the citizen’s personal data. When a professional deems appropriate, viewing and integration of the data collected by the citizen must be allowed either through the personal health folder or telehealth and mobility health applications.
Integration of information from other healthcare systems.
Service layer (API). Different APIs for accessing the information contained in the unique data model should be developed. In this way, professionals, service providing entities, and industry can develop innovative services around the EHR.
Integration of information given by the patient about complementary therapies not included in the Catalan Health Service
Advanced search system. A semantic system is required to easily find information about a citizen or other fields or literal expressions within the EHR.
Analytical repository of data. Available to providers to facilitate the analysis of large amounts of data with reduced response times.
Some of these changes are already being implemented at the moment like the new viewer for the Shared Electronic Health Records
This Shared Electronic Health Record incorporates an specific section for chronicity, with useful tools like the results of several cognitive, social and functional scales or a fragility index
The new EHR already incorporates a semantic search system: more agile, more tolerant with spelling mistakes and adapted to predictive search and to different languages.
The plan will lead to Innovation and digital transformation and will incorporate tools such as
Big Data processing and analytics with A data repository with analytical objectives being part of the HER
Data will be incorporated from healthcare processes,
from different types of devices (medical technology or patients’ own devices)
And from other sources of health information, both from public administrations and from open networks
and in different formats (image, audio, text, sensors, etc.).
The plan will incorporate other tools such as Telehealth to contribute to the evolution of the healthcare model towards a more preventive and more personalized model.
These technologies must serve to establish new models of care and communication channels between professionals and citizens
Citizens must be offered the possibility of interacting with the healthcare system remotely, preferably from their cell phone.
The implementation of these technologies must be universal without neglecting any segment of the population
The plan will incorporate other tools such as Artificial Intelligence that it is considered complementary and not a substitute for the work of different health professionals to increase the value, quality, and safety of healthcare practice
Some user cases for AI are:
The Plan proposes The Internet of Thingsto be a new source of data with great future growth
Some user cases IoT are:
We believe the plan will foster better integration and collaboration and It will help scaling-up innovations
We believe the key point is establishing a strong data governance involving clinicians and industry
We know this won’t be easy as changing a health information system while it is in use is like painting a submarine while it is submerged. but political commitment helps!