Talk given to leaders from Lancashire's Third Sector and Local Authority on the meaning of personalisation and the challenges for properly engaging civil society.

1. Personalisation
& the Third Sector
Dr Simon Duffy ￭ The Centre for Welfare Reform ￭ Third
Sector Lancashire ￭ Chorley ￭ 9th May 2012

2. Simon Duffy of The Centre for Welfare Reform
• In 1990 began work with people with learning
difficulties to help shift power and control over
the money to them and their families
• Invented Individual (personal) Budgets and
Self-Directed Support in Scotland
• In 1996 began Inclusion Glasgow, and In
Control in 2003 to test and develop these ideas
• In 2009 began The Centre for Welfare Reform

3. The welfare state is
a good thing
it’s just designed wrong

4. Professional Gift Model
• No entitlements - help
provided as a ‘gift’ not a right
• No freedom - solutions dictated
by professionals/commissioners
• No community - taken for
granted or excluded
• No partnership - services not
accountable to people

5. People were not free...
...people were not really included.

6. The Spectrum of Services
£200,000
£150,000
£100,000
£50,000
£0
Specialist Placements 24 Individual Support
Group Homes Specialist Day Services
Residential Colleges Nursing Homes
Residential Homes Individual Day Supports
Day Services Adult Placements
Outreach Supports Domicilary Care
Residential Respite

7. Numbers using services
400
320
240
160
80
0
Specialist Placements 24 Individual Support
Group Homes Specialist Day Services
Residential Colleges Nursing Homes
Residential Homes Individual Day Supports
Day Services Adult Placements
Outreach Supports Domicilary Care
Residential Respite

8. Expenditure
£15,000,000
£11,250,000
£7,500,000
£3,750,000
£0
Specialist Placements 24 Individual Support
Group Homes Specialist Day Services
Residential Colleges Nursing Homes
Residential Homes Individual Day Supports
Day Services Adult Placements
Outreach Supports Domicilary Care
Residential Respite

9. The balance
8%
92%
Segregated Services
Community Services

10. The current
system doesn’t
make sense
It spends our
money for us, on
things we wouldn’t
buy for ourselves

11. Citizenship Model
• Clear entitlements -
my rights as a citizen
• Freedom - I am an
expert in my needs
• Community - I can
play my full part
• Partnership - I am
equal to professionals

12. This is not an easy transformation...

13. Personalisation involves big changes

14. In England Personalisation is a
mixture of helpful reform, rhetorical
bluster and unresolved policy-making.
In communities its value depends
upon the vision and understanding of
leadership - at every level - not just
the so-called ‘top’.
Lancashire has a good head start.

15. Some practical suggestions
1.Develop personalised support
2.Use Individual Service Funds (ISFs)
3.Provide community brokerage
4.Enable peer support
5.Think beyond adult social care
6.Challenge ‘procurement’
7.Build bridges, lobby and campaign

16. 1. Personalised Support
Direct payments and
employing your own
staff is brilliant for
some people...
...but many people
want support that
fits them, without all
that extra hassle

18. Individualise:
• My life - designed
• My staff - right people
• My rights - in control
• My rules - safe
• My money - protected

19. 2. Individual Service Fund

20. Individual Service Fund
a model with many applications...

21. Providers as...
• Planners - lead thinking
• Innovators - flexibility
• Connectors - in community
• Agents - safeguarding
• Rationers - real expertise

22. 3. Community brokerage

23. Brokerage should not
require a new breed of
independent, funded
professionals, instead:
• Information is free
• People can do it
• Peers will help
• Communities can include
• Providers must market

24. new models are
developing
building on
community strengths

25. Social Work Rescript
demands a new approach from ASC

26. 4. Peer support

27. PFG
generated quarter of
a million pounds of
value in one year

28. Peer support:
• Simple - not a service
• Growing - the will is there
• Natural - facilitate it
• Powerful - passionate
• Challenging - listen to it

29. 5. Children, health, education...

30. Jonathan’s story
For the 3 years before 150 days in hospital -
responding to problems with breathing.
In the 3 years after leaving hospital he has spent
only 2 nights in hospital - for elective dental
treatments.
Personalised learning - on the job - 2 City & Guilds
Qualifications.
Saving NHS, LA & Education
•Over £100,000 in hospital stays
•Over £300,000 in residential care costs
•Over £100,000 of funding contributed by the LSC

31. “A couple of weeks ago in Sheffield, I met a
wonderful woman called Katrina. She's got three
disabled sons. The oldest is Jonathan, a charming,
warm hearted young man of 19. He can't walk or
talk clearly, or feed himself alone. He's had a
breathing tube in his neck since he was a toddler....
“Now he's doing work with a local charity, attending
a music group, has his own personal assistant...
“Finally as a young man, engaged in life in a way he
and his mother never thought possible. Katrina told
me with the biggest smile I've ever seen, she said:
We've gone from having nothing to having
everything.
“I wish every child's needs would be taken this
seriously.”
Nick Clegg, 17 September 2008.

32. Major opportunities
• End of life care
• Mental health
• Out of area placement
• Continuing Health Care
• Frequent users
• Integrated care

33. Most people want to die at
home, but few do (only c. 15%)
instead they die in expensive,
institutional environments.
Providing support at home is
cheaper and better for
individuals and families.
The NHS could save c. £420
million per year by enabling
personalised support at home.

34. Personalised pathway
we know how to connect up all
the dis-jointed services
we just need to want to do it

35. 6. Investment not procurement

39. 7. Political challenges

41. www.campaignforafairsociety.org
Personalisation is not a panacea
for every problem
in the welfare system.
Personalisation is often
undermined by
underlying ambiguities.
We need to campaign for...

42. 1.Human rights - not services
2.Clear entitlements - not confusion
3.Early support - not crisis
4.Equal access - not institutional care
5.Choice and control - not dependence
6.Fair incomes - not insecurity
7.Fair taxes - not targeted
8.Financial reform - sustainable

43. We still have a long way to go...

44. Some practical suggestions
1.Develop personalised support
2.Use Individual Service Funds (ISFs)
3.Provide community brokerage
4.Enable peer support
5.Think beyond adult social care
6.Challenge ‘procurement’
7.Build bridges, lobby and campaign

45. For more information go to
www.centreforwelfarereform.org
These slides are © Simon Duffy 2012 ￭ Publisher is The
Centre for Welfare Reform ￭ Slides can be distributed subject
to conditions set out at www.centreforwelfarereform.org ￭