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Social Technologies: Engage Patients
Across the Continuum of Care
ePatientExperience.com
December 3, 2013
Learning Objectives
• Recognize the contributions of social media to
the engagement of patients and their family
caregivers
• Identify opportunities to include social
technologies in clinical and operational initiatives
and processes
Great Tweet!
@msbluebells

I feel the same way about hospital gowns as I
do using social media... I am never sure what I
might be showing... :)
3:02 PM - 16 Feb 12 via web · Embed this Tweet
Social Media Defined
Electronic tools that enhance communication, support
collaboration & enable users to generate and share
content
– At least bi-directional
– Dialogue and collaboration in building content
– Easily accessible – anywhere, anytime -- on a mobile device,
laptop or desktop computer
– Immediate – right now
Apps &
Widgets

Virtual
Worlds

Microblog

Blog

Social
Gaming

Social
Technologies

Wiki

Bookmarking

Brands

Social
Networks

Photo
Sharing

Aggregators

RSS
Video
Sharing

Podcast
Healthcare Continuum of Care
Participatory Model

Inform Me

Engage Me

Empower
Me

Partner with
Me

Support my
eCommunity

Static

Transactional

Interactional

Self
Management

Interoperability

EMR
Patient
Portal

Patient
Empowered
Portal

Patient
Empowered
Portal

Information
Exchange

Public
Website

Copyright © 2013 Tower Strategies
Social Media Across the Care Continuum

Patients
& Family

Create a sense of trust
that this is the provider
of choice by beginning
to deliver a smart and
personalized
experience
 Engaging
disease/condition
information
 Self-management
tools
 Physician blogs
 Maps & directions
 Virtual tour
 Health tips
 Following tweets
 Clinical trial
recruiting

Pre-Treatment
Educate and prepare
for the
what, where, how and
why of treatment

 Self assessments
 Social support &
networking
 Campus & indoor
navigation
 Interactive learning
 Multidirectional
information sharing
 Text reminders

Active Treatment
Provide the right support
at the right time in the right
way to improve the
patient’s treatment
experience






Journaling
Social networking
Interactive learning
Messaging
Bookmarking &
organizing information
 Care coordination
 Patient generated data
and information
 Caregiver support

Post Treatment
Support a positive
‘return to life’
experience

 Reminders &
monitoring
 Self-care tools
 Messaging
 Social support &
networking
 Sharing story &
feedback
 Ways to give back
 Ongoing
engagement

Copyright © 2012 Tower Strategies

Worried Well
DRIVERS & TRENDS
Consumer Preferences
on Social Media
• 50% prefer a health provider social networking site
• 14% prefer an integrated approach of hospital
websites and social media
• 57% say a hospitals social media connections would
strongly affect their decision to receive treatment at
that facility
• 81% feel a strong social media presence indicates a
hospitals clinical functions are cutting edge
Online Customer Experience Priority
• Link established between online satisfaction and
financial success
• Highly satisfied visitors report being:
– More likely to return (177%)
– Recommend site to others (185%)
– Use as their primary resource (234%)

• Average satisfaction score for hospitals & health
systems is 74 (100 point scale)
10
New
Payment
Models
Shrinking
Revenue/
Margins

Population
Health

Integrated
Delivery
Systems

Patient
Satisfaction

Healthcare
Climate

Digital &
Mobile
Shift

Accountable
Care

Quality &
Safety
Penalties

Clinical
Outcomes
Enhancement to EHR
• Can’t anticipate every question
• EHR information is rarely written in way
understandable and actionable for patients with
basic or below basic health literacy (90M)
• Too often include long text and use of medical
terms
• Estimates of 77M people with a poor
understanding of basic medical vocabulary and
health concepts (at greatest risk for poor outcomes and readmissions)
Patient/Physician Education
In the exam room 37% of the physician’s time is
spent on patient education
– Patients failed to report 68% of problems
– Physicians report 54% of patients missed their
most important health problem
Understanding Home Care
Instructions
80% of patients discharged from
the emergency department don’t
understand their home care
instructions

14
Caregivers of Young Children
• 47.8% made dosing errors
after standard medication
counseling and 38% did
not adhere to all
instructions
• With pictogram dosing
error rate fell to 5.4% &
only 9.3% did not adhere
to all instructions
15
Evidence-Based Communications
Customized to the learning and language needs of the individual patient

•
•
•
•
•

Patient is part of the team
Advocate for patient
Engage patient
Closed-loop communications
Handoff
Readmissions
• California’s goal is to reduce readmissions by 20%
• The average readmission costs $8000 to $13,000
• Common drivers identified for readmissions:
– Lack of standard discharge processes
– Lack of engagement or activation of patients and families
– Patients call 911 or return to emergency room instead of
accessing a different type of medical service
– Ineffective or unreliable sharing of relevant clinical
information
– Patients did not understand/did not correctly take
medications.
17
Readmissions Opportunities
• Causes
– Heart Failure and Pneumonia (50%)
– COPD (16%)
– Diabetes (13%)

• 51% of discharges did not have timely followup within 30 days*
– 10 times more likely to be readmitted

18
APPLICATIONS ACROSS THE
CARE CONTINNUUM
Patient Online Information Needs
• When questions arise (not always in the exam room)
• Relevant, contextual information on their
condition preferred
• Provider endorsement of information preferred
• User-friendly tools to document and transmit
Apps (Widgets)
• Product selection and communication with
allergist about symptoms and experiences
• Individualizes strategies for managing PTSD,
tracking symptoms, finding local support and
obtaining anonymous assistance for military &
veterans
• Top consumer apps:
– weight loss & exercise – downloaded & more data
– pregnancy – actual use
21
mHealth Apps by Category

Verisoni, 2012

22
Pre-Treatment
• Floyd Medical Center Preoperative Patient
Guide
• Pre-Conception Assessment – Gabby
– High risk of poor reproductive health & family
planning outcomes
– Sixth grade reading level & replay aids in
comprehension
– Relevant, contextual communications based upon
responses
Pre through Post Treatment
• Columbia Valley Community Health
- reach out to and communicate with young, immigrant
and underserved mothers-to-be

• West County Health Centers FQHC
- eliminate the social stressors and underlying barriers
to care
- sharing experiences
- accessing condition specific educational content
- engaging patients to self-manage their chronic
conditions
Active Treatment
• Boston University Discharge Advocate
–
–
–
–
–

Education & aftercare plan
helpful with low literacy
51 min vs. 81 min for live DA
preferred by 74% of patients
encourages patients to be active
participants in their care
– Estimate a 30% decrease in ED
and hospital utilization
– Estimate at least $145 direct cost savings
per patient discharge
Treatment & Post-Treatment Phases
• Northern California Health Centers
– Private social platform to extend care
– Patient engagement outside of provider visits

• United Health Centers of San Joaquin
– Safety-net provider
– Online and mobile platform for providers and
patients to manage chronic disease
Treatment & Post-Treatment Phases
• Children’s Hospital Dallas
– Secure online social networking community
– Current and former patients and families
– Personalized security settings
– Increase communication, support and connections
– Patients/families create and join communities
Post-Treatment
• Social Networking platform for those recovering
from addiction(s)
– Secure access to support 24/7 used by payors and providers
– Case managers
• track across transitions
• filter activity to assess risk of relapse
• Prioritize outreach activities

– One health plan realized a two-thirds reduction in relapse
readmissions over first year
– 67% reduction in readmission rates for those out of treatment
for more than 270 days
– App for anywhere/time access to support
28
Addiction Recovery Results
• Improved handoff communications during transitions
• Improved outcomes with increases support and regular
tracking of progress
• Stronger peer support networks and means to stay connected
• More relevant case management from scheduled check-in and
reporting (e.g. cravings, depression, pain)
• Creation of a behavioral record over time (e.g.
achievements, emotional status, relapse)
• Regular clinical assessment of an individual’s risk of relapse
• Comprehensive reporting of aggregate data
• When these patients relapse, they usually go online first to get
support
Survivorship Research
• Boston Children’s Hospital
– Social media to augment traditional surveillance
methods - hypoglycemia in diabetics
– Expand knowledge of complications from bidirectional conversations among participants
– Learn about experiences that may not be severe
enough for emergency treatment
– Impact on behaviors
Extending to Mobile: Texting
• 90% of text messages are read within 3
minutes*
• Secure, encrypted, protected, traceable texting apps
for physicians, nurses and other staff
communications
• Bandwidth: 1-minute call = 800 text messages**
• Text 911 now available in some markets
• Preferred by young, minorities & Medicaid
beneficiaries
31
Text Message–Based mHealth in Emergency
Department Patients With Diabetes
Adults with diabetic issues who visited an urban,
public ED received two diabetes-related text
messages daily during a 6 month period
– Motivational messages daily;
– Medication reminders three times per week;
– Healthy living challenges twice per week; and
– Trivia questions twice per week.
TExT-MED Results
• blood glucose levels fell by 1.05% and self-reported
medication adherence increased from 4.5 to 5.4 on an
eight-point scale in the intervention group
• 35.9% of patients who received such text messages
visited the ED, compared with 51.6% of those who did
not receive such messages
• effect on medication adherence & disease control was
higher among Spanish-speaking individuals
• Overall, 93.6% of patients who were sent text messages
said they enjoyed receiving them
Partners Healthcare – Texting
• Several studies and findings include:
– Patients feel better connected to care team and
received higher quality of care
– Improved adherence to care plans
– Decrease in “no show” rates
– Sustained behavior changes

• What’s next? Support and feedback improving
weight lost and diabetics outcomes
34
Results: Sunscreen Use

Center for Connected Health
MANAGING THREATS
& RISK
36
What languages does your community speak?
Social Media Learning & Influencing
• Identify attitudes, perception and behavior about
brand and trends
• Social intelligence – listening posts across the
spectrum of social media outlets (today’s newspaper
clipping service)

• Social customer relationship management
(CRM)
• Word of “mouth” promotions
39
What patients share….
• “Inefficient process, long wait”
• “…Bring something to do while you wait”
• “Losing your parking stub is a pain in the ass –
don’t do it.”
• “Dr. xxx is a miracle worker”
• “Free Wi-Fi!”
• YouTube Video of staff brushing hair
Push Content & LISTEN
Related Patient-Centered
Technologies
• Mobile: extend the reach of care and stay
connected with patient populations
• Enterprise portals: single sign-on, proxy access

• Personalization: Contextually relevant
information and education
Patient Experience Improvement
Process
Monitor
Performance

Collect
Information

Build
Strategy &
Roadmap

Engage Top
Down &
Bottom Up

Establish
Shared
Vision
Best Positioned Hospitals
•
•
•
•

Offer social engagement opportunities
User-centered designs
Benefit from resulting patient perceptions
Leverage social media as a care coordination
platform
• Change the way care is provided – esp. post-discharge
• Use social intelligence and directed networks to
advance goals
Christina Thielst, FACHE
Vice President, Social Media
thielst.typepad.com
@TowerStrategies
@cthielst
cthielst@towerstrategies.com
Christina@cthielst.com
805 845-2450

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Using Social Technologies To Engage Patients Across the Continuum of Care

  • 1. Social Technologies: Engage Patients Across the Continuum of Care ePatientExperience.com December 3, 2013
  • 2. Learning Objectives • Recognize the contributions of social media to the engagement of patients and their family caregivers • Identify opportunities to include social technologies in clinical and operational initiatives and processes
  • 3. Great Tweet! @msbluebells I feel the same way about hospital gowns as I do using social media... I am never sure what I might be showing... :) 3:02 PM - 16 Feb 12 via web · Embed this Tweet
  • 4. Social Media Defined Electronic tools that enhance communication, support collaboration & enable users to generate and share content – At least bi-directional – Dialogue and collaboration in building content – Easily accessible – anywhere, anytime -- on a mobile device, laptop or desktop computer – Immediate – right now
  • 6. Healthcare Continuum of Care Participatory Model Inform Me Engage Me Empower Me Partner with Me Support my eCommunity Static Transactional Interactional Self Management Interoperability EMR Patient Portal Patient Empowered Portal Patient Empowered Portal Information Exchange Public Website Copyright © 2013 Tower Strategies
  • 7. Social Media Across the Care Continuum Patients & Family Create a sense of trust that this is the provider of choice by beginning to deliver a smart and personalized experience  Engaging disease/condition information  Self-management tools  Physician blogs  Maps & directions  Virtual tour  Health tips  Following tweets  Clinical trial recruiting Pre-Treatment Educate and prepare for the what, where, how and why of treatment  Self assessments  Social support & networking  Campus & indoor navigation  Interactive learning  Multidirectional information sharing  Text reminders Active Treatment Provide the right support at the right time in the right way to improve the patient’s treatment experience      Journaling Social networking Interactive learning Messaging Bookmarking & organizing information  Care coordination  Patient generated data and information  Caregiver support Post Treatment Support a positive ‘return to life’ experience  Reminders & monitoring  Self-care tools  Messaging  Social support & networking  Sharing story & feedback  Ways to give back  Ongoing engagement Copyright © 2012 Tower Strategies Worried Well
  • 9. Consumer Preferences on Social Media • 50% prefer a health provider social networking site • 14% prefer an integrated approach of hospital websites and social media • 57% say a hospitals social media connections would strongly affect their decision to receive treatment at that facility • 81% feel a strong social media presence indicates a hospitals clinical functions are cutting edge
  • 10. Online Customer Experience Priority • Link established between online satisfaction and financial success • Highly satisfied visitors report being: – More likely to return (177%) – Recommend site to others (185%) – Use as their primary resource (234%) • Average satisfaction score for hospitals & health systems is 74 (100 point scale) 10
  • 12. Enhancement to EHR • Can’t anticipate every question • EHR information is rarely written in way understandable and actionable for patients with basic or below basic health literacy (90M) • Too often include long text and use of medical terms • Estimates of 77M people with a poor understanding of basic medical vocabulary and health concepts (at greatest risk for poor outcomes and readmissions)
  • 13. Patient/Physician Education In the exam room 37% of the physician’s time is spent on patient education – Patients failed to report 68% of problems – Physicians report 54% of patients missed their most important health problem
  • 14. Understanding Home Care Instructions 80% of patients discharged from the emergency department don’t understand their home care instructions 14
  • 15. Caregivers of Young Children • 47.8% made dosing errors after standard medication counseling and 38% did not adhere to all instructions • With pictogram dosing error rate fell to 5.4% & only 9.3% did not adhere to all instructions 15
  • 16. Evidence-Based Communications Customized to the learning and language needs of the individual patient • • • • • Patient is part of the team Advocate for patient Engage patient Closed-loop communications Handoff
  • 17. Readmissions • California’s goal is to reduce readmissions by 20% • The average readmission costs $8000 to $13,000 • Common drivers identified for readmissions: – Lack of standard discharge processes – Lack of engagement or activation of patients and families – Patients call 911 or return to emergency room instead of accessing a different type of medical service – Ineffective or unreliable sharing of relevant clinical information – Patients did not understand/did not correctly take medications. 17
  • 18. Readmissions Opportunities • Causes – Heart Failure and Pneumonia (50%) – COPD (16%) – Diabetes (13%) • 51% of discharges did not have timely followup within 30 days* – 10 times more likely to be readmitted 18
  • 20. Patient Online Information Needs • When questions arise (not always in the exam room) • Relevant, contextual information on their condition preferred • Provider endorsement of information preferred • User-friendly tools to document and transmit
  • 21. Apps (Widgets) • Product selection and communication with allergist about symptoms and experiences • Individualizes strategies for managing PTSD, tracking symptoms, finding local support and obtaining anonymous assistance for military & veterans • Top consumer apps: – weight loss & exercise – downloaded & more data – pregnancy – actual use 21
  • 22. mHealth Apps by Category Verisoni, 2012 22
  • 23. Pre-Treatment • Floyd Medical Center Preoperative Patient Guide • Pre-Conception Assessment – Gabby – High risk of poor reproductive health & family planning outcomes – Sixth grade reading level & replay aids in comprehension – Relevant, contextual communications based upon responses
  • 24. Pre through Post Treatment • Columbia Valley Community Health - reach out to and communicate with young, immigrant and underserved mothers-to-be • West County Health Centers FQHC - eliminate the social stressors and underlying barriers to care - sharing experiences - accessing condition specific educational content - engaging patients to self-manage their chronic conditions
  • 25. Active Treatment • Boston University Discharge Advocate – – – – – Education & aftercare plan helpful with low literacy 51 min vs. 81 min for live DA preferred by 74% of patients encourages patients to be active participants in their care – Estimate a 30% decrease in ED and hospital utilization – Estimate at least $145 direct cost savings per patient discharge
  • 26. Treatment & Post-Treatment Phases • Northern California Health Centers – Private social platform to extend care – Patient engagement outside of provider visits • United Health Centers of San Joaquin – Safety-net provider – Online and mobile platform for providers and patients to manage chronic disease
  • 27. Treatment & Post-Treatment Phases • Children’s Hospital Dallas – Secure online social networking community – Current and former patients and families – Personalized security settings – Increase communication, support and connections – Patients/families create and join communities
  • 28. Post-Treatment • Social Networking platform for those recovering from addiction(s) – Secure access to support 24/7 used by payors and providers – Case managers • track across transitions • filter activity to assess risk of relapse • Prioritize outreach activities – One health plan realized a two-thirds reduction in relapse readmissions over first year – 67% reduction in readmission rates for those out of treatment for more than 270 days – App for anywhere/time access to support 28
  • 29. Addiction Recovery Results • Improved handoff communications during transitions • Improved outcomes with increases support and regular tracking of progress • Stronger peer support networks and means to stay connected • More relevant case management from scheduled check-in and reporting (e.g. cravings, depression, pain) • Creation of a behavioral record over time (e.g. achievements, emotional status, relapse) • Regular clinical assessment of an individual’s risk of relapse • Comprehensive reporting of aggregate data • When these patients relapse, they usually go online first to get support
  • 30. Survivorship Research • Boston Children’s Hospital – Social media to augment traditional surveillance methods - hypoglycemia in diabetics – Expand knowledge of complications from bidirectional conversations among participants – Learn about experiences that may not be severe enough for emergency treatment – Impact on behaviors
  • 31. Extending to Mobile: Texting • 90% of text messages are read within 3 minutes* • Secure, encrypted, protected, traceable texting apps for physicians, nurses and other staff communications • Bandwidth: 1-minute call = 800 text messages** • Text 911 now available in some markets • Preferred by young, minorities & Medicaid beneficiaries 31
  • 32. Text Message–Based mHealth in Emergency Department Patients With Diabetes Adults with diabetic issues who visited an urban, public ED received two diabetes-related text messages daily during a 6 month period – Motivational messages daily; – Medication reminders three times per week; – Healthy living challenges twice per week; and – Trivia questions twice per week.
  • 33. TExT-MED Results • blood glucose levels fell by 1.05% and self-reported medication adherence increased from 4.5 to 5.4 on an eight-point scale in the intervention group • 35.9% of patients who received such text messages visited the ED, compared with 51.6% of those who did not receive such messages • effect on medication adherence & disease control was higher among Spanish-speaking individuals • Overall, 93.6% of patients who were sent text messages said they enjoyed receiving them
  • 34. Partners Healthcare – Texting • Several studies and findings include: – Patients feel better connected to care team and received higher quality of care – Improved adherence to care plans – Decrease in “no show” rates – Sustained behavior changes • What’s next? Support and feedback improving weight lost and diabetics outcomes 34
  • 35. Results: Sunscreen Use Center for Connected Health
  • 37. What languages does your community speak?
  • 38. Social Media Learning & Influencing • Identify attitudes, perception and behavior about brand and trends • Social intelligence – listening posts across the spectrum of social media outlets (today’s newspaper clipping service) • Social customer relationship management (CRM) • Word of “mouth” promotions
  • 39. 39
  • 40. What patients share…. • “Inefficient process, long wait” • “…Bring something to do while you wait” • “Losing your parking stub is a pain in the ass – don’t do it.” • “Dr. xxx is a miracle worker” • “Free Wi-Fi!” • YouTube Video of staff brushing hair
  • 41. Push Content & LISTEN
  • 42. Related Patient-Centered Technologies • Mobile: extend the reach of care and stay connected with patient populations • Enterprise portals: single sign-on, proxy access • Personalization: Contextually relevant information and education
  • 43. Patient Experience Improvement Process Monitor Performance Collect Information Build Strategy & Roadmap Engage Top Down & Bottom Up Establish Shared Vision
  • 44. Best Positioned Hospitals • • • • Offer social engagement opportunities User-centered designs Benefit from resulting patient perceptions Leverage social media as a care coordination platform • Change the way care is provided – esp. post-discharge • Use social intelligence and directed networks to advance goals
  • 45. Christina Thielst, FACHE Vice President, Social Media thielst.typepad.com @TowerStrategies @cthielst cthielst@towerstrategies.com Christina@cthielst.com 805 845-2450

Notes de l'éditeur

  1. Aligned with the National eHealth Collaborative’s 5 Phases of the Patient Engagement Framework
  2. National Research Corporation, Feb 2011 and YouGov Healthcare, 2011
  3. According to ForeSee, 2012 Healthcare Satisfaction Benchmark
  4. Note: AHRQ is developing a measuring system that will rate how well EHRs support patient education. This is the result of the info shared in this slide.
  5. 1. Tang, et al, AMIA 1996: 12-16 and 2. Scheitel, et al. Mayo Clinic Proceedings, 1996
  6. RWJ Foundation, “Care About Your Care” 2013
  7. Study of urban multiethnic, low socioeconomic status caregivers http://www.ncbi.nlm.nih.gov/pubmed/18762597
  8. Misky, Wald, Coleman JHM 2010; 5:392-397
  9. *PEW Internet and American Life Project
  10. Ver
  11. Using virtual worlds and avatars to educate and communicate information to patients and consumers
  12. http://www.well-fx.com/social-networking-is-good-for-the-health/
  13. http://www.childrens.com/new-and-current-patients/current-patients/childrens-social-network/
  14. http://archinte.jamanetwork.com/article.aspx?articleid=1570086#AuthorInformation
  15. *MobileSQUARED and Single Point, “Conversational Advertising” **SafeAmerica Foundation, Text First, Talk Second
  16. according to a study published in the journal Annals of Emergency Medicine, 
  17. according to a study published in the journalAnnals of Emergency Medicine,